Specific Disorder
Presented by:
Margaret Pawlowski
Erin Rutkowsky
Teri Sikri
Counseling Checklist
*Discussion
Before we get started,
consider this question...
Education
Emotional Response
Quality of Life
Team Roles & Expectations
Resources & Support
Education
Diagnosis
Education
Prognosis
Management and treatment
Home management
Psychosocial issues
Education (cont.)
Checklist of Topics to Cover
Emotional Response
Five stages of adaptation for parents of a child with a
deformity or visual handicap:
Quality of Life
Additional members:
Geneticist
Pediatrician
Audiologist
Orthodontist
Nurses
Psychologists
Other professionals as necessary
Foundation of Smiles
http://www.cleftsmile.org
Cleft Meetup
http://www.cleftline.org
http://www.meetup.com/topics/cleft/
Cleft Kids
http://www.cleftkids.org/resources-for-families.html
Education
Approximately 5,600 people in the U.S. are diagnosed with
ALS each year. The incidence of ALS is two per 100,000
people, and it is estimated that as many as 30,000 Americans
may have the disease at any given time.
(ALS Association, 2016)
- What is ALS?
- How does it compare to other neurological conditions?
Emotional Response
-
Anticipatory Grief:
-
Stages of
-
Respiratory Distress
(Rivara, Barlascini, Banfi,
Tangible loss
Symbolic loss
-
Grief
Cyclical Process
-
Patient
Family
(Model, n.d.)
Mini - Case
Study
What stage of grief do you
think each statement
represents?
How might you counsel at
these varying stages of
grief?
Quality of Life
- Treatment
-
Communication
Discussion
Consider this...
Discussion
Consider this...
http://www.alsa.org/
- Support Groups
-
http://www.alsa.org/community/support-groups/
http://www.alsawi.org/?id=25
Grant Program
Cancer:
Total Laryngectomy
Education
Q: What Happens During a Total Laryngectomy?
Some have a TEP puncture hole in both trach.& espophagus. Then later
prosthetic voicebox inserted into TEP.
Allows air from lungs into esophagus
air expelled by mouth. When air
goes from esoph.to mouth, it vibrates tissues in pharynx
produces
sound that is the new voice. SLP helps with all steps of this
transition (i.e., how to speak with it & care for it). Needs to be
replaced regularly.
Emotional Response
Quality of Life
Concerns/Issues Following Total Laryngectomy:
SPOHNC(Support
www.webwhispers.org
www.cancer.org
support groups/mtgs.
1.
2.
http://www.practicalslpinfo.com/swallowing-after-laryngectomy.html along
3.
*Discussion
Consider this...
*Discussion
Consider this...
Questions?
References
ALS Association. (2016). Facts you should know. Retrieved from http://als.org/index.php?
page=about_als&sub=facts
Flasher, L.V. & Fogle, P.T. (2012). Counseling Skills for Speech-Language Pathologists and Audiologists (2nd
ed.). New York: Delmar Cengage Learning.
Fried-Oken, M., Mooney, A., & Peters, B. (2015). Supporting communication for patients with neurodegenerative
disease. Neuro Rehabilitation, 37, 69-87.
Kuttenberger, J., Ohmer, J. N., & Polska, E. (2010). Initial counselling for cleft lip and palate: Parents
evaluation, needs and expectations. International journal of oral and maxillofacial surgery, 39(3), 214-220.
KU Medical Center. (2012). Total laryngectomy education. Retrieved from https://www.youtube.com/watch?
v=LYrIVn4elQY
Mayo Clinic. (2016). Diseases and conditions: Amyotrophic lateral sclerosis. Retrieved from http://www.
mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/care-at-mayo-clinic/tests-diagnosis/con20024397
References (continued)
McColl, D., Hooper, A., & Von Berg, S. (2006). Preoperative counseling in laryngectomy. Contemporary Issues
in Communication Sciences and Disorders, 33, 147-151. doi: 1092-5171/06/3302-0147. Retrieved from http://www.
asha.org/uploadedFiles/asha/publications/cicsd/2006FPreoperativeCounselinginLaryngectomy.pdf#search=%22An%22
Model, J. (n.d.). Coping with grief fact sheet. Retrieved from https://www.als.
ca/sites/default/files/files/Coping%2520with%2520Grief.pdf
Palovcak, M., Mancinelli, J. M., Elman, L. B., & McCluskey, L. (2007). Diagnostic and therapeutic methods in
the management of dysphagia in the ALS population: Issues in efficacy for the out-patient setting.
Neurorehabilitation, 22(6), 417-423.
Polygon Medical Animation. (2014). Laryngectomy, surgical voice restoration medical animation by polygon.
Retrieved from https://www.youtube.com/watch?v=YgrFF2P2Bhk
Providence Health Care. (2015). After your larngectomy. Retrieved from https://www.youtube.com/results?
search_query=Laryngectomy
Rivara, M., Barlascini, C., Banfi, P., Nicolini, A., & Grecchi, B. (2016). Management of the patient with
advanced amyotrophic lateral sclerosis: The caregivers opinion. Romanian Journal of Neurology, 15(1), 36-41.
References (continued)
Rosenbek, J.C. & Troche, M.S. (2013). Progressive neurological disease and dysphagia (including parkinsons
disease, multiple sclerosis, amyotrophic lateral sclerosis, myasthenia gravis, post-polio syndrome). In R.
Shaker, P.C. Belafsky, G.N. Postma, & C. Easterling (Eds.), Principles of Deglutition: A Multidisciplinary
Text for Swallowing and its Disorders (395-410). New York: Springer.
Texas Health Care. (2016). Mr. Grimsinger, his story, after laryngectomy. Retrieved from https://www.youtube.
com/watch?v=oS2ZDZVgCUM
Traynor, B.J., Alexander, M., Corr, B., Frost, E., & Hardiman, O. (2003). Effects of a multidisciplinary
amyotrophic lateral sclerosis (ALS) clinic on ALS survival: A population based study, 1996-2000. Journal of
Neurology, Neurosurgery, and Psychiatry, 74, 1258-1261.
University of Iowa Childrens Hospital. (2016). Cleft Palate. Retrieved from
org/MedicalService/Default.aspx?id=229572
http://www.uichildrens.
Young, J. L., O'Riordan, M., Goldstein, J. A., & Robin, N. H. (2001). What information do parents of newborns
with cleft lip, palate, or both want to know?. The Cleft palate-craniofacial journal, 38(1), 55-58.