#HPM Transcript: Healthcare Social Media

#hpm - Healthcare Social Media Transcript
10/4/12 10:57 AM
#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Sep 26 18:00:00 PDT 2012 Wed Sep 26 19:15:00 PDT 2012 change time period
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rfberry
For the next hour I'll be tweeting about #hospice & #palliative care, please feel free to ask a question or join the conversation. #hpm
Wed Sep 26 18:00:14 PDT 2012
nursefriendly
Wednesday 9/26/12 #Healthcare #Tweetchats (ET) 9p #dsma #hcsmca #hpm #premeded #socmedchap cc. #nurseup #nursefriendly #hospice #eol
Wed Sep 26 18:00:28 PDT 2012
WaywardChad
Followers, please pardon the quantity (but not quality) of additional tweets over the next hour as I join #hpm. http://t.co/zYvbHP2l
Wed Sep 26 18:01:01 PDT 2012
aliciabloom
it's just about time for #hpm tweetchat. for the next hour, expect lots of #hospice & #palliative care. . .
Wed Sep 26 18:01:20 PDT 2012
WaywardChad
MT @rfberry: For next hour I'll be tweeting about #hospice & #palliative care. Feel free to ask a question or join the conversation. #hpm
Wed Sep 26 18:02:05 PDT 2012
rfberry
Welcome to TweetChat, I'm hosting tonight, Renee Berry in Menlo Park, CA. Passionate about early #palliative care & this #hpm community!
Wed Sep 26 18:02:06 PDT 2012
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-26-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 1 of 19
10/4/12 10:57 AM
rfberry
@aliciabloom & @WaywardChad good evening?! How are things in your neck of the woods? #hpm
Wed Sep 26 18:02:43 PDT 2012
rfberry
also, a reminder, if you're 'lurking' as a listener, please feel free to say hello and introduce yourself :) #hpm
Wed Sep 26 18:03:41 PDT 2012
BillPfohl
Hello @rfberry how are things in Menlo Park? #hpm

Wed Sep 26 18:03:58 PDT 2012
WaywardChad
@rfberry @aliciabloom Doing well tonight here in Maryland....been a long day, but glad to be ending it with such a great group. #hpm
Wed Sep 26 18:04:03 PDT 2012
WaywardChad
And by way of intro for anybody who doesn't know: I'm Chad, a social worker and a grad student in #thanatology from MD. #hpm
Wed Sep 26 18:04:55 PDT 2012
rfberry
Hi Bill! The weather's nice, looking forward to folks arriving for #med2! RT @BillPfohl: Hello @rfberry how are things in Menlo Park? #hpm
Wed Sep 26 18:05:04 PDT 2012
aliciabloom
@WaywardChad @rfberry not bad here in Philly! some lovely fall weather recently. #hpm
Wed Sep 26 18:05:06 PDT 2012
rfberry
@WaywardChad @aliciabloom awesome, fall weather is my favorite! #hpm

Wed Sep 26 18:05:58 PDT 2012
jfclearywisc
JIm Cleary, @uwhealth palliative care, Director PPSG (@painpolicy) joing #Hpm chat for the next hour discussing #hospice & #palliative care
Wed Sep 26 18:06:43 PDT 2012
WaywardChad
Mine, too! So glad it's coming -- been a looooong summer! RT @rfberry: @WaywardChad @aliciabloom awesome, fall weather is my favorite! #hpm
Wed Sep 26 18:06:44 PDT 2012
aliciabloom
good to see you again, @jfclearywisc! #hpm

Wed Sep 26 18:07:31 PDT 2012
rfberry
Hi Jim @jfclearywisc, good to see you! We'll get started with the first topic in just a couple of minutes. #hpm
Wed Sep 26 18:07:34 PDT 2012
WaywardChad
And good evenin' @BillPfohl and @jfclearywisc ... always good to see you knowledgeable gents. #hpm
Page 2 of 19
10/4/12 10:57 AM
Wed Sep 26 18:07:46 PDT 2012
rfberry
T1 What are your thoughts on this article? Palliative care fits #catholic health mission, but too few aware of it: http://t.co/C173lGDE #hpm
Wed Sep 26 18:08:45 PDT 2012
Pallimed
Good evening all. Christian Sinclair here a little late, tweeting as Pallimed tonight. #HPM
Wed Sep 26 18:08:46 PDT 2012
BillPfohl
@WaywardChad good to see you too... #hpm

Wed Sep 26 18:09:08 PDT 2012
aliciabloom
@Pallimed how fun! #hpm

Wed Sep 26 18:09:18 PDT 2012
rfberry
@Pallimed hey Christian! You're just in time for T1! #hpm

Wed Sep 26 18:09:42 PDT 2012
ctsinclair
Ah got the sign in fixed, back to my old self #HPM

Wed Sep 26 18:09:47 PDT 2012
WaywardChad
MT @rfberry: T1 Thoughts on this article? Palliative care fits #catholic health mission, but too few aware of it: http://t.co/lJSMelyt #hpm
Wed Sep 26 18:10:08 PDT 2012
ctsinclair
@aliciabloom The sign in was giving me fits, but I got it figured out! #HPM
Wed Sep 26 18:10:11 PDT 2012
jfclearywisc
@rfberry I have used this focus w many #catholic hospitals. It is how many started. Need to go back to roots! #hpm
Wed Sep 26 18:10:19 PDT 2012
rfberry
@jfclearywisc interesting. When you say you've used this focus, do you mean you remind administrators palliative care aligns w/mission? #hpm
Wed Sep 26 18:11:32 PDT 2012
ctsinclair
I worked doing palliative med consults at a Catholic hospital and they were big advocates for palliative care #HPM
Wed Sep 26 18:12:06 PDT 2012
aliciabloom
#palliative care = returning to Catholic roots: the kind of care that was provided to the critically ill prior to all this technology" #hpm
Wed Sep 26 18:12:26 PDT 2012
RossJeanette
Hi all, Jeanette Ross HPM doc, associate fellowship director, joining in a little late #hpm
Wed Sep 26 18:12:28 PDT 2012
Page 3 of 19
10/4/12 10:57 AM
ctsinclair
In the KC health care arena, the Catholic Hospitals have led much of the palliative care and ethics advances in past two decades #HPM
Wed Sep 26 18:12:57 PDT 2012
jfclearywisc
@rfberry Yes. Many WIsconsin hosptials are #catholic. 30% of Illinois hospitals are Catholic. Need to remind administrators of origins. #hpm
Wed Sep 26 18:13:50 PDT 2012
rfberry
@ctsinclair do you think the primary issue is lack of palliative care awareness or confusing palliative care with death w/dignity? #hpm
Wed Sep 26 18:13:57 PDT 2012
rfberry
@RossJeanette Great to see you Jeanette! Have I told you that before I met you I thought your name was Ross. haha #hpm
Wed Sep 26 18:14:44 PDT 2012
ctsinclair
T1 There can be some confusion in parishioners re: Catholic teaching on food and fluids, but the priests and nuns helped give context #HPM
Wed Sep 26 18:14:48 PDT 2012
BillPfohl
It's not just Catholics, one of the biggest complaints we get is from people who say they wish they knew about hospice earlier. #hpm
Wed Sep 26 18:14:49 PDT 2012
RossJeanette
T1 "the Catholic approach is to neither hasten death nor prolong life endlessly". HPM does that and decrease suffering as well. #hpm
Wed Sep 26 18:14:51 PDT 2012
OIGatHHS
Is hospice care important to you? Read about some of OIGs recommendations in our Spotlight: http://t.co/HimvP5HI #hpm
Wed Sep 26 18:15:06 PDT 2012
ctsinclair
In Wahington and Oregon it might be more challenging because of the legalization of physician assisted death #HPM
Wed Sep 26 18:15:31 PDT 2012
jfclearywisc
@rfberry Care of the dying was not one of the "Acts of mercy" but caring for sick is. IN early days; if you got sick, death likely. #hpm
Wed Sep 26 18:15:48 PDT 2012
RossJeanette
@rfberry haha yeah @jeanetteross was already taken so I went with @rossjeanette #hpm
Wed Sep 26 18:15:56 PDT 2012
rfberry
@BillPfohl absolutely. When I worked in #hospice, people who say they wish they knew about hospice earlier was the # 1 thing I heard. #hpm
Wed Sep 26 18:16:33 PDT 2012
Page 4 of 19
10/4/12 10:57 AM
ctsinclair
OK I never thought I Would see a OIG tweet about #hospice!! Would love to have @OIGatHHS joIn us in Tweetchat sometime. #dreaming #HPM
Wed Sep 26 18:17:02 PDT 2012
jfclearywisc
@ctsinclair T1 Still some confusion with priests. Depends on diosese. Illinois bishops have v good statemt, written by Miles Sheehan SJ #HPM
Wed Sep 26 18:17:57 PDT 2012
BillPfohl
People associate hospice and palliative medicine with imminent death we have to change that #hpm
Wed Sep 26 18:18:02 PDT 2012
rfberry
@jfclearywisc how/why do you think it became politicized? #hpm

Wed Sep 26 18:18:11 PDT 2012
SteveBednarski
"@rfberry: also, a reminder, if you're 'lurking' as a listener, please feel free to say hello and introduce yourself :) #hpm" hello everyone
Wed Sep 26 18:18:11 PDT 2012
ctsinclair
@jfclearywisc good point about regional variations in presence of Catholic Health Care systems. #HPM
Wed Sep 26 18:18:14 PDT 2012
aliciabloom
issues of artificial nutrition & hydration often unnecessary barriers to #hospice for Catholic patients; need supportive counseling #hpm
Wed Sep 26 18:18:25 PDT 2012
rfberry
RT @OIGatHHS: Is hospice care important to you? Read about some of OIGs recommendations in our Spotlight: http://t.co/HimvP5HI #hpm
Wed Sep 26 18:18:26 PDT 2012
rfberry
@ctsinclair awesome! #hpm

Wed Sep 26 18:18:43 PDT 2012
ctsinclair
@jfclearywisc I've seen that statement. It does depend somewhat on the diocese you are correct. #HPM
Wed Sep 26 18:18:50 PDT 2012
aliciabloom
RT @OIGatHHS: Is hospice care important to you? Read about some of OIGs recommendations in our Spotlight: http://t.co/J8TI7gNN #hpm
Wed Sep 26 18:18:55 PDT 2012
BillPfohl
@ctsinclair I wonder if that was one of those automated tweets? #hpm

Wed Sep 26 18:19:20 PDT 2012
WaywardChad
RT @OIGatHHS: Is hospice care important to you? Read about some of OIGs

Page 5 of 19
10/4/12 10:57 AM
recommendations in our Spotlight: http://t.co/VIlaygfx #hpm

Wed Sep 26 18:19:25 PDT 2012
aliciabloom
@rfberry @jfclearywisc i think it's politicized because it somehow gets tied to into the right to life/pro-life rhetoric. #hpm
Wed Sep 26 18:19:55 PDT 2012
ctsinclair
@BillPfohl Oh I'm sure it was. Thats why I invited them to join us. They can read it in the AM! #HPM
Wed Sep 26 18:20:11 PDT 2012
rfberry
We're abt to move to T2 (which is related to the same article) but please take a minute to share any other general thoughts you have. #hpm
Wed Sep 26 18:20:23 PDT 2012
ctsinclair
RT @aliciabloom: i think its politicized because it somehow gets tied to into the right to life/pro-life rhetoric. "likely" #HPM
Wed Sep 26 18:20:31 PDT 2012
jfclearywisc
@rfberry Misinterpretation of gospels. I remind #catholics struggling with #EOLC teaching. JPII elected to die at home wout ventilator! #hpm
Wed Sep 26 18:20:35 PDT 2012
WaywardChad
RT @aliciabloom i think its politicized because it somehow gets tied to into the right to life/pro-life rhetoric. #hpm
Wed Sep 26 18:20:52 PDT 2012
rfberry
Maybe :) Either way, I'm open to encouraging more. RT @BillPfohl @ctsinclair I wonder if that was one of those automated tweets? #hpm
Wed Sep 26 18:20:59 PDT 2012
ctsinclair
Lots of progressive medical ethics re end of life came from Catholic health care leaders. #HPM
Wed Sep 26 18:21:19 PDT 2012
rfberry
@jfclearywisc that's a good reminder! #hpm

Wed Sep 26 18:21:26 PDT 2012
ctsinclair
@jfclearywisc Ha I've done that as well. #HPM

Wed Sep 26 18:21:39 PDT 2012
rfberry
Interesting. RT @ctsinclair Lots of progressive medical ethics re end of life came from Catholic health care leaders. #hpm
Wed Sep 26 18:21:52 PDT 2012
WaywardChad
MT @jfclearywisc Misinterpret gospels. I remind #catholics struggling with #EOLC teaching. JPII elected to die at home w/o ventilator! #hpm
Page 6 of 19
10/4/12 10:57 AM
Wed Sep 26 18:22:04 PDT 2012
rfberry
T2 Should patients 'have' this ability? Ron Hamel says they have an inability to deal with their own finitude http://t.co/C173lGDE #hpm
Wed Sep 26 18:22:41 PDT 2012
jfclearywisc
@ctsinclair T1 Agree. e.g. double effect is Catholic teaching. But I think it is often used out of context to hasten death. #HPM
Wed Sep 26 18:22:59 PDT 2012
ctsinclair
@jfclearywisc I was planning on not discussing double effect on Twitter. The good may outweigh the bad. ;) #HPM
Wed Sep 26 18:23:57 PDT 2012
WaywardChad
MT @rfberry: T2 Should patients have ability? Ron Hamel says they have inability to deal with their own finitude http://t.co/lJSMelyt #hpm
Wed Sep 26 18:23:59 PDT 2012
aliciabloom
@jfclearywisc and without a PEG tube, although I believe JPII had a dobhoff tube in the last few days. #hpm
Wed Sep 26 18:24:03 PDT 2012
SusanSauter
Wed Sep 26 18:24:49 PDT 2012
ctsinclair
@rfberry I think more people have the ability to deal with their own finitude/mortality if given the right support. #HPM
Wed Sep 26 18:24:54 PDT 2012
pamressler
Hi All...sorry to be late...catching my breath after hosting #s4pm tonight #hpm

Wed Sep 26 18:25:17 PDT 2012
WaywardChad
T2: I think people DO have this ability, but sometimes it just takes the right nurturing and support....like @ctsinclair beat me to. #hpm
Wed Sep 26 18:25:52 PDT 2012
ctsinclair
T2 sometimes I feel the 'can't deal with dying' storyline is overused. It more likely fits public expectation then reality. #HPM
Wed Sep 26 18:25:57 PDT 2012
WaywardChad
RT @ctsinclair: T2 sometimes I feel the cant deal with dying storyline is overused. It more likely fits public expectation then reality #hpm
Wed Sep 26 18:26:36 PDT 2012
rfberry
@pamressler ha! Welcome Pam!! For anyone who doesn't know Pam she does amazing research on patient blogs w/ @TuftsUniversity #hpm
Wed Sep 26 18:26:37 PDT 2012
Page 7 of 19
10/4/12 10:57 AM
aliciabloom
i think most people don't want to deal with "their own finitude," however with the right support (like #palliative care) they can. #hpm
Wed Sep 26 18:26:39 PDT 2012
jfclearywisc
@aliciabloom I am pretty sure that was done in hospital but was gone for his last balcony appearance days before he died.. #hpm
Wed Sep 26 18:26:50 PDT 2012
ctsinclair
T2 kind of similar to "all kids with cancer must be sad, so here is a story of a kid who isn't!" are they media cliches? #HPM
Wed Sep 26 18:26:53 PDT 2012
BillPfohl
Article says 180 million ppl will die in next 25 years.Our population is at 312 million. Half the country will be dealing with finitude #hpm
Wed Sep 26 18:27:28 PDT 2012
rfberry
@ctsinclair Providers should be really careful with that kind of language, it seems to point to frustration w/patient's experience #hpm
Wed Sep 26 18:27:28 PDT 2012
ctsinclair
@WaywardChad I'm ok with it being said in many ways and many times! Tweetchat is not a race! #HPM
Wed Sep 26 18:27:33 PDT 2012
aliciabloom
@jfclearywisc that sounds right to me. i knew i was fuzzy on the details. #hpm
Wed Sep 26 18:27:38 PDT 2012
jfclearywisc
@ctsinclair lol #HPM

Wed Sep 26 18:27:43 PDT 2012
WaywardChad
@ctsinclair Exactly -- I think people should be given more credit -- and more ability -- to actually confront their "finitude". #hpm
Wed Sep 26 18:27:55 PDT 2012
ctsinclair
@pamressler hey Pam! #HPM

Wed Sep 26 18:27:59 PDT 2012
ctsinclair
RT @BillPfohl: Article says 180M ppl will die in next 25 years.Our population is at 312M. 1/2 country will be dealing w/ finitude #HPM
Wed Sep 26 18:28:36 PDT 2012
pamressler
@rfberry Thx for that kind intro :-) #hpm

Wed Sep 26 18:28:42 PDT 2012
equijada
Hi folks...joining late. Catholics, double effect. I missed good topics. #hpm

Page 8 of 19
10/4/12 10:57 AM
Wed Sep 26 18:28:59 PDT 2012
pamressler
@ctsinclair Hi Christian! #hpm

Wed Sep 26 18:29:11 PDT 2012
ctsinclair
@rfberry which language? Sorry lots o tweets. #HPM

Wed Sep 26 18:29:26 PDT 2012
jfclearywisc
@rfberry INteresting. I ask patients who identify a faith: "how does death/dying fit into ur religious beliefs?" #hpm
Wed Sep 26 18:30:23 PDT 2012
rfberry
an inability to deal with their own finitude RT @ctsinclair @rfberry which language? Sorry lots o tweets. #hpm
Wed Sep 26 18:30:26 PDT 2012
ctsinclair
@rfberry my point is sometimes the stories featuring patients are fit into journalists mold/expectations, and uniqueness is dropped #HPM
Wed Sep 26 18:30:40 PDT 2012
rfberry
Hi Earl! RT @equijada Hi folks...joining late. Catholics, double effect. #hpm

Wed Sep 26 18:31:09 PDT 2012
ctsinclair
@rfberry ah gotcha. I thought you were talking about language I used. #HPM
Wed Sep 26 18:31:18 PDT 2012
ctsinclair
@jfclearywisc Not an opening line I am guessing. One used after a little repos is built of course. #HPM
Wed Sep 26 18:31:58 PDT 2012
ctsinclair
@equijada hey Earl! Remind me later to ask you to be my guinea pig for a tech experiment #HPM
Wed Sep 26 18:32:25 PDT 2012
ctsinclair
@jfclearywisc *repoire not repos #HPM

Wed Sep 26 18:33:00 PDT 2012
jfclearywisc
@rfberry For those of Chrisitan faith, death is part of teaching. But many still scared. Priests often more so (from my experience)! #hpm
Wed Sep 26 18:33:03 PDT 2012
rfberry
I disagree with this sentiment to patients"an inability to deal with their own finitude -> speaks to frustration w/patient experience #hpm
Wed Sep 26 18:33:05 PDT 2012
T2 We often in this chat discuss the importance of patient decisions in that it's ok for people
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-26-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 9 of 19
10/4/12 10:57 AM
rfberry
to want agressive curative treatment #hpm

Wed Sep 26 18:33:35 PDT 2012
jfclearywisc
@ctsinclair It can come in pretty early if patient expresses understanding they are dying! #HPM
Wed Sep 26 18:34:08 PDT 2012
equijada
@ctsinclair excellent! reminder in place. #hpm

Wed Sep 26 18:34:33 PDT 2012
jfclearywisc
@ctsinclair I guessed that but was happy to reposition people if needed! #HPM
Wed Sep 26 18:34:41 PDT 2012
ctsinclair
@jfclearywisc ah but teaching about role of Death in Christian faith sometimes gives conflicting messages in my experience #HPM
Wed Sep 26 18:35:06 PDT 2012
rfberry
T2 I think an inability to deal with their own finitude is a somewhat judgmental statement to pts, what do you think about this? #hpm
Wed Sep 26 18:35:27 PDT 2012
aliciabloom
@ctsinclair in what way? #hpm

Wed Sep 26 18:35:41 PDT 2012
ctsinclair
@rfberry I agree with you on this one Renee. #HPM

Wed Sep 26 18:35:59 PDT 2012
jfclearywisc
@rfberry: T2 it's ok for people to want "agressive curative treatment" but they need to understand. Very few diseases are cured! #hpm
Wed Sep 26 18:36:07 PDT 2012
WaywardChad
MT @rfberry: T2 Think an inability to deal with their own finitude is a somewhat judgmental statement to pts, what do you think? #hpm
Wed Sep 26 18:36:21 PDT 2012
aliciabloom
me too! RT @ctsinclair: @rfberry I agree with you on this one Renee. #hpm
Wed Sep 26 18:36:27 PDT 2012
rfberry
interesting how? RT @ctsinclair teaching about role of Death in Christian faith sometimes gives conflicting messages in my experience #hpm
Wed Sep 26 18:36:42 PDT 2012
ctsinclair
@aliciabloom I've just seen patients share two sides to understanding life and death, both supported with verse and pastor teachings #HPM
Wed Sep 26 18:36:46 PDT 2012
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-26-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 10 of 19
10/4/12 10:57 AM
jfclearywisc
@aliciabloom Yeah @ctsinclair IN what way? #hpm

Wed Sep 26 18:36:57 PDT 2012
ctsinclair
@aliciabloom Too many various ways to mention in short tweets without flooding the tweetchat #HPM
Wed Sep 26 18:37:17 PDT 2012
jfclearywisc
@ctsinclair A living with ambivalence!!! #HPM

Wed Sep 26 18:37:24 PDT 2012
WaywardChad
T2: Think it's judgmental. I think it's more likely it's easier to THINK people don't wanna talk about it so they don't have to. #hpm
Wed Sep 26 18:37:24 PDT 2012
aliciabloom
i think most people don't want to "deal with their own finitude," however with the right support. . .they can & they will. #hpm
Wed Sep 26 18:37:34 PDT 2012
aliciabloom
@ctsinclair i understand now that you've elaborated. #hpm

Wed Sep 26 18:37:55 PDT 2012
ctsinclair
@jfclearywisc @aliciabloom long complicated stories with too much chance for misinterpretatio. I'll buy you two drinks in NOLA #HPM
Wed Sep 26 18:37:58 PDT 2012
ctsinclair
RT @WaywardChad: Think its judgmental. its more likely its easier to THINK people dont wanna talk about it so they dont have to. #HPM
Wed Sep 26 18:38:25 PDT 2012
ctsinclair
@WaywardChad Bingo! #HPM

Wed Sep 26 18:38:31 PDT 2012
aliciabloom
it's the whole dichotomy of: "we can't stop because we're waiting for a miracle" AND "it's in God's hands." #hpm
Wed Sep 26 18:38:41 PDT 2012
rfberry
@ctsinclair I would like to invite myself to join for drinks in NOLA haha :) #hpm
Wed Sep 26 18:38:55 PDT 2012
WaywardChad
RT @ctsinclair: ah but teaching about role of Death in Christian faith sometimes gives conflicting messages in my experience #hpm
Wed Sep 26 18:39:11 PDT 2012
aliciabloom
@ctsinclair @jfclearywisc i'm in! and i'd love to @rfberry, too :) #hpm
Wed Sep 26 18:39:26 PDT 2012
Page 11 of 19
10/4/12 10:57 AM
ctsinclair
@aliciabloom That is one of them! #HPM

Wed Sep 26 18:39:32 PDT 2012
MedicaidFraud
Wed Sep 26 18:39:43 PDT 2012
jfclearywisc
@rfberry May I ask a ? (I'm going to) How comfortable are folks talking about religion with patients at/.near EOL.....? #hpm
Wed Sep 26 18:39:58 PDT 2012
rfberry
@WaywardChad agree, & often don't know the right time to bring it up. I don't think the burden to initiate should be on patients. #hpm
Wed Sep 26 18:40:01 PDT 2012
ctsinclair
@rfberry all are welcome to the annual Pallimed party at @AAHPM in NOLA in 2013 #HPM
Wed Sep 26 18:40:06 PDT 2012
WaywardChad
I think I get what @ctsinclair is trying to say: on one hand, we're supposed to embrace life, but on the other, sweet hereafter awaits. #hpm
Wed Sep 26 18:40:10 PDT 2012
BillPfohl
Pts can't "deal with their own finitude? Hell I've know MDs who couldn't tell a pts about their own finitude... #hpm
Wed Sep 26 18:40:36 PDT 2012
jfclearywisc
@aliciabloom @ctsinclair What drinks are in an @rfberry #hpm

Wed Sep 26 18:41:15 PDT 2012
rfberry
We're about to move to T3, a new article and topic so please take a minute to share final thoughts on 'dealing with our finitude' #hpm
Wed Sep 26 18:41:18 PDT 2012
Kamiyamay
@jfclearywisc Not religion but can talk spirituality - two different things #hpm
Wed Sep 26 18:41:33 PDT 2012
WaywardChad
This! RT @BillPfohl Pts can't "deal with their own finitude? Hell I've know MDs who couldn't tell a pts about their own finitude... #hpm
Wed Sep 26 18:41:46 PDT 2012
aliciabloom
@jfclearywisc i think it's critically important. when i can, i will address faith/spirituality during an initial visit. #hpm
Wed Sep 26 18:42:05 PDT 2012
aliciabloom
haha! excuse my typo. it's been a looooong week. RT @jfclearywisc: @aliciabloom @ctsinclair What drinks are in an @rfberry #hpm
Wed Sep 26 18:42:20 PDT 2012
Page 12 of 19
10/4/12 10:57 AM
equijada
t2: I ask about religion and spirituality. Rarely (so rare I can't remember) about theology. #hpm
Wed Sep 26 18:42:22 PDT 2012
jfclearywisc
@Kamiyamay Agree they can B different but 4 some spirituality v caught up in religion. I'm v comfortable asking questions. No preaching #hpm
Wed Sep 26 18:43:10 PDT 2012
rfberry
RT @aliciabloom I think its critically important. when I can, I will address faith/spirituality during an initial visit. #chsocm #hpm
Wed Sep 26 18:43:40 PDT 2012
Kamiyamay
@equijada when sharing last breaths, last days last months it comes up almost every time except the witch I had for a pt #hpm
Wed Sep 26 18:43:44 PDT 2012
ctsinclair
RT @BillPfohl Pts can't "deal with their own finitude? Hell I've know MDs who couldn't tell a pts about their own finitude "ZING! True" #HPM
Wed Sep 26 18:43:50 PDT 2012
ctsinclair
I nominate @BillPfohl zinger of a tweet for tweet of the night! #HPM

Wed Sep 26 18:44:18 PDT 2012
rfberry
So T3 is slightly political, but I'd like to keep the conversation focused on the topic, rather than the person sighted in the article. #hpm
Wed Sep 26 18:44:38 PDT 2012
rfberry
T3 How would you feel about an inpatient #hospice in your neighborhood? Does it help or hurt your community? http://t.co/HkWTeiO2 #hpm
Wed Sep 26 18:44:52 PDT 2012
pamressler
RT @rfberry: RT @aliciabloom I think its critically important. when I can, I will address faith/spirituality during initial visit. #hpm
Wed Sep 26 18:44:57 PDT 2012
Kamiyamay
@ctsinclair Yikes how can look death in eye without thinking about it! #hpm
Wed Sep 26 18:45:13 PDT 2012
WaywardChad
MT @rfberry: So T3 is slightly political, but keep the conversation focused on the topic, rather than the person sighted in the article #hpm
Wed Sep 26 18:45:29 PDT 2012
ctsinclair
RT @rfberry: How would you feel abt an inpatient #hospice in your neighborhood? Does it help/hurt your community? http://t.co/GQNPqjjC #HPM
Wed Sep 26 18:45:45 PDT 2012
Page 13 of 19
10/4/12 10:57 AM
WaywardChad
RT @rfberry: T3 How would you feel about an inpatient #hospice in your neighborhood? Help or hurt your community? http://t.co/QfZCm8lv #hpm
Wed Sep 26 18:45:54 PDT 2012
equijada
@Kamiyamay it comes up regularly for me as well...better when the patient is awake and alert. #hpm
Wed Sep 26 18:46:26 PDT 2012
aliciabloom
RT @rfberry: How would you feel re: inpatient #hospice in your neighborhood? Does it help or hurt your community? http://t.co/CDIlYAZE #hpm
Wed Sep 26 18:46:43 PDT 2012
pamressler
RT @rfberry: How would you feel abt an inpatient #hospice in your neighborhood? Does it help/hurt your community? http://t.co/kUCMTFnY #hpm
Wed Sep 26 18:46:55 PDT 2012
ctsinclair
T3 a hospice IPU (inpatient unit) is a health care facility w/ traffic (lots of family visits) and truck/ambulances too #noSirens #HPM
Wed Sep 26 18:47:45 PDT 2012
equijada
Our company, @hospicewithouttwitter is buidling an IPU. Had to deal with same community backlash. Did very well. #hpm
Wed Sep 26 18:48:15 PDT 2012
pamressler
T3 Ummm....I know too much about this specific issue, as I live in a nearby community in MA...I would love to hear others comments #hpm
Wed Sep 26 18:48:17 PDT 2012
WaywardChad
T3: To me, it just shows that people really don't feel comfortable with #death and #hospice...I think it would be a good thing! #hpm
Wed Sep 26 18:48:25 PDT 2012
ctsinclair
When we built out Hospice IPU in KC ambassadors reached out to neighbors to talk to them before hand and build organic support #HPM
Wed Sep 26 18:48:35 PDT 2012
jfclearywisc
@ctsinclair Good point. Really does depend on the neighborhood. #noSirens #HPM
Wed Sep 26 18:48:55 PDT 2012
Kamiyamay
Re: Inpatient - many patient family can't deal or overwhelming circumstances. As a nurse in the community it awesome 2 get pt in safe #hpm
Wed Sep 26 18:49:01 PDT 2012
rfberry
@ctsinclair are you saying #nosirens in that you would not want them in your neighborhood, or w/hospice sirens wouldn't be the norm? #hpm
Wed Sep 26 18:49:12 PDT 2012
@equijada You totally goofed me with your fake twitter handle! #HPM
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-26-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 14 of 19
10/4/12 10:57 AM
ctsinclair
Wed Sep 26 18:49:24 PDT 2012
WaywardChad
T3 cont: I wonder if people would have the same concerns if it was a hospital and not a hospice? #hpm
Wed Sep 26 18:49:35 PDT 2012
ctsinclair
@pamressler good disclaimer. #HPM

Wed Sep 26 18:49:46 PDT 2012
rfberry
@equijada too funny! @hospicewithouttwitter #hpm

Wed Sep 26 18:49:53 PDT 2012
rfberry
me too! haha RT @ctsinclair: @equijada You totally goofed me with your @hospicewithouttwitter handle! #hpm
Wed Sep 26 18:50:18 PDT 2012
ctsinclair
@rfberry i meant to emphasize With hospice sirens would be less likely than most other health care facilities. #HPM
Wed Sep 26 18:50:24 PDT 2012
Kamiyamay
In our community the inpatient facility was very upstanding all who used it loved their experience (good manager that division)! #hpm
Wed Sep 26 18:50:37 PDT 2012
rfberry
@pamressler interesting! I would think, that a hospice in the community would be a benefit, but maybe backyard is too close? #hpm
Wed Sep 26 18:50:54 PDT 2012
ctsinclair
@WaywardChad From my reading I did not really see they were upset about the dying, but hard to say from distant reporting #HPM
Wed Sep 26 18:50:58 PDT 2012
aliciabloom
there is a lovely residential hospice in Mt Airy, a neighborhood of Philadelphia. it's an old victorian home & it fits right in. #hpm
Wed Sep 26 18:51:12 PDT 2012
jfclearywisc
RT @rfberry: @pamressler interesting! I would think, that a hospice in a community would be a benefit, but maybe backyard is too close? #hpm
Wed Sep 26 18:51:17 PDT 2012
ctsinclair
RT @Kamiyamay: In our community the inpatient facility was very upstanding all who used it loved their experience. #HPM
Wed Sep 26 18:51:18 PDT 2012
rfberry
@ctsinclair cool, that's what I would think, but I don't live by one so I can't say I know. #hpm
Wed Sep 26 18:51:23 PDT 2012
Page 15 of 19
10/4/12 10:57 AM
ctsinclair
T3 it also helped that with construction we built a walking path for the neighborhood, and had a public accessible labyrinth #HPM
Wed Sep 26 18:51:57 PDT 2012
BillPfohl
Educate me people....do the super rich, the 1% use hospice or palliative services? #hpm
Wed Sep 26 18:52:24 PDT 2012
IntellaTriage
RT @GriefHealing: Outstanding! Learning to Love #Hospice http://t.co/IoLcmpxP #caregiving #hpm

Wed Sep 26 18:52:25 PDT 2012
aliciabloom
sadly, the misconceptions about hospice lead to unfortunate dialogues like this one with Romney in Massachusetts #hpm
Wed Sep 26 18:52:44 PDT 2012
equijada
@ctsinclair got mayor support. Re: #nosirens We are also a #nogurney operation. Patients are transferred in a converted garage #hpm
Wed Sep 26 18:52:57 PDT 2012
Kamiyamay
Re; Inpatient unit -it was beautiful, always told the nurses there i was going to come live with them - my nickname for it was Haven! #hpm
Wed Sep 26 18:53:08 PDT 2012
WaywardChad
RT @aliciabloom: sadly, the misconceptions about hospice lead to unfortunate dialogues like this one with Romney in Massachusetts #hpm
Wed Sep 26 18:53:15 PDT 2012
chemosabe
Morning all just watching this am. On iPhone with low batt. The topics r always important. Never stop the discussions. #dwdchat #hpm
Wed Sep 26 18:53:20 PDT 2012
ctsinclair
@equijada Nice. Mayor and city council support is good idea too. #HPM
Wed Sep 26 18:53:45 PDT 2012
pamressler
As a point of reference, there is an inpatient hospice in an upscale neighborhood in another MA suburb, have co-existed beautifully #hpm
Wed Sep 26 18:54:05 PDT 2012
jfclearywisc
@chemosabe Welcome. almost lunchtime!! #hpm

Wed Sep 26 18:54:12 PDT 2012
rfberry
@aliciabloom may have also been publishers jumping on the name/trying to get views where normally it'd have been a community issue. #hpm
Wed Sep 26 18:54:37 PDT 2012
I get the impression this hospice IPU situation was more of an ambush, then a planned
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-26-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 16 of 19
10/4/12 10:57 AM
ctsinclair
situation So I can't fault them for wanting input #HPM

Wed Sep 26 18:54:48 PDT 2012
WaywardChad
MT @pamressler: As reference, there is an inpatient hospice in an upscale neighborhood in another MA suburb, have coexisted beautifully #hpm
Wed Sep 26 18:55:02 PDT 2012
rfberry
T3 I would love it in my neighborhood as a place I could conveniently & consistently volunteer! #hpm
Wed Sep 26 18:55:40 PDT 2012
ctsinclair
@rfberry agreed that it was a little heavily angled for that reason in the article and I'm not voting for Romney. #HPM
Wed Sep 26 18:56:09 PDT 2012
WaywardChad
Me, too! RT @rfberry: T3 I would love it in my neighborhood as a place I could conveniently & consistently volunteer! #hpm
Wed Sep 26 18:56:21 PDT 2012
Kamiyamay
RT @rfberry: T3 I would love it in my neighborhood as a place I could conveniently & consistently volunteer! #hpm
Wed Sep 26 18:56:23 PDT 2012
pamressler
@jfclearywisc My comments refer to who has been opposing the hospice in Belmont MA -- I feel it would be an asset to the community #hpm
Wed Sep 26 18:56:31 PDT 2012
rfberry
We're up to our last few minutes! #TimeFlying! Please take the last few minutes to share any closing thoughts about our chat tonight! #hpm
Wed Sep 26 18:56:42 PDT 2012
aliciabloom
thanks for hosting a great chat @rfberry! #hpm

Wed Sep 26 18:57:25 PDT 2012
BillPfohl
@rfberry Is it right to volunteer at a for profit hospice? #hpm

Wed Sep 26 18:57:32 PDT 2012
ctsinclair
RT @BillPfohl: @rfberry Is it right to volunteer at a for profit hospice? "it is mandated by the hospice benefit" #HPM
Wed Sep 26 18:58:10 PDT 2012
Kamiyamay
Lth: just discussed today inpatient for Pedi-palliative--now that is a tough issue to sell! But one needed also! #hpm
Wed Sep 26 18:58:16 PDT 2012
rfberry
I'll go with a firm yes on this one. RT @BillPfohl @rfberry Is it right to volunteer at a for profit #hospice? #hpm
Page 17 of 19
10/4/12 10:57 AM
Wed Sep 26 18:58:16 PDT 2012
jfclearywisc
@pamressler Understand!!! I refrained from making comments about this story for risk of getting into trouble!!!! #hpm
Wed Sep 26 18:58:22 PDT 2012
WaywardChad
Final thought: I learned a new word tonight "finitude" -- and think more people understand it than are given credit for. Ask 'em! #hpm
Wed Sep 26 18:58:30 PDT 2012
equijada
@BillPfohl I don't see a negative reason. #hpm

Wed Sep 26 18:58:37 PDT 2012
ctsinclair
@BillPfohl For profit hospices have volunteers too! And people with kind hearts! #HPM
Wed Sep 26 18:58:43 PDT 2012
pamressler
I live very close to the town center of my community and I would welcome the placement of a hospice here #hpm
Wed Sep 26 18:58:59 PDT 2012
ctsinclair
RT @aliciabloom: thanks for hosting a great chat @rfberry! #HPM

Wed Sep 26 18:59:19 PDT 2012
rfberry
All #hospices care for patients. Patients benefit from the presence of volunteers. That's what it's all about. (not tax status) :) #hpm
Wed Sep 26 18:59:20 PDT 2012
aliciabloom
yes, yes they do. RT @ctsinclair: @BillPfohl For profit hospices have volunteers too! And people with kind hearts! #hpm
Wed Sep 26 18:59:30 PDT 2012
rfberry
OK so my final thought is, I'd love for us to take an opportunity to share with #TwitterStories about our lively community! so... #hpm
Wed Sep 26 18:59:53 PDT 2012
Kamiyamay
If house grounds are kept neat, a beautiful fountain and playground in the back for kids....such a beautiful safe place for community! #hpm
Wed Sep 26 19:00:54 PDT 2012
rfberry
#hpm is a community raising public awareness about #palliative care & #hospice. We are a Twitter community making an impact #TwitterStories
Wed Sep 26 19:01:07 PDT 2012
ctsinclair
Closing thoughts: silence is often mistaken for nothingness, when it is actually a universe of possibilities. #HPM
Wed Sep 26 19:01:22 PDT 2012
Page 18 of 19
10/4/12 10:57 AM
Kamiyamay
RT @ctsinclair: Closing thoughts: silence is often mistaken for nothingness, when it is actually a universe of possibilities. #hpm
Wed Sep 26 19:01:58 PDT 2012
rfberry
Thanks so much everyone for participating tonight! A great discussion! #hpm

Wed Sep 26 19:02:28 PDT 2012
ctsinclair
RT @rfberry: #hpm is a community raising awareness abt #palliative care & #hospice. We are a community making an impact #TwitterStories #HPM
Wed Sep 26 19:02:54 PDT 2012
ctsinclair
@rfberry Fantastic job Renee! #HPM

Wed Sep 26 19:03:31 PDT 2012
pamressler
Thanks for the great conversation tonight, folks! BTW, @rfberry you were a fabulous, fabulous panelist at #med2 :-) #hpm
Wed Sep 26 19:04:00 PDT 2012
EWidera
RT @ctsinclair: Closing thoughts: silence is often mistaken for nothingness, when it is actually a universe of possibilities. #HPM
Wed Sep 26 19:04:09 PDT 2012
jessicawapner
RT @ctsinclair: Closing thoughts: silence is often mistaken for nothingness, when it is actually a universe of possibilities. #HPM
Wed Sep 26 19:08:15 PDT 2012
Angelina_R_77
RT @hospice_mktg: A personal account about being referred for #hospice care ... EARLY! http://t.co/k8XYoEt2 #hpm #eol
Wed Sep 26 19:09:13 PDT 2012
Page 19 of 19

#HPM Transcript: Healthcare Social Media

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#HPM Transcript: Healthcare Social Media

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#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

Hello @rfberry how are things in Menlo Park? #hpm

@WaywardChad @aliciabloom awesome, fall weather is my favorite! #hpm

good to see you again, @jfclearywisc! #hpm

#hpm - Healthcare Social Media Transcript

Wed Sep 26 18:07:46 PDT 2012

@WaywardChad good to see you too... #hpm

@Pallimed how fun! #hpm

@Pallimed hey Christian! You're just in time for T1! #hpm

Ah got the sign in fixed, back to my old self #HPM

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@jfclearywisc how/why do you think it became politicized? #hpm

@ctsinclair awesome! #hpm

@ctsinclair I wonder if that was one of those automated tweets? #hpm

RT @OIGatHHS: Is hospice care important to you? Read about some of OIGs

#hpm - Healthcare Social Media Transcript

recommendations in our Spotlight: http://t.co/VIlaygfx #hpm

@jfclearywisc that's a good reminder! #hpm

@jfclearywisc Ha I've done that as well. #HPM

#hpm - Healthcare Social Media Transcript

Wed Sep 26 18:22:04 PDT 2012

Hi All...sorry to be late...catching my breath after hosting #s4pm tonight #hpm

#hpm - Healthcare Social Media Transcript

@ctsinclair lol #HPM

@pamressler hey Pam! #HPM

@rfberry Thx for that kind intro :-) #hpm

Hi folks...joining late. Catholics, double effect. I missed good topics. #hpm

#hpm - Healthcare Social Media Transcript

Wed Sep 26 18:28:59 PDT 2012

@ctsinclair Hi Christian! #hpm

@rfberry which language? Sorry lots o tweets. #HPM

Hi Earl! RT @equijada Hi folks...joining late. Catholics, double effect. #hpm

@jfclearywisc *repoire not repos #HPM

#hpm - Healthcare Social Media Transcript

to want agressive curative treatment #hpm

@ctsinclair excellent! reminder in place. #hpm

@ctsinclair in what way? #hpm

@rfberry I agree with you on this one Renee. #HPM

#hpm - Healthcare Social Media Transcript

@aliciabloom Yeah @ctsinclair IN what way? #hpm

@ctsinclair A living with ambivalence!!! #HPM

@ctsinclair i understand now that you've elaborated. #hpm

@WaywardChad Bingo! #HPM

#hpm - Healthcare Social Media Transcript

@aliciabloom That is one of them! #HPM

@aliciabloom @ctsinclair What drinks are in an @rfberry #hpm

#hpm - Healthcare Social Media Transcript

I nominate @BillPfohl zinger of a tweet for tweet of the night! #HPM

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

Wed Sep 26 18:49:24 PDT 2012

@pamressler good disclaimer. #HPM

@equijada too funny! @hospicewithouttwitter #hpm

#hpm - Healthcare Social Media Transcript

RT @GriefHealing: Outstanding! Learning to Love #Hospice http://t.co/IoLcmpxP #caregiving #hpm

@chemosabe Welcome. almost lunchtime!! #hpm

#hpm - Healthcare Social Media Transcript

situation So I can't fault them for wanting input #HPM

thanks for hosting a great chat @rfberry! #hpm

@rfberry Is it right to volunteer at a for profit hospice? #hpm