Visit our website to find out more information and access resources:
www.unzipthelips.org
CONTACT US If you have stories, resources or other information to share with the community, please email us at unzip@unzipthelips.org To find out more about becoming a supporting partner of Unzip the Lips, please write to partners@unzipthelips.org
Report of Unzip the Lips Workshop 21-22 September 2012, Bangkok, Thailand
EXECUTIVE SUMMARY
The Unzip the Lips platform launched an advocacy Workshop on 21-22 September, 2012 in Bangkok, Thailand to strengthen the capacity of civil society organisations (CSO) who work in the Asia Pacific region to more effectively address the needs of key affected women and girls (KAWG) in the context of HIV and its intersections with other gender issues. Specifically, the workshop aimed to: increase the understanding on and mobilise support for the issues of key affected women and girls among national and regional HIV and AIDS networks develop policy recommendations by community and civil society organisations on key affected women and girls, including on intimate partner transmission of HIV map out potential advocacy strategy opportunities where advocates can deliver key messages and call attention to current critical issues affecting key affected women and girls, including at the UN Regional Consultation on HIV and KAWG in the Association of Southeast Asian Nations (ASEAN) region, as well as at various national, regional, and global events in 20122013 strengthen civil society participation at various national, region, and global policymaking forums and events in 2012-2013. Civil society representatives from across the Asia Pacific region joined the advocacy discussion around the theme The Gender Agenda: Making HIV Responses Work for Key Affected Women and Girls. Countries represented included Australia, Cambodia, India, Indonesia, Lao PDR, Malaysia, Myanmar, Philippines, Thailand, and Vietnam. The workshop was part of an activity for 2012 of the Unzip the Lips, a platform for articulating the needs of key affected women and girls in the Asia and Pacific region. To date, this is an informal discussion space with the support of several engaged institutions and individuals. The workshop was coordinated by the Asia Pacific Alliance for Sexual and Reproductive Health and Rights (APA) together with the Asia Pacific Council of AIDS Service Organizations (APCASO) and the Asia Pacific
Report of Unzip the Lips Workshop 21-22 September 2012, Bangkok, Thailand
Resource and Research Centre for Women (ARROW) and hoped to engage and mobilise support from other organisations and individuals who share their commitment to making the voices of women and girls, particularly those most at risk and most affected by HIV, heard in national and regional AIDS responses. Process / methodology To ensure that the workshop is an enabling space to surface and talk about the issues of key affected women and girls, APA, APCASO and ARROW had an intensive series of online preparatory meetings. With importance equally put on both content and processes, the workshop was designed to have as much involvement from different constituenciesfrom developing the content and programme, to facilitating and resourcing sessionsas possible. Most significant outcomes The participants evaluated the workshop as having mainly achieved its objectives overall. As a result of the workshop, Unzip now has, among others: (i) a wider base of supporters from the region, (ii) clarity and consensus on the definition of who are key affected women and girls., (iii) clarity and consensus on the definition of intimate partner transmission, (iv) a clearer understanding of cross-cutting as well as community-specific issues of key affected women and girls, (v) a clearer idea of how to move forward as a network both in terms of advocacy and governance, and (vi) a fresh set of Temporary Advisory Committee (TAC) members who will coordinate and facilitate joint actions and decision-making from the group for the networks future.
Report of Unzip the Lips Workshop 21-22 September 2012, Bangkok, Thailand
CONTENTS
ACKNOWLEDGEMENTS ACRONYMS WORKSHOP REPORT 1. INTRODUCTION 2. THE WORKSHOP
2.1 A Voice for Women and Girls: Opening Remarks 2.2 Who are Key Affected Women and Girls? 2.3 A Community Dialogue on Intimate Partner Transmission 2.4 Advocacy Strategising and KAWG Messaging 2.5 Getting to Know ASEAN 2.6 UNZIP Strategy: The Way Forward
3. RECOMMENDATIONS ANNEXES Annex Annex Annex Annex Annex Annex Annex A: Agenda B: Participants List C: Keynote Speeches D: Workshop Resources E: Workshop Evaluation Report F: Unzip the Lip Advocacy Events Mapping G: Our Call to ASEAN
Report of Unzip the Lips Workshop 21-22 September 2012, Bangkok, Thailand
Acknowledgements
On behalf of the Unzip the Lips platform, the Asia Pacific Alliance for Sexual and Reproductive Health and Rights (APA) is grateful to the Joint Nations Programme on HIV/AIDS (UNAIDS) and The ASEAN Foundation for their generous financial contribution to the project Setting Priorities for Key Affected Women and Girls in Asia Pacific and Intersections with HIV: Civil Society-Led Strategies for UNZIP the Lips, which this workshop was part of. With additional support from the Japanese Government, we are thankful we were able to bring the UNZIP message to more stakeholders. This effort has been conducted with support from the Regional UN Interagency Task Team (IATT) on Women, Girls, Gender Equality, whose representatives consist of the Joint United Nations Programme on HIV/AIDS (UNAIDS), the United Nations Development Programme (UNDP), the United Nations Educational, Scientific and Cultural Organization (UNESCO), the United Nations Population Fund (UNFPA), the United Nations Children's Fund (UNICEF), and The United Nations Entity for Gender Equality and the Empowerment of Women (UN Women). Our thanks and appreciation likewise goes to all those who have contributed to making the Workshop a success: all participants, speakers, and panelists, meeting organisers and facilitators and development partners. Lastly, we wish to acknowledge people who have, from the beginning, supported Unzip the Lips, believed passionately in its cause and generously contributed their valuable time, minds and energies to keep it going: Rachel Arinii Judhistari, Vince Crisostomo, Frieda Lee, Dean Lewis, Kirenjit Kaur, Rose Koenders, Rodelyn Marte, Katy Pullen, and Jane Wilson.
Report of Unzip the Lips Workshop 21-22 September 2012, Bangkok, Thailand
ACRONYMS
ACW AICHR ASEAN ATFOA CSO HIV/AIDS ICAAP IPT GBV KAWG KAP Laos PDR MSM PLHIV PUD SOGI SRHR STI UN UNAIDS UNDP UNESCAP UNESCO UNFPA UNICEF UN Women VCCT ASEAN Committee on Women ASEAN Intergovernmental Commission on Human Rights Association of Southeast Asian Nations ASEAN Task Force on AIDS Civil Society Organisations Human Immunodeficiency Virus infection / Acquired Immune Deficiency Syndrome International Congress in AIDS in the Asia and the Pacific Intimate Partner Transmission Gender-based violence Key Affected Women and Girls Key Affected Populations Lao Peoples Democratic Republic Men who have sex with men People Living with HIV/AIDS People who Use Drugs Sexual Orientation and Gender Identity Sexual and Reproductive Health and Rights Sexual Transmitted Infections United Nations Joint United Nations Programme on HIV/AIDS United Nations Development Programme United Nations Economic and Social Commission for Asia and the Pacific United Nations Educational, Scientific and Cultural Organization United Nations Population Fund United Nations Children's Fund United Nations Entity for Gender Equality and the Empowerment of Women Voluntary and Confidential Counseling and Testing
Report of Unzip the Lips Workshop 21-22 September 2012, Bangkok, Thailand
WORKSHOP REPORT
1. INTRODUCTION
The Unzip the Lips platform launched an advocacy Workshop on 21-22 September, 2012 in Bangkok, Thailand to strengthen the capacity of civil society organisations (CSO) who work in the Asia Pacific region to more effectively address the needs of key affected women and girls (KAWG) in the context of HIV and its intersections with other gender issues. Civil society representatives from across the Asia Pacific region joined the advocacy discussion on The Gender Agenda: Making HIV Responses Work for Key Affected Women and Girls. Countries represented included Australia, Cambodia, India, Indonesia, Lao PDR, Malaysia, Myanmar, Philippines, Thailand, and Vietnam. Unzip the Lips is an informal group of individuals and organisations who are galvanised by the opportunity to provide a voice for key affected groups of women and girls in the HIV epidemic in the region of Asia and the Pacific. The Unzip the Lips platform was formed prior to the 10th International Congress in AIDS in the Asia and the Pacific (ICAAP10) in Busan, the Republic of Korea, in August 2011. Various events to advance the gender agenda have taken place, including a gender side event at the United Nations Economic and Social Commission for Asia and the Pacific (UNESCAP) High Level Intergovernmental Meeting (HLM) on the Assessment of Progress against Commitments in the Political Declaration on HIV/AIDS and the MDGs, held in February 2012. The goals of this event were to advocate for national and regional leadership and commitment for effective strategies and interventions for addressing HIV/AIDS related gender inequalities, with a focus on key affected women and girls; and to identify and discuss good practices and models for addressing the needs and rights of key affected women and girls for HIV prevention, treatment and care services. Thus, in the context of the growing momentum in the Asia Pacific region, this Workshop sought to facilitate advocacy dialogue on issues related to KAWG and define a collaborative approach to ensure future policy responses are sensitive to KAWG. The workshop objectives were as follows: To increase the understanding on and mobilise support for the issues of key affected women and girls among national and regional HIV and AIDS networks To develop policy recommendations by community and civil society organisations on key affected women and girls, including on intimate partner transmission of HIV To map out potential advocacy strategy opportunities where advocates can deliver key messages and call attention to current critical issues affecting key affected women and girls, including at the UN Regional Consultation on HIV and KAWG in the Association of Southeast Asian Nations (ASEAN)
Report of Unzip the Lips Workshop 21-22 September 2012, Bangkok, Thailand
region, as well as at various national, regional, and global events in 20122013 To strengthen civil society participation at various national, region, and global policymaking forums and events in 2012-2013. This report seeks to provide a summary of the key action items and outcomes from the Unzip the Lips Workshop. The report contains live links to websites, news articles, and presentations from the Workshop. We hope that through the collective energy and collaboration of all the supporting partners, this report can serve as a tool for increased civil society capacity and participation to support the needs of key affected women and girls in the Asia Pacific region.
2.
THE WORKSHOP
women. Young women are particularly vulnerable to HIV, accounting for 64% of new infections among young people worldwide. Too often, these young womens voices go unheard, and they lose out on important opportunities to promote their rights or push for policies that ensure the realisation of their rights. She stressed the need for strong policy commitments and greater dedicated effort from the government, from the United Nations (UN) multilateral agencies and all development partners to ensure that program interventions and budget allocations target key affected women and girls, including young women living with HIV.
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Within the context of the Asia Pacific region, five panelists presented specific challenges for key affected women and girls, highlighting the needs of sex workers, transsexuals, women and girls who use drugs, and women and girls who are HIV positive. Anastacia Ryan, from the Global Network of Sex Worker Projects, presented five main issues and problems facing sex workers, which undermine access to HIV prevention, treatment, care, and support. First, ongoing stigma and discrimination by society and health workers places sex workers at an increased risk of violence. Second, many countries criminalise some part of sex work in the absence of an enabling legal and policy environment. Third, sex workers have little to no access to sexual and reproductive health services and no support system exists for HIV positive women. Fourth, sex workers suffer violence from their intimate partners, as well as government actors like police officers. Fifth, there is a lack of meaningful participation from sex worker communities in HIV prevention campaigns. Campaigns that neglect to involve and coordinate with sex workers can results in bad policies, and even worse, failed programs. Baby Rivona, of the Indonesia Positive Womens Network, discussed how there could be no AIDS free generation without the inclusion of women and girls. In the last six years, there has been a significant rise of HIV prevalence in female populations. In particular, women often do not understand how to advocate for their sexual and reproductive health and rights (SRHR), lack comprehensive health information, suffer from unequal power relationships, and lack meaningful participation in policy
discussions. Additionally, for women who are HIV positive, they face a double stigma of being a woman and living with HIV. To improve this situation, awareness among policymakers must be raised, so that commitments to ensuring the rights of women and girls are recognised. Manis Chen, of the PT Foundation, stated that the main challenge for transsexual women in Malaysia was lack of legal recognition. Many transsexual women have no access to hormone replacement therapy, have trouble securing employment, and suffer from religious discrimination and intolerance. Many transsexual women lack community support systems, which can lead to a lack of self-acceptance, identity confusion, and low self-esteem. Building greater understanding on gender and sexuality within the wider community could have significant results in empowering transsexual women and
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decreasing the stigma they face. Efforts to change the legal status for transsexual women is being pursued, and if achieved, would be a landmark legal case in Malaysia. Yvonne Sibuea, from the Asian Network of People who Use Drugs (ANPUD), presented the increasing trend of women that use stimulant drugs in the Asia Pacific region. Many women and young girls use drugs to
young girls to ensure they have the proper knowledge about these drugs. Alexa Johns, of the Asia Pacific Alliance for Sexual and Reproductive Rights (APA), presented the results from an e-consultation that collected feedback on which strategies should be prioritised to address the needs of KAWG in HIV and AIDS programmes. Respondents included networks of people living with HIV (PLHIV), people who use drugs (PUD), sex workers, transgender, and community based organisations. Many respondents noted a lack of common understanding on what populations constituted KAWG in the Asia Pacific region. The lack of access to basic human rights and health services often increased women and girls vulnerability to HIV. Respondents also noted that a funding gap prevented the full realisation of women and girls rights, as there was no financial support for womens leadership and little resources for research and development for womens programmes. Future HIV policies and programmes should meaningfully engage KAWG populations and invest in strengthening their leadership at the national, regional, and global levels. For young KAWG, an even greater focus needs to ensure increased awareness about safe sex, STIs and ensure access to comprehensive sexuality education. Efforts to strengthen the linkages between HIV and other health efforts, such as sexual and reproductive health programs and services, will ensure greater impact of policies and programmes.
maintain a certain body image and improve their self-esteem. Additionally, peer effects are strong, as a woman is more likely to use drugs if her partner uses drugs. There are many problems associated with drug use that specifically are detrimental to women, such as having irregular periods, changes in sexual feelings and mood swings, reduced effectiveness of contraception, interference with breastfeeding, and complications during pregnancy and childbirth. Furthermore, the use of stimulant drugs is one of the main factors associated with unprotected sexual intercourse, leading to increased rates of sexual transmitted infections (STIs), including HIV, among women who use drugs. Often excluded from discussions on harm reduction and HIV prevention education, greater attention should be placed on reaching these women and
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The panelists highlighted a number of important issues affecting key affected women and girls. The following discussion centered on the fact that women, compared to men, are much more vulnerable to HIV transmission, which is even more true for some women and girls who engage in risky behavior or have a partner who engages in risky behavior. The following definition of KAWG was agreed upon by the Workshop participants as a gender-sensitive definition that recognises the specific vulnerability of women and girls by including communities whose needs are neglected and marginalised in the current HIV response.
HIV and Key Affected Women and Girls Womens rights and gender equality for all are imperative to an effective HIV response. We recognise that key affected women and girls include: women and girls who are living with HIV, female sex workers, women and girls who use drugs, transgender women and girls, mobile and migrant women, female prisoners, women with disabilities, women in serodiscordant relationships as well as intimate female partners of men who engage in behaviors that put them at a higher risk of HIV infection
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promote IPT should occur within the context of a SRHR-based framework, which shares common ground with the Unzip the Lips platform. Why should we care about IPT among KAWG? In the Asia Pacific region, women and girls are left out of the HIV responses and very few programmes are available to meet their needs. The promotion of womens rights, through the empowerment of these populations, will help communities to change the gender and cultural norms that are pervasive in society and demote women. All women, not only those who are HIV positive, should have the right to make their own choices, have a right to express their sexual rights, and protect their bodily integrity. What are the key factors affecting IPT among KAWG? The power dynamic between people in a relationship often affects the ability for women to negotiate condom use. Social, cultural, and religious norms can also encourage traditional gender roles, which prevents an open discussion about sexuality. This can lead to low or limited available SRHR information, and such lack of knowledge can prevent knowledge about an individuals HIV status or their partners HIV status. In addition to these cultural barriers, participants agreed that trust issues and trust building can also significantly influence power dynamics, making negotiations more complicated and difficult. What are the key strategies to prevent IPT among KAWG? More emphasis needs to be placed on creating an enabling environment that goes beyond just women and girls, and includes their partners and the wider community in discussing sexuality and sexual rights, demystifying marriage, and breaking taboos about relationships. Specific focus should target young people with comprehensive sexuality education (that includes a focus on gender) in school curriculum and out-of-school settings
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KAPs/PLHIV and address gender inequity 3. Governments need to ensure meaningful involvement of KAWG in all decision-making processes that affect KAWG and have representation of their community in the government system Theme 2: Meaningful participation & involvement of KAWG Too often, there is tokenistic involvement of KAWG, leading to a womens lack of confidence in being involved, especially when there is a male-dominated decision-making process. An even greater barrier exists for positive KAWG who are not guaranteed that their HIV status will be kept confidential. Improved community empowerment, ownership, and community mobilisation can help change the cultural and social norms that prevent KAWG from fully realising
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their participatory involvement. The top recommendations are: 1. To have consultation procedures in place for any policy that will affect the community 2. To have laws and harmonised policies that all support and not work against the health of KAWG including the contradiction between law enforcement and harm reduction 3. To ensure sustainability of
framework. The top recommendations are: 1. UN bodies, government policymakers, and legislators need to repeal the laws and policies that criminalise (any aspect of) sex work, drug use, men who have sex with men (MSM) and transmission of HIV 2. UN bodies, government policymakers, and legislators need to repeal all policies of mandatory testing (in antenatal clinics, of migrant workers, and for employment) and promote voluntary confidential counseling and testing (VCCT) 3. Government needs to develop policies that promote voluntary HIV testing, voluntary sterilisation, abortion, etc. Theme 4: Barriers to accessing health services Many countries have substantial barriers that prevent women from accessing health services. For instance, in Myanmar and Lao PDR, there is no contraceptive service for youth. In some countries, in cases of rape, no female police or social worker are available to assist the children during the investigation. Even more challenging is that health services are often only available for the native population, and non-native people living with HIV are sent back to their home countries. The member countries of the Association of Southeast Asian Nations (ASEAN) should support cross-border projects and ensure collaboration to address the major health and social issues within the region. The top recommendations are:
community programs and national budgets Theme 3: Human rights, policy and legal environment Punitive laws and policies that violate a womans right to access sexual and reproductive health is the biggest barrier for this theme. The lack of enabling environment also increases the vulnerability of KAWG. More opportunities for face-to-face dialogue between government policymakers and KAWG populations could help promote a better legal and policy environment. Further a stronger evidence base will make policy messages more effective in advocating for a rights-based
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1. To ensure that civil society organisations and representatives can participate in ASEAN process 2. To have an integrated health access and information system in ASEAN 3. To ensure that ASEAN government follow international conventions that promote human rights Theme 5: Gender-based violence (GBV) including sexual violence and harassment There are no legal support mechanisms to address genderbased violence and sexual violence. Greater gender-sensitive laws need to be passed to protect KAWG from violence, harassment, and abuse. Media can play an influential role in changing the societal attitude towards improved treatment of KAWG. The top recommendations are: 1. Governments need to provide education and information to KAWG to inform and raise awareness on rights to protect them from violence 2. Governments and UN agencies need to address the need to integrate GBV, including sexual violence and sexual harassment into HIV and AIDS response including program, health services and legal services 3. Governments and all stakeholders need to ensure that KAWG have full participation and leadership in planning and implementing, monitoring and evaluation of policies and practices to combat and prevention of sexual violence and other forms of violence
Photo Credit: Rodelyn Marte
Theme 6: Gender norms and gender inequalities and power dynamics and sexuality The legal and policy environment is slightly enabling in terms of addressing gender issues and empowerment of women and girls. But many countries still criminalise people on the basis of sexual orientation and gender identity (SOGI). In addition, religious and cultural forces continue to dictate, define, and impose beliefs and dogma that are harmful and discriminatory to women, demonising sexuality and womens sexual empowerment. The top recommendations are: 1. ASEAN and national governments need to increase budget allocations to address gender and sexuality issues (e.g. to fund appropriate services or to change laws that privilege men or disempower women) 2. ASEAN and national governments need to have gender transformative, sex-positive education should be integrated/ in the curriculum of the public school system at all levels 3. ASEAN and national governments need to support KAWG/civil society organisations/community engagement in the response
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Moi Lee Liow, of the Asia Pacific Council of AIDS Service Organisations (APCASO), discussed her perspective of being a civil society observer to the ASEAN Task Force on AIDS (ATFOA). To date, civil society organisations have been very passive and have provided subdued inputs, often approaching HIV as a gender-neutral issue. However, much more can be done to improve the status of women and girls issues in the ATFOA discussions. Ensuring womens groups are represented and are more proactive at the national level is the first step to obtaining progressive language and successful engagement.
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Thank you for making sure women stay on the HIV agenda! Anonymous
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3.
On 24-25 September 2012, ASEAN delegates from the ATFOA and ACW gathered together for a Consultative Meeting on HIV and Key Affected Women and Girls: Reducing Intimate Partner Transmission of HIV in ASEAN in Luang Prabang, Lao PDR. Ten representatives of the workshop in Bangkok joined this meeting and represented the voice of key affected women and girls on behalf of the UNZIP the Lips Platform . They called for scaling up action and resources for policies and programs that address the rights of women and girls in the context of HIV and AIDS. ASEAN countries have signed international conventions and ASEAN Declaration of Commitment. Through several interventions and presentations, UNZIP members congratulated ASEAN on the ASEAN Declaration of Commitment: Getting to Zero new HIV Infections, zero discrimination, zero aids-related death. Especially paragraph 17f where ASEAN countries commit towards zero new HIV infections through encouraging and support the active involvement of key affected populations and vulnerable groups. Unzip the Lips applauded ASEAN in its commitment to ensure that national prevention strategies comprehensively address communities at higher risk, of HIV infection such as people who use drugs, sex workers, and men having sex with men, including transgender people. And expressed their pride that this sub region has taken up this important leadership role.
Photo Credit: YouthLEAD
The UNZIP platform members also highlighted that ASEAN Member states have pledged to eliminate gender inequalities and gender-based abuse and violence especially by promoting the rights of women and girls, strengthening national social and child protection systems, empowering women and young people to protect themselves from HIV and have access to health services, including, sexual and reproductive health as well as full access to comprehensive information and education. And stressed that these are crucial strategies in ending Intimate Partner Transmission of HIV infections.
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The following text was delivered to ASEAN delegates by civil society advocates at the a Consultative Meeting on HIV and Key Affected Women and Girls: Reducing Intimate Partner Transmission of HIV in ASEAN in Luang Prabang, Lao PDR. See Annex G: Our Call to ASEAN for the final document. OUR CALL TO ASEAN We want to live in a world where these commitments are realised, where programs and funds and resources are reaching us, key affected women and girls, ensuring that we can live in dignity and enjoy our human rights. We are worried and deeply concerned that gender, women empowerment, and womens rights are lost in the HIV response. We, key affected women and girls are able to help ASEAN countries realise these commitments. To do so, we call on ASEAN member states to: To reduce Intimate Partner Transmission by scaling up programs that support work with Key Affected Communities; that guarantee the sexual and reproductive rights of women and girls; and that end gender based violence against women and girls. To scale up action and resources for policies and programs that address the rights of women and girls in the context of HIV and AIDS To strengthen all laws and policies to protect the human rights of key affected women and girls, including women and girls living with HIV. Ensure an enabling environment by decriminalising all sex work, drug use, same-sex behavior and relationships and transmission of HIV. To remove barriers to women and girls access to non-judgmental gender sensitive health and legal services. To address stigma and discrimination in health care settings for key affected women and girls including ending forced sterilisation, forced abortion and compulsory HIV testing among women and girls. Ensuring access to comprehensive gender and sexuality education for girls and boys for both in and out of school. Invest in women and girls leadership and guarantee the sustainability of community organisations and groups working for key affected communities through core funding support
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ANNEXES
ANNEX A: Workshop Agenda
DAY 1 Friday September 21st
Time 9:00-9:30 Session and Format Welcome from UNZIP Organising Team Opening Remarks by Susan Paxton (APN+) and Oldri Mukuan (YouthLEAD) 9:30-10:30 Introductions, Expectations and How to Work Together Objective is to introduce facilitators and participants and set out a clear roadmap of how the workshop will proceed Energiser Morning Break Introduction Video on Key Affected Women and Girls (5-10 minutes) Overview of definition, key issues and recommendations on key affected women and girls in HIV and AIDS programs - Panel Presentation Objective is to let key affected communities speak out on gender issues and the challenges that women and girls are facing in their respective communities and to develop a discourse on KAWGs which will set the tone for the meeting. Moderator: Anandi Yuvaraj (ICW-AP) Panelists (10 min each) Alexandra Johns (APA) Anastacia Ryan (NSWP) Baby Rivona (IPPI) Manis Chen (PT Foundation) Yvonne Sibuea(ANPUD) 11:4512:45 Brainstorm key categories and priority issues - Floor Discussion Q and A (1 hour) Objective is to share more issues of participants concerning KAWG to be taken forward to the afternoon session Q & A, sharing from participants on gender issues in respective communities 12:4513:45 13:4514:45 Lunch and submeeting Voluntary group will cluster issues into categories Community Dialogue on IPT - Large Group Discussion (1 hour) Objective is to have an open discussion and develop a community perspective on IPT for the Regional Consultation with ASEAN
10:3010:45 10:4511:45
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Moderator: Khut Th Hi Oanh Afternoon Break Energiser Power Walk Advocacy Strategising and Messaging Group work (90 min) Objective is to have a more in depth discussion about the gender issues identified in the morning and the barriers communities are facing in their work. Participants will develop solutions into an advocacy objectives / policy asks. Wrap-up and Meeting Close
16:4517:00
Strategy preparation for the CSO presentation at the UN IPT Regional Consultation Meeting - Large Group Discussion (1 hour) Objective is developing effective advocacy messages targeted at ASEAN to be presented at the Regional Consultation on HIV and KAWG in the ASEAN region. Lunch
12:3013:30
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13:3015:00
UNZIP Strategy Discussion (90 min) The Way Forward Objective is to develop a roadmap with opportunities for putting women and girls on the agenda. To define the future for the UNZIP work, including noting key milestones (like ICAAP 2013 or Women Deliver, Beyond 2015 consultations/discussions) and other activities which would be appropriate advocacy opportunities to target Afternoon Break UNZIP Strategy Discussion (90 min) How to Work Together Objective is to discuss how the participants would like to work together, including a discussion of how and what UNZIP will look like - UN partners of the IATT on HIV, women and gender equality are invited to join the session.
15:0015:30 15:3017:00
17:0017:30
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9. Dean Lewis 10. 11. 12. 13. Douang Khamvongsa Frieda Lee Jeanne Darch Truong Jet Riparip
Thailand Lao PDR Australia Vietnam Thailand Thailand Thailand Thailand Vietnam Lao PDR Philippines Malaysia Malaysia Thailand Thailand Thailand Indonesia
14. Kate Tibone 15. Kath Kangpiboon 16. Khartini Slamah 17. Khut Th Hi Oanh 18. Kinoy Phondeth 19. Malu Marin 20. Manis Chen 21. Moi Lee Liow 22. Namishin Jate 23. Nina Somera
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26. Phonexay Sithirajvongsa 27. Rachel Arinii Judhistari 28. Rodelyn (RD) Marte 29. Rose Koenders 30. Sarah Zaidi 31. Seangpanya Phanthamith (Nith) 32. Sunee Talawat 33. Susan Paxton 34. Thaw Zin Aye 35. Vanphanom Sychereun 36. Vilasini Seevanathan 37. Yalda Jafari 38. Yuyun Wahyuningrum 39. Yvonne Sibuea
CARE International Asian Pacific Resource and Research Centre for Women (ARROW) Asia Pacific Council of AIDS Service Organisations (APCASO) Asia Pacific Alliance (APA) International Treatment Preparedness Coalition - Cancelled Lao National Network of People Living with HIV (LPN+) Raks Thai Foundation Consultant, Asia Pacific Network of People Living with HIV/AIDS (APN+) YouthLEAD University of Social Science Laos IPPF East and South East Asia and Oceania Region (ESEAOR) - Cancelled UNESCO Human Rights Working Group (HRWG) Indonesia Asian Network of People who Use Drugs (ANPUD)
Lao PDR Malaysia Malaysia Thailand Thailand Laos Thailand Australia Thailand Lao PDR Malaysia Thailand Indonesia Indonesia
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We are here to make our voices heard. We are here to make sure to recognize that women and girls who work as sex workers, use drugs and transgendered are most-at-risk and their needs are neglected. We are here to talk about the right to confidentiality and fully informed consent. We are here also talking about the right of access to appropriate health care services that will enable women to go safely through pregnancy and childbirth and provide couples with the best chance of having a healthy infant. We are talking about the right to health, to education, to employment. And let me say this: How you find out your HIV status and how your status is used should not violate your human rights. Freedom from discrimination, abuse and exploitation, the right to participate in decisions that affect your life, and to privacy are fundamental human rights standards. Everyone has the right to live in dignity. These basic rights apply to all people, including women and girls living with HIV/AIDS and young key affected women and girls. Yet, while human rights are the same for all people, the circumstances in which people find themselves are different. For new generations, we must encourage the capacity building of young women from key affected populations. The full and equal participation and leadership of women is no longer an option. It is important to involve us more meaningfully in advocacy and designing programme and policy-making levels. It is urgent and a necessity if we are to achieve the transformational change needed at all levels and spheres of society for sustainable development. This is a crucial platform where we can really strive towards addressing the needs of the women and girls, and working collectively we can really make a difference in the HIV response. With these messages in our mind, lets make the best of the time we have at this workshop. Also before I end, please join me in saluting the work of all the women present here for their dedication, hard work, commitment and passion to make this a reality. Lets not forget the men who are present here as well, as they are also an important partner in this process. Please give a round of applause. Thank you
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Susan Paxton, Consultant, Asia Pacific Network of People Living with HIV/AIDS (APN+) TIME TO UPHOLD OUR RIGHTS Susan Paxton, PhD
UNZIP the Lips, Bangkok, 21 September 2012 Thank you very much for inviting me to address this important forum on how to strengthen the advocacy around the needs and rights of key affected women and girls in the response to HIV. We are a very diverse group of women and men who are gathered for these two days to examine how we can support each other regardless of HIV status, age, profession, whatever - to move forward the gender agenda within the HIV response. I believe HIV highlights the deeply-rooted gender inequity that exists in our society in a way that nothing before has ever done: Gender inequity makes women and girls more vulnerable to HIV in the first place, and women living with HIV face more discrimination than men do. Gender-based violence and poverty lead many women and girls to contract HIV and once they are positive they face even more violence. Although HIV is now a manageable condition, for some women it is still a death sentence - because of the stigma, not the virus. Two weeks ago in Dallas, Texas, Cicely Bolden was killed by her partner when she disclosed that she was HIVpositive. How often do you think this may have happened to women in our region and gone undocumented? The Asia Pacific Network of People living with HIV has recorded many instances of discrimination, abuse and rights violations of women living with HIV: women are beaten by their partners after their diagnosis; women are thrown out of their homes by their in-laws and lose custody of their children; women with HIV are refused treatment and health care; women are neglected during delivery because of their HIV status. Most women living with HIV still face discrimination in the health sector. I'm among them. Over the past twenty years of living with HIV I have been denied emergency medical care and whenever I interact with health care professionals outside the HIV sector, I am invariably asked, "How did you catch HIV?". I am used to the question, but it still makes me angry. If I answer, will that affect how they treat me? If HIV is now manageable and we are told we can lead "normal" lives, why are women and girls diagnosed with HIV strongly discouraged from having children? Maternal health nurses often scold positive women who get pregnant with comments like, "How dare you?". In several countries in Asia and Africa, women
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with HIV have documented coerced sterilisation. How many men are asked to get sterilised because they are HIV positive? And where are the contraceptive choices that should be available to all women to stop the one in three unwanted pregnancies that women have in the first place? Why are condoms almost the only option promoted among women with HIV? Why do we not have more contraceptives under women's control? The response towards HIV in relation to key affected women and girls, from UN bodies and government, tends to focus almost entirely on us as reproductive vessels to bring forth the next generation. In an effort to prevent mother-to-child transmission of HIV, governments are now talking about rolling out WHO's Option B+, which is testing all women during pregnancy and putting women who test HIV-positive onto ARVs immediately. What happens to us as people and as mothers in this process is largely disregarded. These programs do not take into account: the lack of confirmatory test results; responses from partners or in-laws to the HIV result; what happens to the quality of life of any other children if the woman is thrown out of home; whether the woman will even continue to attend the health care centre after her diagnosis - because we well know that many HIV-positive women and girls avoid health care settings because of the discrimination they face if they are known to be HIV-positive - we know that women are abused, segregated and abandoned within the health care system and this discourages women from using these services. People in authority have adopted this medical solution to vertical HIV transmission, and rapidly moved to implement it without laying down some of the basic groundwork needed to protect women's rights and health. Disconcertingly, alongside increased efforts to save babies lives there is decreased funding and support to networks of women living with HIV at every level. Women and girls living with HIV can meaningfully inform programs. We have a unique perspective. We know how programs failed us. We care most about saving our babies. We know what is needed and how to do it but we are not given sufficient platform to address our issues. It is a woman living with HIV, Alice Welbourn, who designed the "Stepping Stones" program that now operates in over 100 countries. This program uses a participatory, rights-based approach to explore how gender issues influence behaviour. The program has been highly successful in reducing gender-based violence and HIV-related stigma. Why is there so little interest or support to get this program rolled out across our region?
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In parts of Africa, mothers living with HIV are now trained as "mentor mothers" and employed within the public health sector. They meet with pregnant women who test positive, disclose their status and offer support and information to guide them through their pregnancy. These projects record increased CD4 testing, ARV initiation, HIV disclosure, and infant testing. They also reduce the stigma that women feel on diagnosis and break down discriminatory attitudes and practices within the public health sector. How can we encourage public health authorities in our region to adopt similar programs? In Namibia, Africa, three women with HIV recently took their government to court and actually won the case in relation to coerced sterilisation. In Kenya there are similar moves afoot to challenge coerced sterilisation of positive women. When might such a case to be brought forward in Asia or the Pacific region? How can we mobilise support to advocate for the rights of key affected women and girls in an environment that is controlled by men? They don't bleed and they don't reproduce; they have a very different perspective to that of women and very often they just don't get it. Even within our networks of people living with HIV, women often struggle to bring their issues to the forefront because the boards of nearly all of these networks are dominated by men. On the rare occasion when a woman is asked to participate at the decisionmaking table, it is hard to be a lone voice on a committee comprised mainly of doctors and public health professionals - particularly in our region where the role of women is expected to be one of subservience and silence. So how do we support and mentor these women to do the best job they can? How do we ensure that women with HIV gain the skills and confidence to run vibrant, ambitious networks like IPPI, the national network of women living with HIV in Indonesia to take hold of the issues and speak out and advocate for their peers on all relevant policy making bodies? These are the questions that we might strive to answer over the next two days. I hope we can develop plans on how to mobilise resources and how to build the leadership and advocacy skills of women to speak out for themselves and their peers. It is no longer acceptable that key affected women's and girls' rights are ignored. It is no longer acceptable that young women are refused contraceptive options. It is no longer acceptable that women have unwanted pregnancies and coerced sterilisations. It is no longer acceptable that women with HIV are denied their rights to health, safety, housing, and family. All governments in our region have signed the Convention for the Elimination of all forms of Discrimination Against Women. It is time to map out a plan to draw government attention to how it is failing women living with HIV and key affected
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women and girls. It is time to make our governments accountable to uphold our rights, regardless of our status and treat all women with dignity and respect. Thank you.
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1. To what extent do you think were each of the workshop objectives achieved? 4 Completely achieved 3 Mostly achieved 4 1. To increase the understanding on and mobilise support for the issues of key affected women and girls among national and regional HIV and AIDS networks. 2. To develop policy recommendations by community and civil society organisations on key affected women and girls, including on intimate partner transmission of HIV 3. To map out potential advocacy strategy opportunities where advocates can deliver key messages and call attention to current critical issues affecting key affected women and girls, including at the UN Regional Consultation on HIV and KAWG in the ASEAN region, as well as at various national, regional, and global events in 2012-2013 4. To strengthen civil society participation at various national, regional and global policymaking forums and events in 2012-2013 2 Mostly not achieved 3 2 1 0 1 Completely not achieved Total votes 23 Other comments?
8 14 34.8% 60.2%
1 4.3%
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5 14 21.7% 60.9%
2 8.7%
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Comments: - Translator for local languages needed - perhaps too many objectives - all objectives felt meaningfully achieved
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2. How would you rate your level of satisfaction with the following aspects of the workshop? 4 Completely satisfied 3 Mostly satisfied 2 Mostly unsatisfied 1 Completely unsatisfied 1 0 total 22
a. Workshop programme design Comments: -like the interactive aspects, some activities needed more instructions - it is a great workshop where agencies/individuals come together for KAWG - The workshop program is ok for me, full contents for discussion - Program design is fantastic - was not here on the first day b. Effectiveness of the workshop in encouraging participation from people Comments: -consider language English only -too many people talking before lunch on Day 2 -small group work is increasing participation - English barrier to understand -ok c. Participants level of participation Comments: - language barriers make less participation by non-english speakers - reps from each country quite full d. Effectiveness of methodologies used Comments: - talking Day 2 morning hard to take it all in - the methodologies used are great e. Facilitation of the workshop Comments: -need to slow down when explain or facilitate sessions f. Presentations Comments: -varied - all speakers give us new ideas for advocacy
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strategies and issues - great presentations with strong messages Interesting and good opening g. Communication and coordination of workshop organisers with participants before the workshop Comments: h. Programme-related preparations for the workshop Comments: - attended only on 2nd day i. Logistics/administrative arrangements for the workshop Comments: - attended only on 2nd day j. The workshop, overall Comments: - I am pleased with the workshop - ok k. Are you feeling familiar with UNZIP the LIPS? Comments: - Yes! - yes! - Yes - No - Yes - Yes!! - Yes, I knew since launched at ICAAP10 - It is the first time for me, but it is great to share with other participants. I will share unzip the lips with others in my country - Yes - Yes, I have - Yes - Yes, been involved for one other workshop - yes - Of course - Yup - Yess - Yes! 8 10 4 0 36.4% 45.5% 18.1% 22
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9 45%
10 50%
1 5.0%
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l. Are you interested to be part or be more active with UNZIP? Comments: - YES! - Yes! - Yes - Yes - Yes - Yes, of course! - Yes because unzip is very useful to bring all womens issue to be heard - Yes, would love to get involved more and have updates of Unzip activities - Yes, as needed - Yes - Yup - Yess - Yes - Yes. Yet that is subject to approval from my employer - Thank you very much for Unzip, APA team to support and make a good workshop! - yes
Other comments: Require English-Lao translation thank you very much for making sure women stay on the HIV agenda thank you so much, a good space to speak out Felt meaningfully involved and included as a KAP. Thank you
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Others interested?
Other collaborators?
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The 46th Commission on Population and Development (CPD) The 3rd Global Women Deliver Conference
Harm Reduction, International Conference 2013 The 7th International AIDS Society (IAS) Conference on HIV Pathogenesis, Treatment and Prevention (IAS 2013) Planning a regional policy paper Prioritize SRHR in the post-2015 framework or the next MDGs
Priority Theme: Elimination and prevention of all forms of violence against women and girls Review Theme: The equal sharing of responsibilities between women and men, including caregiving in the context of HIV/AIDS New York, NY USA 22-26 April 2013 Theme: New trends in migration: demographic aspects Kuala Lumpur, Malaysia 28-30 May 2013 Invest in Girls, It Pays! APA plans on a session with a focus on MDG5 IHAA will attend Women Deliver and present a regional policy paper on women and children Vilnius, Lithuania 9-12 June 2013 Kuala, Lumpur 30 June 3 July 2013 Topic is not specific yet Monitor and engage in national, regional, and global events and consultations regarding a new
APA
APA
Susan Paxton will help out in developing abstract presentations for positive women
IHAA APA
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framework Serve as a member of the Committee Advisory Group (CAG) Human Rights Consultancy ICPD +20 Womens Rights Consultancy, ICPD +20 All events related to the ICPD +20 review Wish List of Activities Track on Key Populations (KPs) at International HIV/AIDS Scientific Management 2013 A 5-minute slot on a Roadmap for women-related events/abstracts at the Committee Advisory Group (CAG) More funding for programs/projects for positive women The International Campaign Stop Trans Pathologization 2013 Write a policy paper focused on Key Affected Women and Girls (KAWGs)/Key Populations (KPs) Paper on the Human Rights focused on female and young IDUs January-December 2014 Known Activities Details Anandi Yuvaraj, ICW-AP Rachel Arinii Judhistari, ARROW Rachel Arinii Judhistari, ARROW APA Others interested? APA
IHAA IHAA
Details
Contact Person
Other collaborators?
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Melbourne, Australia
Wish List of Activities Co-chair the Community Program for the IAC 2014 Co-chair for positive womens track at the IAC 2014 Womens Track at the IAC 2014 More positive women scholarships at the IAC 2014 January-December 2015 Known Activities Celebrate the first Transgender Secretary General of the UN, who shuts down UNAIDS and says We have reached ZERO! Wish List of Activities N/A
Details
Baby Rivona, IPPI Oldri Mukuan, Thaw Zin Aye, YouthLEAD Manis Chen, PT Foundation APA Anandi Yuvaraj, ICWAP Others interested? APA Anandi Yuvaraj, ICWAP APA APA
Details
Details
Contact Person
Others interested?
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APNSW
Meeting of Regional Networks on the Strategic Investment Framework (SIF) Come up with recommendation on reproductive health rights (RHR) for ASEAN Regional Conference with male, youth and HIV/AIDS networks towards the prevention of GBV in ASEAN (workplan of ACW) Wish List of Activities Ensure that ACHIEVE significantly
Philippines 15-16 November 2012 ACHIEVE is part of the Core Group for ACW Details
Manis Chen, PT Foundation Khut Th Hi Oanh, SCDI Susan Paxton happy to help the women to develop their presentations if needed APA Anastacia Ryan, APNSW APA
Others interested?
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influences the agenda/presentations at ASEAN Attend or influence the Asia-Europe Meeting Summit (ASEM) 9 January-December 2013 Known Activities ASEAN Civil Society Conference (ACSC) / ASEAN Peoples Forum (APF) 2013 International Congress on AIDS in Asia and the Pacific (ICAAP 2013)
Phillipines/CARAM Vientiane, Laos 5-6 November 2012 Details Brunei Darussalam Tentatively March/April 2013
Contact Person
MDG Regional Review UNESCAP Session on Population Regional policy paper International HIV/AIDS Alliance
Bangkok, Thailand 18-23 November 2013 Brahm Press (CARAM) is on the community committee Positive women are co-chairs and at least 15 positive women attend IPPI is sharing VAW films IPPI is sharing SRHR module on WLHIV YouthLEAD is sharing/presenting a GBV study on YKAP APN+ is an Advisory Group member - needs to strengthen Topic is not decided yet
Other collaborators? APA Manis Chen, PT Foundation Khut Th Hi Oanh, SCDI APA Manis Chen, PT Foundation RD Marte, APCASO Malu Marin, ACHIEVE Phillipines/CARAM IPPI Rachel Arinii Judhistari, ARROW RD Marte, APCASO Anandi Yuvaraj, ICWAP Susan Paxton APA
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meeting in Asia-Pacific Wish List of Activities Organize pink dot activity in Thailand Organize a workshop on positive women advocacy at the regional level for the ICAAP meeting Organize a workshop about women sexuality especially lesbian and bisexual issues on HIV and rights Joint effort with UNZIP on KAWG HIV/AIDS policy change is specific for women and girls Advocacy plan/workshop to accessing health care for KAWG At ICAAP, organize a cross-cutting panel session on migrants and women at ICAAP At ICAAP, make sure that there is specific support for KAWG and women and youth people living with HIV/AIDS At ICAAP, ensure more participation of women who use drugs, such as ensure scholarships At ICAAP, set up a womens forum and womens track At ICAAP, ensure gender equity for positive womens scholarships
Details
Others interested? RD Marte, APCASO APA YouthLEAD APA APA Frieda Lee
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YouthLEAD
January-December 2014 Known Activities ASEAN Civil Society Conference (ACSC) / ASEAN Peoples Forum (APF) 2014 The 7th Asia Pacific Conference on Reproductive and Sexual Health and Rights (APCRSHR) Wish List of Activities N/A January-December 2015 Known Activities N/A Wish List of Activities N/A
Details Yangon, Myanmar Tentatively March/April 2014 Manila, Philippines Details Details Details
Other collaborators? APA Khut Th Hi Oanh, SCDI APA Khut Th Hi Oanh, SCDI Others interested? Other collaborators? Others interested?
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Vietnam UNZIP to help promote the intervention of experience sharing Capacity building in Indonesia, Myanmar, Philippines, and Sri Lanka Details Indonesia
SCDI
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Action Plan for women in girls 20122014 January-December 2013 Known Activities Support TG women to ensure a network and that they have a voice WLHIV involved at evaluation of UNAIDS Operational plan on women and girls Wish List of Activities Data/demographic research on Transsexual in Malaysia. Meaningful participation of KAWG to ensure implementation of National Action Plan for women in girls 20122014 Set up positive women networks countrywide Sex worker network formed Strategy of PLHIV network by 2013 January-December 2014 Known Activities Submit a proposal for Thai positive womens advocacy Women and KAWG issues will be
Details Vietnam UNZIP to help with capacity building, exposure, and networking Indonesia Details With this data, it will be easier to talk to politicians/governments/policymak ers about our issues and concerns Indonesia
Contact Person Other collaborators? All Vietnamese NGOs SCDI All Indonesian NGOs Others interested?
APA
Details
Lao representatives
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mentioned and solutions Wish List of Activities Study on gender-based violence for women and girls Study on KAWG response to HIV Women living with HIV will have more opportunity to participant in national and international events January-December 2015 Known Activities Strategic plan on women and girls is identified and included into national strategies on gender, HIV, and health agendas Wish List of Activities N/A Details Contact Person Others interested?
Details
Contact Person
Other collaborators?
Details
Contact Person
Others interested?
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Consultative Meeting on HIV and Key Affected Women and Girls: Reducing Initmate Partner Transmission of HIV in ASEAN 24-25 September 2012 Phousi Hotel, Luang Prabang, Lao PDR
CALL TO ASEAN
Annex G: Our Call to ASEAN
www.unzipthelips.org
Who are Key Affected Women and Girls?
We recognize that key affected women and girls include: women and girls who are living with HIV, female sex workers, women and girls who use drugs, transgender women and girls, mobile and migrant women, female prisoners, women with disabilities, women in serodiscordant relationships as well as intimate female partners of men who engage in behaviors that put them at a higher risk of HIV infection.
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ASEANs Commitments
ASEAN countries have signed international conventions and ASEAN Declaration of Commitment. We congratulate ASEAN on the ASEAN Declaration of Commitment: Getting to Zero new HIV infections, zero discrimination, zero aids-related death. Especially paragraph 17f where ASEAN countries commit towards zero new HIV infections through encouraging and support the active involvement of key affected populations and vulnerable groups. We applaud ASEAN in its commitment to ensure that national prevention strategies comprehensively address communities at higher risk, of HIV infection such as people who use drugs, sex workers, and men having sex with men, including transgender people. We are proud that this sub region has taken up this important leadership role.
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ASEAN Member states have also pledged to eliminate gender inequalities and gender based abuse and violence especially by promoting the rights of women and girls, strengthening national social and child protection systems, empowering women and young people to protect themselves from HIV and have access to health services, including, SRH as well as full access to comprehensive information and education. These are crucial strategies in ending Intimate Partner Transmission of HIV infections.
We want to live in a world where these commitments are realized, where programs and funds, and resources are reaching us, key affected women and girls, ensuring that we can live in dignity and enjoy our human rights. We are worried and deeply concerned that gender, women empowerment and womens rights are lost in the HIV response. We, key affected women and girls are able to help ASEAN countries realize these commitments. To do so, we call on ASEAN member states to: To reduce Intimate Partner Transmission by scaling up programs that support work with Key Affected Communities; that guarantee the sexual and reproductive rights of women and girls; and that end gender based violence against women and girls. To scale up action and resources for policies and programs that address the rights of women and girls in the context of HIV and AIDS. To strengthen all laws and policies to protect the human rights of key affected women and girls, including women and girls living with HIV. Ensure an enabling environment by decriminalizing all sex work, drug use, same-sex behavior and relationships and transmission of HIV. To remove barriers to women and girls access to non-judgmental gender sensitive health and legal services. To address stigma and discrimination in health care settings for key affected women and girls including ending forced sterilization, forced abortion and compulsory HIV testing among women and girls Ensuring access to comprehensive gender and sexuality education for girls and boys for both in and out of school. Invest in women and girls leadership and guarantee the sustainability of community organizations and groups working for key affected communities through core funding support.
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We key affected women and girls know our problems best and we know how to address them. We are not the problem; we are part of the solution. We are not only a target group, we are partners in ensuring HIV responses are truly effective. We offer our partnership and request ACW and ATFOA to open up spaces for our meaningful involvement within ASEAN processes and bodies. We therefore request people gathered here in this room today to take our call forward to your home countries. And for those attending the 20th Annual Meeting of ATFOA, to support us in getting a seat so we could jointly strengthen our efforts towards a more 50 women-centred response.
Visit our website to find out more information and access resources:
www.unzipthelips.org
CONTACT US If you have stories, resources or other information to share with the community, please email us at unzip@unzipthelips.org To find out more about becoming a supporting partner of Unzip the Lips, please write to partners@unzipthelips.org
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