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Chapter 11 How did the EMTs and the doctors respond to what Neil referred to as Lia's big one"?

Do you think they performed as well as they could have under the circumstances? I think the EMTs and the doctors did respond as best they could. I think that Lias parents should have ran her to the hospital. But God bless them and the agony with which this has entailed. Lias parents entire lives were focused around her and honestly that is why it is hard to read this book. You are waiting for this to happen the whole time your reading- and when it finally hits you- its devastating. Im sure a lot of healthcare providers would have guessed the big one would have happened sooner. Neil and Peggy as well shared their fair share of heartache. It was so emotional to read about the first time Neil saw Lia after the big one. Chapter 13 How did you feel about the Lees's refusal to give Lia her medicine throughout the book? Why? Can you understand their motivation? Do you sympathize with it? I completely understand and I would not want to feed my child the medicine and I understand what the doctor is saying and why they say its good for her. I would hate that so much. I am a believer in alternative and the internal healing process. I completely understand their motivation and desperation. I understand that they did not feel at ease with the hospital staff and the hospital staff did not really care for them, but Lia was always the focus and that was appropriate. I can sympathize with the hospital staff and the difficulties that come along with difficult families, patients managing multiple of these, medications, documentation multiplied by six patients. However, I can admit myself, that when I am the patient or family member- there better be what I want and when I want it because its life!!!!! And what is more precious then life? I believe and I think it is revealed in the book how the Lees herbal remedies saved her and healed her when she initially went home on hospice care. This did have a definitive and assessable change in her health. You have to be very careful and know what you are doing always, whether it is herbal teas or medications for your blood pressure. Knowing your body is best- that is the best prevention. Unfortunately with Lia- there was no prevention because even though she was taking her meds correctly, she still had a devastating life altering seizure. Nothing anyone did could have prevented that seizure. In a beautifully destructive way this was Lias destiny. 17 17 17

Week 6 book discussion Options Menu: Forum Chapter 14 What was the "role loss" many adult Hmong faced when they came to the United States? What is the underlying root cause? How does this loss affect their adjustment to America? When the Hmong came to America- they did not have a purpose and without a purpose life is not pleasurable. The Hmong went from taking care of every single need for themselves to living in apartments with no idea of what to do or where to go. They were not given any opportunities, but its an awkward situation to be in. If the U.S. would have allowed the Hmong to have a piece of land like a state forest in North Dakota for example- it would be chaos. They practiced the burning of fields and

other extremely unacceptable living conditions. The Hmong lost their identity when they came to America because they were enabled and forced at times to live on welfare. This created poverty and these conditions in this country are clearly worse than in other third world countries. The Hmong were scattered and without their community they could only be dedicated to their culture together in immediate families. Being taken out of nature was not conducive for mountain people. Those who were fortunate enough to get jobs and be successful working- usually did so working with the land some way shape and form. Chapter 15 It is clear that many of Lia's doctors, most notably Neil Ernst and Peggy Philp, were heroic in their efforts to help Lia, and that her parents care for her deeply, yet this arguable preventable tradedy still occurred. Can you think of anything that might have prevented it? I do not think that anything could have prevented this tragedy from occurring- I believe, as hard as it is, Lia was meant to live this life and to be a reason to change the world. I think that due never ending love from her family and hard work and dedication from the healthcare providers at MCMC, especially Neil and Peggy. Scrutinizing the story is easy now that these events occurred almost 30 years ago. Communication has changed much, but some cultures, especially a somewhat broken one like the Hmong- are especially difficult to cohabitate with in the same city. The only recommendation I will provide is that Lia maybe should have been referred to a specialist who was willing to help the family also. There are Ronald McDonald houses and other facilities similar to that now. I cant imagine what Lias parents endured while they lived out of waiting rooms with no food or water ever offered to them. That is appalling to me, however, it is common to see this taken advantage of in certain communities 3 3 3

Week 7 book discussion Options Menu: Forum Chapter 17 What does Dan Murphy mean by, "When you fail one Hmong patient, you fail the whole community" (p. 253)? Chapter 18 What did you learn from this book? Would you assign blame for Lia's tragedy? If so, to whom?

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