July 2013

Bearing up well
Your support on Daffodil Day helps fund ground-breaking research just like Professor Barbara Leggetts study.

INSIDE
Top tips to prevent bowel cancer. P3 Find out how to assist Queenslanders to reduce their cancer risk. P6 Hear about the latest developments direct from Professor Jeff Dunn CEO. P2 WIN! 5 copies of Professor Ian Frazers amazing new biography to give away! P8

INSIDE
Read our exclusive interview with Professor Leggett inside to learn more about her current cancer research! P3

Volunteer Voice | July 2013

Message from Jeff

Welcome to the latest edition of Volunteer Voice.
The contribution of you and other volunteers during the first half of 2013 has been, as ever, outstanding, with over 200 new volunteers registering to support our efforts in cancer control. Impressively, you helped us to raise more than $2 million from Australias Biggest Morning Tea, providing vital funding for cancer research and support services. As excitement builds for Daffodil Day on Friday August 23, we hope to continue this success. For our part, well continue to give back, helping Queenslanders to prevent and survive cancer. So far this year, our contribution has been strong:

Saving Lives

Research

456 Queenslanders were referred to our free Cancer Counselling Service, with over half of these from regional areas. Six eight-week Living Mindfully groups were delivered in Brisbane, Townsville, Rockhampton, and on the Sunshine and Gold Coasts. We launched a phone-based mindfulness group for men with advanced prostate cancer, as part of our long-term commitment to the Living Well with Prostate Cancer project. Our researchers had seventeen scientific papers published in internationally esteemed peerreviewed journals. We released the latest comprehensive data set on cancer incidence and mortality in Queensland, with numbers and statistics spanning from the years 1982 to 2010, informing the important work of local and national researchers.
I also had the opportunity to visit 26 communities across the State as part of the CCQ Family Reunion, with 24 more visits planned by the end of the year, to thank each of you personally for your support. You are, indeed, a terrific group of diverse and dedicated individuals! My initial visits have reminded me once more of the particular challenges faced by regional Queenslanders diagnosed with cancer and the important role we play in enhancing research and support to improve survival rates across the State. And each of you sustains that work! Thank you once again you are helping to create hope for a cancer free future. I look forward to catching up with you soon. Best wishes, Prof Jeff Dunn Chief Executive Officer

Bowel cancer researcher working to find a cure

Every year, 1 in 20 Australians develop bowel cancer making it the 3rd highest cause of cancer related deaths nation-wide. The team at Volunteer Voice knows how important this topic is to you all, and have caught up with Professor Barbara Leggett to give you the latest update on bowel cancer research.
By Paras Vasiliou Cancer Council Queensland funded researcher Professor Barbara Leggett, Laboratory Head of the Gastroenterology unit at the Queensland Institute of Medical Research has been involved in bowel cancer research for the past 20 years. Over the years we have seen an explosion of knowledge about genetics which has allowed us to make advances in understanding how bowel cancer occurs and how to prevent it, said Professor Leggett. Unlike other cancers, bowel cancer is preventable making it an exciting area to investigate.

We connected with over 3,400 Queenslanders to directly provide cancer support. Our Helpline responded to nearly 10,000 calls from people who needed our advice and support. Nearly 1,000 regional patients stayed at one of our Statewide accommodation lodges and we opened our sixth lodge, the Ellis Lodge, at South Brisbane.

This project simply could not have been done without your support. Your commitment allows researchers like me to work to find the cure for cancer.

Paras interviewing Professor Leggett.

Welcome to the first edition of Volunteer Voice for 2013!

Our Volunteer Voice newsletter is prepared just for you to share the most up to date information on what weve achieved this year and what you can anticipate for the rest of 2013 in the wonderful world of volunteering at Cancer Council Queensland. So far this year we have had our Volunteer Branch Conference in March which was attended by 68 delegates from 31 Volunteer Branches across the State. We were also very excited to celebrate National Volunteer Week on May 13-19. Morning teas were held in every region to say thanks a million to us volunteers. There have been many exciting advances in volunteering within CCQ. Earlier this year we saw the launch of the volunteer opportunities page on
2

queries you may have. We always love to hear from you! Looking forward, in order to allow CCQ to stay in touch more effectively with us volunteers, staff will be in contact to verify your contact information. The team look forward to chatting to you all soon!
Marie, Tristan & Nat from the Volunteers & Community Engagement team.

the CCQ website to promote current available positions. More recently we saw the Volunteer Hotline 1300 851 957 launched, providing a direct phone number to the Cancer Council Queensland Volunteer and Community Engagement team for all volunteers. We encourage you to call with any

Thank you for your continued hard work and dedication. I am certain that we, as volunteers are appreciated and are making a real difference in the fight against cancer! Paras Vasiliou CCQ Volunteer and Community Engagement Communications Assistant Phone: 1300 851 957 Email: volunteer@cancerqld.org.au

Bowel cancer develops from polyps which are growths in the lining of either the small or large intestine. In the past, these polyps were classified in two categories: adenomas which were considered important to remove and hyperplastic which were ignored as they were not known to be connected to cancer. A breakthrough of Professor Leggett and her teams research was discovering that some of the hyperplastic polyps were in fact turning into cancers. They classified this as a serrated polyp responsible for causing 20-30% of all bowel cancers. Thanks to a grant from the Cancer Council Queensland, Professor Leggett is leading a current research project to identify what causes these polyps to progress directly into cancer. This project has two parts to it: lifestyle and molecular. Firstly, any patients who present with serrated polyps are asked to

participate in a questionnaire to identify any lifestyle factors associated with developing bowel cancer. A sample of their blood is then taken to understand any genetic predisposing factors that cause these polyps. The second arm of this project is to do molecular work on the serrated polyps themselves to allow us to look directly at what molecular changes are occurring that progresses into cancer, Professor Leggett said. Interestingly, one lifestyle factor that has already been associated with serrated polyps is smoking. Regular screening is recommended every two years to prevent bowel cancer. Cancer Council Queensland has been advocating to the Queensland Government to implement the National Bowel Cancer Screening Program. Professor Leggett is grateful for

Top tips to prevent bowel cancer

Get 30 to 60 minutes of physical activity every day Eat a well-balanced diet Limit or avoid alcohol Quit smoking

the support of the Cancer Council Queensland, all of which would not be possible without our wonderful volunteers. This project simply could not have been done without your support. I would like to thank each and every volunteer who contributes their time and efforts to the Cancer Council Queensland. Your commitment allows researchers like me to work to find the cure for cancer.
3

Volunteer Voice | July 2013

ROMA

mossma port don uglass

MILES

INNISFAIL

MORANBAH

Think positive, the cure is just around the corner!

Cheryl, Warwick

We all need to help RESEARCH to find a cure.

Carol, Karumba

BURDEKIN

SARINA

TOWNSVILLE

Warwick

CHINCHILLA

BEENLEIGH

One day we will turn our HOPE into a CURE!

Amanda, Townsville

BARCAL DINE

One day we will get there and have a cancer free world.
Raelene, Mossman Port Douglas

MT ISA

WHITSUNDAYS

CAPRICORN COAST
4 5

Volunteer Voice | July 2013

Cutting cancer risk

Prevention

Helping Queenslanders affected by cancer

Support

Volunteer Profile

Its time to join the

Did you know that one third of cancers can be prevented by adopting healthy lifestyle choices? In order to promote this, Cancer Council Queensland have introduced a FREE program called QUEST, to make it easier to remember the small, every day healthy changes we can all make to help reduce our cancer risk. It is easy to join QUEST says Louise Baldwin, Executive Manager of Public Health. Whether making a quit smoking attempt or going for a morning walk with friends to be more active, QUEST provides you with the support needed to make a healthier choice. When asked how volunteers can get involved Louise Baldwin had this to say - You are a valuable asset to our organisation and we rely heavily on your ability to affect change in your local communities. You can assist all Queenslanders to reduce their cancer risk by promoting the QUEST. One of the best ways you can contribute to public health is to join the QUEST yourself. Whether you are hosting a CCQ fundraiser or are spending time with family and friends you can role model simple steps. SunSmart Shop volunteer Marie Hutley is working to reduce the impact of cancer in her community. We live in Queensland, the skin cancer capital of the world so it is vital that we all protect our skin every day, even in winter. I love interacting with customers and with my fellow volunteers ensuring I inform them of the importance of staying SunSmart every day. If we all take small steps like Marie to help reduce our cancer risk, we are one step closer to a cancer free future. To see how easy it is visit our website www.cancerqld.org.au/quest to join the QUEST and be supported to make small easy changes that fit in with your lifestyle. Need more information? Contact quest@cancerqld.org.au

Cancer Connect volunteer gives back

Nine years ago Jarrod Burridge was diagnosed with Hodgkins lymphoma and had to travel from Mackay to Townsville for treatment. The Cancer Council Queensland volunteers at Townsville Base Hospital would sit with me for hours and give me so much support whilst I was receiving treatment. It was there that Jarrod decided, if he got through, he wanted to give back. I cannot put into words how much the support of the volunteers meant to me he says. Today Jarrod is proudly providing telephone based peer support to Queenslanders affected by cancer in his role as a Cancer Connect volunteer. Cancer Connect matches people who have experienced cancer with others currently undergoing treatment. The service is accessed via the Cancer Council Helpline by calling 13 11 20.

Roz Black
Since mid-April this year we have already received 20 applications from people seeking to join their local Cancer Council Queensland Volunteer Branch. As a result, were excited to introduce you to Roz Black a new Redlands Volunteer Branch Member!

What do you love most about your role?

I find that volunteering has the potential to change lives, including your own. Volunteering gives me a sense of fulfilment and of satisfaction while at the same time being an opportunity to promote compassion, awareness and support. I believe within us all there is something which we can all do to help others.

30%
All Cancer Council volunteers now receive a 30% discount* on all merchandise in the SunSmart shop!
*Some conditions apply

OFF

Volunteer Profile

What has been the most inspiring/ moving moment youve had since commencing in your role?
Experiencing my very first Relay For Life last year was definitely my most inspiring and moving moment since I have been a CCQ volunteer. It is hard to put into words the way that Relay For Life makes you feel, but I know that after the 18 hour event, even though I was knackered I still felt like I could take on the world! Relay brought out both sad and happy emotions, but left me with a breathtaking life experience.

volunteer discount*

I cannot put into words how much the support of the volunteers meant to me.

Carley Duffy
Position: Townsville Relay For Life Marketing and Media Coordinator How long have you been volunteering with CCQ?
I have been volunteering with CCQ since February 2012, it has been the greatest 18 months!

What is your hope for the future? What do you hope your volunteering will achieve for cancer and CCQ?
I hope that the future will see great advancements in cancer research development, which will mean people living longer because we cant let cancer get in the way! Life is such a precious gift so why should cancer take that way from us?

For my first match I was given a client who had the exact same diagnosis as I did. To be able to give them genuine support and for them to know that you have been through exactly the same thing is so important. To be able to be there for them. You have an instant connection knowing they are in the same place as where you have been. Today Jarrod lives on the Gold Coast and has this advice for anyone thinking about

What do you love most about your role?

What I love most about my role is that I get to be a part of such a great team who are doing great things for their community. Each Committee meeting brings new opportunities for us to gather, share thoughts and build on great ideas, it is so rewarding!

Who inspires you?

My housemate inspires me! She is a true cancer battler and I always think of how strong she is when I get upset about petty things. Shes a great reminder to me that we need to appreciate all the little things in life!

becoming a Cancer Connect volunteer, In a heartbeat, do it. Even if you are someone who has not been through cancer yourself. I cannot express how much satisfaction you will get out of it. As for idols, its the ordinary people who do extraordinary things that inspire Jarrod the most. The volunteers on the ward in Townsville gave me courage. Now in his role as a Cancer Connect volunteer Jarrod is able to give that courage to others affected by cancer.

What is your hope for the future? What do you hope your volunteering with CCQ will achieve?
We all have our own hopes and dreams but for me it would be a hope that we will always have sufficient funds and resources and people who give of their time and skills to continue research into finding a cure for cancer. I hope my volunteering with CCQ will help achieve this in some small way.

If you had a wish, what would it be?

That my grandchildren will be able to see the wonder and beauty of a cancer free world!

Who inspires you?

Lots of people! I have been given opportunities in life to see the strength and courage of many people in the face of adversity and those people are my inspiration...sometimes in those times we learn It is better to give than to receive.

We are currently recruiting Cancer Connect volunteers. Visit the website to view this position description and apply online. http://www.cancerqld.org.au/page/support_us/volunteer/current_ volunteer_opportunities/

Get involved

Fundraise

Daffodil Day Logo guidelines

Tiffany spreads hope

20-year-old Edmonton local Tiffany Noakes has overcome a fair share of hurdles for someone her age, but she hasnt let her experiences dampen her drive to make a difference and spread hope. Three years ago Tiffany was diagnosed with Leukemia and during one tough hospital stay she remembers receiving her first ever daffodil, the international symbol of hope. After completing treatment including chemotherapy she was determined to help other people touched by cancer feel like she did that day. I want to spread hope and give something back to all of those wonderful people who helped me, she said. She started fundraising around her community, helping out with raffles and national events like Australias Biggest Morning Tea her workmates at Blenners Transport even jumped on board. I want people who are going through cancer, and their families, to know that they are not alone and with your help we can make a difference this Daffodil Day. Tiffany has been named a Cancer Council Face of Hope in celebration of Daffodil Day this August 23. Get involved to volunteer for Daffodil Day in your community visit daffodilday.com.au or call 1300 65 65 85.

The Daffodil Day logo has been developed as a 'fully endorsed' sub-brand. This means that t used within the sub-brand logo and that only one logo is placed on all materials.

Fundraising events calendar

1 Standard colour logo for use on all materials where possible

August 23

2 Alternate colour for use on blue/da than black

3a.1October Alternate colour 28 logo for use on yellow/light backgrounds

3b Alternate colou for use on yellow the contrast bet colour and the lo the white text di

3a.2 Alternate colour logo to get involved in your for use on white backgrounds

Check out www.relayforlife.org.au 3c local Relay or call 1300 65 65 85.

Alternate co for use on ye

Australias Biggest Morning Tea success!

With 2013 marking the 20th anniversary of Cancer Councils Australias Biggest Morning Tea the pressure was on to make this year the biggest one yet. 6,000 Queenslanders registered to host a morning tea raising a staggering $2.1 million. Vollie Voice is happy to report that thanks to our wonderful volunteers we were able to send out 7,180 host kits saving the organisation over $2,000. We cannot thank you all enough for your support ensuring Cancer Councils Australias Biggest Morning Tea was a huge success in 2013.
4 Greyscale logo for use in black and white reproductions on white backgrounds

5 Greyscale logo for use in black an black background

6 Mono logo 7 Mono reversed l for use in black and white reproductions on for use in black an white backgrounds where tints are not black background Amanda Power, Justen Orford &suitable Toni McGregor. suitable

Ian Frazer book giveaway!

Be among the first Queenslanders to purchase the first biography of former Australian of the Year and pioneering Queensland-based cancer researcher Professor Ian Frazer, Ian Frazer: The man who saved a million lives. The book is available mid-August from our SunSmart shop for $29.95 but get in quick before they sell out! Respected across the globe, few people know the real story of the Scottish-born scientist who discovered the worlds first vaccine for cervical cancer. This achievement was made possible through research funding from Cancer Council Queensland, with your help, as well as other leading research funding institutions. Given exclusive access to Ian Frazer, biographer and award-winning journalist Madonna King peels back the many layers of his extraordinary life. She tells of the ongoing struggle for funding cancer research, the herculean international legal battle waged to win the patent, the devastating loss of his friend and co-researcher, Dr Jian Zhou, and Ian Frazers ongoing commitment to have the vaccine made available in the developing world.
VSSQ03_7/13

Ian Frazer: The man who Minimum size: a million lives is an xunforgettable story of perseverance and aspiration. x x And he isnt finished yet, 30mm x with research underway x for another historic medical breakthrough. State/Territory logos
Minimum clearance: saved

Text only artwork It is preferable to use the Daffodil Day logo with the Cancer Council logo as possible. In certain applications however, such as on lanyards, the Daffodil separated from the master brand and used alone. Text only artwork has be purpose for use on white or light backgrounds as well as blue or dark back your local brand guardian or the national office for the artwork files.

We are lucky enough to have 5 copies of this book to give away to our readers! All you need to do to enter is to submit your Volunteer Profile using the contact details on page 2 of this edition of Volunteer Voice. Entries close August 30. Winners will be drawn at random and notified by phone.

State/Territory descriptors are not used in the Daffodil Day logo as it is a na