Asian MS Newsletter Spring Issue, 2012

Spring Issue 2012
Asian MS Newsletter EMERGING THERAPIES A CLOSER LOOK

***************************************************************** Editors Note - Asian MS was very lucky to have Prof. David Baker from the Neuroimmunology team at Barts and The London Group give a talk about emerging therapies at our annual social in November 2011 (see Winter Edition). As a follow-up, he has provided us with a closer insight into whats happening in the world of MS therapies. ***************************************************************** The current standard disease-modifying therapies are the beta interferons and glatiramer acetate. These are not hugely effective and have to be frequently selfinjected. At the beginning of 2011, we had the really exciting prospect of the introduction of five new oral pills for the treatment of MS, that promised to be more effective than the current standard therapies. Gilenya and Moveco were the leaders of the pack and showed twice the effectiveness on treating relapses compared with the standard therapies. Moveco was first to the regulators and was licensed for use in MS in Russia and Australia. This drug was taken for a week each year over two years. However, some concerns of cancer risks meant that regulators wanted more safety information in the USA and Europe. Rather than more studies, the company decided to stop further development and withdraw the drug. They did this because they thought that they would be too far behind the success of Gilenya. That drug, taken daily, blocks
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white blood cells from entering the blood and therefore the brain, and was approved for use in the USA and Europe.This has become the first licensed oral pill for the treatment of MS. This was good news, but the price could be a catch. The company has charged so much for the drug that it was not approved by the National Institute of Clinical Excellence (NICE) in the UK. This has hindered its progress towards the NHS. Despite some wheeling and dealing, it has still not overcome this hurdle. Very recently there have been some unexpected deaths occurring shortly after taking the drug. The jury is still out on whether these effects are related to the drug or due to chance, but this could influence if and how the drug is used in the future. This has put a dent in the progress of oral pills. More disappointing news is that another of the pills will fall by the wayside, as Laquinimod was found to be less effective than beta interferon. Teriflunomide has not fared much better, but is at least as effective as the interferons. An application for approval for use in MS is now being sought. It may therefore have the benefit and the low side-effect profile of interferons but with added benefits of being a pill.
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
symptom control drugs but they are some way from being prescription drugs. Likewise, it is going to be some time before drugs that treat myelin loss are on the market. However there have been some significant inroads in discovering factors that promote repair. This will need to be tested in trials but one of these, called anti-LINGO, has been in its first tests in humans after successful animal studies. There Also, in the not too distant future, Lemtrada will appear are more drugs like this in the pipeline and trials on the scene. This is an antibody which kills white blood on stem cells are in progress. cells and is highly effective at stopping relapsing disease So whilst progress is not fast enough, I believe and can be over three times as effective as the interferons. This is given as a short course, like Moveco. that progress is indeed being made. We are getting better and better at treating relapses and Whilst there are some side-effect issues, people taking this drug over ten years have never had another attack. attention is really being focused on progressive Therefore there are significant in-roads in controlling MS. ~Prof. David Baker relapsing MS. A number of other drugs such as ****************************************************** Ocrelizumab are in late stage testing and were much Editors Note If you are faced with the decision of which drug to take (if any), it can more effective than interferons in earlier small-scale be a daunting task looking through all the trials. Another pill, currently called BG-12, has been found to be twice as effective as the interferons, and so far has been found to be relatively safe. A version of this drug has been used for many years for the treatment of psoriasis and so let us hope that no unexpected sideeffects appear. Importantly this drug may have the potential to have an effect on progression. This has yet to be formally tested but this is on the way no doubt. There is also great activity surrounding progressive MS. Gilenya is currently on trial in primary progressive MS and another trial with Tysabri, which is very effective in treating relapses in MS, has been started in progressive MS. Other late-stage ongoing trials include Ocrelizumab, a B-cell depleting agent, and Dronabinol, a drug in cannabis. There are also a number of smaller trials with several other drugs - too many to mention. There are plans in place for major studies to treat progressive MS throughout the UK, but details of this have yet to be officially announced.
information available in terms of relative risks and benefits. Your neurologist and MS Nurse will be able to advise you on what may be the most suitable therapy for you. However, there is also a wealth of information available online. Please see the links below:
http://www.mssociety.org.uk/what-isms/treatments-and-therapies/diseasemodifying-drugs-dmds www.mstrust.org.uk/atoz/drugs.jsp http://www.msrc.co.uk/index.cfm/fuseacti on/show/pageid/397 http://www.msdecisions.org.uk/
Sativex, which is medical cannabis, has been licensed

for the treatment of spasticity in the UK, although the Hospital Trusts are finding it difficult to get this funded. There are a number of other anti-spastic agents such as slow-release baclofen that may last the night and are in late stage trials. Fampyra is a new drug that can improve walking and has just been approved within Europe. There are other studies ongoing with different
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...STOP PRESS..STOP PRESS

Since this article was written, NICE has said that it will recommend that the NHS can prescribe Gilenya to MSers who have continued to relapse even after being on a first-line drug (betainterferon or glatiramer acetate):
http://www.mstrust.org.uk/news/article.jsp?id=5275
A message from the Editor

Spring has finally sprung! As I write this the sun is shining and the daffodils have finally made their proper appearance (not covered in snow, as in February!) Its also time for the Spring Issue of Asian MSs quarterly newsletter. The next few months are jam-packed with MS-related events and there is plenty for you to get involved in, if you so wish. MS Life in Manchester promises to be fantastic, blending lifestyle-, medical- and researchrelated talks, information and workshops for MSers and their carers, family and friends. Asian MS will be holding a workshop on Sunday 15th April from 2.45pm to 3.15pm so please do come and see what were about. We would also like to encourage members and non-members alike to attend our Annual Meeting on Saturday 19th May. In an effort to try to engage people from outside of London, we have decided to hold the meeting at Maidenhead Town Hall, Berkshire, thanks to the kind donation of the facility by the Mayor of Maidenhead. Running from 12-4pm, this will be a great chance to meet the committee, socialise, listen to some great speakers and, as always, have a bite to eat! I would also like to encourage everyone to complete the feedback survey, information for which is opposite. Asian MS and this newsletter is for YOU. We would like to know what you would like to see more of and any ideas you may have to keep this newsletter fresh and informative. Enjoy this edition and please pass it on to anyone who you think may be interested in our work. Hopefully see you all soon in Manchester or Maidenhead.
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CONTENTS -Emerging therapies a closer look.p.1-2 -Welcome; Feedback survey.p.3 -Your views on the new DLA; Lunch & Learn at Genzyme; MS Society Awards.p.4 -A chance to get involved in surveys, research and clinical trials..p.5-6 -Key dates for your diary.p.7 -Travelling in a wheelchair; Asian MS thanks Yonex.p.8 -MS-friendly holiday breaks; Barts Research Day.p.9 -General information and literature.p.10 -Latest research and MS in the News.p.11 -Fundraising for Asian MS.p.12 -Useful information and contacts.p.13
FEEDBACK NEEDED!
Asian MS would like to receive your feedback about our quarterly newsletter. If you receive an online version of the newsletter you will automatically be sent a link for an online survey. We would appreciate it if you could complete the survey by Monday 23rd April 2012. If you receive a hard-copy version of this newsletter please go to the following link to complete the survey: http://www.surveymonkey.com/s/88HDQL6
~The Editor~
A CHANCE TO GET INVOLVED

YOUR VIEWS ON THE NEW DLA Personal Independence Payment (PIP) is to replace Disability Living Allowance (DLA). From 2013-15 everyone on DLA will be reassessed for the new benefit. Now is our chance to shape what the new test will look like. The Government is currently consulting on the assessment criteria that will be used for the new benefit. The MS Society wants to know your views on how this will work for people with MS. Find out more and respond to the Government consultation at: (deadline 30th April) www.dwp.gov.uk/consultations/2012/pip.shtml If youd like to contribute to the MS Societys response, please contact Hayley Jordan at hjordan@mssociety.org.uk or 020 8438 0753.
MS Society Awards
The MS Society Awards highlight the achievements of MSers, their families and carers, and the professionals who make a difference to people living with MS. If you know someone that has made a real difference to the lives of people affected by MS this year, whether it's a fundraiser, carer or MS professional, the MS Society wants to know about them!
The Award Categories are: MS Research of the Year; MS Employer of the Year; MS Media Coverage of the Year; MS Volunteer of the Year; MS Fundraiser of the Year; MS Carer of the Year; MS Young Person of the Year; MS Professional of the Year; and MS Inspiration of the Year.
Please note:

******************************************** Lunch & Learn Event at Genzyme

In February, Asian MS member, Trishna, spoke at a Lunch & Learn event at Genzymes offices in Oxford. Genzyme is the pharmaceutical firm behind the MS drugs Alemtuzumab and Teriflunomide. The event aimed to increase the knowledge and awareness of MS among Genzyme staff. Trishna spoke about her MS journey, including diagnosis, treatment and management. Speaking alongside her was an MS Nurse and a representative from the MS Trust. The event generated a great deal of positive feedback, with attendees saying that they had learnt many new things about MS and the way it can affect people.
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You may nominate someone else, or selfnominate Nominations from all areas of the MS community are encouraged Paid employees of the MS Society cannot enter but may nominate entries for the MS Society Awards Members of staff who have undertaken volunteer work outside their paid job should seek advice about eligibility to enter from Category Champions Full judging process details can be found at
www.mssociety.org.uk/awards
Independent work that has been funded, but not undertaken, by the MS Society is eligible for entry.
You can contact the MS Society Awards team on 01494 671332 or email mssocietyawards@mssociety.org.uk
Closing date for entries is 20th April 2012
A CHANCE TO GET INVOLVED

The MS Society needs your help The hard work put in at a local level in partnership between branches, volunteers and staff at the MS Society has contributed towards protecting 12 specialist nurse, physiotherapy and occupational therapy posts across the UK and ensured that people with MS have access to the specialists they need. In 2012 it is important that there continues to be active collaboration with decision makers locally, where MS services are under threat or are being reviewed, and make sure we seek the best outcome for people affected by MS. If you hear of any planned changes to roles or services then please get in touch with your local Service Development Officer to discuss.
You must also have an EDSS score of between 3.0 and 6.5. There are various UK trial centres, with some of them currently recruiting (Liverpool, Manchester & London). The study is forecast to be completed by December 2014. If you are interested then get in touch with your neurologist or email: neurologyclinicaltrials@biogenidec.com
Carers needed for online questionnaire request Laura Kelly, a PhD student is looking to explore how sharing health experiences online affects people. The research aim is to find how best to incorporate peoples experiences into health websites. Therefore, a questionnaire is being developed asking people about sharing their health experiences online. Feedback is being sought as to whether the questions are understandable and accurately reflect the effects of sharing health experiences online for carers of MS patients. To be eligible, you must care for someone with MS, be aged over 16 and have internet access (in order to complete the questionnaire). You must also be a UK resident. Participation will take up to 20-25 minutes and involve answering questions about general views on health websites, as well as questions on a specific health website that will be given. For more detailed information about participating in this research please go to:
Clinical Trial for Secondary Progressive MS Ascend is a Phase III trial for 850 people across 15 countries that will look at how effective natalizumab (Tysabri) is in secondary progressive MS (SPMS). The trial aims to test if the drug will halt the inflammation in the central nervous system that causes nerve damage and, therefore, slow down progression of the disease. To be eligible you must never have had natalizumab treatment before. Participants will receive either 300mg of the drug or a placebo via intravenous infusion every four weeks for 96 weeks.
http://www.publichealth.ox.ac.uk/research/hsru/ Other criteria to be eligible includes being between ehealthms 18 and 58 years old and you must have had a diagnosis of SPMS for a minimum of two years.
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A CHANCE TO GET INVOLVED TELL YOUR STORY

~Volunteers wanted to share their story The press office at MS National Centre is looking for willing volunteers who are interested in sharing their experiences of MS with the media. With MS Week, Carers Week and MS Life coming soon, and the Welfare Reform Bill currently going through Parliament, the views of people with, and affected by, MS are more important than ever. Using stories from people affected by MS, they want to raise awareness of the condition and the issues and challenges that people face. In particular theyre looking for people who can talk about: MS Life are you attending MS Life in Manchester on 14th 15th April? Have you benefited from attending before? Do you live in the North West? If you want to help raise awareness of the event then please get in touch. MS Week were looking for people who embody the Get Active theme. Get in touch to say how you have Got Active. Carers Week do you care for someone with MS? Or do you have MS and care for someone else? The theme for this years Carers Week is in sickness and in health and the press office is particularly interested in hearing from people who have a health condition themselves, but is also a carer. Social care are you struggling to access the social care and support you need to live your life? Share your story. To contact the press office please email pressoffice@mssociety.org.uk
QoL Tool Trial

LifepsycholQoL is a new tool that has been developed to help people communicate how their quality of life (QoL) is being affected by the long term conditions(s) they are living with. It has been developed by Innervate Ltd., who is looking to offer up to 20 people with MS a chance to trial the tool and give their feedback. LifepsycholQoL is available either as an electronic dial (accessible online) or as a hand-held dial. Initially, the hand-held dial will be tested first, with a chance to trial the electronic dial afterwards. The dial aims to capture important information about how your long term condition affects key issues e.g. relationships, fatigue. If you would like to test the dial then please contact Dr. Neil Bindermann at Innervate Ltd via: info@innervate.co.uk ***********************************************************
Carers Week 2012: Survey now open

The MS Society is a partner in this years Carers Week: 18 - 24 June 2012. The theme this year is In sickness and in health. What are your experiences of caring? How much does your caring role impact on your health and wellbeing? Are you worried that the Governments cuts will make you shoulder more of the responsibility? Are you already feeling the effects of cuts to local services? If so, theyre keen to hear more. Even if youre not affected by the cuts, they want to hear about that too! The nine charities which make up the Carers Week partnership have opened the annual survey for 2012. Go to www.surveymonkey.com/s/carersweek2012 to give your views.
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EVENTS
KEY DATES FOR YOUR DIARY 14th-15th April 2012 MS Life, Manchester The Asian MS Annual meeting will take place on The largest event in Saturday 19th May 2012 at the Desborough Europe for people Suite at Maidenhead Town Hall, St Ives Road, affected by MS. It will Maidenhead, Berkshire, SL6 1RF. It will run from include research talks, workshops, lifestyle events and 12pm until 4pm. The provisional agenda is an exhibition. The theme for MS Life will be Get 12pm-1pm Annual Meeting, 1pm-2pm Speakers Active, whether it is being physically active, getting (to be confirmed), 2pm-4pm food and social. We involved in your local branch or making a donation. It is would like as many people to come to this as about making a positive difference to your life or the possible members and non-members are lives of people affected by MS. To book your free place welcome, although only members will be able to for MS Life please go to: vote on committee nominations. If you would like www.mssociety.org.uk/mslife to stand for a committee role, please contact Asian MS. Information will be sent out to members so look out for it! The Town Hall is fully accessible and is a short distance from Asian MS will be present at Maidenhead train station, which has good MS Life so come and say hello! mainline connections. Please do come and show We will be holding a workshop your support and have a good time. on Sun. 15th April from 2.45pmCake Break 2012 3.15pm. There will also be a The MS Society is chance to meet volunteers encouraging people to and committee members and participate in its biggest take part in some fun community event of this year - Cake Break 2012. fundraising activities! Every branch across the UK is being encouraged to take part.
Asian MS Annual Meeting
Celebrity chef Ainsley Harriott will be the face of Cake Break 2012. The event launches on Friday 4th May. Online registration starts from 16th January at www.mssociety.org.uk/cakebreak You can also register by phone to receive a hard copy of the fundraising pack by contacting Mita Vaghji (Community Fundraiser) on 02084380737 or cakebreak@mssociety.org.uk
MS WEEK 2012 will be 30th April 6th May! How will you help raise awareness?
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A GUIDE TO TRAVELLING SAFELY IN A WHEELCHAIR

Moving into a vehicle safely Before moving someone into a vehicle it is important that a lap belt is securely in place to prevent falls. Once someone using a wheelchair is in the minibus ensure that the person and the wheelchair are safely and correctly secured in the vehicle. Manufacturers guidelines should be followed as vehicles and wheelchairs can differ. If someone is able to transfer from their wheelchair to vehicle seat easily, painlessly and without assistance they should do so, as this is safer and more comfortable. For more information, please contact the MS Societys Branch Health and Safety Officer, Andy Grant on: agrant@mssociety.org.uk or phone 07827 281 097.
A BIG THANKS TO YONEX
Yonex, a big-name supplier of badminton, tennis and golf equipment, has Fitting a wheelchair lap belt correctly Ensure a correct sitting position (i.e. fully received formal back in the seat), and that the pelvis is as thanks from upright and symmetrical as possible. Asian MS for its continued Position the lap belt so that the hip bones can be felt above the belt. support. The company has provided various items for Adjust the length of the lap belt so that auctioning, including signed there is just sufficient room for your hand memorabilia. Asian MS committee to slide between your body and the belt. member Ila Gangotra presented Paul Pass the lap belt down between the user Jepson (Managing Director, Yonex UK), and any side panels on the wheelchair, not Conrad Spry over the armrests. It should fit firmly across and Jon the pelvis, not the abdomen. Cooper with a small thank Do not allow lap belts to ride up onto the you gift during abdomen where they could cause internal injury in the event of a collision, or from the Yonex All which the passenger might slide out. England Badminton Fitting vehicle sash belts A sash belt should always remain in contact Championships 2012 at the National with the shoulders of the wheelchair user, Indoor Arena in Birmingham. Asian MS lying snugly across the pelvis and fitting relies on the continued support and inside the framework of the wheelchair or generosity of companies such as Yonex, seat. Fit the shoulder strap(s) comfortably across in order to help raise much-needed the collar bone (not across the throat or funds.
neck).
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MS-friendly holiday breaks

THE CALVERT TRUST Following the success of the Calvert Trusts taster activity weekends for people affected by MS in autumn 2011, the team in Kielder, Northumberland, are organising more events for 2012. Between 27th and 30th April, there will be an MS Adventure weekend being held, at a cost of 309 (without care assistance) or 440 (with care assistance). These prices include meals, activities and fully accessible accommodation.
RECENT EVENTS MS Research Day (January 2012)
The 3rd MS Research Day held by the Neuroimmunology Group at The Royal London Hospital, in collaboration with Shift.ms, was a For more information and to make a booking, great success. A please contact Calvert Trust on 01434 250232 or email enquiries@calvertnumber of Asian kielder.com. You can also visit their website MS members attended the day and found it at www.calvert-trust.org.uk. extremely interesting and useful.
The MS Societys Short Breaks and Activities (SBA) fund considers grants for people with MS and carers and may be able to contribute towards the cost of your break. Contact the Grants team on 020 8438 0700 or email grants@mssociety.org.uk for details.
MORE ACCOMMODATION
MS Society Northern Ireland has two fully accessible chalets available for hire at the SHARE village in Lisnaskea. The cost is 150 per week and includes a SHARE fitness leisure pass. Bookings are taken on a first come, first served basis. To book a holiday please contact Mark on 028 9080 2802 or mhatte@mssociety.org.uk. Amberwood Holiday Lodge West Herts Branch has a holiday lodge at Shorefield Holiday Village, near Lymington, Hampshire, for people with MS, families and carers. The chalet has a master bedroom with en-suite shower room, a twin bedroom, bathroom, and lounge/ kitchen area with double fold-out sofa bed. A brand new mobility scooter is also available to use. Bookings can be made by calling Richard Smith on 07709235729. (Please leave a message if necessary and someone will call you back)
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The event consisted of formal presentations on various research topics, lifestyle discussions and Digesting Science, which was a chance for people to meet and chat to researchers and MS health professionals. The research topics this year included Progressive MS Trials, Vitamin D, New Therapies, Walking with Fampyra (Fampridine), Inflammation in MS and The Charcot Project. Meanwhile, lifestyle discussions included Physiotherapy & Exercise, Current Clinical Trials, Bad Science Should We Believe What We Read?, Immune Tolerance, The Neurological Exam and End Of Life Issues. Videos of the formal presentations are available online via the Shift.ms channel on YouTube: http://www.youtube.com/shiftdotms
General Information
MS Essentials 19: Muscle spasms and stiffness (Third Edition October 2011) A new edition of MS Essentials 19 on muscle stiffness and spasms is now available, containing information on Sativex and how it is prescribed. Muscle stiffness and spasms are common MS symptoms, both often described by the term 'spasticity'. Mild stiffness in the muscles can aid balance and mobility for some, but more severe stiffness or spasms can be tiring, frustrating and, for some, painful. This booklet provides guidance on ways to manage these difficult symptoms. MS Essentials 04: Tremor (Fifth edition, December 2011)
A new edition of the booklet about ways of dealing with this difficult-to-manage symptom is now available. For some people, the tremor is so mild that theyre the only person aware of it. For others, its more obvious. For example, it might be difficult to carry a drink without spilling it, or to hold a pen steady to write. The booklet looks at physical and occupational therapy, drug treatments, surgery and things that can help day-to-day. This is the first of the Essentials series not to contain a list of references. A list of references is available on request, and all cited articles are available to borrow from the MS Society library (there may be a small charge). Contact the MS Society Information Team.
If you would like more copies of this title, visit the MS Societys online shop at http://shop.mssociety.org.uk or contact the MS Society Information Team on If you would like copies of any of the titles in infoteam@mssociety.org.uk or 020 8438 the Essentials series, visit: 0799 (weekdays 9am-4pm). **************************************
http://shop.mssociety.org.uk or phone 0300 1000 801. Funding opportunity for people with MS National charity the MS Research and Relief Fund offers grant funding for items including equipment, aids, adaptations, holidays and respite care. The fund can be used either to complement grants awarded by the MS Society where a shortfall in funding exists, or as a single funding opportunity. The registered charity will consider applications for grants for individuals and for groups. For more information contact the charitys Grants manager Dave Farham on 01670 505829 or d.farham@msresearchandrelief.org or visit www.msresearchandrelief.org; or contact Julie Gilson, MS Society Grants Manager at 020 8438 0950 or jgilson@mssociety.org.uk
If you would like a copy of the MS Societys latest MS booklet, which has been translated into 12 languages including Urdu, Hindi, Punjabi, Bengali, Gujerati and Farsi, please contact Saher Usmani on 0208 438 0856 or susmani@mssociety.org.uk
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LATEST RESEARCH & MS IN THE NEWS

Parasitic worms offer hope of cure for multiple sclerosis http://www.dailymail.co.uk/health/article-2108228/Parasiticworms-offer-hope-cure-multiple-sclerosis.html?ITO=1490 http://ibnlive.in.com/news/multiplesclerosis-treatment-a-challenge-inResearchers link MS to different area of brain india/232154-17.html http://www.utphysicians.com/11739/researchers-link-msVitamin D could be weapon against areaMS brain/?utm_source=rss&utm_medium=rss&utm_campaign http://www.skynews.com.au/health/a =researchers-link-ms-area-brain rticle.aspx?id=721026&vId= Autoinjector Pen for MS Drug OK'd Concert Pharma joins forces on new http://www.medpagetoday.com/Neurology/MultipleSclerosi MS drug s/31397 http://news.bostonherald.com/jobfin EMA accepts Genzyme's oral teriflunomide MAA for d/news/healthcare/view/20220305co multiple sclerosis treatment ncert_pharma_joins_forces_on_new _ms_drug/srvc=home&position=also http://pharmabiz.com/NewsDetails.aspx?aid=67711&sid Radiology: fMRI reveals increased activity after rehab for MS patients http://www.healthimaging.com/index.php?option=com_arti cles&view=article&id=32230:radiology-fmri-revealsincreased-activity-after-rehab-for-ms-patients NHS warned of 'neurology timebomb' http://www.guardian.co.uk/society/2012/jan/17/nhsneurological-alliance-warns-timebomb?newsfeed=true Multiple Sclerosis treatment a challenge in India?
Deadline for the Summer Edition of the newsletter is 14th May 2012. Please send your stories, links, photos and news to asianms@mssociety.org.uk
FUNDRAISING FOR ASIAN MS If you are interested in fundraising for Asian MS, please contact our fundraising officer, Mukesh Jethwa on asianms@mssociety.org.uk We rely on donations to keep going so if you know of someone wanting to raise money for charity, why not suggest that they fundraise for Asian MS? Please see the following page for details on how to make a donation and what the money is needed for.
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FUNDRAISING FOR ASIAN MS

Where do the funds go? Asian MS is funded purely by donations, which are used for various purposes. They include grants for individuals to help them attend MSrelated events, contributions to research projects, and administration costs. The Myelin Repair Project One research initiative that has recently received a 1,000 donation from Asian MS is the Cambridge Centre for Myelin Repair, which is being supported by the MS Society. A first stage of the research programme saw the identification of a drug that could potentially repair myelin, which is damaged in people with MS. The project is now moving into a second stage where researchers will undertake pre-clinical research, with the aim of ultimately translating lab findings into a clinical trial.
Asian MS are proud to announce that they now have the facilities to allow people to make donations to them in an easier and quicker way.
Donations by credit card via the internet site justgiving.com:

www.justgiving.com/AsianMS
How to make donations by text message :

Send a text message to 70070 Remember to include the subject of the text: as AMSS89 and send it with the amount you wish to donate up to a maximum of 10 If you wish to donate 10 your message would read AMSS89 10 If you wish to donate 5 your message would read AMSS89 5 and so on. You may donate with any number from 1-5, and the money will go directly to the MS Society, which will transfer the cash generated to Asian MS.
You can also raise funds every time you shop through EasyFundraising:
http://www.easyfundraising.org.uk/causes/asianms
We thank you kindly in advance for your support

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Useful Information
General and Membership Enquiries: asianms@mssociety.org.uk Website: http://www.mssociety.org.uk/ms-support/support-groups/asian-ms Facebook: http://www.facebook.com/AsiansWithMS Twitter: http://twitter.com/AsianswithMS Saher Usmani, MS Society Support Groups Officer (please contact for hard copies of this newsletter and MS information booklets in different languages): 0208 438 0856 or susmani@mssociety.org.uk
Vinnie Kochhar - Chair Asian MS is a national support group for Asians with MS, their carers, friends and family. We seek to increase awareness and dispel ignorance of MS in the Asian community, as well as put fun and dignity into the lives of Asians with MS and their carers. We also raise money for people affected by MS within the Asian community. We produce online and printed information in various languages and offer an interpreting service. Anisha Gangotra - Social Secretary Mukesh Jethwa - Fundraising Officer Abul Kamali - Website Officer Rani Kaur - Publicity Officer/Support Officer Shiv Sharma - Treasurer
MS Society Website: http://www.mssociety.org.uk MS Society Helpline: 0808 800 8000 Asian MS JustGiving: www.justgiving.com/AsianMS MS Register: www.ukmsregister.org MS Trust (charity that provides information about MS): http://www.mstrust.org.uk/ MS Therapy Centres: http://www.msntc.org.uk/ Shift.ms (an online community for younger MSers): http://www.shift.ms/index.php MS Research Blog (run by Barts & The London Neuroimmunology Group): http://multiple-sclerosis-research.blogspot.com
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Asian MS Newsletter Spring Issue, 2012

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Asian MS Newsletter Spring Issue, 2012

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Spring Issue 2012

Asian MS Newsletter EMERGING THERAPIES A CLOSER LOOK

Sativex, which is medical cannabis, has been licensed

...STOP PRESS..STOP PRESS

A message from the Editor

A CHANCE TO GET INVOLVED

******************************************** Lunch & Learn Event at Genzyme

Closing date for entries is 20th April 2012

A CHANCE TO GET INVOLVED

A CHANCE TO GET INVOLVED TELL YOUR STORY

QoL Tool Trial

Carers Week 2012: Survey now open

Asian MS Annual Meeting

A GUIDE TO TRAVELLING SAFELY IN A WHEELCHAIR

A BIG THANKS TO YONEX

MS-friendly holiday breaks

RECENT EVENTS MS Research Day (January 2012)

LATEST RESEARCH & MS IN THE NEWS

FUNDRAISING FOR ASIAN MS

Donations by credit card via the internet site justgiving.com:

How to make donations by text message :

We thank you kindly in advance for your support

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