Anda di halaman 1dari 40

Spinal Cord Injury Manual

A Publication of the Regional Spinal Cord Injury Center of Delaware Valley

The Regional Spinal Cord Injury Center of Delaware Valley provides a comprehensive program of patient care, community education, and research. It is a federally designated program of Thomas Jefferson University and its affiliated institutions of Thomas Jefferson University Hospital and Magee Rehabilitation Hospital.

Spinal Cord Injury Patient-Family Teaching Manual

A Publication of the Regional Spinal Cord Injury Center of Delaware Valley

Researched and prepared by the clinical personnel of Thomas Jefferson University Hospital and Magee Rehabilitation Hospital

1993, 2001 Thomas Jefferson University. This publication is the property of Thomas Jefferson University. All rights reserved. This Manual is intended for use in a total system of care that meets all applicable CARF standards for SCI Centers. Neither Thomas Jefferson University Hospital, nor Magee Rehabilitation Hospital is responsible for any liability, claims, demands or damages asserted to be the result, either directly or indirectly, of the information contained herein. The use or reprinting of any part of this manual requires the express permission of Thomas Jefferson University.

9.5.01

Dedication
The Handbook Committee of the Regional SCI Center of the Delaware Valley gratefully acknowledges the hard work and dedication of all who contributed to this manual.

Credits
The Handbook Committee of the Regional SCI Center of the Delaware Valley would like to acknowledge the assistance of all of the people in the Center who have helped to develop this Handbook: Amy Bratta, MPT Catharine M. Farnan, RN, MS, CRRN, ONC Karen Fried , RN, MSN, CRRN, CCM Joshua Giblin Dane Hawley Cynthia Kraft-Fine, RN, MSN Frank Lindgren Mary Grace Mangine, OTR/L Mary Patrick, RN Katheleen Reidy, PhD Michael Saulino, MD, PhD Mary Schmidt-Read, MS, PT Theresa M. Smith, RN Cheryl West, MPT Geraldine Zelazny, RN and all of the others who worked so hard to make this Handbook a reality. Cynthia Kraft-Fine, RN, MSN Chairperson This publication is supported in part by Thomas Jefferson University, a grant received from the National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education, Washington, D.C. and by the Geoffrey Lance Foundation.

9.5.01

9.5.01

Spinal Cord Injury Manual

Recreational Therapy
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 What Is Recreational Therapy?. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 Why Is Recreational Therapy Important? . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 Recreational Therapy Treatment As an Inpatient . . . . . . . . . . . . . . . . . . . . 2 Returning Home Resuming Your Leisure Lifestyle. . . . . . . . . . . . . . . . . . 3 Specialized Recreational Community Programs And Resources . . . . . . . . 3 The SCI Centers Community Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4
SCI Resource and Support Group . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4 SCI Peer Consultants . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4 Family Caregivers Support Group . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4 Wheelchair Sports . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .5 Recreation Publications. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .5

Recreation Resource Guide


Accessibility Guides . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8 Education and Enrichment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9 Museums, Stadiums, Concerts and Sporting Events . . . . . . . . . . . . . . . . . 10 Parks and Campgrounds . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 Religious Affiliation Groups . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12 Senior Adult Activity Centers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13
Philadelphia County. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 Montgomery County . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 Delaware County . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 Bucks County . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14

Social Clubs and Support Groups . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14 Transitions. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15 Sports and Fitness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16


Bicycling / Handcycling. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 Cerebral Palsy Sports . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 Elder-Sports . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 Flying / Gliding. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 Fitness Classes / Aerobics . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 Golf. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17

6.21.01

2001 RSCIDV

15-TOC

Regional Spinal Cord Injury Center of Delaware Valley

Hunting and Fishing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Martial Arts . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 College Sports . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Quad Rugby . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Roadracing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 Rowing. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 SCUBA Diving. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 Skiing . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 Sled Hockey. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 Tennis . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20 Walking / Wheeling Club . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20 Weightlifting / Fitness Center . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20 Wheelchair Basketball . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20 Therapeutic Horseback Riding . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20 Therapeutic Swimming and Adapted Aquatics. . . . . . . . . . . . . . . . . . . . . . 21 Travel and Vacations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .23

New Jersey Recreation Resources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25


Accessibility Guides . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .25 Service Agencies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .25 Therapeutic Horseback Riding Programs . . . . . . . . . . . . . . . . . . . . . . . . . .25 Social Clubs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .26 Fitness / Therapeutic Swimming and Adapted Aquatics . . . . . . . . . . . . .27

Glossary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 28 References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29

15-TOC

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Recreational Therapy
Introduction
Your free time and the way you use that time can be a source of pleasure, enjoyment and self-fulfillment for you. You will probably have many questions about your injurys effect on your ability to participate in your favorite activities and sports. Recreational therapy is available to assist you in answering your many questions and concerns and helping you plan a satisfactory leisure lifestyle for yourself. Recreational therapy is a form of treatment that uses recreational activities to work on your rehabilitation goals. Through using your existing recreational skills and interests, recreational therapy can address many of your goals, including: Improve Physical Abilities Improving muscle strength, balance, coordination, flexibility, mobility and range of motion. Promote Greater Self-Reliance Awareness toward independent living and self-determination. Enrich the Quality of Life Opportunities for creativity, self-expression and a productive sense of the self by using leisure time well. Manage Stress Activities that relax both mind and body from tension and pressures. Community Re-Integration Activities that nurture social relationships and encourage leisure activity in your community. Recreational therapy can be grouped into three types of service: treatment, leisure education and diversional activities.

What Is Recreational Therapy?

Why Is Recreational Therapy Important?

Get Well Recreational therapy contributes to a healthier mind and body. Live Well Being as active as possible makes life more satisfying and fun. Stay Well Once you feel well, recreational activities can help maintain that sense of wellness.

6.21.01

2001 RSCIDV

15-1

Regional Spinal Cord Injury Center of Delaware Valley

Recreational Therapy Treatment As an Inpatient

The Recreational Therapy Program provides individual and group treatment for Thomas Jefferson University Hospital and Magee Rehabilitation Hospital inpatients. Each patient who is referred for recreational therapy is evaluated by a certified therapeutic recreation specialist who provides an individualized program for the person depending on his or her leisure needs. At Magee, there are patient lounges with billiard, air hockey and ping-pong tables. There is an accessible greenhouse located on the rooftop that is staffed with a full-time horticultural therapist. There are evening and weekend diversional programs with major holiday events throughout the year. Part of recreational therapy is being re-integrated back into the community. Leisure education classes address the issues and concerns that you may have in resuming your previous leisure lifestyle. Leisure education sessions review the benefits of recreation, the barriers to participation, strategies on overcoming barriers to participation, information on adapting activities to your disability, instruction on adapted activities, review of adapted equipment and referral to appropriate community resources. As part of your leisure education program, Magee offers therapeutic outings to various places to learn about wheelchair accessibility, social adjustment, community mobility and specialized community resources. Patients families are invited to attend these sessions for family training in a community setting. The places for outings include, but are not limited to, shopping malls, sporting events, museums, restaurants, theatres, etc. We have various pieces of adapted equipment for all levels of recreation, including fishing, adaptive hand bikes, adaptive gardening tools, a voice-recognition program for using a computer, cuffs for shooting billiards and playing pingpong and an accessible weight-lifting machine. Magee can access larger equipment such as sports chairs and sit-skis through local vendors. When a sport or activity is not feasible to trial while at Jefferson or Magee, we make referrals to the other community resources that offer specialized recreation services or equipment. Our extensive Recreation Resource Guide lists all of the specialized community recreation programs in our area.

15-2

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Returning Home Resuming Your Leisure Lifestyle

After your injury, you may wonder how you could possibly perform some of these activities with your present abilities. Since you may have more free time than before your injury, it is important that you find a satisfactory leisure lifestyle for yourself. Some recreation activities will need special equipment, adaptations or instructions. You will learn that you can return to many of the recreational activities that you enjoy with the proper training and equipment. You may need to use different equipment or play differently, but the objective is still the same to have fun. People with all levels of spinal cord injury are swimming, skiing, traveling, dining out, fishing, playing tennis, golfing and enjoying every activity that you can imagine. Get out there and try it! But first, you may need some additional information and resources. Although you may continue to enjoy much of your free time with your family and friends, you may want to be involved in specialized groups for people with disabilities. These groups are often helpful when you have many questions or concerns about a certain activity. These specialized recreation groups can be used as stepping stones to learn the necessary skills to resume your favorite activities with family and friends. These groups can offer peer support, sharing of knowledge and resources, adapted equipment loans, physical aides or assistants and instruction. There are groups that instruct competitive and recreational sports, music, art and outdoor activities. Also, there are groups that specialize in accessible travel, peer support, entertainment and socialization. These specialized groups and services are listed in Magees Recreation Resource Guide, which is enclosed in this handbook. This guide is updated annually. For updated copies of this guide, please contact Magees community programs at 215-597-3412 or e-mail Pat Thieringer at pthieringer@mageerehab.com. A list of national sports associations is attached, compliments of Sports n Spokes magazine. For an updated copy of this list, please contact Sports n Spokes.

Specialized Recreational Community Programs And Resources

6.21.01

2001 RSCIDV

15-3

Regional Spinal Cord Injury Center of Delaware Valley

The SCI Centers Community Services

SCI Resource and Support Group


You are invited to join this group that provides opportunities for education, recreation and support for individuals with spinal cord injuries and their loved ones. This group is organized and led by individuals with spinal cord injuries. Each month, members present an educational program that has included topics such as assistive technology, research for the cure, relationships, sexuality, travel, etc. If you would like more information or would like to be added to the mailing list for this group, please call the Peer Coordinators at 215-587-3174.

SCI Peer Consultants


The SCI Peer Consultant Program offers newly spinal cord injured individuals the opportunity to benefit from the knowledge and experience of those who have been there and done that. You can become involved in several ways: Proteges If you are in the process of adjusting to your spinal cord injury, it may be helpful for you to speak to someone who has been there, done that. Anyone can call and request a peer consultation. More than eighty trained peer counselors are available for your questions and concerns. Peers can be matched according to injury level, social situations, gender, marital status, recreational interests and vocational experience. Mentors For those of you who have a weathered a spinal cord injury, you may consider volunteering as a peer consultant to help others through the difficult adjustment process. To qualify as a peer mentor, you must attend two training sessions. To find out more about the SCI Peer Consultant Program, please contact the Peer Coordinators at 215-587-3174.

Family Caregivers Support Group


Family Caregivers Support Group is open to all families and loved ones of people with disabilities. Spouses, parents, children and loved ones of those with disabilities can share their questions and concerns. This group is led by the SCI Peers family members.

15-4

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Wheelchair Sports
After discharge, you may find that getting involved in Magees wheelchair sports programs helps you reach your personal health and well goals. In addition to enjoying the excitement of competing, those goals include: Improved fitness and overall health through physical activity. Increased self-esteem and confidence through the mastery of a new sport. Development of adapted leisure skills. Adjustment to disability through interaction with others with spinal cord injuries. Magee presently provides regular practice and competition for the following sports: basketball, quad rugby, tennis and weightlifting. Each of these sports has regularly weekly practices with knowledgeable coaching and support staff. The team provides the wheelchair athletes financial sponsorship for most of the competition, travel and equipment expenses. Each team has a competitive schedule of games and tournaments, and many athletes travel considerably with us to competitions throughout the country. Opportunities exist to play recreationally or compete at an elite level, progressing from local and regional competition onto nationally and international competition.

Recreation Publications
New programs and recreational equipment are constantly being developed for people with spinal cord injury. To keep abreast of new developments, you can subscribe to one of the following publications, which cover recreational interests for people with disabilities: Sports n Spokes PVA Publications 2111 E. highland Avenue Suite 180 Phoenix AZ 85016-4702 1-888-888-2201 pvapub@aol.com New Mobility No Limits Communications, Inc PO Box 220 Horsham, PA 19044 215-675-9133

6.21.01

2001 RSCIDV

15-5

Regional Spinal Cord Injury Center of Delaware Valley

Active Living 132 Main Street East Suite 1 Grimsby, ON L3M1P1 1-905-309-1639 activeliv@aol.com Accent on Living PO Box 700 Bloomington, IL 61702 1-800-787-8444 Access to Travel Publishing Office PO Box 352 Hawley Lane New Baltimore, NY 12124 518-731-9701

Palestra Challenge Publications, Ltd. PO Box 508 1948 Riverview Drive Macomb, IL 61455 309-833-1902 Paraplegia News 2111 East Highland Avenue Suite 180 Phoenix, AZ 85016-4702 602-224-0500 Careers & the Disabled Equal Opportunity Publications, Inc 1160 East Jericho Turnpike Suite 200 Huntington, NY 11743 516-421-9421

15-6

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Recreation Resource Guide


The Recreation Resource Guide is a community resource guide compiled by therapeutic recreation specialists at Magee Rehabilitation Hospital. Hopefully, you will find the information contained in this guide useful as you independently pursue leisure activities. Unfortunately, this guide is not a complete listing, as there may be programs that are unfamiliar to us. If you would like to inform us of a program that is not included here, we will be glad to consider it for inclusion in a future update. Neither Magee nor Thomas Jefferson University is affiliated with the agencies listed here, and we cannot guarantee the quality of the program, service or product of these agencies. Please use your own judgement in using this information. If you have any questions or would like more detailed information on an individual program, please call or write to: Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 215-587-3412

6.21.01

2001 RSCIDV

15-7

Regional Spinal Cord Injury Center of Delaware Valley

Accessibility Guides

Mayors Guide to Philadelphia Mayors Office for the Handicapped 1401 JFK Blvd., Room 900 Philadelphia, PA 19102 Contact: Roger Margolies 215-686-2798 215-564-1782 (TDD) Provide information on referrals, advise the mayor on issues, meet with committee on certain topics. Fairmount Park Commission Memorial Hall West Park PO Box 21601 Philadelphia, PA 19131 Contact: John Heidenry 215-685-0051 215-685-0000 Philadelphia Recreation Department City of Philadelphia 215-686-1776 Provides information on centers, playgrounds, etc. Access the Arts, etc... A Guide for People with Disabilities Artreach, Inc. 3721 Midvale Avenue Philadelphia, PA 19129 Contact Joyce Burd 215 951-0316 artreach@libertynet.org Provides accessability and other information about 75 performing and visual arts organizations, museums and cultural sites within Philadelphia and the Delaware Valley. Information is provided about transportation, wheelchair accessability, ticket acquisition, phone and TTY numbers, seating and special accomodations, restroom accessability, etc. Program accessability information such as large-print materials, interpreted programs, Braille signage, etc is also provided. The information was collected by collaboration with Temple University and Thomas Jefferson Universitys Departments of Occupational Therapy.

15-8

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Education and Enrichment

Patient Learning Resource Library Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Kim Heeney 215-587-3423 Sponsors a recreational computer training course. Library for the Blind and Physically Handicapped Free Library of Philadelphia 919 Walnut St. Philadelphia, PA 19107 1-800-222-1754 From Philadelphia: 215- 683-3213 www.phila.library.gov Provides books on cassette, Braille and the library will provide equipment. Explore Recreational and Educational Classes Moss Rehabilitation Hospital 1200 West Tabor Road Philadelphia, PA 19141-3099 Contact: Kathy Allokdah 215-456-9105 Kardon Institute of Music for the Handicapped 10700 Knights Road Philadelphia, PA 19154 215-637-2077 Allens Lane Art Center Cultural / Social program Allens Lane & McCallum St. Philadelphia, PA 19119 Contact: Sue Davis 215-248-0546 Nu-Visions Artists 1319 Magee Avenue Philadelphia, PA 19111 Contact: Rose Marcus 215-742-7665 Artists with disabilities meet monthly for demonstrations and lectures. There are four to six exhibits a year with annual awards, and self-help groups pick up artwork for artists.

6.21.01

2001 RSCIDV

15-9

Regional Spinal Cord Injury Center of Delaware Valley

Temple University Recreation Services 1828 Park Mall Philadelphia, PA 19122 Contact: Tribit Green 215-204-4783 Wheelchair basketball for people with disabilities on Mondays, Wednesdays, and Fridays. Tennis, cycling and weight room activities are taught. Students and other people participate in committees. Schuylkill Center for Environmental Education 8480 Hagys Mill Rd. Philadelphia, PA 19128 215-482-7300 At the Sports Expo, How to be Safe is explained in a seminar. Kite flying is demonstrated as well as rock climbing and storybook-telling happens.

Museums, Stadiums, Concerts and Sporting Events

Philadelphia Museum of Art 26th & Benjamin Franklin Parkway PO Box 7646 Philadelphia, PA 19101 Contact: Carol Wisker 215-763-8100 Provides information for disabled visitors. Forrest Theater 1114 Walnut Street Philadelphia, PA 215-923-1515 www.telacharge.com Provides wheelchair spaces at every show in the front of orchestra and one in back of the orchestra. Price ranges vary. Mann Music Center Georges Hill Fairmount Park 52nd St. & Parkside Ave. Philadelphia, PA 19131 215-878-7707 Franklin Institute 20th St. & Benjamin Franklin Parkway Philadelphia, PA 19103 215-448-1180

15-10

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Sixers PO Box 25050 Philadelphia, PA 19147 215-339-7676 www.sixers.com Provides special seating and all price ranges. Flyers 215-755-9700 Provides lower or upper level seating for people with disabilities and only one companion per wheelchair. Spectrum Box Office Manager (concerts, circus, etc.) Pattison Place, Philadelphia, PA 19153 215-389-9568 Provides for designated parties of two, one wheelchair and one companion. Ticket prices are the lowest price ticket for the individual event. Annenberg Theater 3680 Walnut St. Philadelphia, PA 19103 Contact: Brian Joyce 215-898-6791 215-898-5292 Phillies PO Box 7575 Philadelphia, PA 19101 215-463-1000 Provides elevators for people with disabilities and accessible parking. First Union Center 215-336-3600 or 215-336-2000 www.comcast/spectacore.com Allows people with wheelchairs to have one person with them and two in front of them in addition to providing accessible parking.

Parks and Campgrounds

National Park Service Dept. of the Interior PO Box 37127 Washington, D.C. 20013-7127 Outdoor recreation bibliography SB-017, 9/14/87

6.21.01

2001 RSCIDV

15-11

Regional Spinal Cord Injury Center of Delaware Valley

Access to the National Parks, A Guide for Handicapped Visitors U.S. Government Printing Office Washington, D.C. 20402 Stock #024-0005-00691-5 Camping in the National Park System A guide listing facilities available to disabled visitors Cost: $3.50 Stock #024-005-00846-2 (Address same as above) A Guide to Special Places / Access to PA State Parks Pennsylvania Department of Environmental Resources Bureau of State Parks PO Box 8551 Harrisburg, PA 17105-8551 1-800-63-PARKS Covers OGT campsites. Rent special cabins for people with disabilities. New Jersey Campsite Guide NJ Dept. of Commerce Division of Travel & Tourism CN 826 Trenton, NJ 08625 609-292-2470 American Camping Association Eastern Pennsylvania Section Office PO Box 86 Jenkintown, PA 19046 215-886-5385

Religious Affiliation Groups

Catholic League for Persons with Disabilities 4110 Glenview Lane Philadelphia, PA 19135 215-331-2617 Club meetings are for those over 18 years of age and are held twice a month. There is an annual Christmas party and communion dinner through the club meetings. Handicap Encounter Christ 3544 Winding Way Newtown Square, PA 19073

15-12

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Catholic Social Services of Philadelphia Norris Square Senior Citizens Center 2121-37 N. Howard St. Philadelphia, PA 19122 215-427-7242 Catholic Social Services of Philadelphia St. Annes Senior Citizen Center 2607 E. Cumberland St. Philadelphia, PA 19125 Magee Rehabilitation Pastoral Care Services Six Franklin Plaza Philadelphia, PA 19102 Contact: Chaplain Derek Bowen 215-587-3092

Senior Adult Activity Centers

The following agencies publish listings of SAACs in their counties:

Philadelphia County
Philadelphia Corporation for the Aging 642 N. Broad St. Philadelphia, PA 19130 215-765-9000 215-895-5692 Services for people over 60 that help people with physical disabilities live independently in their own homes.

Montgomery County
Montgomery Co. Aging and Adult Service Courthouse Norristown, PA 19494

Delaware County
Delaware County Services for the Aging Government Center Media, PA 19063

6.21.01

2001 RSCIDV

15-13

Regional Spinal Cord Injury Center of Delaware Valley

Bucks County
Bucks County Area Agency on Aging 30 E. Oakland Ave. Doylestown, PA 18901 215-348-0510 Listing of senior groups on file. Activities occur at senior centers. Senior Olympics occurs annually.

Social Clubs and Support Groups

United Cerebral Palsy Association Recreation Department 102 E. Mermaid Lane Philadelphia, PA 19118 Contact: Lyllian Melendez 215-242-4200 Vocational training for people with disabilities. Includes supportive employment and job placement. Helping Wheels 305 Linden Lane West Readings, PA 19611 Contact: Tom Kahler 610-670-1970 610-375-0449 For physically disabled, mentally alert people of any age. Peer support, social activities, educational opportunities and quarterly meetings. SPIN (Special People in the Northeast) 10980 Norcom Road Philadelphia, PA 19154 215-613-1070 Recreational groups, outings and classes for people with brain-injuries. Magee Rehabilitation Hospital Auxiliary c/o Volunteer Department Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 215-587-3140 Fund-raising activities to benefit patient programs. Bucks County Center for Independent Living 899 Penn Avenue Sinking Spring, PA 19608

15-14

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Spinal Cord Resource Group/ Peer Mentors Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Peer Service Corps 215-587-3174 Wendkos Community Center for Stroke Patients Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Derek Bowen 215-587-3092 Meets the first Tuesday of every month. Stroke club goes on trips and to restaurants together.

Transitions

Center for Independent Living of South Jersey 800 N. Deisea Drive Suite 6, Plaza 47 Westville, NJ 08096 609-853-6490 Fax: 609-853-1466 Womens Spinal Cord Injury Support Group Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Dr. Nancy Rosenberg 215-587-3210 AMP-Peers Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Susie Toland 215-587-3140 Aphasia Support Group Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Deb Dirraddo 215-587-3204

6.21.01

2001 RSCIDV

15-15

Regional Spinal Cord Injury Center of Delaware Valley

Brain Injury Support Group Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 215-587-3189 Caregivers Support Group Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 215-587-3189

Sports and Fitness

Bicycling / Handcycling
Pennsylvania Center For Adapted Sports #4 Boathouse Row Kelly Drive Philadelphia, PA 19130 215-765-5118 Soaring, in-line skating, tandem cycling, handcycling, scuba diving, rowing, running and walking.

Cerebral Palsy Sports


United Cerebral Palsy Association 102 E. Mermaid Lane Philadelphia, PA 19118 Contact: Lillian Melendez 215-242-4200 Athletic training, bowling and track & field.

Elder-Sports
Activelife of Philadelphia Geriatric Center 5301 Old York Road Philadelphia, PA 19141 215-456-2911

15-16

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Flying / Gliding
Freedoms Wings International 1832 Lake Ave. Scotch Plains, NJ 07076 Contact: Ray Temchus 908-232-6354 www.feedomswings.org Flight training, rides for people with disabilities and scholarships for those with limited means.

Fitness Classes / Aerobics


JCC Klein Branch 10110 Jamison Street Philadelphia, PA 19116 www.joycemz@webtv.net Aquatic aerobics and adapted aerobics.

Golf
PGM Golf Clinics, Inc. 7500 Germantown Ave. New Covington Church Campus Baird Building Philadelphia, PA 19119 Contact: Phyllis G. Meekins Work: 215-247-3821 Home: 215-248-1164 Indoor learning center where every aspect of golf is taught. Eastern Amputee Golf Association 2015 Amherst Drive Bethlehem, PA 18015 Contact: Bob Buck 610-867-9295 1-888-868-0992 http://www.eaga.org e-mail: info@eaga.org

6.21.01

2001 RSCIDV

15-17

Regional Spinal Cord Injury Center of Delaware Valley

Hunting and Fishing


Disabled Sports Mens Club RD. 9, Box 683A Greensburgh, PA 15601 PA SPORTSMAN for the Disabled Westmoreland County Sportsmens League RD. #1, Box 470 New Alexandria, PA 15670-9240

Martial Arts
Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Pat Thieringer 215-587-3412 Martial Arts for the Handi-Capable 60 Butler Avenue, 2nd Fl Ambler, PA 19002 Contact: Skip McClurg 215-646-8100

College Sports
Temple University Adapted Athletics & Recreation 1858 N. Broad St. Philadelphia, PA 19122 Contact: Tribit Green 215-204-4783

Quad Rugby
Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Pat Thieringer 215-587-3412

15-18

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Roadracing
Pennsylvania Center For Adapted Sports #4 Boathouse Row Kelly Drive Philadelphia, PA 19130 Contact: Isabel Bohn 215-765-5118 www centeronline.com Sports and recreation for people with physical disabilities.

Rowing
Pennsylvania Center For Adapted Sports #4 Boathouse Row Kelly Drive Philadelphia, PA 19130 Contact: Isabel Bohn 215-765-5118

SCUBA Diving
ODonnel Diving 3036 Germantown Pike Norristown, PA 19403 610-635-0200 www.odonnel-diving.com Specially trained in adapted SCUBA and certified in travel training.

Skiing
Pennsylvania Center For Adapted Sports #4 Boathouse Row Kelly Drive Philadelphia, PA 19130 Contact: Isabel Bohn 215-765-5118 Skiing program held at Camelback Mountain.

Sled Hockey
Mike Doyle 2383 Upper Barness Road Warrinton, PA 18976 215-343-1213

6.21.01

2001 RSCIDV

15-19

Regional Spinal Cord Injury Center of Delaware Valley

Tennis
Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Pat Thieringer 215-587-3412 Program held at Cherry Hill Racquet Club

Walking / Wheeling Club


Pennsylvania Center For Adapted Sports #4 Boathouse Row Kelly Drive Philadelphia, PA 19130 Contact: Isabel Bohn 215-765-5118

Weightlifting / Fitness Center


Carousel House Belmont Ave. & N. Concourse Dr. Philadelphia, PA 19131 215-685-0160 http://region.philly.com/community/carouselhouse

Wheelchair Basketball
Magee Rehabilitation Hospital Six Franklin Plaza Philadelphia, PA 19102 Contact: Pat Thieringer 215-587-3412 Carousel House Summer League 215-685-0160

Therapeutic Horseback Riding


Sebastian Riding Associates, Inc. 3589B Water Street Collegeville, PA 19426 610-489-3741 (telephone and fax) Special Equestrians PO Box 412 Pineville, PA 18946 215-918-1001

15-20

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Thorncroft Stables Therapeutic Horseback Riding, Inc. 190 Line Rd. R.D. #4, Box 114 Malvern, PA 19355 Contact: Dottie Heffner 610-644-1963 Therapeutic horseback riding for people with physical disabilities. National Foundation for Happy Horsemanship for the Handicapped PO Box 462 Malvern, PA 19355 Pegasus Riding Academy, Inc. 1019 Ripley Street Philadelphia, PA 19111 Contact: Carol Tatum 215-742-1500 / 03 Wheelchair accessible carriage riding program. PA Council Horseback Riding for the Handicapped 323 Agriculture Administration Building Pennsylvania State University University Park, PA 16802-2601 314-863-0387

Therapeutic Swimming and Adapted Aquatics


Abington Branch YMCA 1073 Old York Road Abington, PA 19001 215-884-9622 Therapeutic swimming to loosen joints and strengthen muscles. Hatboro YMCA 440 S. York Road Hatboro, PA 19040 215-674-4545 www.hatboro-pa.com www.ymcaphilly.org

6.21.01

2001 RSCIDV

15-21

Regional Spinal Cord Injury Center of Delaware Valley

Ambler YMCA Box 428, Bethlehem Pike Ambler, PA 19002 215-628-9950 Special populations and adapted aquatics. Delaware County Branch YMCA SNAP (Special Needs Aquatics Program) Garrett Road and Lansdowne Avenue Lansdowne, PA 19050 Frankford YMCA 4700 Leiper Street Philadelphia, PA 19124 Adapted aquatics and arthritic exercise for the arthritis sufferers. Kaiserman JCC 45 Haverford Road Philadelphia, PA 19151 Contact: Karen Johnson 610-853-3068 Water exercise and therapeutic swimming. Carousel House Belmont & N. Concourse Drive Philadelphia, PA 19131 215-685-0163 JCC Klein YMCA Branch 10100 Jamison Ave. Philadelphia, PA 19116 215-698-7300 JYC Neuman Senior Center Bustleton & Magee Ave. Philadelphia, PA 19149 215-338-9800 Roxborough YMCA Ridge Avenue & Domino Lane Philadelphia, PA 19128 215-482-3900

15-22

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Arthritic Exercise Transportation Services OSteen Transportation 215-831-7650 Must be able to transfer in and out of a chair or have attendant. (Attendant must pay fee as well.) Reservations one week in advance. Fee: 65 or older $1.25 each way Less than 65 $12.50 each way SEPTAs Wheelchair Accessible Bus Route Special Services 215-580-7800 Brochure listing accessible routes. Suburban areas please call 24-hours in advance. Wheelchair Getaways PO Box 136 Bedminster, NJ 1-800-344-5005 Accessible Vans of America Ed Van Antsdalen Accessible Van Rentals 4 Beryl Road Paoli, PA 19301 1-800-862-7475

Travel and Vacations


Travel Information Center Moss Rehabilitation Hospital 1200 W. Tabor Roads Philadelphia, PA 19141 215-329-5715 The Guided Tour 7900 Old York Rd. Suite 114-B Elkins Park, PA 19027-2339 Contact: Irv Segal 215-782-1370 Tours include Washington, D.C., Williamsburg, Virginia and London

6.21.01

2001 RSCIDV

15-23

Regional Spinal Cord Injury Center of Delaware Valley

Independence Encampment Moss Rehabilitation Hospital 1200 W. Tabor Road Philadelphia, PA 19141-3099 Contact: Kathy Allokdah 215-456-9105 Camp vacations. SPIN Center North 10980 Norcom Road Philadelphia, PA 19154 215-464-4700 Contact: Judy Dotzman Supervised / assisted shore vacations. Accessible Journeys Howard J. McCoy III, R.N. or Debra Hoover, R.N. 35 West Sellers Ave. Ridley Park, PA 19078 1-800-846-4537 Tours (cultural to adventure) for the slow walker, wheelchair and disabled traveler. New Jerseys Got It Travel Guide New Jersey Division of Travel and Tourism PO Box 400 Trenton, NJ 08625-0820 Contact: Linda Conlin 609-292-6963 Challenge Tours Evergreen Travel Service, Inc. 19505(L) 44th Ave. Lynnewood, WA 98036 Contact: Ann OBrine 1-800-435-2288 Travel Resources Information Center for Individuals with Disabilities 27-43 Wornwood St. Boston, MA 02210 617-727-5540

15-24

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Adventure Unlimited Escorted Group Vacations 300 W. Marlton Pike Cherry Hill, NJ 08002 Contact: Jane Meyers 609-354-9300 215-564-1000

New Jersey Recreation Resources

Accessibility Guides
Disability Resource Manual Kessler Institute for Rehabilitation, Inc. Recreational Therapy Department Pleasant Valley, NJ 07052 Copy in Patient Learning Resource Center at Magee Rehabilitation Hospital. Comprehensive national and Northern New Jersey recreation source book.

Service Agencies
Ocean County Office for the Disabled 1 Mott Place Toms River, NJ 08754 Contact: Cathy Cronen 908-506-5062 Information about accessibility issues, vocational networking and program referrals.

Therapeutic Horseback Riding Programs


Handicapped High Riders Club, Inc. 145 Rt. 526 Allentown, N.J. 08051 Contact: Barbara Issac 609-259-3884 Monmouth County SPUR (Special People United to Ride) Thompson Park 805 Newman Springs Rd.. Lincroft, NJ 07738 Contact: Anne Simon 908-842-4000 Ext. 297

6.21.01

2001 RSCIDV

15-25

Regional Spinal Cord Injury Center of Delaware Valley

Unicorn Handicapped Riding Association Meadowbrook Farms Vincentown, NJ 08088 609-354-3289

Social Clubs
Recreational Activities Club Gloucester County Parks and Recreation Red Bank Battlefield 100 Hessian Ave. National Park, NJ 08063 Contact: Leona Mather 609-582-2057 United Cerebral Palsy Association of Cumberland County Shirley Eves Developmental and Therapeutic Center 10th and Vine Streets Millville, NJ 08332 Contact: Joyce Coffabone 609-825-5840 Division of Developmental Disabilities Rt. 30 Elvins Ave. Hammonton, NJ 08037 Contact: Bernard Blanks 609-561-5070 Community Education / Recreation Holyoak Dr. Voorhees, NJ 08753 Contact: Frank Nicholas or Jim McCall 609-795-5566 Ocean County College Disability Resource Center PO Box 2001 Toms River, NJ 08754-2001 Contact: Maureen Reustle 908-255-0348 Adult Education Willingboro Township Public Schools Willingboro, NJ 86046 609-835-8600

15-26

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Somerset County Park Commission Therapeutic Recreational Services PO Box 5327 North Branch, NJ 08876 908-526-5650 908-526-4762 (TDD) Center for Independent Living of South Jersey 800 Delsea Drive Westville, NJ 08093 609-853-6490 609-853-7602 (TDD) Go-Getters of Burlington Co., Inc. 11 Broad St., Florence, NJ 08571 Contact: Tammy Gaunt 609-499-0549 Grass root groups for physically disabled adults.

Fitness / Therapeutic Swimming and Adapted Aquatics


Burlington County Special Services School District Pool Program Woodlane Road, Box 775 Mount Holly, NJ 08060 Contact: Charles Riley 609-267-9287 Willingboro County Special Services Woodlane Road Mt. Holly, NJ 08060 Contact: Cindy Bookman 609-261-5600

6.21.01

2001 RSCIDV

15-27

Regional Spinal Cord Injury Center of Delaware Valley

Glossary
Community Reintegration
A program to facilitate your transition and return to home, work, school, neighborhood, etc. to enable your active involvement and participation in the community. A person with spinal cord injury who has been trained in peer counseling skills. An important consideration in medical care, quality of life refers to the patient's ability to enjoy normal life activities. A program designed to help persons with disabilities answer questions and concerns regarding how their disability effects their participation in sports and other activities. You are evaluated by a certified recreational specialist who provides an individualized program to meet your leisure needs.

Peer Mentors Quality of Life Recreational Therapy

15-28

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

References
1. Regional Spinal Cord Injury Center brochure published December 1999. 2. Magee Rehabilitation Hospital, Recreational Resource Guide, published 2000. 3. Woodalls 2001 North American Campground Directory, Woodall Publishing Co., Ventura, CA, 2001. 4. Access the Arts, etc... A Guide for People with Disabilities (Philadelphia and Delaware Valley area accessability information for 75 Performing and Visual Arts Organizations, Museums & Cultural Sites), ARTREACH, Inc, Philadelphia, PA, 2000.

6.21.01

2001 RSCIDV

15-29

Regional Spinal Cord Injury Center of Delaware Valley

15-30

2001 RSCIDV

6.21.01

Spinal Cord Injury Manual

Comments and Feedback


The staff of the center has recently spent a lot of time and effort in revising this manual. However, we realize that those who are actively reading and using the manual can improve it. As a part of our program of continuous quality improvement, we ask you to help guide our efforts to improve the manual. In the next section of the chapter are two forms. The first form is an overview by chapter that seeks to identify those areas of the manual that could benefit the most from additional work. We also seek to identify any major areas of concern that have not been addressed. The second section is a more focused questionnaire that has as its goal the specific items that should be targeted. For example, should an item be added to the glossary or the definition changed. Should a drug be added to the discussion of bowel programs? The more specific the comments are the more likely that we will be able to make the improvements that form the basis of your idea. By communicating with the Regional Spinal Cord Injury Center of the Delaware Valley, however, users grant us permissionto use any information, suggestions, ideas, drawings or concents communicated for any purpose we choose, commercial, public or otherwise, without compensation or acknowledgement whatsoever. Thank you for taking the time to assist us in improving this manual. Sincerely,

SCI Manual Committee

Regional Spinal Cord Injury Center of Delaware Valley Thomas Jefferson University Hospital Main Building, Suite 375 132 S. 10th Street Philadelphia, PA 19107

9.5.01

2001 RSCIDV

Regional Spinal Cord Injury Center of Delaware Valley

Feedback Form
Rate each chapter by placing an X on the scale underneath the term that best captures your opinion. Using the next page, provide specific comments regarding your ratings. Feel free to make copies of the next page.
No Opinion Fair Satisfactory Good Excellent

Credits / Front Matter Table of Contents Introduction Spinal Cord Injury Bladder Bowel Respiratory Respiratory Dependent Skin Cardiovascular Nutrition Activities of Daily Living Equipment Mobility Psychology Vocational Services Recreational Therapy / Resource Guide Travel and Transportation Sexuality Spinal Cord Injury Follow-Up Care System Master Glossary

2001 RSCIDV

9.5.01

Spinal Cord Injury Manual

Suggestions and Comments


Chapter: Page(s): Comments: ________________________________________________________ ________________________________________________________ ________________________________________________________ ________________________________________________________ ________________________________________________________ Any terms that need to be added to the glossary? How would you define the terms?

Any section or paragraph that was not clear?

Any drawing or sketch that would help to illustrate the material being covered?

Any additional topic that should be covered?

Any questions you have that you feel should have been answered by the manual? What is the question? What is the suggested answer?

Any references that should be added? Any other resources that should be mentioned?

By communicating with the Regional Spinal Cord Injury Center of the Delaware Valley, however, users grant us permission to use any information, suggestions, ideas, drawings or concepts communicated for any purpose we choose, commercial, public or otherwise, without compensation whatsoever.

9.5.01

2001 RSCIDV

Regional Spinal Cord Injury Center of Delaware Valley

2001 RSCIDV

9.5.01

Anda mungkin juga menyukai