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NO.

7 FEBRUARY 2007

Findings
www.healthlink.org.uk

What’s culture got to do with


HIV and AIDS?
Why the global strategy for HIV and AIDS needs to adopt
a cultural approach

INTRODUCTION
This paper reports the initial findings from HIV/AIDS: The KEY POINTS
Creative Challenge, a project which is developing reflective Cultural approaches to HIV and AIDS have built
discussion with field practitioners and policy makers on the trust and engagement at community level,
value of cultural approaches to HIV and AIDS. The project increasing the likelihood of prevention.
has been developed by Creative Exchange in partnership
with Exchange and UNESCO. It looks at how the cultural Cultural approaches to HIV and AIDS are gaining
dimension can be more effectively factored into HIV and currency because they interact with the values,
AIDS communication programmes, which are often the area beliefs, traditions and social structures – the
in which culture is most visible and effective. ‘webs of significance’ – in which people live.
Culture is most visible in communication
Analysis of the first phase of HIV/AIDS: The Creative programmes but some programmes are
Challenge suggests that cultural approaches to HIV and culturally inappropriate and may contribute to
AIDS prevention are currently limited by the wider strategic infection and stigma because of their focus on
environment, which: behaviour change.

promotes a biomedical approach to HIV and AIDS to the Where a cultural approach is used in HIV and
exclusion of social and cultural approaches and AIDS communication there is evidence of wider
therefore misses opportunities to engage with local impact on awareness and attitudes, of stigma
communities; reduction, and of more inclusion of people living
with HIV and AIDS.
focuses its cultural approach on behaviour change
communication and ‘message giving’, rather than on New forms of monitoring and evaluation are
building dialogue, participation and empowerment required to capture the impact of cultural
through local cultures; approaches to HIV and AIDS beyond behaviour
change.
is not capturing or accepting evidence of wider
legitimate impacts (beyond behaviour change) which Culture can offer a real benefit to global strategy
flow from culturally-appropriate communication and for HIV and AIDS if it is re-cast as an opportunity
prevention and care activities. for action and engagement with communities,
rather than as a barrier to prevention and to
bio-medical approaches.
There are, however, opportunities to engage with culture,
particularly through HIV and AIDS communication
programmes that seek to go beyond giving out messages
and instead focus on engaging with the cultural meanings
that people create for themselves.

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WHAT IS A CULTURAL APPROACH? A cultural approach sets out to systematically engage


with the “webs of significance” that people create; it takes
Development thinking is shifting towards acknowledging
account of the cultural context in which communities and
the role of culture. But culture is notoriously difficult
groups exist; it negotiates with local social hierarchies and
to define. The starting point for HIV/AIDS the Creative
living patterns; and it draws on local forms of
Challenge was the widely accepted definition which regards
communication and expression to engage people.
culture as: “not only the arts and letters, but also modes
It stands to reason that a worldwide health crisis such as
of life, the fundamental rights of the human being, value
HIV and AIDS, which is deeply rooted
systems, traditions and beliefs”
in personal and social issues, is closely
(UNESCO, 1982). This is a holistic If culture is a factor linked to culture. Research has indicated
definition of culture, which recognises
that there are many ways of living, in transmission and that culture is a factor in the social trends
that contribute to infection, and HIV and
being, knowing and expressing impact, it follows AIDS in turn leave a footprint on people’s
ourselves.
that prevention and social and cultural lives (UNESCO, 2000). If
culture is a factor in transmission and
It is impossible to negotiate any level of
human change without confronting
care require a cultural impact, it follows that prevention and care
require a cultural approach.
culture. Human beings, says Professor approach.
Tim Gorringe (citing Clifford Geertz,
HIV and AIDS strategies – at a global,
1993), are “suspended
regional or national level – need to be viewed through what
in webs of significance they themselves have spun. Culture
is commonly described as “a cultural lens” (Duer, 1998;
is the name for those webs” (Gorringe, 2004). It has been
UNFPA, 2004). Relating to the lifestyles and realities of local
said that a failure of modernity – and this could also be said
people has long been the argument of anthropologists and
of development – has been an inability to grasp how people
participatory development theorists, but mainstream
weave meaning from these webs in order to develop their
development has been slow to acknowledge this: “We are
values, relationships, behaviour, social and political
realising that building development solutions on local forms
structures (Gorringe, 2004).
of social interchange, values, traditions, and knowledge
reinforces the social fabric. We are starting to understand,
CREATIVE EXCHANGE’S CULTURAL
that development effectiveness depends in part, on
FRAMEWORK
‘solutions’ that resonate with a community’s sense of who it
This framework evolved from research about how is,” wrote former World Bank President, James Wolfensohn
development policy makers and practitioners relate to (Duer, 1998).
culture (Gould and Marsh, 2004). It consists of four
levels at which culture intersects with development:
WHAT DOES A CULTURAL APPROACH LOOK LIKE?
Culture as context factors specific to local life:
beliefs, value systems, history, geography, social Creative and artistic projects (culture as method and
hierarchies, gender, faiths, and concepts of time. culture as expression) are often the most immediately
visible example of cultural approaches in HIV and AIDS
Culture as content languages, practices, objects, programmes. Examples include: drama clubs with young
traditions, clothing, and heritage. people in Ethiopia to discuss HIV and AIDS prevention;
Culture as method, the medium or cultural forms participatory film projects in Kenya to draw out local
that projects will use to engage/communicate with perspectives on HIV and AIDS; shadow puppetry plays
communities, eg drama, dance, proverbs, song, for street children and drug users in Cambodia; and radio
music, video, radio or television. ‘soap’ opera in Rwanda. Creative and artistic activities offer
a ‘way in’ to building relationships with local communities,
Culture as expression of the intangible, creative of tapping into the cultural undercurrent, of gauging the
elements of culture that connect with our beliefs, thinking and experiences of different segments of the
values, attitudes, feelings and ways of viewing the community in relation to HIV and AIDS, and of building skills,
world. confidence and capacity to act (Marsh and Gould, 2003).
The research found that culture at all of these four levels
tended to be used either as a tool – pre-determined and Creative and artistic methods are widely used across the
message-driven – or as a method of participatory world – research among five UK development agencies
cultural engagement. found evidence of 350 such projects in 40 countries over
two years, with a conservative cost base of £30 million

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(Marsh and Gould, 2003). But these are by no means the Panos Institute (2004) has concluded that the health
sum total of a cultural approach. To be effective, these communication field has been “missing the message”
activities have to be rooted in an understanding of local because it has concentrated on “putting out messages
cultures (culture as context) otherwise there is a danger of [rather than] fostering an environment where the voices of
local cultural forms being abused as part of a didactic those most affected…can be heard.”
process of social engineering.
There are concerns that behaviour change communication
Increasingly, donors are looking at how they can work with methodologies have also been corrupted by promotion of
other areas of the cultural ‘web’ to improve the impact of moralistic messages. For example the message of “abstain,
work on the ground. United Nations Population Fund be faithful, use condoms” – or ABC messaging – has made
(UNFPA) has documented its own efforts to engage culture little impact on prevention over 20 years (Panos, 2004). It
in programmes in nine countries in Culture Matters (UNFPA, has been said that such approaches are not realistic and
2004). Activities included working with elders in one may in fact contribute to infection, deepen stigma and
traditional clan structure to explore issues around ‘female discrimination and result in “shame, lying and useless
genital cutting’. UNFPA found that their broader cultural values” (van Kampen, 2006). In Uganda, where the focus on
approach (culture as content) helped achieve programme messages about abstinence and being faithful has
goals more effectively, demonstrated transparency and intensified in recent years, there has been a reported
tolerance by the donor, which in turn built trust and greater increase in prevalence, after more than a decade of decline
community involvement and ownership. Greater involvement (Sanders, 2005).
helped create a virtuous circle that helped expand
opportunities for UNFPA programmes. Examples of more sensitive communication modes include
drawing on the knowledge of traditional healers and local
THE ROLE OF CULTURE IN HIV AND AIDS communication methods – rites, dances, dramas and chants
COMMUNICATION (Somma and Bodiang, 2004); and working with participatory
cultural methods in group and community settings to explore
The most powerful examples of a cultural approach to HIV lifestyle change options, rather than imposing solutions for
and AIDS can be seen in development communication change externally (Marsh and Gould, 2003). Other methods
programmes. These include projects using radio drama and have used minority languages, drawn on local customs,
soap opera to communicate health information; theatre-for- traditions and technologies, or used prayer cards or
development projects where audiences witness or traditional clothing for communication.
participate in performances; and film projects designed to
create compelling stories. Where cultural approaches have been used to benefit people
living with HIV and AIDS (PLWHA), research has indicated
Because people are enmeshed in different cultural webs, to that they can help PLWHA come to terms with their
be affected by a message, people have to hear it in a way experiences, reintegrate into society and become socially
that has cultural significance for them, and which connects active, which in turn helps combat stigma and gives voice to
with their experience of life. Culture has anxieties (Robins, 2005). For example,
the potential to connect with people Increasingly, donors the Magic Threes initiative in Vietnam
and affect them on many different levels.
However, communication programmes are looking at how they shared the stories of existing PLWHA
through a leaflet containing art, personal
have tended to focus largely on one
level – behaviour change.
can work with other testimonies and insights into other
people’s experiences of the disease.
areas of the cultural Newly diagnosed people and their
Behaviour change communication
models are criticised as being based
‘web’ to improve the families were able to relate to these
experiences which helped them come to
on Western assumptions about what impact of work on the terms with their own situation (Kaufman,
change is required, and for assuming
a degree of individual volition that does ground. 2005).

not exist in some societies (Marsh, 2004).


MAKING A CULTURAL
They have also tended to focus on giving information,
APPROACH TO HIV AND AIDS HAPPEN
rather than building dialogue and sharing knowledge within
communities – influencing attitudes and behaviour through Development policy makers are beginning to acknowledge
telling, rather than by engaging and empowering people. the need for a cultural approach to local, national and global
Singhal and Rogers (2003) have argued that: “Many strategy. The Commission for Africa (2005) report notes that:
communication strategies are culturally inappropriate.” The "Tackling HIV and AIDS requires a holistic response for

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treatment, prevention and care that recognises the wider switch to language which excludes reference to ‘culture’
cultural and social context and which is supported by well- by some agencies, in favour of terms such as ‘local
functioning health systems. Indeed, where cultural norms approaches’ and ‘social dimensions’ – though sadly
have not been taken into account in HIV and AIDS the expressive and creative dimensions lose out in this
prevention strategies, prevalence rates continue to rise". transition.

The Swiss Agency for Development Cooperation (SDC), has There are also emerging concerns that the cultural approach
argued that the benefits of a cultural approach stem from is being ‘hijacked’ to drive forward highly moralistic external
revitalising local cultural forms of expression and channels agendas for prevention of HIV and AIDS. Culture has been
of communication. This builds solidarity and empowerment used to justify the imposition of behaviour change on
within the community, and encourages self-reflection, which vulnerable groups – particularly in some African countries.
in turn makes public health knowledge more accessible and For example there has been an attempt to describe
sustainable (Somma and Bodiang 2004). abstinence from sexual relations as a ‘cultural norm’ and
therefore as a culturally acceptable target for campaigns.
Support is building for a cultural approach to This re-casting of external agendas as ‘cultural’ may
communication: the UNAIDS Communications Framework generate distrust of cultural approaches among communities
for HIV and AIDS (1999) identified culture as one of the five and donors.
‘contexts’ affecting risk and health behaviour (alongside
government policy, socio-economic status, spirituality and Then there is the simple fact that access to medical
gender) and recognised that communication needs cultural treatment and care is the priority for donors. Culture is just
influence to have impact. The UK Department for not on the agenda. UNESCO (2001c) has identified that
International Development (DFID) report on AIDS “institutional pressure prioritizing medical and cognitive
Communication (Power and Skuse, 2005) stressed the need activity” and a lack of “training/sensitizing” are preventing
for an approach that addresses the “economic, spiritual and field staff from engaging with cultural issues. If a cultural
cultural dynamics” of the disease, and approach is going to be
identified participatory communication “Where cultural norms mainstreamed, it needs simple
methods such as video, theatre, methods through which it can be
community radio, dance and
have not been taken into easily absorbed into donor processes.
oral testimony as helping with account in HIV and AIDS
communication and dialogue WHERE DOES CULTURE FIT IN
building. prevention strategies, INTERNATIONAL HIV AND AIDS
prevalence rates STRATEGY?
As well as opportunities, there are
a number of challenges to rolling out continue to rise.” A cultural approach offers the chance
a cultural approach. There is limited to improve the effectiveness of global
evidence of the efficacy of a cultural approach to HIV and HIV and AIDS strategy and rebuild the trust of communities
AIDS. It is only comparatively recently that some of the key through more sensitive modes of engagement. Insofar as a
agencies in the UN-led partnership responsible for cultural approach allows prevention and care methods to
implementing the global strategy have started researching come from within the culture, it “maintains socio-cultural
the cultural dimension of HIV and AIDS – notably UNESCO acceptability, local ownership and credibility” (Somma and
and UNAIDS with their joint programme A Cultural Approach Bodiang 2004). Local, community-based approaches driven
to HIV/AIDS Prevention and Care; and UNFPA with its recent by “community work” and “social activism” (Lynn, 2004) will
programme on Culturally Sensitive Approaches to remain the most important means of reaching and
Development Action (UNFPA, 2004). What knowledge is influencing people.
available has yet to percolate more widely into policy and to
field level. Approaches to tackling HIV and AIDS are driven by an
international, multi-institutional strategy led by the UN
An additional challenge is a reluctance to take on cultural consortium UNAIDS. This strategy emerged in 2001 from a
arguments because the term ‘culture’ is complex and United Nations General Assembly (UNGASS) declaration
contested – cultural approaches are often criticised for (UNGASS, 2001), which committed national and international
reducing social behaviour to a set of cultural causes and policy makers to a coordinated approach to combating HIV
effects. Some anthropologists have argued that a cultural and AIDS. The global strategy, however, has been devised
focus can result in cultural practices being erroneously with very limited reference to cultural factors that may
blamed for transmission or credited for impact where other influence transmission, prevention and impacts from HIV and
social factors are at work (Vidal, 2003). This has led to a AIDS (Marsh, 2004). There has been a tendency to portray

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culture as a problem and a barrier to change (and therefore a IMPLICATIONS OF A CULTURAL APPROACH
barrier to prevention), rather than an opportunity for
Changing donor culture
engagement. The UNESCO review of cultural approaches to
Donors need a greater degree of confidence in using a
HIV and AIDS concluded that: “The largest breach between
cultural approach rather than falling back to arguably less
existing programmes and projects and field realities is due to
effective mass media campaigns. In his review of 50 case
the almost complete absence of consideration of people’s
studies of participatory communication, Alfonso Gumucio
cultural references, except as obstacles to a logically built
Dagron (2001) highlights a donor preoccupation with the
prevention and care action” (UNESCO, 2001d).
need for scale, visibility and short-term successes, despite
the fact that “30 or 40 years of failures” have shown that
Global strategy has “had the effect of promoting a universal
these models often backfire.
set of HIV and AIDS discourses, including the dissemination
of many Western concepts of prevention, treatment and care
Improving monitoring and evaluation
to Southern societies that have been derived from scientific
Moving beyond the behaviour change mode of
medical models, rather than from humanistic social-cultural
communication will require a change to current monitoring
models” (Altman, 1998). Subsequent implementation of the
and evaluation processes, which are structured to collect
strategy has reinforced the ‘biomedical’ approach, and often
data on behaviour change. Other outcomes may be more
alienated societies with different concepts of health,
realistic such as changes in: “knowledge, skills, awareness,
wellbeing, life and death. Indigenous health knowledge is
attitudes, beliefs, emotions and interpersonal relationships”
often treated as secondary to biomedicine (Vincent, 2004).
(Gould and Marsh, 2004). Current monitoring and evaluation
Yet traditional knowledge and healers are often an
does not capture the full array of impacts from
opportunity for outreach and are trusted by communities.
communication. For example a participatory drama project in
Africa inspired hope among participants, encouraged people
The Swiss Agency for Development Cooperation (SDC)
to develop income generation activities, which in turn
points out that 80 per cent of people in developing nations –
improved incomes, nutrition and quality of life, and extended
particularly in sub-Saharan Africa – use traditional healers as
and improved the lives of people living with HIV and AIDS
a primary source of care. These healers “think, express and
(Gould and Marsh, 2004). The evaluation systems of donor
act illness experience ‘inside’ the same cultural framework
agencies are not geared up to accept these “softer”
as their patients” (Somma and Bodiang 2004). SDC cites
qualitative, process-based outcomes as evidence of impact.
examples where programmes have drawn on the knowledge
This challenge and the need for more subtle measures are
of traditional healers in developing ‘common sense’ solutions
recognised by DFID (2005).
and prevention practices that will work locally. Locally
derived prevention information was then incorporated into
Linking local, national and international strategies
traditional communications methods – rites, dances, dramas
It is a priority for all agencies working on HIV and AIDS to
and chants (Somma and Bodiang, 2004).
start addressing the cultural dimension of the pandemic
through practical action in country strategies and at field
Failure to engage with the local, cultural context of HIV and
level. To do this, it will be necessary to build a dialogue
AIDS has led to a mistrust of global strategy: there appears
about the role of cultural issues in each country, and start
to be cynicism about political and corporate, moral and
weaving culturally appropriate prevention into regional
medical/scientific agendas overwhelming human and cultural
strategy. One starting point may be a system of Cultural
aspects of the pandemic; there is widespread concern, too,
Assessments proposed by UNESCO (2001a) to gather data
that funding, even for the biomedical approach, will barely
on the cultural specifics, resources and processes of
be sufficient to reach one in five of infected people.
countries and communities and link these into HIV and AIDS
strategy and implementation. In taking forward a cultural
Despite limited formal evidence it appears that where a more
approach to HIV and AIDS communication, UNESCO has
local or cultural approach has been used to generate public
proposed an approach which is based on two-way
awareness and engagement, there has been success in
information exchange between field workers and
tackling HIV and AIDS. For example, in Uganda in the 1990s
communities. It requires cultural analysis of the community;
prevalence declined by around two-thirds. Where
commitment from key ‘cultural’ groups; and processes which
community-level responses have been backed up by HIV
develop local participation in preparation and
prevention policy, it is said that their success “has been
implementation. The approach helps communities to focus
greater than biomedical approaches or methods introduced
on their priorities and supports local cultural processes of
from outside. It represents a social vaccine for HIV” (Low-
change.
Beer and Stoneburner, 2003).

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CONCLUSION Duer K (1998) Culture and sustainable development: A


framework for action, World Bank, Washington
Approaches to the HIV and AIDS over the past 20 years
have not reached people effectively enough to stem the tide
Gould H and Marsh M (2004) Culture: Hidden Development,
of HIV transmission. Wherever a cultural approach has been
Creative Exchange, London
used – whether it is finding ways of negotiating social
hierarchies, or methods of communicating creatively which
Gorringe T (2004) Furthering Humanity: A Theology of
makes people listen and respond – it would appear that
Culture, Ashgate Publishing Ltd, Aldershot
there has been a response.
Gumucio Dagron A (2001) Making waves: stories of
We don’t know enough about that response to lay great
participatory communication for social change, Rockefeller
claims to a direct causal link between cultural approaches
Foundation, New York
and prevention. But the emerging evidence indicates that
credible, locally owned, culturally appropriate HIV and AIDS
Lynn O J (2004) AIDS – the lucrative disease.
programmes are important to effective treatment and could
Email Community-Research@eforum.healthdev.org
be critical to prevention.
Kaufmann P (2005), from interview/project materials for
There is a need for better evidence gathering on the value
HIV/AIDS the Creative Challenge, Creative Exchange,
and impact of cultural approaches to prevention and care.
London (forthcoming)
This must go beyond behaviour change to consider what
other impacts cultural approaches deliver and how useful
Low-Beer and Stoneburner (2003) cited in Court J (2004)
that is to HIV and AIDS prevention, treatment and care.
Draft Uganda Country Note, Bridging Research and Policy in
HIV/AIDS, ODI, London
Accepting more participatory and inclusive cultural
approaches requires a cultural shift among development
Marsh M (2004) HIV/AIDS The Creative Challenge Literature
policy makers and donors, towards “a culture of partnership
Review: Engaging with culture in HIV/AIDS communications,
and mutual learning with countries” (Rao and Walton, 2004).
Creative Exchange, London
But also towards a new system of developing change which
is based on respect for different ways of seeing and living in
Marsh M and Gould H (2003) Routemapping Culture and
the world, on valuing cultures, cultural expression and
Development, Creative Exchange, London
identity and their fundamental role in people’s lives. Cultures
and communities will remain unceasingly diverse and
Panos (2004a) Missing the message: 20 years of learning
complex. The donor response has to change so that HIV and
from HIV/AIDS, Panos, London
AIDS strategies are effective and meaningful in these cultural
realities.
Panos (2004b) HIV/AIDS communication and treatment
scale-up: promoting civil society ownership and integrated
approaches to communication, issues and challenges
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ACKNOWLEDGEMENTS
This Findings paper was written by Helen Gould of Creative ABOUT FINDINGS PAPERS
Exchange based on research prepared by Marsh Marsh and
Findings papers are snapshots of key areas of health
Judy El Bushra for the international research project
communication to inform development practitioners
HIV/AIDS: The Creative Challenge.
and policy makers and to stimulate critical reflection.

Thank you to the reviewers: Manilee Bagheritari, Ailish Byrne,


Findings papers were orignally produced by Exchange
Andrew Chetley, Helena Drobna, David Finer, Colette Harris,
– a networking and learning programme on health
Fiona Power, Pat Norrish, Ross Kidd, Ben Ramalingam,
communication which was hosted by Healthlink
Robin Vincent, Paul Zetter.
Worldwide. Exchange has been integrated into a
Communication, Networking and Learning programme
This paper is complemented by HIV/AIDS: The Creative
at Healthlink Worldwide, which will continue to produce
Challenge Literature Review: Engaging with culture in
Findings papers.
HIV/AIDS communications (Marsh, 2004).
We welcome your feedback on this paper.
The second stage of HIV/AIDS: The Creative Challenge will
draw out stories of cultural practice from selected cluster
regions with the aim of stimulating a process of engagement
with policy makers and practitioners. Creative Exchange
welcomes readers’ own examples.
Key list
www.asksource.info

CULTURE AND HIV & AIDS


A list of key organisations, articles, newsletters, books
and websites on this topic is available from Source
International Information Support Centre.

See the Creative Exchange website for more details


www.creativexchange.org or contact
Creative Exchange,
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London EC2A 4JX,
United Kingdom
Tel: +44 (0) 207 065 0980

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