Nursing
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A Memorial Service for Families of Children who Died From Cancer and Blood Disorders
Sue P. Heiney, Linda Wells and Julian Ruffin
Journal of Pediatric Oncology Nursing 1996 13: 72
DOI: 10.1177/104345429601300204
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Ruffin, PhD
The grief of staff who work with dying children and the grief of family members
after the death of a child has been widely documented. Interventions to facilitate
grieving have been extensively developed for parents but less so for siblings and
staff. This article describes one approach, a memorial service, for families and
staff that has wide applicability for providing support after a death. The
memorial service provides families and staff with a healing ritual of remembrance, a source of closure after the death, and a recognition of the relationships
established between families and staff. The service particularly legitimizes the
staffs grief experience. The organization, implementation, and evaluation of
such a program is discussed.
© 1996 by Association of Pediatric Oncology Nurses.
THE
i.
bia, SC29203.
1996 by Association of Pediatric Oncology Nurses.
1043-4542/96/1302-0002$3.00/0
©
planning, implementation,
Literature Review
To
well
72
73
giver.12
Family Reactions to Loss
In working with grieving families, a critically important framework for developing
interventions is the family system.13 Families
function as a system composed of individuals with unique personalities. Each member
has his or her own identity and role within the
family system. When a member dies, the
system becomes disrupted. The surviving
members experience a void and an emptiness. Often the stability of the family system
may be threatened.14 The family is even
person.16
Parents. Parental grief is filled with intense
emotions. Parents may have a desperate
need to remember their child and to talk to
someone who truly understands the circumstances of the childs death.2,1?,18 The parents may become so preoccupied with their
own grief that other family members, even
forgotten.
Siblings. The death of a brother or sister
during childhood can be traumatic. The surviving child often hides his or her grief in an
effort to protect the fragile parents from
further distress. In Rosens9 work, she found
that a central theme in sibling loss is a
prohibition against mourning. Often the surviving child is encouraged to be strong and
silent instead of being allowed to remember
the deceased or express feelings. In this
environment, the grieving sibling cannot access interventions needed to help cope with
the loss of a sibling.2 Therefore, ,a critical
need is that grieving siblings be provided with
ways to accomplish the tasks of mourning.
Activities that promote acknowledging and
accepting the loss, and facing and bearing
the pain are helpful in grief resolution.21
Extended family. The extended family of a
deceased child is often left to deal with their
grief alone. The term &dquo;forgotten grievers&dquo;22
has been used to describe those family members, but little work has been directed toward
helping them cope.18 Grandparents have reported the death of a grandchild as a double
grief experience. They feel grief for both their
own child who is undergoing this ordeal and
for their beloved grandchild. The grieving
process may be intensified for grandparents
and other extended family members because
they do not have the same bereavement
follow-up opportunities provided parents and
siblings. Therefore, health care professionals need to reach out and assist the extended
74
to thaw frozen
grief.
ized
Rituals for
healing
that
people
are more
alike than
different.28
Use of ritual in grief and bereavement. Rituals provide one method of grief resolution.
Two types of rituals are typically associated
with death: the funeral and the memorial
service. These rituals seem to meet certain
universal human needs, such as confirming
the reality of death, assisting in the expression of feelings, stimulating memories of the
deceased, and providing support to the family and friends of the deceased.23 Both of
these rituals support grief resolution by initiating tasks of grieving including providing a
symbolic acknowledgment of the severing of
the relationship and support for readjustment
to the environment in which the deceased is
missing.113
Funeral. Burial ceremonies or funerals
have been practiced since the earliest times
as a means of honoring the dead and helping
survivors.z~,3o The major function of a funeral
is as a rite of passage.8 The funeral has the
power to transform isolation into community,
sense
reavement. 28,31
The literature on staff stress and grief,
family grief, and rituals served as a framework for developing a memorial service for
families and staff. This information was used
in the planning and implementation of the
program. The memorial service encompasses both families and caregivers and
serves a dual purpose of supporting both the
family and the staff, and connecting them
through a healing ritual. The service provides
staff with a concrete way to minister to the
families and helps minimize feelings of failure related to the death.
Planning
Preparation for the memorial service involved establishing the goals and objectives
for the service as well as setting up a timeline
and implementing the organizational steps
necessary for a smooth program. Although
one staff member serves as logistical coordinator, the entire staff (nurses, social worker,
physicians, clerical staff, and child life specialist) of the Childrens Center for Cancer
and Blood Disorders is involved in developing and implementing the service.
75
TABLE 1.
Timeline
background.
Logistical Details/Timeline
Many logistical details must be attended to
in
details
necessity. Others were determined to support the attainment of goals. The date chosen
was
the
in
auditorium of the hospital. This central location was familiar to the families but was not
located in the same building as the treatment
center. Another reason for selecting the hospital was to integrate the planting into the
service and provide a garden location where
family members could return as they desired.
The staff wanted the service to include the
planting of a flowering tree or shrub to symbolize hope and rebirth.
children
being
honored receive
letter and
76
FIGURE 1.
Invitation. (Reprinted with permission from the Center for Cancer Treatment and Research, Richland Memorial
Description of Seroice
To achieve the established goals, the staff
determined that the service should include
music,
an
uplifting meditation,
an
opportu-
____
77
theological perspective.
After the meditation, the participants are
led in an activity to help them focus on a
specific memory of the child they came to
honor. Each person present at the memorial
service is encouraged to write a special
memory on a card with a picture of children
flying kites. This part of the service offers the
participants a new avenue for expressing
their feelings. These cards may remain private or be shared with others, and may be left
for placement in the memory book: The
memory book contains pictures, poems, articles, and other items pertaining to the children that families have contributed. As families from past services still attend this service,
all of our memory books are available before
and after the service for families, staff, and
guests to peruse.
After a benediction, the service moves into
the garden area. A memorial planting, responsive reading, child recognition, balloon
release, and song conclude the program.
During an informal evaluation session after
the first support group, staff brainstormed
ways to acknowledge both the close ties that
families felt with the staff and the hospital,
and that the life of the child was remembered.
An idea was born to establish a garden in
which a planting could be done during the
service. A proposal was made to hospital
Them.&dquo;32
The child
individually.
recognition
Each childs
Follow-Up
After the service, the coordinator sends a
letter to each family who was unable to
attend the service in which their child was
honored. In addition to the letter, staff encloses remembrances of the service. These
remembrances include a copy of the program, inserts, and the take-home remembrance.
78
Clinical Evaluation
Because of the nature of this service, staff
has been reluctant to conduct a formal written evaluation of the program. Staff has felt
that this type of evaluation was not appropriate and would detract from the purpose of the
service. However, staff remains aware of the
importance of obtaining feedback about the
program, and the need to critique the program and monitor its quality. The program
was initiated to acknowledge formally the
emotional bonds that had developed between staff and families. Therefore, staff
wants to continue to assess if the specified
are
being
ser-
and
so
meaningful.&dquo;
was
79
References
1. Heiney S, Wells L, Gunn G: Effects of group therapy
bereaved extended family of children with cancer. J
Ped One Nurs 10:99-104, 1993
2. Heiney S, Goon-Johnson K, Ruffin J: The effects of
a support group on selected psychosocial outcomes of
bereaved parents whose child died from cancer. J Ped
Onc Nurs 1994
3. Heiney S, Hasan L, Price K: Developing and implementing a bereavement program for a childrens hospital. J Pediatr Nurs 8:385-391, 1993
4. Koocher G: Adjustment and coping strategies
among the caretakers of cancer patients. Social Work in
Health Care 5:145-150, 1979
5. Hinds P, Fairclough D, Dobos C, et al: Development and testing of the stressor scale for pediatric
oncology nurses. Cancer Nurs 13:354-360, 1990
6. Herschbach P: Work-related stress specific to physicians and nurses working with cancer patients. J
on
Penguin,
62:105-116, 1992
22.
Gyulay
J: The
forgotten grievers.
Am J Nurs
75:1476-1479, 1975
23. Rando T: Funerals and funerary rituals, in Grief,
Dying, and Death: Clinical Interventions for Caregivers.
Champaign, IL, Research Press, 1984, pp 173-197
24. Armstrong L: Afterward: Remembrance from a
psychiatric clinical nurse specialists perspective. MCN
17:313, 1992
25. Adams D, Deveau E: After death: How families
survive through grief and mourning, in Coping with
Childhood Cancer: Where Do We Go From Here? Reston, VA, Reston, 1984, pp 199-239
26. Rando T: Therapeutic interventions with grievers,
in Grief, Dying, and Death: Clinical lntgrventions for
Caregivers. Champaign, IL, Research Press, 1984, pp
75-117
27. Imber-Black E, Roberts J: How rituals work for us,
in Rituals for Our Times. New York, NY, Harper Peren-