March 2015
BREAKING BARRIERS
Breaking Barriers
ENROLLMENT
THE PROPORTION OF UNINSURED STATE RESIDENTS went from
22.1 percent in 2013 to 18.9 percent in mid-2014, a decrease of 3.2 percent.
Medicaid and CHIP enrollment increased by 7.9 percent, 1.1 percent more
than the average among other states in this study that rejected Medicaid
expansion, but still a full 14 percentage points lower than the 22 percent
average increase in the Medicaid expansion states studied.
Access to health
California
22.3%
Oregon
59.7%
Significantly, 79
New Mexico
27.8%
percent of uninsured
Latino adults and 28
Idaho Louisiana
9.8%
2.8%
Mississippi
8.27%
Montana
8.4%
percent of uninsured
Texas
3.7%
African American
adults live in two
Access to health care for people of color was a key. Significantly, 79 percent
of uninsured Latino adults and 28 percent of uninsured African American
adults live in two southern states: Texas and Florida. In Florida, 16 percent of
African Americans, 20 percent of Latinos, and 15.1 percent of Asian-Pacific
Islanders fall into the Medicaid coverage gap, as do 14 percent of whites.
(People in the Medicaid coverage gap are those who would have been
eligible for Medicaid had their state opted for Medicaid expansion but whose
incomes are too low to qualify them for premium subsidies in the states
health insurance marketplace.)
southern states:
Texas and Florida.
African-American
16.0%
26.4%
Latino/Hispanic
30.0%
20.0%
Native Hawaiian or Asian/Pacific Islander
21.9%
15.1%
White
18.0%
14.0%
Percent in Medicaid
coverage gap
percentages of people
of color who are
uninsured, efficient
53.5%
Latino/Hispanic
19.2%
1%
6.3%
African American
19.8%
Mixed Race
Native Hawaiian or
Asian/Pacific Islander
White
Floridas outcomes
suggest that no such
targeting was done.
57%
58%
44%
67%
Florida
Respondents
Overall
African
American
Latino/Hispanic
White
45.5%
36.8%
55.6%
50.0%
Florida
Respondents
Overall
African
American
Latino/Hispanic
White
Given the higher percentages of people of color who are uninsured, efficient
outreach planning would target those populations for enrollmentbut Floridas
outcomes suggest that no such targeting was done. African Americans and
Latinos, the groups with the highest uninsured rates, each accounted for a
little over 19 percent of enrollees, while whites, only 18 percent accounted
for nearly 54 percent of marketplace enrollees. For our survey respondents,
over half (57 percent) had medical coverage, a figure much lower than the
publicized 81 percent coverage rate for the state. Fifty-six percent of Latino
respondents, 50 percent of whites, and 37 percent of African Americans with
insurance coverage got it in the last twelve months.
Latino Enrollment
23.6%
19.2%
55.6%
Breaking Barriers
White Enrollment
Percent of state population
56.4%
53.5%
50.0%
medical care.
3
16.7%
19.8%
36.8%
BARRIERS TO ENROLLMENT
ELECTRONIC BARRIERS
General website difficulties and particular failures on the Spanish language
website headed the list. In addition, the electronic identity verification
process, according to one respondent, left me hanging. I had to wait two
weeks for a call, THEN I wasnt verified. I just gave up. In addition, onethird of all respondents did not have an email address, which is a necessary
component of the enrollment process. Although relatively easy to get, not
having an email address suggests that the potential enrollee has minimal
familiarity with Internet communications. As the figures below indicate, the
racial divide is significant. Whites have an email address at a rate almost 10
percentage points higher than African Americans and 15 percentage points
more than Latinos.
Breaking Barriers
Email Address
Do you have an email address?
67.0%
63.4%
58.1%
White
73.9%
especially immigrant
families, simply feel
they cannot afford
time or money to be
proactive in this way.
IMMIGRATION STATUS
In addition to the fear of reprisal from the Department of Homeland Security
and the complication of enrolling mixed status families, there are also financial
barriers to enrolling immigrant families. As Santra Denis, Community Health
Director at Miami-based Catalyst, observed, many poor families, especially
immigrant families, simply feel they cannot afford time or money to be
proactive in this way.11
LITERACY
Advocates and survey respondents both expressed confusion and frustration
about the enrollment process. The terminology was not straightforward.
Whats a deductible, a health maintenance organization, co-insurance, a
health savings account, an out of pocket limit? First you have to explain the
individual mandate, THEN when you help people pick a plan its difficult to get
people to see that they are not necessarily best off with the cheapest option.
COVERAGE GAP
Without a doubt, the biggest barrier to enrollment is the states rejection
of Medicaid expansion and the resulting coverage gap. Without Medicaid
expansion, between 750,000 and 1 million Floridians fall into the gap, making
too much to qualify for Medicaid but too little to qualify for subsidies to
purchase insurance on the federal exchange. We are meeting with people on
the coverage gap every single day and there is nothing we can do for them,12
says Leah Barber-Heinz, Chief Executive Officer of Florida CHAIN. Estimates
suggest that Florida will lose $66.1 billion in federal Medicaid funding between
2013 and 2022. Linda Quick, President of the South Florida Hospital and
Healthcare Association, points out, Trying to convince legislators with
economic arguments has NOT persuaded the supposedly business-oriented
chambers-of-commerce-backed legislators about Medicaid expansion. Their
objection is clearly ideological, not practical. Florida is losing $7 million a
day etc. did not move one legislator.13 Jodi Ray, Program Director of Florida
Covering Kids & Families, sums the problem up: The failure to accept
Medicaid expansion leaves the state with tens of thousands of people who
simply will not be covered by any insurance, which will be a financial drain
on the state.14
Improving Health Insurance Enrollment and Access to Health Care in Florida
COVERAGE TO CARE
OVERALL ENROLLMENT DATA POINTS to relatively small increases
in health insurance coverage in Florida. Beyond the enrollment question,
however, insurance coverage does not necessarily translate into quality care,
which includes access to providers, a relationship with a personal doctor, and
access to both medication and other forms of treatment. Although the ACA
infrastructure is still developing, in this section we examine some key issues
related to access and treatment.
State of Health
Do you have one or more medical conditions that have affected you for
more than 3 months?
Race/Ethnicity
52.3%
African American
47.7%
chronic disease.
Latino/Hispanic
53.8%
White
58.3%
If the incidence of chronic conditions is any indication, the ACA may have
arrived just in time. Chronic diseases cause seven of every ten deaths.
In addition, health care costs for an individual with one or more chronic
diseases are five times the costs for an individual without chronic disease.15
In this context, it is significant that six in ten whites reported one or more
chronic illnesses, as did more that half of the African American and Latino
respondents.
Percent Yes
74%
African American
76%
Latino/Hispanic
65%
White
83%
Breaking Barriers
People
of Color
27%
Whites
31%
Health clinic or
hospital clinic
27%
African-American
Individual physician
38%
25%
Latino/Hispanic
45%
13%
White
20%
51%
37%
African American
37%
Latino/Hispanic
43%
White
28%
1-1.5 hours
More than 1.5 hours
In the last 6 months, when you needed care right away, how often did
you get care as soon as you thought you needed it?
Percent sometimes/never
17.0%
23.5%
27.3%
7.1%
Florida
Respondents
Overall
African
American
Latino/Hispanic
White
In the last six months, when you tried to get an appointment for
care you needed right away, how long did you usually have to
wait to see someone?
Percent waiting more than 7 days
Florida
Respondents
Overall
30%
People
of Color
35%
Whites
15%
Extra Payments
When you enrolled in a health plan, were you informed that financial
support was available for low-income people?
Percent Yes
Florida Respondents Overall
39%
African American
26%
Latino/Hispanic
56%
White
43%
10
Breaking Barriers
Not including copayments, have you ever had to pay extra for doctor
visits or medicines that your plan doesnt cover?
Percent who have had to pay extra
Florida Respondents Overall
47.5%
African American
48.6%
Latino/Hispanic
46.7%
White
43.5%
Fewer than four in 10 respondents were informed about subsidies at the time
of enrollment. Significant portions of all populations (47.5 percent) had to pay
extra for doctor visits or medicines. African Americans and Latino respondents
were more likely to have paid extra by a small margin (4 percent).
50.0%
Latino/Hispanic
56.2%
White
30.0%
65%
African American
71%
Latino/Hispanic
69%
White
55%
11
Electronic Access
Race/Ethnicity
Percent Yes
African American
18%
Latino/Hispanic
35%
White
50%
chronic disease.
SUMMARY OF FINDINGS
Enrollment efforts did not attempt to target uninsured populations, particularly
in communities of color. Florida has 750,000 to 1 million people in the
coverage gap, a significant portion of whom are African American and Latino.
While our sample is too small to draw a conclusion about the uninsured
overall, we note that the percentage of uninsured people we encountered
(43 percent) is much higher than the 2014 census estimate of 20 percent.
One of three Latinos in Florida is uninsured, yet Latinos made up only 19.2
percent of marketplace enrollees. Two factors account for this outcome:
1) The digital divide, evidenced by the fact that white survey respondents
communicate with insurers or health providers a third more than Latino
respondents and twice as much as African American respondents, and have
email addresses (73.9 percent) at a rate 10 percentage points higher than
African Americans (63.4 percent) and 16 percentage points higher than Latinos
(58.1 percent); 2) Legal, language, and cultural barriers: the combination of
limited language access, fear of legal reprisals for mixed-status families, and
lack of familiarity with culturally-specific insurance and medical terms adds up
to significant obstacles to enrollment.
Survey respondents had high levels of chronic illnesses, with well over half
reporting one or more. Although three-quarters of survey respondents have
personal doctors, 31 percent of whites and 27 percent of people of color have
not visited them within a year; 28 percent of white respondents, 37 percent of
African American respondents and 43 percent of Latino respondents either
use the hospital emergency or have no place to go for their medical home.
Urgent care was particularly hard to get for people of color, a third of whom
had to wait more than seven days. Of those who have sought urgent care
service, 23.5 percent of African Americans, 27.3 percent of Latinos, and
7.1 percent of whites thought that they sometimes or never got care when
they thought they needed it.
12
Breaking Barriers
The pathway from coverage to care has many obstacles. In a state where
52 percent of survey respondents suffer from ongoing chronic conditions,
16 percent of respondents had to travel more than an hour to obtain care,
only 17 percent got care when they thought they needed it, and 30 percent
waited more than a week for an urgent appointment. These problems were
significantly more prevalent in communities of color; travel time, urgent care,
and appointment wait times were two to three times more acute in African
American and Latino communities.
Pathways to alternative health modalities are highly limited, with just over half
of doctors talking with patients about non-medical approaches to health.
When doctors do mention alternatives, 65 percent of the time the emphasis is
on the standard patient self-help recommendationsdiet and exercise.
In order to improve enrollment and care options, we recommend the following:
13
mandates (N.Y. Pub. Health Law 4403). Florida should expand its pool of
interpreters and require plans to continually update information about which
providers are in their networks. Provider directories must be available in
multiple languages and list addresses, phone numbers, languages spoken,
hospital affiliations, and specialties.
Require that new enrollees have the opportunity for a free physical
exam and appropriate screening tests within 60 days of enrollment.
14
Breaking Barriers
Reinforce the ACA-mandated womens right to no-cost wellwoman preventive care by ensuring that all plans available through the
marketplace include reproductive health care services, including all FDAapproved forms of contraception.
Expand and standardize preventive services, ensuring that nongrandfathered plans offer preventive services (yearly check-ups, immunizations,
counseling, and screenings) at no out-of-pocket cost and penalize plans in
which fewer than 70 percent of enrollees receive these services.
15
ENDNOTES
1. F
lorida leading U.S. in ACA signups
Herald-Tribune, February 4,
2014 accessed at: http://health.
heraldtribune.com/2015/02/04/floridaleading-nation-aca-enrollment/
2. Florida website aimed at the
uninsured draws little interest Tia
Mitchell Tampa Bay Times April 28,
2014 http://www.tampabay.com/
news/politics/stateroundup/floridawebsite-aimed-at-the-uninsureddraws-little-interest/2195173
3. http://medicaid.gov/medicaid-chipprogram-information/programinformation/downloads/august2014-enrollment-report.pdf Table 1:
Medicaid and CHIP: July and August
2014 Preliminary Monthly Enrollment
4. Interview with AJS staff, July, 2014.
5. Interview with AJS staff, July, 2014.
6. Interview with AJS staff, July, 2014.
7. Interview with AJS staff, July, 2014.
8. Interview with AJS staff, July, 2014.
9. Interview with AJS staff, July, 2014.
10. Interview with AJS staff, July, 2014.
11. Interview with AJS staff, July, 2014.
12. Interview with AJS staff, June, 2014.
13. Interview with AJS staff, July, 2014.
14. Interview with AJS staff, July, 2014.
15. The Impact of Chronic Disease on
Healthcare, accessed November
23, 2014 Partnership for Solutions.
http://www.forahealthieramerica.
com/ds/impact-of-chronic-disease.
html
16
Breaking Barriers