Key messages
Advance care planning is a right of all people, and is an ongoing, valuesdirected discussion involving health professionals, patients, and their
family or other agent.
Patients expect and are happy for their doctors to initiate conversations
about advance care planning however the conversations may often be
performed by other health professionals.
Advance care planning requires that patients are given accurate and
sensitively provided information about their illness and health care
options and prognosis; opportunities to discuss their wishes with their
doctors and their chosen decision-maker/s; and that their wishes are
accurately documented, regularly updated, and can be accessed as
needed.
Health system processes are crucial for effective advance care planning,
and health system-wide changes are likely to be needed for advance care
planning to become an integral part of routine clinical care.
Background
Advance care planning is the process by which patients make decisions that can
guide their future health care, if they become unable to speak for themselves. It
is based on the ethical principle of respect for patient autonomy. Advance care
plans reflect patients own values and concerns, and require patients to
understand their medical condition, and also the benefits and burdens of
possible treatments. They are important in guiding decision-making at the time
when a patient is too unwell to make their own decisions, or is unable to
communicate.
Advance care planning requires conversations between patients, their doctors,
and their surrogate decision-makers about how they would like to be cared for,
and so the communication skills of health care providers are a very important
factor in their success. Advance care planning can include the use of formal
advance directives which are written documents that may be legally binding to
varying degrees in different states (e.g. a Refusal of Treatment Certificate in
Victoria, an Advance Health Directive in Queensland, and the Natural Death
Certificate in the Northern Territory). Nonetheless, advance care planning
documentation of a patient's wishes - can also occur without using these legal
processes.
Some of the major factors that are important for advance care planning will be
covered here:
Surrogate Decision-Makers
There is significant burden associated with the role of surrogate decision-maker.
[1]
A systematic review examining how well surrogate decision-makers predicted
the patients wishes showed that they were accurate in two thirds of the cases.
It was suggested that accuracy may not be the only benefit which is important
to patients when relying on patient-designated surrogates. [2]
Relationships between health care providers and family members, and amongst
the family members themselves, have a significant impact on those who
participate in end of life decision making. [3] An important area of potential
conflict with surrogate decision-makers is in the care of critically children. [4]
In regard to the role and use of surrogate decision-makers, there are significant
differences between practices in different national health systems, based on
how much focus there is on patient autonomy, the amount of formal reliance on
surrogate decision-makers, and the extent to which medical predominance in
decision-making is regarded as acceptable or as paternalistic. [5]
In some cultures family-centered decision-making is valued much more highly
than patient autonomy. [6]
Patient Management
Suffering.
The pages are developed following an examination of the
research evidence for the symptom as described in systematic
reviews relevant to the topic. The systematic reviews were
identified following a search for topic based systematic reviews in
four databases - OvidSP MEDLINE, CINAHL, PsycINFO and Embase.
Reference
1. Kristjanson LJ, Pickstock S, Yuen K,
Davis S, Blight J, Cummins A, et al.
Development and testing of the
revised Symptom Assessment Scale:
Final report. Perth; Edith Cowan
University: 1999.
Last updated 2 May 2013
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Review Collection
Weight Loss
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Dyspnoea
Anorexia
Medication effects.
Issues related to appetite that are covered
in this section are:
Cachexia anorexia syndrome
Appetite stimulants
Artificial nutrition.
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Anorexia cachexia
fatigue, weakness, anaemia, inflammation
and low albumin. [2-3] Nutritional
assessment tools that include markers of
inflammation are being investigated. [4] Their role in clinical
practice may be to identify patients earlier in the palliative
trajectory, and be incorporated into clinical practice guidelines
about management of the syndrome. [5]
What is known
IV. A physician shall respect the rights of patients, colleagues, and other health
professionals, and shall safeguard patient confidences and privacy within the constraints
of the law.
V. A physician shall continue to study, apply, and advance scientific knowledge, maintain a
commitment to medical education, make relevant information available to patients,
colleagues, and the public, obtain consultation, and use the talents of other health
professionals when indicated.
VI. A physician shall, in the provision of appropriate patient care, except in emergencies,
be free to choose whom to serve, with whom to associate, and the environment in which
to provide medical care.
VII. A physician shall recognize a responsibility to participate in activities contributing to
the improvement of the community and the betterment of public health.
VIII. A physician shall, while caring for a patient, regard responsibility to the patient as
paramount.
IX. A physician shall support access to medical care for all people.
Adopted June 1957; revised June 1980; revised June 2001.
decisions and there are also sometimes worries about legal implications. [2] One
study in an ICU setting found that central to the theme of withdrawing treatment
was working with the family; consistent communication is a key factor. [3]
Ethical Issues
Much of the daily work of nurses in end-of-life care could perhaps be thought of
as overlaid with ethical issues. This may be in relation to concerns that are
raised, or with requests or decisions that are made. This section provides
information and resources on some of the ethical issues that nurses can
encounter in end-of-life care.
Assisted Suicide
Autonomy
Euthanasia
Palliative Sedation
Research
Resuscitation
Assisted Suicide
Patients do not always fully understand what they have been told,
or they may not have been told. [1] Decisions are best made
without undue influence, and the person making the decision
should also be deemed capable of doing so.
Patient choice and autonomy are considered key in palliative care.
Part of the nurses role, wherever possible, is to advocate for a
competent patients right to decide their own course of action,
whether it is something that the nurse feels is appropriate or not.
Decision making is complex and includes cultural and social
aspects that are not always acknowledged. [2]
It may be difficult to stand by when a patient decides (sometimes
against advice) to take a course of action that is not considered
acceptable or appropriate. However, if the patient is capable of
making such a decision and is well informed of the consequences
of their actions, they must be allowed to exercise their autonomy
to do so.
Palliative care patients are often vulnerable and may be more
easily persuaded to make choices that they would not normally
make, such as accepting further treatment that they dont really
want. They may also continue to request treatment that they
have been told is futile and may not help. Further examination of
their understanding of the situation and their goals is required to
help support them in their decision making.
Euthanasia
Making this decision may create debate and contention within the
multidisciplinary team. This mainly lies with the intention and
depth of sedation, and in palliative sedation corresponding with
withdrawal of other treatment. One example of this is whether the
patient or family are making the request.
It is important to emphasise that palliative sedation does not have
the intent to directly hasten or end life, although some argue that
the lines between palliative sedation and euthanasia can be
blurred in cases where sedation is introduced too early or if
medication doses are disproportionately high. [2] Another study
found a lack of consensus in defining existential suffering due to
its subjective nature and therefore difficulty in deciding on an
appropriate treatment course. [3]
If palliative sedation is a consideration then seek advice and
support where possible from a specialist palliative care service.
Research
Advance Directives
What They Are And What They Do
WebMD Medical Reference from the National Hospice and Palliative Care
Organization
Living wills
6) In your kitchen, ensure that opposite your stove there is no refrigerator, washing
machine, washbasin and toilet. The fire and water crash causing family members to have
disagreements.
7) Try not to allow children to sleep on mattresses on the floor. Yes, this allows young
children not to fall off beds but it also causes young children to fall sick frequently. The
reason is: chi is not able to flow underneath the bed. Ideally, chi should circulate around the
mattress where our children sleep to allow them to be healthy.
8) For young children, try to have their back to the wall when they write. It is important there
should be a solid wall behind a childrens writing table. This allows the child to have support
so that he can sit there and study longer rather than for only half an hour and then they tend
to move about because there is no solid wall behind their back. Adjust your writing table.
9) Do not allow children to sleep on double bunk beds even if it means saving space. The
child sleeping underneath will not have fresh chi and so his health might be weak. But if
due to space constraints, then monitor your childs health if not add in a metal 6 rods wind
chime or a crystal sphere, to break up the stale chi around his bed.
10) Your bed should always have a solid wall behind you. This is important if you wish to
have a good rest. A solid wall simply means that you can go into deeper sleep and therefore
enabling you to have good rest so that when you wake up in the morning, you will feel fresh
and well rested. This also allows you to be able to concentrate on your work better.
11) There should be no beam on top of your bed. The beam above causes chi to be
pressured thus enabling you to have pressures in life. Therefore, dont place furniture
underneath it or alternatively level the beam. But make sure if you choose the latter, it is
important that you have enough height for that space.
12) If you have a lot of work pressure, maybe its the marble table that you have in your
dinning room that causes you to have those problems. Remove that marble table and
change to a wooden one or alternatively live with that work pressure!
13) If your child usually falls sick in that bedroom: Then either change them to another
bedroom or simply hang a six rod metal wind chime as the metal element will break all the
earth energies in that room. After hanging, if the wind could not do the job for you then you
will have to chime it yourself and then watch for the good results.
14) Do not use a red sofa set: The colour red represent the element of fire. And for Feng
Shui, some places simply cannot have the colour red in that sector. For example: the wealth
area or some other sectors which without a Feng Shui check would be unable to tell you
where it is. A red sofa sets gives rise to heavy work pressure, troubles and obstacles.
15) Always open your bedroom windows at least once 20 minutes a day to allow fresh chi to
come in, we do this so that it allows fresh new chi from outside to come into your bedroom,
if not you will be sleeping with stale chi every night. And if that happens, then how can you
expect your life to bring in more good fortune to come to you? So open that window and
never mind if dusts comes in! The great good fortune that you can have will far exceeds the
time you take to clean off the dust.