www.alz.org/norcal
northern california & northern nevada
Northern California Edition now including Bay Area, North Bay, Santa Cruz, Monterey, Sacramento & North Valley offices
2010 marks the 30th Anniversary of the founding founder of the Association in the Bay Area. Pat
of the Alzheimer’s Association and the beginning Riley, service director, Long Term Care/Continuity
of the national movement to defeat Alzheimer’s of Care for Kaiser Permanente volunteered as a
disease. For this issue of the Newsletter, we support group leader beginning in 1985 and chaired
asked three veterans of our work to reflect on the first Public Policy and Advocacy Committee.
our progress in caring for people with Alzheimer’s David Troxel, nationally recognized Alzheimer expert
and supporting their families: Cecile Currier, vice and co-author of “The Best Friends Approach
president of Corporate & Community Health to Alzheimer’s Care,” served as an Alzheimer’s
Services and president of CONCERN: EAP at El Association executive in Lexington, Ky. and Santa
Camino Hospital in Mountain View, Calif., was a Barbara, Calif. (continued on page 3)
Northern
California and Think It Over...
Northern Nevada
Board In 1978 Dr. Robert Butler, head of the National Institute on Aging (NIA), convened a meeting of
nine community-based Alzheimer organizations and called for an organizing vehicle to create
Officers public concern about the disease and resources to address it.
Herb Williams, President Jerry Stone, chairman of the board of the Stone Container Corporation in Chicago stepped
Eduardo Salaz, Vice President forward as the first volunteer leader of the Alzheimer’s Disease and Related Disorders
Kevin Pringle, Treasurer Association (there are still folks who refer to us a “A-D-R-D-A.”). Frustrated by the lack of
Merry Geil, Secretary understanding when his wife developed Alzheimer’s, Jerry wrote the first check for $75,000 and
served as the first Board Chair. Hundreds of volunteers walked in Jerry’s footsteps, bringing us
Members into 2010. We’ve come a long way in 30 years and have much to celebrate.
Clifta Atlas, RN
Joe Cooney There was no Federal funding for Alzheimer’s research 30 years ago. Today, though still
Sara Craven woefully inadequate, the Federal government spends over $400 million annually. There were
Peter B. Daly no pharmaceutical treatments for Alzheimer’s. Today there are four FDA approved symptomatic
June Darmanian treatments that help some folks.
Sarah Epstein, MSW
Our work was almost exclusively with the adult children and spouses of people with dementia.
Leslie Bishop Franco, JD
Today diagnosed individuals who are still active and lucid are a part of our work.
Chuck Haas
Geoff Heredia When my grandmother had Alzheimer’s, we said grandma was “senile.” President Ronald
Ladson Hinton, MD Reagan’s candor about his diagnosis helped change that and today people have a reasonable
Eva Lai-Kit Jones, MPA, MT sense of what Alzheimer’s is.
(ASCP)
Grace Lee, LCSW When I joined the Association in 1987, we had two employees in all of Northern California.
Joan Marks Today we have eight offices, a 24/7 Helpline and a host of other programs throughout Northern
Pat Sippel California and Northern Nevada.
Rick Smith
But at the end of the day, I think we have done that thing that Dr. Butler wanted. We have
Lisa Sullivan, JD
Howard Wahl blown oxygen into the room and created a national movement to create a world without
William H. Fisher, CEO Alzheimer’s disease.
Ex officio There is a place for you in this movement.
Lennart Mucke, MD
Medical Scientific
Advisory Council
Lennart Mucke, MD, Chair
Wm H. Fisher, william.fisher@alz.org
Wes Ashford, MD, PhD
Adam Boxer, MD, PhD
Charles DeCarli, MD
Dolores Gallagher-Thompson, Thanks to our 2009 Memory Walk Sponsors for their Support
PhD
Rafael Gonzalez-Amezcua, MD Silicon Valley Memory Santa Cruz Memory Walk, Jardins, Attorney-at-Law
Michael Greicius, MD Bronze Sponsors: Chanticleer
Walk, September 12, 2009 September 26, 2009 Home; Country Villa –Watsonville
Victor Henderson, MD Platinum Sponsor: Concern:EAP
Premier Nursing; Earthbound Farms;
Ladson Hinton, MD Gold Sponsors: Atria Senior Living; Eco-Sound Medical Services;
Sponsor:
William Jagust, MD Bridge Bank; Star One Credit Union Heartland Hospice; Horsnyder’s
Platinum Sponsor:
Silver Sponsors: Canyon House Pharmacy; Lifespan Care
Elizabeth Landsverk, MD Seascape Resort
and Crescent Villa; The Creeks Management; Palo Alto
Gold Sponsors: The Creeks
Frank Longo, MD, PhD Alzheimer’s and Dementia
Alzheimer’s and Dementia Medical Foundation; Santa
Michael McCloud, MD, FACP Care; Merrill Gardens at Willow Cruz; Village Green of Gilroy
Care; Elyxir Distributing, Inc.
Jared Tinklenberg, MD Glen; Palo Alto Commons Supporting Sponsors: De Un
Silver Sponsors: Aegis Living;
Bronze Sponsors: Belmont Village; Amor; Eisai; Flor’s Guest Home;
Tony Wyss-Coray, PhD Bay Federal Credit Union; Capitola
Cimino Care; Law Offices of Michael Jazzercise; SafeKare; Soquel Leisure
Manor; Dominican Hospital;
Kristine Yaffe, MD G. Desmarais; Eco-Sound Medical
Dominican Medical Foundation; Villa; Sunshine Villa; Valley Heights
Elizabeth Edgerly, PhD, Chief Services; ManorCare; Pacific & Valley Convalescent Hospital
Physicians Medical Group; Granite
Program Officer Gardens; Right at Home – Alameda,
Construction, Inc.; Kindred Santa
Peninsula, San Jose; Sunnyside
Cruz Healthcare; Jill Wilson,
2 Gardens; Sunrise Senior Living
Attorney-at-Law; Lucille Des
Alzheimer’s Association Turns 30. The Movement Progresses. (cont.)
Alzheimer’s Association Veterans Cecile Currier, Pat Riley and Association provides services across a much larger geography.
David Troxel reflect on 30 years of Alzheimer care and support:
Pat: Caregivers are more knowledgeable. Politicians are more
What were your first impressions of the aware of our needs. The condition is diagnosed earlier.
Alzheimer’s Association?
David: There is so much we can do to create a therapeutic
Cecile: In 1985 my first impressions were that the staff and environment, reduce challenging behaviors and help caregivers
volunteers were very dedicated, passionate and tirelessly survive this difficult journey. In the 80’s, support groups were
working to build services for caregivers and their patients. the main way families got information. Today everything is
radically different with online communities and hundreds
Pat: I began in 1985 as co-facilitator of a support group. I was
of books and publications. The rise of special care units in
impressed with the passion of caregivers. It was primarily a
residential settings has been very positive in that we can give
grass roots group led by family members. I later traveled to the
better care for persons with dementia needing this support.
State Capitol and Washington with them and was so impressed
It is also easier to get people with Alzheimer’s into hospice,
with the organization that went into the legislative office visits.
providing greater dignity at the end of life.
David: Back in 1986 I was hired to be the part-time Executive
What are the greatest un-filled needs in the
Director of the Lexington, Ky. Alzheimer’s Association. I recall
community?
going to a dinner party and sharing where I worked and people
around the table said, “Alzheimer’s disease. What’s that?” I Pat: We still do not have an appropriate long term care system
don’t think that happens anymore. that is designed to provide help and care where it is needed
most and affordably – in the home. Hospitals are still very slow
Families were so in need of help and assistance. There were
to treat patients with dementia appropriately.
very few services, little public awareness and their physicians
were dismissive. Folks were so appreciative of our efforts and David: We need better drugs to actually slow or stop the
even though this was such a terrible disease, I was meeting disease, more financial support for residential care.
the most wonderful people.
Cecile: Responsive high quality care for patients is not
What has changed in terms of Alzheimer’s care and available in sufficient quantity. I think there still needs to be
resources since then? more information and awareness about early signs of dementia
and appropriate evaluation.
Cecile: There is so much more awareness about Alzheimer’s
disease, resources are more available and, of course, the
Sacramento Memory Fresno Memory Walk, Silver Sponsors: Ameriprise Healthcare; Medivation; Pfizer;
Financial; Auspice Home San Francisco Alzheimer’s
Walk, October 3, 2009 October 3, 2009 and Dementia Clinic
Care Solutions; KM
Gold Sponsor: Atria Presenting Silver Sponsors: Canyon House and
Marketing; Tree Fresno
Silver Sponsors: Cimino Sponsor: Crescent Villa; Carlton Senior Living;
Care; Emeritus Assisted Living; Cimino Care; Northern California
Eskaton Senior Residences Premier San Francisco Memory Presbyterian Homes and Services;
and Services; First Responder; Sponsor: Walk, October 10, 2009 San Carlos Elms; Vintage Senior Living
Norwood Pines Care Center Bronze Sponsors: Autodesk; Care
Presenting
Bronze Sponsors: Aegis Living Platinum Sponsors: Drummond On Call; Classic Residence by Hyatt;
Sponsor:
of Carmichael; American Medical Emeritus Assisted Living; John
Co. Hearing Aid Center; LabCorp;
Response; Apple Ridge and Ivy Muir Health; Hillendale Home Care;
Right at home; Golden Living
Ridge; Chrysalis Cosmetics; Primrose; Platinum Sponsors: California Intuit; Navigenics; Posit Science;
Centers; Asera Care Hospice Pacific Medical Center; Concern: Professional Healthcare at home;
Quail Ridge/Carmichael Oaks;
Somerford Place; Sunrise Assisted Gold Sponsors: Elim Alzheimer’s EAP; The Creeks Alzheimer’s Silverado Senior Living; Sunrise Senior
Living; Surewest Foundation; & Rehab, In Home Care, Assisted and Dementia Care Living; UC Davis Health System
UCDavis Health System Living; Maxim Healthcare Gold Sponsors: Arcadia Health
3
Services; Valley Health Magazine Care; Atria Senior Living; Kindred
Three out of Five People with Alzheimer’s Disease Will Wander
What you can do to keep yourself and your loved ones safe
Alzheimer's disease destroys brain cells responsible for memory, dinner, to provide daily
thinking and behavior. As a result, people living with Alzheimer’s structure
or a related disorder may become disoriented and lost, even F Reassure the person if he or
in their own neighborhood or places that are familiar to them – he feels lost, abandoned or
this is known as wandering. Due to confusion, individuals with disoriented
Alzheimer’s who wander are often unable to ask for help, leaving F Avoid busy places that are
them vulnerable to weather, traffic and those who prey on the confusing and can cause
less fortunate. disorientation, such as
shopping malls
More than 60 percent of those with Alzheimer’s or another form F Place deadbolts either high or
of dementia will wander, and if a person is not found within 24 low on exterior doors
hours, up to half of individuals who wander will suffer serious F Control access to car keys (a
injury or death. person with dementia may not just wander by foot)
F Do not leave someone with dementia unsupervised in new
A person with dementia may be at risk for
surroundings
wandering if he or she:
F Comes back from a regular walk or drive later than usual The Alzheimer’s Association encourages individuals and families
F Tries to fulfill former obligations, such as going to work coping with wandering to enroll in MedicAlert + Alzheimer's
F Tries or wants to "go home" even when at home Association Safe Return®, a nationwide identification program
F Is restless, paces or makes repetitive movements designed to assist in the return of those who wander and
F Has a hard time locating familiar places like the bathroom, become lost.
bedroom or dining room
F Acts as if doing a hobby or chore, but nothing gets done Families seeking a more technologically advanced and robust
(moves around pots and dirt without actually planting program may consider the new Alzheimer’s Association Comfort
anything) Zone program (see opposite page for more info). Family members
F Acts nervous or anxious in crowded areas, such as shopping can have knowledge of a person’s location, while individuals with
Alzheimer’s can enjoy the emotional security of familiar routines
malls or restaurants
and surroundings.
If you live with or care for a person with dementia, here
For more information about Comfort Zone, Medic Alert +
are a few tips to help you reduce the risk of wandering:
Alzheimer’s Association Safe Return or additional tips on coping
F Move around and exercise to reduce anxiety, agitation and with wandering and other safety issues related to dementia and
restlessness Alzheimer’s disease, visit www.alz.org/safetycenter or call the
F Ensure all basic needs are met (toileting, nutrition, thirst) Association’s 24/7 Helpline at 1.800.272.3900.
F Carry out daily activities, such as folding laundry or preparing
Chico Memory Walk, October 10, 2009 Co. Storage; Windsor Chico Creek Living; Delphi; Morrison Management
Bronze Sponsors: ARCADIA Health Care; Specialists; North Bay Corporation; Villa
Presenting Community Care Options; Feather River Home Capri at Varenna; WindChime of Marin
Sponsor: Health and Hospice; Interim HomeStyle Services; Silver Sponsors: Autodesk; Brayton-Purcell;
Sunseri Construction; Sycamore Glen; The UPS Harmony House; Kaiser Permanente;
Premier Store; Townsend House Assisted Living; UC The Meadows of Napa Valley; Primrose;
Sponsors: Davis Health System; Windchime of Chico The Tamalpais; Vintage Senior Living
Supporting Sponsor: Furniture Depot Bronze Sponsors: Adobe House Petaluma;
Stage Sponsor: Tri Counties Bank Affordable Solutions Home Care; Bank of
Platinum Sponsors: Oak Knoll Senior Living; Marin; Comfort Keepers; Eisai; Golden Living
Prestige Assisted Living; United Healthcare Wine Country Memory Centers; The Pasha Group; Senior Helpers
Gold Sponsors: Country Commons; North Bay; Sequoia Senior Solutions; Spring
The Courtyard at Little Chico Creek;
Walk, October 17, 2009 Lake Village; Sunrise Petaluma; UC Davis
Taco Bell; The Terraces Senior Living Presenting Sponsor: Health System; WestAmerica Bank
Silver Sponsors: Country Crest; Dream The Most Trusted Home Care Agency
Supporting Sponsors: Frank Howard Allen
Makers for Hair; Fanno Saw Works; J. Mark Realtors; Merrill Gardens; Hired Hands; Home
Platinum Sponsor: Swinerton Incorporated
Atlas, Attorney at Law; Jacobs, Anderson, Instead; Ian F. Wilkerson Music Therapy; YoUtilBill
4 Potter and Chaplin, Attorneys at Law; James Gold Sponsosr: Aegis Living; Atria Senior
We Can Help You Find Your Do You Know the 10 Signs of
Comfort Zone Alzheimer’s Disease?
The Alzheimer's Association has worked with a wide range of
experts to update its 10 Warning Signs of Alzheimer's to help people
distinguish normal signs of aging vs. signs of dementia.
But in 2005, Marian found Glen in their front yard early in the “I still need support and I also give support to the people in my
morning, fully dressed and holding an overnight bag. She asked group and other friends who are just starting the Alzheimer’s
him where he was going. He said they were going travelling; journey,” she said. “Being a caregiver is a life-long, slow learning
but they had just returned from a trip. That was the moment she process.”
realized she needed help.
If you would like to attend a local support group, find one near you
“Up to that point I still thought everything was going to be fine, in the insert attached to this newsletter, visit us online at
that support groups were for other people and I would be able to www.alz.org/norcal or call 1.800.272.3900.
read books to get the information I needed,” she said. “But
this one moment indicated to me that I needed to learn more
than I could go out and learn on my own.”
The support group was also there for her when she
Marian Lan
faced the difficult decision of placing her husband in gdon, picture
Smith forme d with Judy
a long-term care facility. She spent February of 2007 d Team Hori Zscheile an
zon – named fo d Deborah
looking for the right place as it became increasingly three wome r the street
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6
z Sentinel.
UNITED STATES
NO POSTAGE
NECESSARY
Make Your Voice Heard
IF MAILED
IN THE
The Alzheimer’s Association advocates for legislators to make
a difference in the lives of people with Alzheimer’s disease
and their caregivers. When the Association, our volunteers
detach along perforation and mail * detach along perforation and mail * detach along perforation and mail
and the community come together, our voice is amplified for
lawmakers to hear loud and clear!
1060 LA AVENIDA ST
Action Summit Alzheimer’s Action
For more information: Day in Sacramento
www.alz.org or April 21, 2010.
CALIFORNIA
1.800.272.3900 For more information:
www.alz.org/norcal or
1.800.272.3900
Education Conferences
Attend one of the Santa Cruz North Bay Monterey
Alzheimer’s Association’s The Many Faces and Alzheimer’s Disease: Dementia 360-A
annual education Voices of Alzheimer’s Continuum of Care IV Compass for the Journey
conferences. Family and Thursday, March 25, Monday, April 26 Wednesday, May 19,
professional caregivers 8 a.m. – 4 p.m. 8:30 a.m. – 4 p.m. 8:30 a.m. – 4 p.m.
Info: 1.831.464.9928 or Info: 1.707.573.1210 or Hyatt Regency Monterey
are invited to hear
dale.thielges@alz.org 1.415.472.4340 or 1 Golf Course Road, Monterey
experts discuss a variety
shelley.dombroski@alz.org Info: 1.831.647.9890 or
of care topics during
Sacramento 1.831.757.0531 or
in-depth presentations Education Conference for Oakland pat.potter@alz.org
and question and answer Family and Professional African American
sessions. Registration is Caregivers Caregiver Forum
required for all events. Wednesday, March 31, Friday, April 23
Location, cost and 9 a.m. – 4 p.m. West Oakland Senior Center
program details will be Radisson Hotel 1724 Adeline St.
available at 500 Leisure Lane Info: Cynthia Taylor,
www.alz.org/norcal. Info: Denise Davis, 1.916.930.9080 1.925.284.7942 or
7
or denise.davis@alz.org cynthia.taylor@alz.org
The Alzheimer’s Association is committed to
continuing our tradition of serving families
Alzheimer's Association
despite the challenging economic climate. Northern California & Nevada
1060 La Avenida Street
Please help us streamline our costs by Mountain View, CA 94043
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