Support to the

Transforming Care Programme

Reporting template
Inclusion North needs to send reports to the
Transforming Care Assurance Board. These
reports will collect together what you are finding out
around the country.
Please use this template to give us the information
you have collected. We need to know what youve
been doing and what youve found.

Who has completed this template?

Name:

Organisation:

Date:
1

Two important things to

remember.
1. We need to know about people with learning disabilities and
their families affected by Transforming Care - this is people
with learning disabilities or autism who also need support with
their mental health or have the label of challenging behaviour. All
through this template, when we talk about people with learning
disabilities and family carers, we mean those people affected by
Transforming Care, NOT all local people with learning disabilities
and family carers
2. You NEVER need to collect information about or know the names
of individual people affected by Transforming Care. This work is
about thinking generally about how things are going

If you need any support filling this in, then please

get in touch with Lucy at Inclusion North:

Phone:
07944 185 771

lucyvirgo@inclusionnorth.org

What have you done to collect the information?

Please tell us what you have done to collect the information
you have collected? Have you sent out questionnaires, held
meetings or interviewed people?
How many people and families have you heard from or
spoken to?

Good information
Local people with learning disabilities and family
carers should know about Transforming Care and
the responsibilities that Local Authorities and
Clinical Commissioning Groups have.
Across your region you need to find out whether this
is happening. You will need to find out:
Do local self advocates and family carers know
about Transforming Care and what should be
happening locally?
Do local groups know who the people leading
Transforming Care work locally are?
Do local groups know how many local people are
in assessment and treatments and secure units What have you found?
Please tell us numbers of people whenever you can.

If you think that people dont know about

Transforming Care, then why might that
be?
Can you give some examples of what is
happening, both things that are working
and things that are not?

Local people working together

Local self advocacy and family carer
groups should be linked into their
Transforming Care work-plan. They
should be working in partnership to plan
what needs to be done locally to make
sure Transforming Care really happens.

Across your region you need to find out whether this is happening. You
will need to find out:
Are local self advocacy and family carer
groups really partners in planning what local
services and support should look like?
Does this include people who have a learning
disability or autism and a mental health
problem or the label of challenging behaviour?
Does it include their family carers?
What have you found?
Please tell us numbers of people whenever you can.

If you think that people are not being

properly involved, then why might that
be?
Can you give some examples of what is
happening, both things that are working
and things that are not?

Good care in hospital

Local groups self advocates and family
carer groups should know about the plans
for people who are living in assessment
and treatment or secure units to leave.
These are called discharge plans.

Across your region you need to find out whether this is happening. You
will need to find out:
Do local groups know about whether or not people
who are in assessment and treatment or secure
units have discharge plans, including a discharge
date?
Do local groups know whether everyone living in
an assessment and treatment or secure units has
a care coordinator to make sure this happens?
Do local groups know about who is having Care
and Treatment Reviews? Do they know whether
Experts by Experience are part of Care and
Treatment Reviews?
What have you found?
Please tell us numbers of people whenever you can.

10

If you think that people dont know about

peoples discharge plans, then why might
that be?
Can you give some examples of what is
happening, both things that are working

11

12

Stopping people going into hospital if they dont need to

Local self advocacy and family carer groups
should be working with the Transforming Care
Partnership and local Health and Wellbeing
Boards. Their job is to make sure that services
are being planned to stop people needing to go
into hospital. That means really good support
in the community.
Across your region you need to find out whether this is happening. You
will need to find out:
Are local self advocacy and family carer groups
really partners in planning what local services and
support should look like?
Does this include people who have a learning
disability or autism and a mental health problem or
the label of challenging behaviour? Does it include
their family carers?
Do local self advocacy and family carer groups
know about the risk of admission register and how
it is working locally?
What have you found?
Please tell us numbers of people whenever you can.

13

If you think that people are not involved

properly in planning local services, then why
might that be?
Can you give some examples of what is
happening, both things that are working and

14

15

Keeping people safe

Local self advocacy and family carer groups
should be working with their
Safeguarding Board to make sure that they are
thinking about how to keep people safe.

Across your region you need to find out whether this is happening. You
will need to find out:
Are local self advocacy and family carer groups
really working with their local Safeguarding Board
as equal partners?
Does this include people who have a learning
disability or autism and a mental health problem
or the label of challenging behaviour? Does it
include their family carers?
What have you found?
Please tell us numbers of people whenever you can.

16

If you think that people are not involved

properly with their local Safeguarding Board,
then why might that be?
Can you give some examples of what is
happening, both things that are working and

17

18

Changing how care and support happens

Local self advocacy and family carer groups
should be able to see a real change in how
services are being designed and delivered.
They should be able to see how care and
support is getting more person centred, so that
people really can get the support they want.
Across your region you need to find out whether this is happening. You
will need to find out:
Do local self advocacy and family carer groups
have evidence that care and support is getting
more person centred?
Are more people getting personal budgets so
they can really plan the support they want?
Are peoples care and support plans more person
centred and show the outcomes that people want
from their lives?
What have you found?
Please tell us numbers of people whenever you can.

19

If you think that care and support is not

getting more person centred then why
might that be?
Can you give some examples of what is
happening, both things that are working

20

Thank your for all you

hard work in making this
important work happen!
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