For information address Ten Penny Players, Inc. www.tenpennyplayers.org We were called back to the hospital. We were supposed to bring him in on Saturday. We did. The girl on the reception desk couldn’t locate his admittance sheet or casebook. She looked through the whole cart. It was in Sunday’s schedule. She said that they had made a mistake; he wasn’t expected until the next day. I said please call orthopedic just to make sure. She did and they were expecting him on Sunday. I also asked that she call one of the doctors. She did: he suggested that if we didn’t want to come back, we leave him there overnight. I said, no. I didn’t want to pay extra charges for an unnecessary day or have him away from home longer than we had to. We turned around and went home. We unpacked the lunch and ate it together in the living room. The next morning we went back up to the hos- pital. Athelantis was examined and sent home because of his temperature. In a few weeks we were called back to the hos- pital. We had another pediatric checkup. It was a female pediatrician. Athelantis didn’t like her. He managed to raise his temperature two points. She said that his ears were infected. I said that it was probably his normal crankiness. She refused to admit him. He broke the thermometer, kicked her in the stomach, and then took apart the blood pres- sure gauge, ripping it into three pieces. We went home and I called our doctor. She said to take his temperature again after 6:00 P.M. If it went down, he was fine and we didn’t have to bring him in. It went down. A couple of days later we received an appoint- ment slip from the hospital telling us to come in for a pediatrics checkup. I called admissions and asked whether or not they had sent it because there was a bed for him. She checked for me and found out that pediatrics wanted to check him out again at the surgeon’s suggestion. I called the sur- geon. I said that Athelantis didn’t like the doctor and that our doctor had said there was nothing wrong with him. I was reaching the end of my rope. I didn’t see any way out of this. I felt that we would be going back and forth endlessly with- out getting further along. I asked if it would be possible for one of the nurses from his floor to come down and be with him the next time they tried to admit him. Maybe a familiar face would calm him down. The surgeon said yes, if the nurse agreed. I called the floor. The nurse said sure. I called my pediatrician and asked whether or not she felt a tranquilizer before leaving for the hospital might work. She felt it was a good idea. She said that she’d call the hospital pediatrician and discuss it with her. She did. The hospital pediatrician was against the tranquilizer. My doctor said that she’d send me a prescription before she left for her vacation. It never arrived. Her secretary had misaddressed the envelope. I took him to the clinic the day indicated. The female pediatrician wasn’t there. One of the other doctors said he’d look at Athelantis. I said, “No, the whole point of this was to get him familiar with one doctor. If the pediatrician isn’t here, we’ll wait.” By this time I was at the hospital with child, lunch, and tape recorder. I no longer want- ed to rely on memory. About a half hour later she finally arrived. Athelantis took one look at the white jacket and started yelling and screaming. She had to call another doctor in to help me hold him down while she examined him. She said that his ears were red. The other young doctor took a look and agreed. She gave me prescriptions. They weighed Athelantis first; I’d asked that they do that. I felt that I’d give them one last try. If we took all the medicine and they still refused to admit him I’d start trying for another hospital. The whole episode cost thirty-eight dollars. If it worked, it would be worth it. The young residents were all clustered outside the examining room as we left. One of them (the resident, as a matter of fact, who had prescribed the medicine not obtainable east of California) pointed and said: “That’s an Apert’s baby.” I said, “Yes.” He started telling the others about the elon- gated cranium and the neurological aspect of the syndrome. I told him that it had already been done. He said, “You’re so knowledgeable!” I said, “It’s easy. Apert’s is very rare. It only started showing up in the medical books in the late ‘50’s.” “It’s nice to see you’re so interested,” he responded. (Doesn’t it sound like run Spot run? This is Dick grown up?) We went outside to wait for our prescriptions and clinic card. The young resident came running after me. “I have pictures of the first Apert’s baby, if you’d like to see him.” I said, “Sure, “ and fol- lowed him down the hall. He pulled out a glass slide and held it up to the light. “Doesn’t that look like your son?” he asked. “No,“ I said, “the head configurations are different.” He pulled out anoth- er slide. “Doesn’t that look familiar?” “No,” I said, “Athelantis’s hands are different. He has paddles.” And I held them up for inspection. We both smiled cordially at each other and I left.
Twelve days later we returned to the hospital
for another checkup with the lady doctor with whom we were supposed to be establishing rap- port. We waited over an hour before we were called. The big addition was Muzak. One of the doctors came out, listened and said to an aide, “I would have preferred air conditioning.” The nurse finally called us. I had to undress him and put him on the scale. While we had been waiting Athelantis had had a bad diarrhea attack. “Mother,” the nurse said, “Please don’t empty that in these hampers. Wait until you get back out- side.” The sodden lump lay through the tempera- ture-taking, the inevitable waiting, and the redressing. His temperature had leaped two points. We went outside, dumped the poop and waited an hour and a half before the doctor approached. She had discarded her white coat. Athelantis did- n’t like her any better. She looked in his ear and was pleased. One was a little red. The other looked fine. I asked about his temperature. She said that they had decided to disregard his temper- ature. It was meaningless in his case. She wrote in his chart that he was ready for admission and that his temperature should be ignored unless he had other symptoms. She and the nurse then had a long talk, trying to decide what to do with his chart. We waited anoth- er forty-five minutes while they decided that we did- n’t have to go to the admitting area at all since they already had his admission papers filled in.