247
our daughter make this year, and what teacher or authentic partner will step forwardone like that
teachers will be the ones who help her make that elementary school special educator and reading
progress? They have to wait for the IEP conference teacher.
for an answer; while waiting, they hope that
another
Introduction
As you learned in chapter 9, professionals and families can be partners when
nondiscrimi- natorily evaluating a student. You also learned that the students evaluation
is the basis on which professionals and families begin to develop an appropriate
education plan, one that supports the student to achieve, in the long term, the four IDEA
outcomes you first learned about in chapter 6: (1) equal opportunity, (2) independent
living, (3) economic self-sufficiency, and (4) full participation.
In this chapter, we connect chapters 6 and 9 and describe not only the IDEA require-
ments but also the recommended practices for developing the students individualized
education program or plan.
Part B, Ages 3 to 21 YearsThe IEP. Every student receiving special education services
has a right to an individualized education programan IEP (20 U.S.C. Sec. 1414(d)). The IEP
itself is a road map that leads professionals, families, and students toward the four outcomes
we just described; bear in mind that it does so by using the six principles of partnership we
described in chapter 7. As a document, the IEP describes what families and professionals have
agreed they will do to make sure the student has an appropriate education and thus attain the
four outcomes. But the IEP is more than just a document of agreement, as we will now
explain.
Indeed, when a student attains the age of majority (usually 18), the parents rights
to develop an IEP with educators shift to the student; the parents still may be involved
because they have rights of their own under IDEA.
Families as Partners in Developing Individualized Plans 249
Legal Liability and Good Faith. Although IDEA exempts schools, teachers, or other
professionals from legal liability, if a student does not achieve the annual goals set forth
in the IEP, these professionals must make good-faith efforts to help students master the
IEP goals and objectives. What constitutes a good-faith effort in developing and
implementing an IEP? Good faith occurs when members of the team follow precisely
IDEAs provisions governing the process for developing an IEP. When the IEP is aligned
with the IDEA, then the document is educating the student. And the components of the
students education. And a fair processcomplying with IDEAtends to produce fair
and acceptable results, especially when the education is evidence-based.
Documenting Parent Participation. IDEA acknowledges that parents are valued, integral
participants in developing their childs IEP. It does so by requiring educators to document
their efforts to secure parent participation. Educators may comply with the documentation
rule by keeping
copies of letters or e-mails to or from the parents,
detailed records of telephone calls or face-to-face meetings, and
records of visits to parents homes or workplaces and the results of those visits.
Required Components. Educators must build the IEP on the basis of the
nondiscrimina- tory evaluation of the student (20 U.S.C. Sec. 1414(d)). The IEP therefore
must contain statements of
the students strengths and the parents concerns,
the students performance on prereferral interventions,
the results of the students performance on general state or district-wide
assessments, and
statements concerning each factor described in Figure 10.1.
Required Participants. The following individuals are the required members of each
stu- dents IEP team:
The students parents
Not less than one general education teacher with expertise related to the students
educational performance
Not less than one special education teacher
A representative of the local educational agency
An individual who can interpret the instructional implications of the student evalua-
tion results
At the discretion of the parent or agency, other individuals with expertise regarding
the students educational needs, including related service personnel as appropriate
The student, when appropriate (see our previous discussion concerning when
appropriate)
The IEP is a written statement for each student, ages 3 Be educated and participate with other students
to 21. Whenever it is developed or revised, it must with disabilities and with students who do not have
contain statements about the following: disabilities in the general education curriculum and
extracurricular and other nonacademic activities.
The students present levels of academic achieve-
ment and functional performance, including: The extent, if any, to which the student will not
participate with students without disabilities in the
How the disability affects his or her involvement and
regular class and in the general education curriculum
progress in the general education curriculum.
and extracurricular and other nonacademic activities.
How the disability of a preschooler (ages 3 through 5)
Any individual appropriate accommodations
affects his or her participation in appropriate activities.
A statement of benchmarks or short-term necessary to measure the students academic
achievement and functional performance on state
objectives if the student is to take alternate
and local assessments of student achievement. If
assessments.
the IEP team determines that the student will take an
Measurable annual goals, including academic and
functional goals, designed to: alternate assessment on a particular state- or
districtwide assessment, the IEP must document why
Meet the students needs that result from the
the student cannot participate in the regular assessment
disability, in order to enable the student to be
and what alternate assessment is appropriate.
involved in and make progress in the general
Projected date for beginning services and program
education curriculum.
modifications, and the anticipated frequency, location,
Meet each of the students other disability-related
educational needs. and duration of each service and modification.
Transition plans, including:
Measurement of annual goals:
Beginning not later than the first IEP to be in effect
How the school will measure the students progress
toward annual goals. after the student is 16, and annually thereafter
Appropriate measurable postsecondary goals
How often the school will report the students
progress. Based on age-appropriate transition
assessments.
Special education, related services, and
Related to training, education, employment, and,
supplementary aids and services, based on peer-
where appropriate, independent living skills.
reviewed research to the extent practicable, that will
The transition services, including courses of study,
be provided to the student or on the students behalf,
needed to assist the student to reach those goals.
and the program modifications or supports for school
Beginning at least one year before the student
personnel that will be provided so that the student can:
reaches the age of majority under state law (usually
Advance appropriately toward attaining the annual
goals. at age 18), a statement that the student has been
informed of those rights under IDEA that will
Be involved in and make progress in the general
transfer to the student from the parents when the
education curriculum, and participate in extra-
student becomes of age.
curricular and other nonacademic activities.
To achieve these outcomes, Part C uses a similar approach as Part B, namely, an indi-
vidualized approach. Instead of an IEP, however, Part C provides for an individualized
family service plan (IFSP). The IFSP describes the process that families and professionals
will follow as they seek to achieve those outcomes.
Note the outcome differences between the IEP and IFSP. Unlike the IEP, the IFSP
includes family outcomes. The IFSP enhances the childs development while simultaneously
enhancing the familys capacity to meet the childs unique needs. Figure 10.2 lists the
required compo- nents of an IFSP.
Timing. The initial meeting to develop the IFSP must take place within 45 days after the
child or family is referred for early intervention services. Thereafter, periodic review is
available in two ways: (1) The IFSP team must review the IFSP every six months to
determine whether the
Transition Plans
Transitions involve passages from one place to another or from one time to another; they
are elements of each familys life cycle stages that you learned about in chapter 4.
Students with disabilities and their families experience several transition stages.
Partnerships and Collaboration: The Core of the IFSP and IEP. You may notice
many similarities and differences between the IFSP and the IEP. There is, however, a pri-
mary common theme: both documents and the processes they launch involve partnerships
between families, students, and professionals. That is the point of the advisory from the
federal Department of Education, issued in 1999 and still valid:
Throughout the process of developing and implementing IFSPs for an eligible child and
the childs family, it is important for agencies to recognize the variety of roles that family
members play in enhancing the childs development. It also is important that the degree
to which the needs of the family are addressed in the IFSP process is determined in a col-
laborative manner, with the full agreement and participation of the parents of the child.
Parents retain the ultimate decision in determining whether they, their child, or other
family members will accept or decline services under this part.
Note the language in this policy interpretation: collaborative manner with the full
agreement and participation of the parents. As you learned in chapter 6, the Supreme
Court regards the collaborative process between parents and professionals to be the
core of the law (Schaffer v. Weast, 2004). There is evidence, however, that the ideal and
the reality in todays schools do not always match.
Research on Partnerships. Since the 1980s, the research literature has been fairly
con- sistent in acknowledging that IEP/IFSP conferences often fail to honor partnership
practices.
Families as Partners in Developing Individualized Plans 253
In a summary of the IEP literature from IDEAs initial enactment in 1975 through 1990,
Smith (1990) concluded, After more than a decade of implementation, research, and
subsequent recommendations for improvement, substantive IEP change has not
ensued (p. 11).
Current Research. Although two decades have passed since Smiths analysis, its conclu-
sions are still valid.
IEP conferences still do not typically allow enough time to plan appropriate edu-
cational programs; moreover, parents tend to have limited roles in these meetings
(Harry, Allen, & McLaughlin, 1995; Lo, 2008; Soodak & Erwin, 2000; Underwood,
2010; Vaughn, Bos, Harrell, & Lasky, 1988).
Conferences usually end at a previously set time regardless of whether the partici-
pants have fully completed an IEP.
In violation of the spirit and often the exact provisions of IDEA, the main activity
within conferences too frequently consists of obtaining parents signatures on
IEP documents and following a preset agenda, not encouraging parents genuine
participation (Childre & Chambers, 2005; Harry et al., 1995).
Listen to how this parent describes her experience:
We had the booklet [describing parental rights] . . . They trampled on all of our rights . . .
. We were presented with the draft IEP for a signature, with 15 minutes worth of
discussion before we needed to be ushered out for the next ones to come in. (Podvey,
Hinojosa, & Koenig, 2013, p. 215)
Another parent echoes a similar frustration that the team had completed all the planning
and decision making before the parent ever set foot in the meeting.
We walk into a meeting with a stack of papers already completedand they read it and
we are asked to sign it. So, all of the decisions have been made. (Fish, 2006, p. 63)
When the IEP document is used as an agenda during the meeting, it inadvertently
determines decisions and limits collaboration and participation of parents and other
team members (Ruppar & Gaffney, 2011).
When the IEP process does not foster parents participation, the resulting IEP is not
individualized or likely to meet the unique needs of the student (Etscheidt, 2003;
Pretti-Frontczak & Bricker, 2000; Shogren & Plotner, 2012).
In a nutshell, two conclusions follow from the research: first, families do not regard
them- selves as equal partners when they are denied adequate time and opportunity to
participate meaningfully; and, second, professionals still regard parents as passive
participants, not as trusted partners in important educational planning and decision
making. You may recall we identified these issues of parent passivity in chapter 5.
One high school student said, after learning how to lead his own IEP meeting, Ive been
to my IEP meeting, but didnt really understand all that stuff. I know more now (Arndt,
Konrad, & Test, 2006, p. 198). One special educator reflected on her experience with
Henry, a 16-year-old African American student and his student-directed IEP:
By teaching students the skills necessary to conduct their own IEPs, they learn a set of
skills that can be applied to a variety of situations. . . . By developing goals and learning
how to manage goals, students will learn skills necessary to become successful adults.
(Myers & Eisenman, 2005, p. 58)
In addition to adolescents, there is also growing attention directed to young students par-
ticipation in the transition process from early childhood education to elementary school,
and from elementary school to middle school:
Over time, there are considerable positive outcomes associated with elementary-aged
students participation in the IEP process and their academic progress (Barnard-Brak
& Lechtenberger, 2010).
Practical strategies are available for fostering the transition from elementary to mid-
dle school for children with significant disabilities and their families (Carter,
Clark, Cushing, & Kennedy, 2005).
One model, True Directions, uses specific forms that facilitate participation and iden-
tifies critical information across all team members (Chambers & Childre, 2006).
BEGINNINGS is a tool used in neonatal intensive care nurseries and adapts the
components of the IFSP to the unique needs of the newborn and his or her family
(Browne, Langlois, Ross, & Smith-Sharp, 2001).
Early Intervention and IFSPs. Although many families have benefited from a
positive IFSP process, most families still need more from the IFSP:
Although there is an increase in the number of infants, toddlers, and their families
who need comprehensive early intervention services, funding remains inadequate to
meet those needs (Bruder, 2010).
For some, there is still a disconnect between family-identified priorities and the out-
comes and supports written on the IFSP (Ridgley & Hallam, 2006).
Challenges related to IEP implementation have been identified for the IFSP; these
include issues of time, scheduling, and collaboration with other professionals
(Zhang, Fowler, & Bennett, 2004).
A lack of planning for the transition from the family-centered approach to school-based
services, which tend to focus more narrowly on child- and school-centered practices.
Although experience and research indicate that the IFSP process comes closer than
the IEP to fostering partnerships, the IFSP process still generally fails to fulfill the seven
elements of partnerships. Family outcomes as well as quality of life are enhanced when
families identify their priorities and individualized services to meet those priorities
(Epley, Summers, & Turnbull, 2011). The principles of respect, trust, and communication
are critical to establishing partnerships with families because professionals can
intentionally support families in knowing what is in their best interest.
Cultural Influences. You know (from reading chapter 6 and this chapter) that compli-
ance with the IEP process is essentialfair process yields fair results (appropriate educa-
tion) for the student. You also know, from chapter 1, that many students receiving special
education services are members of a cultural, ethnic, or linguistic minority group. Does
that fact make a difference? Yes, it does, indeed.
256 CHAPTEr TEN
It is now well established that how one defines successful adulthood, the end goal
of transition planning, is determined by culture-specific values and expectations such as
work, community integration, role expectations, and social functioning (Geenen,
Powers, & Lopez-Vasquez, 2001, p. 266). As you learned in chapter 4, each family has its
own visions about the future that their personal cultures and microcultures shape. Culture
is the lens through which each of us sees and understands the world (Turnbull,
Turnbull, & Wehmeyer, 2010).
The fact remains, however, that professionals do not consistently or widely use
practices to support families who are members of cultural, ethnic, or linguistic minority
populations.
Three decades of literature on the involvement of CLD [culturally and linguistically
diverse] families in the special education process underscores the continuing challenging
of collaboration across perceived barriers of race, culture, language and social class . . .
yet attainment of these goals [a vision of collaborative partnership] remains elusive for
many CLD families. (Harry, 2008, p. 385)
Families from diverse backgrounds often experience the IEP meeting as upsetting,
confusing, or isolatingthe exact opposite of a partnership grounded in trust! During
IEP or transition planning, there are often missed opportunities for maintaining partner-
ships with families including a lack of or limited attention to cultural values (central
role of family relationships), language use (e.g., meaning, grammar), and family-teacher
perceptions of power (teachers inclination to act as an expert or make decisions for
parents) (Cheatham & Jimenez-Silva, 2012). The differences between families of cultur-
ally and linguistically diverse backgrounds are significant, and yet many families have
faced similar challenges in the IEP meeting such as language alienation, perceptions of
limited time, limited or no access to information, and lack of respect or unresponsiveness
to families needs (Kim, Lee, & Morningstar, 2007; Jung, 2011; Lo, 2012; Salas, 2004;
Zhang & Bennett, 2003).
A Korean parent shares her story about her worst IEP experience:
My worst IEP meeting lasted almost 5 hours. It was my worst IEP meeting for so many
reasons, but the main underlying reason was the teacher was not ready to partner with
parents in order to develop the most appropriate IEP that met my sons educational needs.
I was told I was the first parent to question any of the goals and objectives that were
recom- mended by the teacher. It was very difficult to ask anything because with any and
every question, the teacher took parent questions as a critique of her teaching ability and
parent dissatisfaction, when in actuality, my questions were for my own understanding of
how my son is learning. (Beach Center on Disability, n.d.)
There is, however, a better way, as another Korean parent explains: What made
it my best IEP meeting was that my sons new teacher was very open to discussion and
willing to hear out my concerns for my sons educational progress and needs (Beach
Center, n.d.).
Research, Culture, and Partnerships. In summary, the dominant theme of the IEP
research over the past two decades is that schools try to comply with IDEA and with state
and local regulations and procedures, but seldom strive to foster trusting partnerships
(Childre & Chambers, 2005; Coots, 2007; Smith, 1990; Smith & Brownell, 1995; Soodak
& Erwin, 2000). Indeed, one of the most common reasons for disputes between families
and schools has been disagreement concerning how professionals develop and implement
students IEPs (U.S. Department of Education, 2003). Yet, partnerships make a difference
when they do occur. In the next section, we offer practical suggestions for developing an
IEP/IFSP in a collaborative way, creating partnerships and fostering trust.
Families as Partners in Developing Individualized Plans 257
Share Visions and Great Expectations Identify the supplementary aids/supports and
related
If a MAPs process has been completed, share the services the student will need to
access education results with everyone. and achieve goals and objectives.
If a MAPs process has not been completed, consider Document and record the
timeline for providing supplementary
incorporating it into the conference.
aids/services and related services.
Encourage the student and family members to share Discuss benefits and drawbacks of
types, schedules, and their visions and great expectations for the future, as modes
of providing related services the student needs. well as the students strengths, gifts, and
interests. Specify dates for initiating supplementary
aids/services
Identify the students and familys visions and great and related services,
frequency, and anticipated expectations as well as those of the professionals duration.
examined carefully before final decisions are made. Consider the five special factors
identified in IDEA (for
example, positive behavioral support, limited
English
Translate Priorities into Written proficiency, use of Braille, language and
communication
Goals or Outcomes modes for people who are deaf or
hard of hearing, and assistive technology),
Discuss and prioritize the students needs in plans as needed for the
and make light of the students and familys visions, great
student.
Identify any other modifications or special
expectations,
factors that strengths, interests, and
apply to the student, and develop appropriate
preferences.
plans to
address those.
Generate appropriate goals for all academic and
functional areas that require specially designed
Conclude the Conference
instruction, consistent with stated great expectations,
priorities, and MAPs process. Assign follow-up responsibility for any task
260 CHAPTEr TEN
Lets review briefly what you learned about families in chapters 1 through 4 and how
this can be helpful in the IEP/IFSP process.
The four components of the family systemcharacteristics, interactions, functions,
and life cycleinfluence families preferences for participation.
Cultural identityplays an important role in influencing family preferences for
the planning process (Geenen et al., 2001; Harry, 2008; Kalyanpur & Harry,
2012; Lynch & Hanson, 2011; Zhang & Bennett, 2003).
Apply the partnership practice of respecting and honoring diversity when working
with families to make IEP/IFSP plans. Each family is unique and possesses rich and
distinct sto- ries, values, beliefs, and experiences that shape who they are. There are many
strategies to assist professionals in promoting a personalized, collaborative, and high-
quality experience with families during the IEP planning process (deFur, 2012; Diliberto
& Brewer, 2012; Edwards & Da Fonte, 2012; Lo, 2012; Weishaar, 2010).
The service coordinator should also help other professionals monitor how they imple-
ment the students IEP and coordinate with other team members. Some families find
that service coordinators block access to other professionals, which is not good
practice.
The coordinator should ensure consistent access and communication between the
family and other team members.
Invite and Prepare Participants, Including the Student, When Appropriate. Give
fami- lies information early so they can be prepared. Provide them with access to evaluation
reports, including a report of prereferral interventions, a summary of the students strengths
and needs in each subject area, information on their and their childs legal rights,
descriptions of various placement options and related services, student priorities and draft
goals from the profession- als perspective, options for extracurricular activities, and
information on transition services. Gather this information early so there is time to make
needed arrangements or changes.
Consistent with IDEA and the practices we have described, you should learn a
familys preferences for
who should attend the conference,
convenient times and places for scheduling a meeting,
whether assistance with transportation or child care would be helpful, and
the kinds of information the family wants in advance and how they would like to
receive it.
Consult with the family in a face-to-face conference or by telephone or e-mail. Do
not rely on others to tell you what the family wants; others may contribute, but families
know best what they want.
Learn which family members want to participatefathers, grandparents, brothers
and sisters, cousins, live-in significant others, godparents, or other people who have
family- like relationships. Remember that friends of the student or family, people who
can foster community membership (such as coaches, scout leaders, and religious
education teach- ers), and people who can mentor the student to explore hobbies or career
choices (such as musicians, business leaders, and mechanics) could participate and
enhance the quality of education (Diliberto & Brewer, 2012). Urge families to identify
not just those people they usually include in conferences, but also others with unique
resources and expertise.
When determining whether a student should participate in the IEP meeting, con-
sider the partnership principle of equality. Equality involves sharing power and fostering
empowerment, especially a students choice of whether to participate in the conference.
In chapter 4, we discussed self-determination and adolescents. As you learned previously,
IDEA provides that a student has a right to participate in IEP meetings whenever
appropriate, transition planning begins no later than age 16, and parents rights transfer
to students when they are 18 (age of majority).
You also learned in this chapter and chapters 2 and 9 that a students or familys
cultural values may be inconsistent with special education practices, including student
involvement in conferences. A familys cultural identity may differ in the value they
place on child and adolescent autonomy. For example, some educators err in asking a
student but not also a parent, contrary to the familys culture; a Hispanic mother agreed
with this view when she added her comments:
I think that basically the cultural differences are not being considered in these IEP meet-
ings. And here in the United States it is like you always ask the child first, and for us its
very important for us as a parent to participate . . . I know that its not on their mind, but
it really hurts our feelings. . . . why we were one way at home (in asserting parental
author- ity) and the teachers treated them in a different way (offering them more choices).
(Beach Center, n.d.)
Connect with the Parents and Student, and Then Start. It is important to attend
to the partnership principles in all of your work, but especially to the principle of com-
munication. When you practice effective communication (chapter 8), you can direct a
team toward the shared, and IDEA-required, goal of creating a program for the students
appropriate education in the least restrictive environment.
It is both polite and important to introduce everyone and describe the conference
format and time line. Be sure to establish that each professional values the familys
contri- butions and wants to form a partnership. Doing so will emphasize equality, an
important partnership principle. Key practices of equality are avoiding hierarchies,
sharing power, and fostering collaboration. To equalize power, start by creating a warm,
relaxed atmo- sphere defined by the positive communication skills we discussed in
chapter 8. Betsy San- telli, the parent of two daughters enrolled in a gifted program,
described the importance of informal sharing:
Families as Partners in Developing Individualized Plans 263
Although anxious at first about what our roles might be, Jim and I were delighted to find
a real willingness and genuine interest on the part of the staffing team to learn from us
about Maren and Tamis unique and special qualities as well as those of our family.
Before any assessment results were shared or questions were asked, time was allowed for
informal sharing among all of us as peoplenot professionals, not parentsjust people.
Those few minutes helped set the stage for the comfortable sharing of information that
followed and continues to this day. By starting with a climate of trust, you will make
great progress toward establishing partnership with families. If you genuinely connect
with families, you all but guarantee a successful conference. (Beach Center, n.d.)
Share Your Thoughts and Take into Account the Parents and Students
Thoughts About Resources, Priorities, and Concerns. The referral and
evaluation process can be a time for families, teachers, related service providers, friends,
and other interested people (such as physicians) to identify their resources, priorities, and
concerns. Identifying and agreeing to share resources, priorities, and concerns should
start during the evaluation process and continue during the conference. The goal is to link
evaluation information with outcomes for students and families.
How can you ensure that parents do not feel brushed aside or rushed during conferences?
After reviewing the evaluation and performance information, offer family members
adequate time to express their ideas fully. Be sure to offer them and the other partici-
pants a genuine opportunity to make their respective unique contributions.
Identify the general priorities for the student before identifying specific goals and
objectives. By doing so, all participants will help ensure that the students goals
and objectives reflect the teams individual and collective priorities.
Discuss the participants general concerns or potential barriers to the goals and
objectivesfor example, are there resources available within the team or from the
family, school, or community to satisfy agreed-upon priorities? A general educator
who is concerned about individualizing the curriculum for a student with a learning
disability may need support from a consulting special education teacher. Similarly,
teachers anxious about attending to the needs of students who are supported by
medical equipment may receive instruction and support from parents, the school
nurse, and other specialists.
By discussing unique and common resources and concerns, team members can support
each other. Partnership means that no one on the team must address concerns in isolation.
264 CHAPTEr TEN
The Process of Making Action Plans and Vision Statements. The making action
plans (MAPs) process is one of the most effective ways to develop vision statements.
MAPs is a practical, positive way to provide open-ended, intimate, and personalized
views of the student and family. Over the past 20 years, the MAPs process has remained
basically un- changed (Wells & Sheehey, 2012). As you will see in the My Voice box, the
process por- trays the student within a positive and rich context of his or her life at home
and school and within the community.
MAPs gatherings are usually held in comfortable surroundingsoften the students
home or some other community settingto encourage connections and
relationships.
Those attending MAPs meetings should include the student, parents, other family
members, student and family friends, educators, and others interested in making the
school and community as close to the students preferences as possible.
In a MAPs gathering, experienced facilitators guide discussion and encourage brain-
storming to generate as many creative ideas as possible. As ideas are shared, facilitators
record them on a large poster board. Ideally, the MAPs process should be completed
before holding an IEP/IFSP conference. If the family has already completed a MAPs
process, you may want to devote the initial portion of the conference to reviewing the
MAPs plan. If the family has not engaged in a MAPs process, you might offer to
incorporate it into the initial conference, recognizing that you cannot complete that
activity and develop a full IEP/IFSP at the same time. If the family and professionals
mutually decide to forgo the complete MAPs process, they still need to make time for
sharing visions, great expectations, and strengths. One student described the benefits of
sharing through a MAPs process:
I have never in my life heard a group of adults sit around and say anything positive about
me. That list is exactly right. (Kroeger, Leibold, & Ryan, 1999, p. 6)
The MAPs process can strengthen the partnership among professionals and family
members. When everyone works as partners, dreams can indeed come true. One parent,
Sara, recalled that church was a focal point in her familys life. It was important for Kim-
berley, her daughter with cerebral palsy and visual impairments, to go to the toddler class
in the church program with her twin sister, Abigail.
By identifying this church activity as being of prime importance to our familys happiness
and well-being . . . our family was able to shape the attitudes and obtain the tools
necessary to make this dream a reality. The service providers recognized our concern,
saw it as part of our long-term vision for our child and family, and helped us work out
ways to achieve our goals. (Squires, 2000, p. 11)
Families as Partners in Developing Individualized Plans 265
MY VOICE
A Teacher Speaks Out and Recommends MAPs
As a special education teacher, I have attended many we all achieve better outcomesbetter relationships
team meetings. Unfortunately, many of these meetings and outcomes for students. Sometimes it can be time
have not focused on identifying a vision that is shaped con- suming, but I think it is more important to invest
by the student and familys values. I think of one of my the time up front!
first IEP meetings as a student teacher. The meeting Questions to guide the MAPs process:
started with the special education teacher handing the
parents a copy of a tentative IEP and asking, before What is the students history or story?
the parents had even had a chance to review the IEP, Who is the student?
Do you have any concerns about enhancing your What are the students strengths, interests, gifts,
childs education? It seemed as though this was the and talents?
parents only chance to present their visionand they What are the students priorities?
seemed noticeably flustered and uncertain of how to What are the dreams for this student?
respond. And, as the meeting progressed, it seemed that What are the nightmares for this student?
even if the parents could articulate their vision on such What is the plan of action and what needs to
short notice, they would not have much influence. It happen now to get this plan started?
was communicated to the parents that they were
expected to just sign off on the IEP the way it was. Any Take Action!
concerns that were brought up were either answered
with, Well hes been doing really well with that, or Use the MAPs process to build trust with families,
Yes, thats in there. to create a shared vision for the team, and to
When I took a class on family-professional partner- guide the development of the IEP and student
ships, I learned about the making action plans (MAPs) goals.
process. I was so excited about how MAPs could be Disregard how busy you are; instead, think about
used to develop a vision to guide the IEP and ensure how investing the time to build trusting partner-
that the team came together to articulate their vision ships up front can lead to better outcomes for
and that this vision could be used to guide the students everyone.
IEP. I now use the MAPs process with all of my Consider how you would feel if you went into an
studentsI try to schedule a time with each family to IEP meeting and it was not clear that your vision
go through this process. It helps me learn more about was respected or would be used to guide your
my students and their families. And, it also helps build childs education.
trusting part- nerships with families because they know Remember that communication and collaboration
that I want to learn about their hopes and dreams. And, are essential to building a teamMAPs is a way
it seems like to facilitate this communication and collaboration.
As the teams visions and great expectations become more concrete, the next step is
to identify goals or outcomes that can transform the vision into a reality.
relates to these big outcomes. That is so because many professionals now use
computer- ized IEPs and because professionals and parents alike tend to focus on the
smaller goals and objectives. Nonetheless, you and your parent partners need to keep
them in mind and use smaller goals and objectives, decide about services, and
determine placements in light of these four outcomes.
The immediate question is this: how can you ensure that parents feel like partners
in planning and making decisions about their childs education, especially about these
four outcomes and the smaller, subsumed ones? The following process demonstrates how
families and professionals can work together to discuss the childs goals, placement, and
services (Giangreco, 2001):
Determine the students educational program by identifying student learning outcomes
as well as supports needed to achieve these outcomes or goals.
Discuss proposed educational placement options by examining how the placement
conforms to the least restrictive environment requirements.
Determine services needed to support the proposed placement including nonspe-
cialized support (i.e., paraprofessional) and specialized support (i.e., occupational
therapy, school psychology services).
Consider interactions between placement and services and discuss the impact and
any implications.
Finalize placement and services by comparing advantages and disadvantages of the
different options.
Through this process, families and professionals work as partners, identifying and
examining options and making final decisions. They can follow the process when
translating student priorities into written goals and objectives that constitute the
students individualized appropriate education and that can be justified as leading to
the four overarching outcomes,
identifying what related services the student needs,
specifying the students least restrictive placement,
specifying the supplementary aids and services that the student and his or her teachers
will receive so he or she can participate in the general curriculum,
describing any necessary modifications to state and local assessments, and
addressing IDEAs five special considerations.
Translate Priorities into Written goals or Outcomes. IDEA requires the IEP to
describe the students present levels of academic achievement and functional
performance (20 U.S.C. Sec. 1414 (d)(1)(A)(i)(I)). Only if the student takes alternate
assessments that are aligned to alternate achievement standards must the students IEP
describe the bench- marks or short-term objectives that the IEP team prescribes. The IEPs
of students who do not take the alternate assessments are not required to contain
benchmarks or short-term objectives. IDEA does not prohibit the IEPs of these students
from containing them; it simply does not require it to contain them.
In addition, the IEP of every student, including those in preschool and those who
take the alternate assessment, must describe the students measurable annual goals,
including academic and functional goals (and others as the IEP team determines). The
IEP of every student must also describe how the students progress toward meeting these
annual goals will be measured and when periodic reports on the students progress will be
provided (20 U.S.C. Sec. 1414 (d)(1)(A)).
The measurable annual goals (and benchmarks and short-term objectives for students
who will be using alternate assessments) shape
Families as Partners in Developing Individualized Plans 267
contrasted to the independent living and career-education programs, provided the spark
for Tony to turn off the alarm clock and get out of bed every morning. (Beach Center,
n.d.)
If the goals are specific and personally relevant, the team members will be more account-
able to each other for student progress.
Having discussed IEP goals for students, lets now turn our attention to IFSP and
fam- ily (not infant-toddler) outcomes (Part C). The IFSP must describe the familys
resources, priorities, and concerns relating to enhancing the infant-toddlers development
(20 U.S.C. Sec. 1436(d)(2)). The purpose of identifying family outcomes is to guide
professionals as they provide culturally (and personally) relevant supports and services to
families and their infants and toddlers. Some family outcomes may be addressed during
the familys typical routines such as enhancing the quality of family meals by teaching
the young child how to eat independently (Erwin et al., 2009; Salazar, 2012). This
strengthens the family-professional partnership by targeting goals that can be addressed
across home and school environments as well as considering families individualized
priorities and home routines.
Some family-identified outcomes cannot be addressed during the familys typical
rou- tines because they may require gathering information or obtaining additional
resources and services (Ridgley & OKelley, 2008). For example, one familys priority
may be to explore child care options for their toddler and another familys priority may
be to ensure a smooth transition during the grandparents impending divorce.
Developing an IFSP is as important as specifying its outcomes. To partner with fami-
lies to identify outcomes related to their quality of life, early intervention program
planners almost invariably need to work with other professionals and agencies. The
outcomes that educators and related service providers are prepared to address may differ
from the out- comes that are valued by families and can be best addressed by physicians
and other health care providers, social workers, audiologists, psychologists, and
occupational or physical therapists. Early educators should inform and refer families to
other agencies or service providers who could help them meet their goals. By referring
families, you will demon- strate the partnership practice of professional competence.
You should especially keep in mind the partnership principles of communication and
respect. They will be particularly useful in addressing any discrepancies between family
and professional ideas about goals, placement, and outcomes. By using communication
skills from chapter 8 to resolve disagreements, you help families and professionals under-
stand discrepancies and perhaps find common ground.
Families report that schools often do not support meaningful inclusion (Duhaney &
Salend, 2000; Erwin, Soodak, Winton, & Turnbull, 2001). Consider the wall one parent
faced when discussing her childs placement with professionals:
They claimed that her disability was so severe that she could not make it anywhere
else. . . . And then they have an adjoining door to another classroom where typical
children are. . . . They said, look, there is a door that is open between children with
disabilities and children that are typical. And my response was you see the open door.
But I see the wall between my child and the typical children. (Soodak & Erwin, 2000, p.
38)
Families and professionals value specific early childhood program characteristics that
clearly reflect inclusive practices for all children (Hurley & Horn, 2010). One parent
provided her perspective: I think that theyre better off if theyre with more typical
peers (p. 345).
Families do not always have access to inclusive educational environments (Lalvani,
2012). Only two out of ten parents of children with significant disabilities across three
states were offered inclusive placements for their children, and one of those parents was
responsible for paying the tuition (the school district offered to pay tuition if the parent
chose a self-contained placement) (Soodak & Erwin, 2000). Sadly, district or school per-
sonnel often send parents the message that their children are unwanted.
However, you have a legal and a professional duty to:
Welcome students and their families into general education settings. They have a
right to be there unless they cannot benefit from academic, extracurricular, or other
general curriculum activities even with related services and supplementary aids and
services.
Show parents as well as their children that they are valued members of the school
community. Families hope to hear that their children are accepted. They are
alienated by professionals who consider their children burdens on teachers and
classmates. It is not hard for families to perceive teachers negative attitudes even if
teachers do not give voice to them.
Acknowledge your own and others professional competence as you are discussing a
students educational placement. Use the partnership practices of continuing to
learn, setting great expectations, and providing a high-quality education. Together
with families, the team can share and then make informed decisions about
placement.
During a conference you may be called upon to take into account another partnership
principle, advocacy. Think about advocating for children with disabilities using
diplomacy as a way of establishing win-win outcomes (Whitby, Marx, McIntire, &
Wienke, 2013). Also, consider the real-life scenario in the Together We Can box.
IDEA requires a students IEP to list supplementary aids and services, and the profes-
sionals responsible for providing them, that the school will provide to educators so the
student will be able to participate in the general education curriculum (academic, extra-
curricular, and other school activities) to the maximum extent appropriate for the student.
This requirement reflects professionals and families concerns about securing program
modifications and ensuring teacher competency for childrens success in the least
restrictive setting (Erwin et al., 2001; Fisher et al., 1998). Figure 10.4 defines and
provides examples of supplementary aids and services.
Consider, for example, a high school freshman who has difficulty with English and
math but not with science or social studies. When he is in English and has difficulty read-
ing, the student can ask permission to leave class and go to the resource room to read,
often with one-on-one support from his English teacher. The student knows what
accommoda- tions he needs and asks for them; they are clearly documented in his IEP.
The result? The
270 CHAPTEr TEN
Assessment and task Modifications to time or task requirements Extended time, scribe, note taker, oral
modifications (but not content or material) to assist in presentation
participation in assessment or educational
task
Teacher, Support from another person to participate Peer buddy, paraeducator, teacher
paraprofessional, or in instructional activities
peer support
students failing grades have become passing grades. He is successful in school and proud
of his accomplishments. Given the fast-paced development of new technologies, families
and educators will discover even more ways to provide individualized options for supple-
mentary aids and services.
Many students may also require additional services and supports. We identified those
related services in Figure 6.3 in chapter 6.
IDEA requires that the IEP team identify the related services a student needs to ben-
efit from special education services.
The IEP or IFSP must specify how often and in what way the related services will be
provided.
Team members may choose among a variety of service delivery models. These might
include co-teaching, consulting with general education teachers, providing therapy
within general education classrooms, and working with students in one-to-one
arrangements or small groups.
If parents choose related services not included in the IEP/IFSP, they must pay for
them and may use any insurance or federal benefits to which they are entitled. For
example, if they qualify for Medicaid (health-related services for parents who meet
federal low-income standards, and whose children qualify for Medicaid because of
their disabilities), parents may seek reimbursement from the state Medicaid agency
if services are not provided for in their childs IEP.
TOGETHER WE CAN
gabe DeCicco Remains Included
At the Ben Samuels Childrens Center at Montclair literature; others were based on experience, such as
State University, a fully inclusive center serving find- ing Gabe a quiet space when noise was too
children with and without disabilities from 3 months to overwhelm- ing. Gabes parents were successful and
6 years of age, the DeCicco family had formed a strong their son entered a full-time inclusive kindergarten class
partnership with their son Gabes teacher, Erin Clark. with the appro- priate supports and services in the
Gabe, who was diagnosed with autism, had been a full- public school.
time member in Erins class over the past three years.
When it was time to transition to kindergarten, Gabes
Take Action!
parents wanted him to attend the same public school
where his older sister would be starting sixth grade. Advocate for the child and family. By agreeing
Given his highly posi- tive experiences at the to advocate with Gabes parents, Gabes
Childrens Center, both parents unquestionably wanted teachers demonstrated the partnership element
an inclusive kindergarten class- room with appropriate known as advocacy.
supports. But given the districts track record and Treat the family as equals. By providing Gabes
previous conversations, the DeCiccos werent so sure parents with knowledge of evidence-based strate-
that their district team would be in agree- ment. To gies, Gabes teachers demonstrated the partnership
secure the result they wanted was going to re- quire element known as equality.
some advocacy work by Gabes teachers on behalf of Respect the familys preferences. Gabes family
Gabes parents. had good reason to want another full-inclusion
Erin and the rest of the team worked closely with program for him, and Gabes educators properly
Gabes parents to build their confidence and honored them.
competence in being vocal advocates. Through Commit yourself to the child and family. Thats
coaching and conver- sations, the team worked closely what the teachers had been doing all along; it
with the DeCicco family to help them anticipate the would have been a violation of the commitment
districts likely objections and be ready to offer element of partnership for them to back down in
evidence-based strategies to meet those objections. the face of a school district objection to
Some of the strategies were from the research integration.
of all students to determine how well they have mastered the curriculum. The purpose of
including students with disabilities in these assessments is to hold schools accountable for
improving educational results for all students.
Accordingly, each students IEP must describe all individual appropriate accommoda-
tions that are necessary to measure the students academic achievement and functional per-
formance (20 U.S.C. Sec. 1414(d)(1)(A)(VI)). If the IEP team determines that the student
should take an alternate assessment, the IEP must state why the student cannot participate
in the regular assessment and why the alternate assessment that the team selects is
appropriate for the student.
Teachers of students with severe disabilities have suggested ways to carry out alter-
nate assessments (Towels-Reeves, Kleinhert, & Muhomba, 2009). These include obser-
vations, interviews or surveys, record reviews, and tests. For example, you can assess
students academic or functional literacy skills by interviewing or surveying people who
are regularly involved with them, using checklists of functional skills. You should relate
your assessment to meaningful community settings, to a students progress, measured
across time, in those settings, and then provide integration rather than testing discrete,
isolated skills. Parents report satisfaction with the use of alternative assessments for their
When you are a teacher you may be confronted with you also dont want to become adversarial; you need
difficult situations. You may find yourself in situations and like your job and want to be around next year to
with school or district personnel who may not share carry on your work. What do you do?
your value of creating a partnership with families. Torn
between the child and your employer, you may confront
Take Action!
an ethical challenge.
As you learned in chapter 6, IDEA provides that a Remind the districts personnel that their
student has rights to a special education, related primary obligation is to the child. Call attention
services, and supplementary aids and services, all to be to IDEA and the CEC Code of Ethics. Now you
delivered in the least restrictive environment. You also are demonstrating the partnership principle of
learned in chapter 6 that the Council for Exceptional commitment.
Children has a code of ethics. Those are powerful tools Advise the childs parents that you are taking
if you confront an ethical challenge. that stand. Now you are communicating with the
Assume you are working in a school in which your parents and advocating for the child and family.
3-year-old student had not received occupational ther- Offer to call the therapist who is on leave to learn
apy for a couple of months because a therapist could some strategies you can use while she is away from
not be found to replace one who has been on mater- her duties. Now you are enlarging your profes-
nity leave. The child had been making steady progress sional competence.
when occupational therapy was provided in your class- Acknowledge that the school district faces
room during cooking, art, and other daily activities. The various challenges. Now you are treating your
school administrators maintain that it is difficult and colleagues with respect without conceding that it
costly to find a substitute occupational therapist. They is agreeable for the child to be without a
become mulish. You want to stand up for the child but necessary related service.
children with severe disabilities, with satisfaction being the strongest among parents of
young children and when academic goals are being addressed (Roach, 2006).
During a transition planning or IEP/IFSP conference you may be called on to apply
many of the partnership practices. This is more likely to occur when service providers
and educators disagree about who pays for related services. The Change Agents Build
Capacity box illustrates the advocacy principle and related practices of preventing
problems, keeping your conscience primed, and pinpointing and documenting problems.
Remember, the stu- dents priorities are the primary consideration, not the availability or
cost of related services.