A Model in Practice
A Publication of BasicNeeds
Published by
BasicNeeds
158A, Parade, Leamington Spa
Warwickshire, UK CV32 4AE
UK Registered Charity Number: 1079599
ISBN: 978-0-9558880-0-7
Acknowledgements
About BasicNeeds
BasicNeeds is an international development organisation, which works to bring about lasting
change in the lives of people affected by mental illness and epilepsy. The organisation
has built an innovative approach that tackles peoples’ poverty, as well as their illness. By
ensuring that their basic needs are met and their basic rights are respected, BasicNeeds
aims to give hope to the thousands of people who struggle daily with the lack of treatment
and stigma surrounding their illness.
BasicNeeds works with people affected by many types of mental and neurological illnesses,
in remote rural countryside and urban slums, in Asia, Africa and South America. The work
is based on the philosophy of building inclusive communities, where people with mental
disorders – through development – realise their own rights.
Established in 1999 by Chris Underhill with funding from Andrews Charitable Trust and the Joel
Joffe Charitable Trust, BasicNeeds has pioneered a way of working, which places people with
mental disorders at the heart of all that it does.
Preface
The number of people living in extreme poverty, that is, living on less than a dollar a day, accounts
for about 20% of the world’s population. These people are some of the most vulnerable in the
world. Their ability to endure is remarkable yet they are all too aware of the fragility of their
existence and the devastating effects that factors such as mental illness and epilepsy can have
on their lives.
Mental disorder and poverty go hand in hand. If a person with a mental disorder and his/her
family are living in poverty, they are less able to seek and afford treatment or absorb the loss
of a wage. They are less likely to perform socially and economically productive roles. Already
marginalised, they are likely to experience further discrimination both in the job market and from
their own community. Furthermore this link works in both directions, with the effect of poverty
also considered to be a contributing factor to poor mental health. That poverty and mental illness
are associated is a given, and any initiatives that address both issues are welcomed.
BasicNeeds has established an innovative way of working with poor people with mental disorders
called the Model for Mental Health and Development. The model is implemented in poor, rural
and urban communities in 8 low- and middle-income countries. It involves measures ranging
from income-generation activities to community mental health services, from awareness-raising
to policy work. Through its model, BasicNeeds has proved that by working with people with
mental disorders and their families in a holistic and participative way, their mental health can be
improved and their levels of poverty reduced.
The Millennium Village Project of the Earth Institute at Columbia University in New York City exists
to demonstrate that the Millennium Development Goals (MDGs) could be realised by the target
date of 2015. As the advisor to the UN Secretary General for meeting the MDGs, and Director of
the Earth Institute, I am truly grateful to see the efforts of organisations such as BasicNeeds in
helping to translate these goals into reality. I am sure that this book, which provides a description
of the model for mental health and development, will be an important source of information and
inspiration for those who read it.
Jeffrey D. Sachs
Director
The Earth Institute at Columbia University
Foreword
I first conceived the idea of modelling an approach to very poor and disabled people when I
was the founder Director of Action on Disability and Development. At that time I was writing
a thesis for the School for Policy Studies, Bristol, UK in which I attempted to pin down the
defining moment when power moved from a development organisation to groups of disabled
people. Animation seemed to be a very important part of the mix in bringing confidence to
very marginalised people and I realised that I needed to draw from a much larger pantheon of
skills and activities if effective mainstreaming of very poor disabled people was to be effective in
resource-poor countries. This led me to think of the community as being the essential crucible
for a model and that this was where many of the required skills lay hidden.
Upon founding BasicNeeds in 1999/2000, I took the opportunity of putting the idea into practice
and I have watched the Model for Mental Health and Development develop from that time to
this. My old friend D.M. Naidu did the first field tests of the model in September 2000 and in
2001/2002 we did the same in Northern Ghana with Lance Montia as the principle animator.
If the model helps to create the proper conditions for recovery, then it is the BasicNeeds’
programme that provides the effective motive force to field the overall concept and get the
process going.
We work with people with epilepsy and people with mental illness, and as the first few pages
of this book make clear, there are far too many of each not getting any kind of attention or
treatment. I am interested in reaching as many people as is possible and thus our programmes,
but most particularly our model facilitates this process. It is a model for working with the
many and perhaps this is no better characterised than in the section on capacity building. It
is true to say that I have never attended a meeting where there were less than 60 people in
attendance, though some of course would have carers who are very welcome and an integral
part of the process.
Tess Astbury and Mark Tebboth have done a great job, under the direction of Shoba Raja, of
bringing a great deal of what we have learnt and hold dear about the model into this book. I am
grateful to them for this wonderful effort. The model is a work in progress and we are thinking
over now how we can invite organisations that are not part of the BasicNeeds’ programme
structure to also avail themselves of the model.
Eight years have passed and BasicNeeds is now active in 8 countries and, to date has strongly
supported more than 50,000 people affected by mental illness and epilepsy, their families and
carers. The model for mental health and development has been vital to our success and I am
delighted to bring you this book describing how it actually works in practice. I hope that you
find the following pages both an informative and enjoyable read.
Chris Underhill
Founder Director
BasicNeeds
Contents
Chapter 1 Introduction 10
Chapter 6 Research 42
Chapter 8 Training 54
1 Introduction
The implications of having a mental disorder1 are serious and very real for millions of people
throughout the world. In 2001, the World Health Organisation reported that 154 million people
globally suffer from depression and 25 million people from schizophrenia; 91 million people are
affected by alcohol-use disorders and 15 million by drug-use disorders. In addition, 50 million
people suffer from epilepsy and 24 million from Alzheimer and other dementias2. The stark
reality predicted by the World Health Organisation is that one in four people will develop a
mental illness in their lifetime3. When one considers not only the person with a mental disorder,
but also their families and communities in which they live, it is almost certain that the impact
of mental disorder will affect all of us at some point.
In the context of low- and middle-income countries, the consequences of having a mental
disorder become even more severe. Many governments do not invest in mental health care,
with one third of the global population living in countries that allocate less than 1% of their
total health budget to mental health. Community care facilities have yet to be developed in
about half of the countries4. Even where there are community care facilities, they often are not
accessible to all. Integration of mental health services into local health facilities is very poor. The
current answer to such a lack of infrastructure is placing individuals in institutions, where they
are sometimes physically chained and abused5. This situation is summed up by Patel who states
that, “actual investment in evidence-based mental health services in low- and middle-income
1
Mental disorders refer to the series of conditions known as mental illness (schizophrenia, bipolar disorder,
depression, phobias, post-traumatic stress and others) as well as epilepsy.
2
World Health Organisation, Mental Health: the bare facts [Online] (World Health Organisation, 2001). Accessed
online - http://www.who.int/mental_health/en/ [Date accessed 24/01/2008].
3
World Health Organisation, World Health Report 2001: Mental Health: New Understanding, New Hope (Geneve:
World Health Organisation, 2001), pp 23.
4
World Health Organisation, Mental Health Atlas 2005 (Geneve: World Health Organisation, 2001), pp 15 - 43
5
World Health Organisation, World Health Report 2001: Mental Health: New Understanding, New Hope (Geneve:
World Health Organisation, 2001), pp 49 - 52
10
Introduction
countries is grotesquely out of proportion to the need” and that “it would not be surprising that
the vast majority of mental health needs in … [these] countries is unmet”6.
If, in addition to this, a person with a mental disorder is also one of the millions living in
poverty, the chances of them achieving even the most basic quality of life become increasingly
slim (see diagram below). Poor people with mental disorders are less likely to know of or
able to access appropriate services, and when they do, are unable to afford the treatment.
Their ability to work is impinged, which has a double effect of lowering their social status
and sending them spiralling further into poverty. Ignorance and fear of mental disorders
results in the person being cloaked in stigma and shame, discriminated against and isolated
from family and community life. They are not included in the development projects that are
designed to help lift people out of poverty, as they are often regarded as incapable. In fact,
mental well-being remains a largely ignored issue in global health, and the fact that it is not
included in the Millennium Development Goals reinforces the position that mental health
has little role to play in major development-related health agendas7.
It is in response to this growing understanding of the global impact of mental disorders that,
in 2000, BasicNeeds was established with a vision that “the basic needs of all people with
mental disorders throughout the world are satisfied and their basic rights are respected”.
11
Chapter 1
12
Introduction
Capacity building
A programme delivers the modules simultaneously. Whilst each module can operate in
isolation, it is when they are implemented as a whole that the full impact of the model
becomes apparent; that change occurs not only in peoples’ mental health, but also in the
levels of poverty they experience and in their fundamental human rights.
At the time of writing in 2008, 16 programmes in India, Sri Lanka, Lao PDR, Ghana, Uganda, Kenya,
Tanzania and Columbia are being run by BasicNeeds. In just 8 years, these programmes have
reached out to 54,076 people with mental disorders, their carers, families and communities.
As all activities in the model contribute towards recovery there is no single point at which this begins to occur.Throughout
9
the book, therefore, the term ‘people with mental disorders’, is used to denote people at various stages of recovery and
illness. A distinction is made in the text only in those cases when recovery is a prerequisite to involvement.
13
Chapter 1
people with mental disorders join in self-help groups to provide encouragement, manage
their illness and strengthen their voices.
Community-based mental health services and facilities are also developed. By maximising
existing resources, diagnosis services and treatment are made available on a regular basis and
are extended into areas where previously there was nothing. State health providers commit
to allocating human and financial resources and community workers provide the day-to-day,
on-going support that is so vital for people recovering from mental disorders.
Measures are initiated to secure a sufficient economic livelihood for the whole family via
opportunities to learn new skills or get an education, return to a previous occupation
or access capital. In demonstrating the positive contribution that people with mental
disorders can make, deeply ingrained prejudices in the community and wider society are
challenged. Awareness-raising and education activities explode myths and preconceptions
about mental disorders still further.
Data is collected about the lives of people with mental disorders and the impact of the
model. Everyone involved in the model has the opportunity to analyse the data, out of which
new insights and knowledge emerge. Fuelled by this body of evidence, mechanisms are
introduced that empower people to advocate for change in policy and practice amongst
individuals, communities and governments. The voices of people with mental disorders echo
throughout.
Pulling all these initiatives together are robust management and administration systems;
these ensure the successful delivery of the model in practice.
Cross-cutting themes
Throughout the model, a number of cross-cutting themes or ways of working are apparent,
which shape all aspects of programme delivery.
Working in partnership is the first of these themes and is crucial to the success of a
programme. The statement, ‘the whole is greater than the sum of its parts’ is particularly
apt here. Community-based organisations, government health services, micro-finance
organisations, self-help groups and many others contribute to implementing the model,
enabling its reach to be maximised and increasing the likelihood of its sustainability.
Furthermore, by tapping into existing resources, less energy is expelled in getting a
programme up and running; it also means that each organisation and individual can offer
their strengths as well as build their own capabilities by learning from each other.
Ensuring that programmes are rooted in their community is of utmost importance.
Mental health services are delivered at this level and partnerships are made with local
organisations. Community workers, who carry out much of the work in any programme, are
a major reason in guaranteeing it remains local and responsive. One way in which they do
this is by making home visits, which provide a link between the daily life of a person with a
mental disorder and the model.
14
Introduction
The practice of animation is based on the belief that by inspiring, motivating and challenging
a group or community, they will be moved to action, and begin defining their own reality,
rather than being passive recipients of assistance. Animation techniques are used throughout
the programme, as a means of breathing life in situations and stimulating change.
Participatory techniques are used widely in all of the modules as a means of ensuring the
full involvement of people with mental disorders, not only as beneficiaries but as active
contributors to the programme. Such techniques create a level playing field and allow
everyone to offer what they can.
The final theme, which resonates throughout the model is flexibility. The model is not a rigid,
unbending structure, with the success of a programme dependent upon being implemented
in one prescribed way. Rather, the model can be understood as a framework that proves
adaptable to different and varied circumstances. The exact nature of any programme will be
determined by the set of needs and situations specific to the area in which it is being run.
Contents
The following pages describe how the model for mental health and development is put into
practice by BasicNeeds and its partner organisations via mental health and development
programmes. Chapter two provides an overview of initiating a programme. This includes
what foundations are required, assessing an area’s mental health situation and shaping the
programme to meet the needs as defined by the beneficiaries. The subsequent five chapters
examine the modules within the model in more detail; outlining the purpose and describing
the activities that commonly take place within each one. As the training element of the
capacity building module is extensive, it is dealt with separately in chapter eight. BasicNeeds
is an outcome-focused organisation and the anticipated changes as a result of a programme,
are stated at the start of each chapter. Chapter nine takes a look at some of the people who
are responsible for delivering a model in practice, while the final chapter explores the overall
impact of the model.
The text is illustrated throughout, with examples from BasicNeeds’ programmes in all of the
countries in which it currently operates and the personal experiences of the people involved.
We hope that these portrayals will give you a real insight into, and true flavour of, the model
for mental health and development, as well as motivate you to find out more.
15
Chapter 2
2 Getting Started
16
Getting Started
organisations functioning in Ghana, especially in the north, aware of the plight of people
with mental disorders. However, there is no evidence of immediate or future inclusion of
people with mental disorders into their programmes. The logistical problems of getting
people to the south of the country for treatment, further compounds the difficulties for
those people in the north. (Ghana Programme, 2001)
Identifying Partners
Partners are almost always sought to help with delivery on the ground. This enables a
programme to broaden its reach and impact without dramatically increasing the dependency
on and the resource requirements of BasicNeeds (as the capacity of other organisations is
utilised). Furthermore, it acknowledges the importance of the existing work and value of the
resources that are in place already.
Depending on the specific circumstances, the number and type of organisations and institutions
approached as potential partners will vary as will their role. Initially, partners are identified
through the feasibility study although the process is ongoing and new partners can come on
board at any stage. In all cases, a Memorandum of Understanding (see chapter 7) is drawn
up and marks the beginning of the formal partnership. There is no set method of engaging a
partner but the process usually includes discussions with the staff, consultation and training in
relation to the programme, the model and the needs of people with mental disorders. Training
is a vital aspect of the relationship as it helps to build the capacity of the partner organisation,
increasing the likelihood that the impact will continue as skills are left behind. Partnerships
have been successfully used in all programmes to date, although the individual approach has
differed. For example, some partners have run specific activities in a module while others have
implemented one or more modules. The most important point to take from this is that each
programme has developed in response to the needs and circumstances on the ground, hence
the differing approaches in delivery.
Partnership working in India
In BasicNeeds India, the mental health programme has been extended in Kortegera and
Gowribidanur taluks (unit of local goverment) by Grameena Abyudaya Seva Samsthe (GASS)
with the help of Anuradha Foundation. Social Action for Child Rehabilitation Emancipation
and Development (SACRED) has been invited to submit a concept note to Cord Aid, which
has promised to fund the disability programme including mental health in the extension
area. The Council for Advancement of People’s Action and Rural Technology (part of the
Government of India) has agreed to fund the mental health programme of Nav Bharat
Jagriti Kendra (NBJK) in Jharkhand. (India Programme, 2006)
17
Chapter 2
Programme planning
In order to ensure that a programme is well designed, good planning is required. A logical
framework or log frame is used as a planning and analytical tool and enables BasicNeeds and its
partner organisations to methodically work through all aspects of a programme’s design prior
to submitting a funding application. Once a programme is established, log frames continue to
be developed whenever additional funding is sought.
Project
Overall Source of Assumptions
Description / Indicators
objective Verification and Risks
Narrative
What is the What are the What are the What sources What external
overall purpose wider objectives, quantitative of information factors are
or aim? which the measures or exist or can be necessary to
project will help qualitative provided to sustain the
to achieve? Long judgements that measure the objectives in the
term project help you to judge achievement long run?
impact? whether these of the overall
broad objectives objective?
have been
achieved?
A logical framework
Identifying donors and securing funding
Fundraising is a huge field in itself and this book does not attempt to be a guide to successful
grant-making. Below are some salient points relevant to funding a mental health and
development programme (or aspects of it).
A mental health and development programme can be viewed from many angles, meaning that
grants do not have to be solely drawn from donors with an interest in mental health. Other
donors with the mission of reducing poverty, empowerment of marginalised communities,
community development, advocacy or research may also be contenders.
When putting together a funding application, the feasibility study has been found to be of great
benefit in demonstrating the need for a programme. Furthermore, the fact that such research
has already been done adds gravitas to the proposal and to the applicants. The partners that
have been identified provide proof that there is local backing for the programme and indicate
the likelihood of its sustainability. Basing a proposal on the model for mental health and
development means that the outcomes have already been defined; further, the achievements
are plain to see in other existing programmes. All of the above, plus the fact that participatory
methods are used throughout and the people benefiting are also those defining and shaping
the programme generally helps in the development of a strong proposal.
18
Getting Started
19
Chapter 3
3 Capacity Building
Outcomes
• The capacities of people with mental disorders, carers, families and communities to support
themselves are built.
• The capacities of partner organisations, health care professionals and mental health
professionals are increased in order to implement and sustain the practice of mental health
and development.
20
Capacity Building
Normally a member of the BasicNeeds programme team or a community worker records what is said and
1
21
Chapter 3
attempted suicide, feeling worthless, an outcast, his life and efforts futile. At BasicNeeds’
field consultation Kwame talked about his world, the isolation, the sense of desolation,
hidden depths of emotion out there in the open for the first time. It brought tears
to people’s eyes, and a new understanding. (Atagona Kwame’s life story, Ghana
Programme, 2006)
The next activity ‘My Needs’ involves listing and discussing the issues of concern for participants
and their needs, as perceived by group members. The concluding activity looks to the future,
and asks the question ‘What Next’? After each activity, all participants come together and one
person from each of the groups reports back key points. Remaining in a large group, discussions
about what should follow on from the consultation take place, as well as an exploration of what
the group could themselves commit to and where external help is required. From the findings,
a concrete action plan is drawn up.
What next?
I first saw Gunasiri at the field consultation that was organised by BasicNeeds in the village
of Rathmalwela, India. Not only Gunasiri, but his mother and father also attended that
day. These three individuals who had come there in search of solutions to many problems
of the mind, played key and poignant roles that day. In particular, Gunasiri had faced
rare and unfortunate circumstances, not often faced by a man during his lifetime.
At the close of proceedings that day, Gunasiri was amongst the group of villagers that
volunteered to form the committee representing the village, the Volunteers’ Committee.
They were invited to help BasicNeeds and its partner organisation, Navajeevana, in their
work with people with mental disorders, getting their needs addressed, their problems
solved and their expectations achieved. (Gunasiri’s life story, India Programme, 2003).
The participatory approach that is adopted in a field consultation and throughout the model is
not new for those who have been involved in development projects of recent years. However,
having so often been excluded, such activities may be the first of its kind for people with mental
disorders and their families. Being absolutely clear about the purpose, their role in the day and
what will follow is therefore of utmost importance.
Other consultations
The field consultation is the first of many consultations that continue to be held throughout the
lifetime of the programme. People with mental disorders, carers, community members, health
professionals and other stakeholders are consulted with, on an on-going basis, to ensure they
articulate their changing needs as the programme progresses and give input as to how those
needs can be met.
Consultation meetings with young carers were conducted by Kalista, BasicNeeds’ staff
member, and peer educators to explore information on the life of young carers and
their opinion with regard to changes in their life that they would like to see. Most of the
young carers expressed their need to go back to school. It was also noted that some
22
Capacity Building
23
Chapter 3
are capable of improving their lives. People are pleasantly surprised as they see this
self-help group producing enough from their farming. The group sells their produce to
neighbouring people. They are seen to be normal, like other people. Laiza said that when
they wait for the harvest, she engages in other small businesses like selling vegetables,
fruits and other necessities. (Laiza Jofrey’s life story, Tanzania Programme, 2007)
2
Simpson 1989, Cited in Smith, M., What is animation (Infed.org, 1999). Accessed online - http://www.infed.org/
animate/b-animat.htm [Date accessed - 25/01/2008]
3
Underhill, C. Defining Moments: A Qualitative Enquiry into Perceptions of the Process of Community Development
Practice with Disabled People in Uganda (1996), pp 3
24
Capacity Building
Research
Individuals’ capacities are also built through the process of generating data and research (see
also chapter 6). Life stories are a primary data source used for analysis in research. Yet this is not
their only purpose. For the person telling his or her story, the capacity building outcomes are of
equal importance. To talk about themselves, their past experiences and future aspirations with
an interested, non-judgemental listener may have been a rare occurrence. Such a connection
inspires strength, feelings of self-worth and is a form of therapy in itself. Participatory data
analysis sessions (described further in chapter 6) are opportunities for people with mental
disorders, carers and others involved in a programme to meet together to analyse data or
information emerging from the field. Through this process, people with mental disorders
gain new understanding into the issues affecting them on a daily basis. They become better
equipped to deal with these issues and grow in confidence to advocate for change.
Awareness-raising and sensitisation
Awareness-raising and sensitisation campaigns are used widely to challenge preconceptions,
change attitudes and share information about mental disorders. A variety of methods
are used to get the message of mental health and development across – including street
25
Chapter 3
26
Capacity Building
and drama troupes in the suburbs of Tamale, all geared towards educating society on the
need to respect people with mental disorders, roles and responsibilities of society towards
them and integrating the person with a mental disorder into societal acceptance and life.
(Ghana Programme, Oct 2007)
Training
The range and breadth of training that is carried out within a programme is considerable.
Therefore, whilst acknowledging that training is a key component of capacity building, it is
dealt with separately, in chapter 8.
27
Chapter 4
4 Community
Mental Health
Outcomes
• Effective delivery of community mental health services is demonstrated
• People with mental disorders, their carers and families are better able to manage treatment
and care needs.
28
Community Mental Health
29
Chapter 4
and other forms of treatment she gets from the programme. She was very positive about
the services she receives. She said, “The medication I get from here has helped me get well
and you can see the remarkable difference in my appearance. (Patricia Birungi’s life story,
Uganda Programme, 2006)
In India, health camps initially began as a way of treating large numbers of people in a relatively
short amount of time for various medical needs such as eye care and dental care. In recognition
of their success, they have since been adapted to provide mental health care. Camps are
generally temporary facilities and are set up just for the day that it is being held. This has the
advantage of being able to easily move locations to the areas of most need.
At the camp [in Jharkhand], two psychiatrists and one general physician attached to the
State psychiatric hospital attend to people with mental disorders. Before the doctors arrive,
registration is done, with each person having to pay a fee of Rs.20 ($0.50) for which they
get a stamped receipt and token number. People start queuing up at the gate from 5.30
am. Once the doctors arrive, people queue up according to their token number, and wait
their turn for the brief consultation. Research officers, who usually accompany the doctors,
take down the ‘history’ from ‘new patients’. The drugs prescribed are then collected at
the first window where the pharmacist distributes with instructions of dosage etc. (India
Programme, 2007)
30
Community Mental Health
The mental health services described above are not only for those attending for the first
time to receive a diagnosis. Individuals return to them on a regular basis for check-ups and
to collect their medicine. For many, these services are the only means of formal contact
with a mental health professional and their only opportunity of getting a continual supply
of the correct drugs.
Adalah Mafula, an epileptic person, told Alfani’s mother that in Mahuta dispensary (a
mental health clinic), treatment is provided for mental disorders, and that the service is
free of cost. Alfani’s mother decided to take her son to Mahuta dispensary. The psychiatric
nurse advised Alfani’s parents to start treatment for their son.
Alfani’s health showed remarkable improvement after he started treatment. His seizures
reduced to once a month and later they stopped completely. The last time he fell down was
in June 2005 when he was in the 6th standard. Alfani has not had a fall since. He attends the
clinic every month and he is still getting treatment. “I was able to study well and understand
what I was studying after I stopped falling. While in the 7th standard I didn’t fall at all. I was
therefore able to study without problems. That’s why I passed my exams.” (Alfani’s life story,
Tanzania Programme, 2005)
Mental health camps in India ensure that treatment is more widely available.
31
Chapter 4
A Ugandan community worker visits the home of a woman with a mental disorder
Identification
Once regular community mental health services are established, it is important that people with
mental disorders attend them. However, a person with a mental disorder may be less visible in
their community, perhaps physically hidden or not welcomed at community events because
of their illness and the stigma that so often surrounds it. As a result, it can be that much harder
to make initial contact. Furthermore, many people with mental disorders live in rural areas
and may simply be unaware of these services. Identifying and encouraging them to attend
community mental health services is, therefore, crucial. Having received appropriate training,
community workers undertake outreach in the areas in which they live. Frequently, they have
the added benefit of being known and trusted by those that they are reaching out to.
Eunice got to know of the mental health clinic through the community health volunteers
in the area. “George Ratemo comes from this village and he knows that I suffer from a
mental disorder so he informed us - my mother and I - that a clinic was starting in the
neighbourhood in the beginning of May 2006. He even sent someone to keep reminding us
of the date.” (Eunice Wangeci life story, Kenya Programme, 2007)
32
Community Mental Health
BasicNeeds staff and partner organisations may also carry out this work. As well as identifying
people with mental disorders, they may physically attend a camp or clinic with them, as a
means of offering moral support. Identification is aided by activities such as street theatre
performances, which raise awareness of mental disorders and begins to dispel the prejudices
attached to it.
Follow-up support
Community psychiatric nurses continue to support community volunteers to monitor the
people under treatment, provide support to carers and appropriately advise and report on
the progress of each of the people under treatment. (Ghana Programme, 2006)
For people with mental disorders, the continuous support that they receive in their own
community is of equal importance to the initial diagnosis and treatment at a clinic or camp. This
support is usually provided via home visits. Mental health professionals play a part in providing
on-going support, but it is community workers who undertake the majority of this work. Living
in the same neighbourhood, it is more convenient for them to drop by on a frequent basis.
A major reason for follow-up support is to ensure that the medication prescribed is being
taken correctly. As many people in the programme are illiterate and reading the prescription
instructions is not an option, assistance in this matter is essential. However, follow-up
support goes far beyond the boundaries of clinical treatment: offering encouragement to
continue with treatment; giving assurance that there are people who care for them; and
providing information about clinics and other activities happening with the programme.
Each time an interaction occurs, it is logged in the person’s individual file and/or their
clinical file (described in chapter 6).
“One day a community volunteer told me they had mental health services at Kamwokya
Christian Caring Community (KCCC). I started getting treatment from there in January
2005. I was due for my next appointment at Mulago (psychiatric hospital) on 19th January
2005, but I decided to go to KCCC because it is nearer.
I have seen a difference, at KCCC. The drugs are always available and I have a community
volunteer who is responsible for following up and checking on my progress. She is a good
woman. She is elderly and like a mother to me. She has a file in which she writes about
me. They [KCCC] promise that when you recover, they can get you something to do, a job.”
(Beatrice Amongin life story, Uganda Programme, 2005)
33
Chapter 5
5 Sustainable
Livelihoods
Outcomes
• Income earning or productive activity by people with mental disorders occurs
• New skills, confidence and self-worth amongst people with mental disorders and their
families are developed
• Poverty levels of people with mental disorders and their families are reduced
• Social status of people with mental disorders and their families is improved
34
Sustainable Livelihoods
For many people with mental disorders, employment means more than the income they earn. It also
means regaining a sense of self-worth and pride in oneself.
35
Chapter 5
Children with mental disorders face similar barriers of stigma, discrimination and exclusion as
their adult counterparts. As they recover, they are also supported within this module, to begin
or resume their education.
36
Sustainable Livelihoods
Once a feasible choice has been made, a person is offered support to become active. Broadly, this
encapsulates all forms of gainful occupation, whether this is earning an income, undertaking
productive work or accessing education. Home visits can be undertaken by a number of people
involved in the programme including community workers.
Making links with development organisations
In pursuing a sustainable livelihood, a person recovering from a mental disorder may opt to
return to a previous occupation or decide to pursue other options that require additional skills
or capital. To maximise possible avenues for gainful employment, BasicNeeds builds links with
37
Chapter 5
Children are supported to access education through the sustainable livelihoods programme, Kenya
38
Sustainable Livelihoods
39
Chapter 5
40
Sustainable Livelihoods
when I see it every morning”. As a consequence of improving her confidence and skills, she
started another income-generation activity. She was given training in making ekel brooms
which she has taken up as a livelihood. She sells these brooms at Rs 50 [$1.20]. She has
carefully collected the money and spent Rs 2500 [$63] for purchasing a tractor-load of
metal for building her kitchen”. (Sri Lanka Programme, 2006)
Entering into productive work
Mohamed is a person with a mental disorder from Mpekso village. Since starting medication,
he now carries out productive activities for his family. “Thank god, ever since undergoing
treatment, I have been able to co-operate with others in doing homely manual activities
such as preparing coconut juice, rinsing utensils, doing some laundry and selling charcoal.
And this, to me, is a pure sign of recovery as I never did something like that before” (Tanzania
Programme, 2006)
New skills
The Tamale Tin Laayisi Horticultural Project trains interested people with mental disorders
to acquire skills in vegetable gardening. The project provides an alternative source of
livelihood for people with mental disorders. It has contributed to providing vegetables to the
people of the Tamale metropolis, especially for two hotel restaurants. … The management
and marketing skills of people with mental disorders in the project are growing as they take
charge of selling produce themselves in the market and to the restaurants in town. (Ghana
Programme, 2006)
41
Chapter 6
6 Research
Outcomes
• Experience, insights and perspectives of people affected by mental disorders become part
of the mental health evidence base and new knowledge
• Better understanding is gained of policies that affect mental health and their practical
applications in low- and middle-income countries
42
Research
(the specific types of primary data used are addressed later on in this chapter). In addition to its
research purposes, the data forms the basis of statistical monitoring (described in chapter 7).
To ensure that people with mental disorders and other stakeholders are able to actively
participate in all stages of the research-analysis cycle, a range of different forums are used,
including consultations, focus groups, interviews and home visits.
The data emerging from the field is analysed against the themes of health status, treatment
approach, health services, socio-economic status, care giving, community acceptance, programme
interventions and participation. Analysis occurs at different levels within the programme, starting
at the field with people with mental disorders and working its way up through partners and
other stakeholders to the BasicNeeds programme staff. At each level of analysis, synthesized
documents from the previous level are used. This process helps to build up a comprehensive
picture of outcomes and emerging issues and results in an annual research report.
Participatory action research employs a technique called participatory data analysis, developed
by BasicNeeds to operate in a mental health and development setting. Lead by an animator
and recorded by a process writer, the purpose of the participatory data analysis is to develop
local-level findings and operational policy recommendations for local implementation. This is
43
Chapter 6
achieved by bringing together people affected by mental illness and others in a programme
to analyse data that they have played an active role in generating. Participatory data analysis is
used wherever resources permit.
Instructions given during a participatory data analysis session.
• Count and write down the number of people with mental disorders against the major
occupations they were in before their illness.
• Also indicate whether they are still in the occupations they were in before their illness.
• Count and write down the number of people with mental disorders against the
household chores they are able to do.
• Group the responses of people with mental disorders into those who earn in cash,
those who earn in kind and those who earn in both cash and kind.
(Ghana Programme, 2007)
Outcome studies
Outcome studies build on the data generated through participatory action research and
use it to evaluate the efficacy of the model outcomes. The purpose of this type of evaluative
research is to evidence how effective the interventions of the model are in bringing about
real change in the lives of people with mental disorders. In order to do this, these studies use
representative samples to investigate specific outcomes around topics such as integration,
treatment and economic sustainability. Outcome studies draw on individual and clinical files
for data (described later in the chapter) and use additional sources where required.
Policy studies
Policy studies involve specific, one-off pieces of research that focus on a particular set of
issues that significantly affect intervention quality or model outcomes. Often the reason for
commissioning a study will have resulted from issues highlighted through participatory action
research and the outcome studies. The data required for a policy study is not available from the
sources that participatory action research and outcome studies draw from. As a result, targeted
research to generate specific data for analysis of the subject in question takes place.
Excerpt from a recent policy study on the availability of psychotropic drugs in 6 low- and
middle-income countries where BasicNeeds has programmes:
• There is an absence of specific policies for the supply of psychotropic drugs.
• Distribution of these medicines to health service points is ‘supply-driven’ rather than
‘demand-driven’ resulting in skewed availability and shortages
• Lack of trained staff results in poor procurement of medicines.
• There is no separate budget for psychotropic drugs so funds are used to buy other
medicines.
44
Research
• Psychotropic drugs were often not available free of charge and purchasing them was
often prohibitively expensive for poor families.
(BasicNeeds Policy and Practice Directorate, 2007)
Baseline study
A baseline study is a review of the situation of the programme area specifically looking at the
lives of people with mental disorders and all of those factors in the external environment that
affect them. Normally undertaken at the start of a programme in a specified geographic area,
the baseline study helps to shape subsequent development on the ground. Furthermore, the
study is used as a point of reference against which progress and change can be measured.
Primary data
Primary data collection is an on-going process, which involves complete documentation of
the lives of people with mental disorders, their carers and families, via a number of formats.
The main types of primary data collected through a programme are listed below. These are
analysed through participatory action research and outcome studies.
Life stories
Life stories are a way in which the lives and experiences of people with mental disorders can
be recorded, as told by them. Life stories serve multiple purposes. They provide meaningful
45
Chapter 6
insights and enable greater understanding about not only the reality for that person but that of
his or her family and community too. They are also used to highlight the issues they face, which
in turn are a starting point for further research.
Extract from Hakmany’s life story
In 1996, when she was studying in grade five in primary school, she felt her head rotating
heavily. She had vertigo, high fever and seizures. She was referred to Phonhong District
Hospital located in Vientiane Province by her uncle with whom she lived for a year. Her
physician diagnosed her with meningitis.
She described her seizures very well. “One thing I remembered well was the feeling that
my legs and arms were becoming progressively heavy and I was suddenly falling down.
After that, I was unconscious. I do not remember what happened. When I woke up after the
convulsion, I felt lost; my memory had gone away... I could not talk. I was made to lie down
on the bed, drowsy and confused, for at least half an hour. I was hospitalised for two weeks.
(Lao PDR Programme, 2007)
46
Research
Individual files
Every person with a mental disorder who is involved in the programme will have an individual file.
Such files are a factual account of the individual, including information on their background and
history; their medical information, including type of mental illness, symptoms and treatment;
and their family situation. The file also documents the interventions of the programme and
significantly, the changes that are unfolding in their lives.
Clinical Files
As with individual files, clinical files are kept for every person with a mental disorder participating
in the programme. They contain information solely relating to their medical history and are
a record of all clinical interventions that have occurred. The information within the file is
confidential and is maintained and updated by a mental health professional.
Process documents
All field consultations and focus groups involving people within the programme are recorded
via process documents. To ensure accuracy, a trained process writer has the sole task of noting
down what is said and happens during a gathering. Process documents are an important source
of data, because they not only describe, word-for-word, what has been said and by whom, but
also capture other revealing information such as the atmosphere in the room and the body
language of participants.
Uses of evidence
The research methods described above generate a body of evidence that is used for many
purposes.
A process writer records everything that is being said at a consultation meeting in Kenya
47
Chapter 6
48
Research
Knowledge base
The evidence generated through this module, contributes to a significant knowledge base that
serves two main purposes. Firstly, the evidence includes the views, experiences and insights
of people with mental disorders. This helps to give people with mental disorders a voice to
demand that they be included in decisions that directly impact upon them. Secondly, the
evidence from which the efficacy of interventions can be assessed is drawn from different low-
and middle-income countries across the world. This helps to promote a developmental rather
than a clinical approach to mental health.
49
Chapter 7
7 Management
and Administration
Outcomes
• Organisations implementing the model are robust, capable and sustainable
• A mental health and development programme is implemented to the highest possible
standard
50
Management and Administration
51
Chapter 7
Once a year, all partners assemble for an annual review - a great opportunity to assess the
programme in its entirety.
Partner meetings
Partner meetings provide a platform for all organisations involved in the programme to share
information and experiences and learn from each other. During the meetings, organisations with
expertise in a particular aspect of the model may be asked to give presentations; alternatively,
there may be more informal gatherings allowing for networking. Via these meetings, lasting
relationships are built that enhance and help to sustain the programme’s delivery.
Monitoring
All the activities carried out and details of the people who benefit from them are tracked
within the programme. Activity tracking sheets, statistical tracking sheets and process tracking
sheets are used by BasicNeeds and its partners to collate this information. The fact that they
are standardised documents makes it easier for different organisations to share and combine
data. What has changed as a result of the programme’s activities and its wider impact is also
carefully monitored via the collection of qualitative and quantitative information. Monitoring
is closely linked to the research module and this information is also used for research purposes
(see chapter 6). All monitoring is collated and reports are produced on a regular basis, ensuring
a complete picture is built up of the programme and its resultant impact.
Financial management
Setting accurate budgets and monitoring income and expenditure occurs throughout a
programme. At its most frequent, this is on a monthly basis, but cycles exist for quarterly and
annual reporting in addition to the start-up budget and the evaluation when the programmes
funding cycle comes to an
end. Financial monitoring
takes place both by the
individual organisation and
centrally by BasicNeeds.
Reporting cycles
Partner organisations collate
the monitoring data on a
monthly basis and then
submit quarterly reports
to BasicNeeds describing
what has occurred in the
programme over the last
three months. Annual
reports,lookinginmoredetail
A management meeting gets underway in Kenya. and focusing specifically on
52
Management and Administration
Programme evaluations
Evaluations are undertaken at two points in the lifetime of a programme – one halfway
through and one at the end of a programme’s funding cycle (normally every three or four
years). Typically, the mid-way evaluation is carried out internally and an external evaluator
completes the final evaluation. In line with other programme activities, participatory
techniques are used and people in any aspect of the programme are asked to be involved in
evaluating its progress. Evaluations are an important part of the ongoing reflection–action
cycle and are seen by all as an opportunity for further learning and improvement as well as
the chance to celebrate successes.
Extract from evaluation report
In assessing the design of the overall programme, the evaluation team found that in large
part, the programme goal, purpose and outputs were being met in a commendable and
interesting way.
[The programme should ensure] greater involvement of the districts, and their relevant
structures and institutions, since the other criterion for effective programming needs to be
that of sustainability. (Uganda Programme, 2005)
53
Chapter 8
8 Training
54
Training
Training takes place in culturally appropriate and preferably familiar settings, where participants
will feel most comfortable. Community halls, places of worship and even outside spaces are all
regularly used as venues. In general, only basic materials are used – paper, pens, flipcharts -
with drawings and images considered as important as words to get a point across.
The following is a description of some of the most common training delivered as part of
the model. Due to the broad spectrum of training that occurs, the list below is by no means
exhaustive but provides a flavour of what takes place.
55
Chapter 8
Research training
The research approach adopted by BasicNeeds uses participatory processes that place the
stakeholders at the heart of generating and analysing the data. Within the model, people such
as health workers, community workers or partner organisations may be involved in carrying
out research.
Training is delivered by people with direct experience of the research methods used by
BasicNeeds. It begins by highlighting the importance of and significance that research plays
in a programme; it also shows how the findings can be used to influence policy and practice
from a local to national level. Broadly, the training covers what is research; why do research;
participatory approaches to research (specifically participatory data analysis, see chapter 6);
the types of research; how to collect and analyse data; and the uses that research findings can
be put to. Working from the premise that ‘doing’ is the best way of ‘learning’ throughout the
training participants are guided through the research process using actual data from the field.
Feedback on research training
“Data is something that we simply collected and kept in storage. Now we know that this
should not be so. How important it is to analyse it – to get a better understanding of the
56
Training
person/situation. We have learnt the proper ways of analysing data. The value of data
being analysed both quantitatively and qualitatively.” (Sri Lanka Programme, 2004)
Documentation training
A strong feature of a programme, is that everything that takes place is thoroughly documented;
including life stories, process documents and individual and clinical files as well as activity
and statistical tracking sheets and the various reports (quarterly, annual and partner). Yet
problems do arise as documentation standards and practices can vary significantly within and
between different organisations and people. This training is designed to improve the levels
and standards of documentation and covers: the types of documentation required; the need
for documentation; confidentiality; its importance, uses and management; and the differing
requirements of partner organisations.
Three days of documentation training was held, to strengthen the documentation
skills of the partner organisations of the community mental health project in the North
India programme. These partners are working at the grassroots level but being small
organisations do lack in essential skills of documentation and presentation. At the end
of the training, all the participants were quite happy by discovering their potential to
document properly and make their work presentable. In fact, all participants pledged to
practice good documentation as they could see its importance in their expansion. (India
Programme, 2007)
57
Chapter 8
Animation training
Animation transcends individual modules and is vital to delivering change, increasing capacity
and empowerment. Training in animation techniques is therefore essential, particularly as it is a
new technique for many. In the model, various individuals may become animators, as emphasis
is placed not on the qualifications of the person but on their personal qualities.
Typically, the training will include key ideas and concepts; why animation is necessary; feelings
and energy, group dynamics; types of relationship (mentioned below); how to deal with
resistance; how to say ‘no’; the role of an animator as motivator; and how to manage and get
the best out of individuals (affiliation, achievement and power). During the course, participants
practice animation techniques, perhaps for the first time, in a safe environment. Examining
one’s own motivations, beliefs and prejudices is central to becoming a good animator and
participants have often learnt just as much about themselves by the end of the course as they
have about animation.
Excerpt from animation training course
Animators deal with feelings and energy. So-called “negative” feelings are not just negative:
they often have useful, maybe important, information in them. They can motivate and give
energy, although they can also block/distort good thinking and decision making. So notice
58
Training
when people (including yourself) are upset, and help/support them through those feelings
by actively listening, acknowledging the feelings, noticing the ways that they are expressed
and giving the person time to talk through how they feel, without prematurely pressing them
into thinking. (India Programme, 2002)
Delivering sustainable livelihoods training
The sustainable livelihood module is often delivered in partnership with development and
other organisations or institutions and helps individuals to access opportunities and resources
to make a living. Ensuring
these organisations have the
right skills and experiences to
effectively support people to
access livelihoods is vital and
can require specific training.
A standard training session
covers definitions of sustainable
livelihoods; approaching
sustainable livelihoods at the
individual/micro level and at
the macro level; relationship
between poverty and mental
disorders; and meaningful work.
The training sensitises individuals
and organisations to the needs
of people with mental disorders
and how best to respond to them
to ensure that they are afforded
opportunities for meaningful In the training, participants learn about how best to support
work or employment. people with mental disorders into different livelihoods, Ghana
59
Chapter 8
Training for people with mental disorders, their carers and families
Managing illness training
To sustain effective treatment, people with mental disorders, carers and family members need
to know how best to manage their illness. The training is often informal and provides practical
advice, as well as, encouragement and support. Issues dealt with through the training include,
recognising and managing symptoms, the importance of taking drugs as prescribed (when
and how); how to manage and mitigate any side-effects; and how best to care for a person
with a mental disorder. The training tends to be ongoing and can be delivered by a number of
people such as community workers, health care professionals and partner organisations.
One of BasicNeeds Lao PDR’s main implementing partners is Lao Disabled People
Association (LDPA). It delivers mental health training. People with physically disabilities are
identified to be at high risk of being affected by mental illnesses. This is partially due to the
fact that they have been through difficult situations in coping with their physical disability
and this may often lead to some series of mental illnesses. They receive training in basic
knowledge on mental health, how to identify a person with mental illness and the rights
people with physically disabilities. (Lao PDR Programme, 2007)
Employment or productive work training
Sustainable livelihoods training enables people recovering from a mental disorder, carers and
family members to pursue a path that will lead to employment or productive work. The training
is highly specific and can range from horticulture skills to bicycle maintenance, from mechanics
to business planning. Most frequently, the actual training is delivered by partner organisations.
The initial groundwork involves mapping the organisations that provide suitable training and
building alliances with them. This is usually undertaken by the BasicNeeds staff. On an ongoing
basis via home visits and in focus groups, individuals are consulted to establish their needs and
aspirations. The final stage is matching the available training opportunities to the requirements
of individuals, in doing so equipping them with the necessary skills to enter into a gainful
occupation.
A workshop was conducted at the Tangalle town hall for people recovering from mental
disorders, carers and volunteers engaged in income-generation activities. There were 30
people with mental disorders among 103 participants. All the participants have started
60
Training
some sort of business with the vocational training they obtained during the past few months
such as mushroom cultivation, fabric painting, sewing, shoe making and coir products. The
main objective of the workshop was to do a follow-up on their income-generation activities
and introduce new organisations for getting support. Livelihoods Coordinator, Asoka
Vitharana conducted the workshop and participants made links with representatives from
Hambantota Chamber of Commerce and Sarvodaya Economic Enterprise Development
Services for developing their businesses further. (Sri Lanka Programme, 2007)
Advocacy training
Advocacy training aims to equip people with mental disorders, their carers and families with
the skills and abilities to demand the services they are entitled to and the confidence to speak
up for their rights. The participants actively take part in the training, identifying issues that they
want to advocate on and how best to do this. Examples of issues raised in the past are a lack of
drugs and mental health personnel, and the need for water and farming implements.
In India, people gather to speak out for the rights of people with mental disorders
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Chapter 9
Without people the model for mental health and development remains just that – a model. This
chapter describes those responsible for bringing it to life, from people with mental disorders to
traditional healers, programme staff, partners, health professionals and community workers.
People with mental disorders
The model for mental health and development exists to help people with mental disorders.
Whether it is discussing their needs and requirements through field consultations, pursuing
livelihood ambitions or participating in generating and analysing data, people with mental
disorders are at its heart.
Participation in a programme brings direct tangible benefits for
people with mental disorders. They gain access to treatment, which
leads to stability and, significantly, involvement in income-generation.
Furthermore, participation builds their capacity and enables them to
make their voices heard. A key feature of the model is that people
with mental disorders may both be beneficiaries of the programme
and active contributors to it. Many people recovering from mental
disorders go on to become animators and community workers;
others form alliances to demand their rights.
Jayantha Gunesakara,
Sri Lanka
Jayantha has now recovered successfully and he is working actively as the Secretary of the
Volunteers’ Committee of Katuwana Division. He developed all the required competencies by
following training courses organised by BasicNeeds. He also contributes his valuable efforts
to therapeutic programmes organised for people with mental disorders by BasicNeeds at
Katuwana Hospital. At the vegetable farm set up and managed by people with mental
disorders, carers and volunteers in his division, Jayantha is an active contributor. (Jayantha
Gunesakara’s life story, Sri Lanka Programme, 2007)
Furthermore, merely the visible presence of people recovering from mental disorders returning
to work or getting involved in community life can have a huge positive impact. These individuals
62
The People Involved
are the beacons of hope for others, ambassadors of the programme and responsible for
changing attitudes and beliefs of many around them.
“Many people since my recovery have been asking me where I have been accessing the mental
health service and they now believe that mental disorders are treatable (most especially for
those who knew my condition before and now see me recovered). This has made them start
referring other people with mental disorders to the health centre in Kamwokya”. (Woman
recovering from a mental disorder, Uganda Programme, 2006)
Carers
The lives of people who care on a daily basis for a person with a mental disorder are usually
greatly impacted upon. Carers are often, but not always, a family member, and may be an adult
or a child. Through association, they may experience similar discrimination as the person they
care for. Many have to give up work or school. At the same time, they often use much of their
finances in seeking cures from traditional healers, travelling to hospitals or health centres or
buying expensive medicines. This double economic loss often results in additional stress and
anxiety for the carer.
The model seeks to address carers’ needs by including them within a programme. Their opinions
are sought as to the needs of the person they care for as well as their own via consultations.
They attend training in supporting people with mental disorders and are targeted to raise
awareness of causes of mental disorders. Within the sustainable livelihoods module, their own
ambitions are listened to and they are given support to act upon them. They become members
of self-help groups, which also include people with mental disorders, further helping to break
down barriers and prejudices. Similarly, to people with mental disorders, many carers move
from being a beneficiary to a contributor within a programme, becoming community workers,
or advocating for change for example.
BasicNeeds staff
BasicNeeds staff are responsible for coordinating the implementation of a programme for mental
health and development and ensuring that it runs successfully. Almost without fail the staff will
be nationals of that country, have a good knowledge of mental health and development and
be skilled in developing partnerships and alliances. The number and roles of the BasicNeeds
team will vary according to how a programme is being implemented in a particular area.
For instance, some programmes may involve multiple partner organisations, reducing the
number of BasicNeeds staff required. In these cases, BasicNeeds provides a support service
to the partners and coordinates the overall programme delivery. In other cases, BasicNeeds
may have a more ‘hands-on’ role, being involved in running the actual activities alongside its
partners. In the latter scenario, BasicNeeds is more likely to employ additional staff. However,
there are some common responsibilities found across all programmes. These include engaging
and coordinating partner organisations, implementing management and reporting systems,
undertaking research, lobbying state and other institutions and securing funding.
63
Chapter 9
64
The People Involved
1
Raja S, Boyce WF, Ramani S, Underhill C. Success indicators for integrating mental health interventions with
Community Based Rehabilitation projects. (in press, International Journal of Rehabilitation Research, Dec 2007)
65
Chapter 9
Community workers gather, before going out into the field, Uganda
medicine. The medicines were given at regular intervals without a break for a few months.
He showed signs of improvement. He himself started taking his medicines without any
hesitation. After about five months Pathirathne was able to go alone to the medical camp
… for treatment. His health improved to a great extent. (Pathirathne’s life story, Sri Lanka
Programme, 2007)
Mental health professionals
Mental health professionals play a very important role in diagnosing, treating and assisting
people with mental disorders in their recovery. Including people like psychiatrists, clinical
psychologists, clinical social workers and psychiatric nurses, their primary involvement in the
programme is within the community mental health module where they carry out a number of
functions and duties. In relation to a person with a mental disorder this includes activities such
as diagnoses, prescribing a course of treatment and administering drugs. In many cases this
will be the only access people with mental disorders have to mental health professionals and
the demand can be enormous.
Other activities include maintaining clinical files, participating in data analysis sessions, training
people in mental health issues and raising awareness about mental disorders. In most cases,
66
The People Involved
they are not employed directly by BasicNeeds or partner organisations; rather, a relationship
is built with a health service, normally state run (see chapter 3), which leads to it committing
some staff time to the programme.
Animators
The animator has “a special responsibility to stimulate people, to think critically, to identify
problems, and to find new solutions.” 2
In most cases, individuals are not employed solely as animators. Rather, everyone working
within or involved with the programme has the opportunity to take on the additional role of
animation. Those who are interested and have the potential to be good animators go on to
receive training in the subject (see chapter 8).
The part that animators play in driving a model for mental health and development can not be
underestimated. Animators are chosen for their personal qualities rather than such factors as
age, gender, economic or employment status. They must genuinely believe in the capacity and
ability of people, no matter how poor or ill they are, to make a positive contribution to social
change. They must also believe in the principle of equity. Animators create an environment
where the traditionally distinct roles of learner and teacher are merged, and urge community
members to see that they are the experts when it comes to their own development.
They are dynamic individuals, able to work with a group to identify its needs and goals, to act
on its decisions and then evaluate. This may sometimes require the group to be challenged,
encouraged or motivated, but never controlled. An animator also spends time building up
relationships, and ensuring that everyone feels able to be involved in the process. For this to
happen, the animators must be familiar with all members and be fully aware of the underlying
dynamics that exist within all groups.
Within a programme, an animator may be involved in any number of activities (see chapter 3).
Field consultations, participatory data analysis sessions, community reviews are all enhanced
by the presence of an animator. Self-help groups, particularly at their inception, will often have
an animator amongst the members – in fact, animators are likely to be found wherever groups
of people are meeting.
Traditional healers
In many countries in which the model is being implemented, traditional healers continue to be
a widely used source of primary health care. Methods of traditional healing will vary between
countries according to the knowledge, skills and practices indigenous to that culture, but
commonly include the use of herbs and/or prayer to heal.
The significance of traditional healers in many poor peoples’ lives and the part they play in
2
Hope, Timmel & Hodze, 1984, cited in Underhill, C. Defining Moments: A Qualitative Enquiry into Perceptions of
the Process of Community Development Practice with Disabled People in Uganda (1996), pp 3
67
Chapter 9
diagnosing and treating mental disorders must be given due emphasis. Within the programmes,
relationships have been built with healers and in some cases a strong collaboration has
developed between the two parties. For instance, traditional healers have begun referring their
cases to a programme, attend meetings to share ideas and information and have introduced
new forms of treatment into their work. In turn, they have received support to gain more
recognition and to standardise their practice in ways such as keeping detailed records of the
people they treat. In developing a relationship, harmful and abusive practices such as chaining
people or beating them can also be raised and addressed.
“The nature of my treatment is purely spiritual. Sometimes when the patient is violent, I
make some herbal preparations and boil it. The patient bathes with it and it calms him
or her down. When my herbs are not readily available, I do send for medicines from Ti
Sampaa (Community Psychiatric Unit) to calm the patient down before I can commence
treatment. I don’t put my patients in shackles like other healers do. I don’t also charge fees
for my treatment, but sometimes after my treatment I ask for fowl, goats, cowrie shells etc.,
depending on what the gods might ask for.” (Mayiya Lansah’s - traditional healer - life story,
Ghana Programme, 2006)
68
The People Involved
Partners
Effective partnerships help BasicNeeds run effective programmes. Partners increase the reach
of the model, complement and add value to the work and support its sustainability. Depending
on which aspects of the programme require partners any of the following organisational groups
could be approached:
• Community-based organisations
• Development organisations
• Community-based rehabilitation organisations
• Primary and mental health care providers
• Micro-credit organisations
• Training and educational institutions
• Self-help groups
• Government departments
Broadly, partners are split into two groups: implementation partners and resource partners.
Implementation (also called delivery or operational) partners are responsible for delivering one
or more of the modules of the model. Implementation partners tend to stay the same for the
duration of the programme and have a formal agreement with BasicNeeds, characterised by a
Memorandum of Understanding.
BasicNeeds works in partnership with Kamwokya Christian Caring Community (KCCC), a
community-based organisation, to implement its model of Mental Health and Development.
Previously, KCCC was already running similar health programmes for HIV/AIDS. One of the
activities in implementing the model is the support for regular mental health outreach
clinics. These are operated by KCCC, with the help of a Psychiatric Clinical Officer from
Butabika National Mental Referral Hospital. KCCC operates these clinics weekly … on every
Thursday. (Uganda programme, 2005)
Resource partners are responsible for activities such as training of staff, health care professionals,
and other people involved in programme implementation. The resource partners are used in
response to a specific need (usually training) and can change over the course of a programme.
As with implementation partners, Memorandums of Understanding are often agreed although
this does not occur across the board.
The programme worked closely with the Division of Mental Health, which continued to
resource the community mental health clinic and the Nairobi City Council, which hosts
the clinic and also provide back up support to the psychiatrist team through the Primary
Health Care workers. A couple of resource partners assisted BasicNeeds Kenya with various
tasks in the programme management module, which includes human resources manual,
media outreach and communications strategy development. (Kenya Programme, 2006)
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Chapter 10
Model Outcomes
• People with mental disorders have an improved quality of life
• The human rights of people with mental disorders are respected
• Gender inequalities amongst people with mental disorders are reduced
• Positive change is sustained for people with mental disorders
• People with mental disorders are visible in all spheres of life
• People with mental disorders are fully included
The last nine chapters have described what a model for mental health and development means
on the ground – what are the activities that take place, what do they achieve, who benefits and
who are the people that make it all happen?
This final chapter looks at the model as a whole and asks what drives it forward and what does
it leave behind?
A better quality of life for poor people with mental disorders
“We have become a happier family ever since we realised my daughter is responding to
treatment. Her ill-health was silent torment to all of us and we are happy to see she is
improving by the day. We wear happier smiles and our neighbours are closer to us than
ever before”. (Ghana Programme, 2008)
A huge motivation behind the model is improving the quality of life of people with mental
disorders. The cycle of poverty and illness sustaining each other is well documented. The model
seeks to break this cycle by addressing the issues that are part of the problem. So, people with
mental disorders are provided with the means to better manage and recover from their illness,
to pursue more sustainable livelihoods, and to feel increased acceptance in the community.
This approach ensures that the overall quality of life of people with mental disorders is improved
dramatically. Yet the work does not end there. Changes are also sought in society and the state
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The Model’s Impact
as a means of ensuring that the individual gains in quality of life achieved through specific
interventions can be replicated many times over benefiting whole populations.
Human Rights
“People visit this clinic and demand treatment and medication… they know that it is their
right to be treated. Challenges notwithstanding, we must continue to offer these services”.
(Kenya Programme, 2008)
People with mental disorders and who are living in poverty are often at the bottom of the pile.
They have been denied their human rights for too long. It is in direct response to this that the
BasicNeeds vision was born. A respect for and belief in human rights is therefore a fundamental
requirement for all those involved in the model, and is largely responsible for their motivation
and for driving its implementation forward. Everything that takes place within the model is
directly or indirectly working towards people with mental disorders achieving their human
rights, beginning with a basic level, but not ceasing until all their rights are met.
In some cases, there is a direct correlation between activities on the ground and the human
rights it is championing. For instance, an outcome of the sustainable livelihoods module is
that people have the right to work and to an education; community mental health supports
the right to an adequate standard of health and well-being; and capacity building strives for
people to participate, enjoy and be accepted by their community.
Other human rights are sought and achieved by the delivery of the programme as a whole;
the right to freedom of opinion and expression; the right to be free from cruel, inhuman or
degrading treatment; the right to life and liberty.
Addressing gender inequalities
“This time I brought our son for the quarterly review as I have decided to relieve my wife who
has been doing this all alone. It is time I also understood how things work here so that I can
be of help to her at home”. (Ghana Programme, 2008)
That the effects of mental disorders impacts differently on men and women is widely recognised.
Unequal power relations within a household can be, to some extent, neutralised when the person
with a mental disorder is a man and the woman assumes his responsibilities. However, women
more commonly experience disadvantage, with imbalances apparent in terms of the numbers
of men and women being diagnosed, accessing treatment and in care responsibilities.
Whilst it was never envisaged that the model would have gender inequalities as its primary
focus, all those working within a programme are aware of these issues and take active steps
to ensure that gender imbalances are addressed. The use of participatory methods helps to
redistribute power, and ensures that women have the opportunity to make their voices heard.
Women are targeted for leadership roles within a programme, which results in increasing the
self-esteem of the individual and demonstrates their capabilities to the wider community. The
traditional role of women as primary care-givers is questioned and men are actively encouraged
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Chapter 10
to share this responsibility. Women are supported in the livelihood choices that they make, the
outcome of returning to productive work is valued as much as paid employment. Many self-
help groups are established specifically for women, through which they gain new skills and
autonomy. As a whole, the activities within the model contribute towards improving the rights
and status of women.
Permanence of change
“Government of India has agreed to provide diagnostic and treatment facilities locally for
all people with severe mental disorders in the next 18 months”. (India Programme, 2008)
Most would agree that facilitating change at a superficial level is straightforward and, conversely,
that it is relatively easy for a situation to return to its original state. Therefore, enabling enduring,
lasting change is an essential factor behind the model.
The causes of many issues that affect people with mental disorders are deep-seated and their
roots reach out well beyond the boundaries of the individual into the sphere of politics and
economics and into the society in which an individual lives. To sustain change, it is not enough
to only treat a persons’ illness; rather the problems must be tackled at its roots. The model
does just that and the result is positive change in the community, in wider society and in
government, change in the negative beliefs and attitudes that are held, change in the poor,
inhumane practices that are implemented and the policies that maintain them.
Becoming visible
“Previously, when a mentally ill person raised his hand in a meeting, he could never be
appointed to express his view. But things have changed nowadays; whenever I raise my
hand, I am instantly appointed to express my views”. (Tanzania Programme, 2008)
A further motivation for the model is concerned with raising the profile of people with mental
disorders. The model was structured in such a way as to be able to support large numbers of
people. Of course this increases the efficiency and effectiveness of a programme but there is an
additional consequence; that is an increase in the visibility of people with mental disorders. The
issues that they face become more public, people are aware that they can and do recover.
However, visibility is not only brought about by sheer numbers. People with mental disorders
are encouraged to be active participants in this quest. From their involvement in a programme,
they gain the confidence to speak out, to advocate for their needs and rights and to join
together to strengthen their voice. A more subtle but just as effective means towards visibility
is their presence in family and community life. It is often enough just to be witnessed by others
in going about one’s day-to-day life or taking part in local events. Some go a step further and
play a significant role in their community, as a community worker or member of a local council
for instance. The resultant impact is that people with mental disorders are seen, they are heard
and they have taken another step towards being included.
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The Model’s Impact
Inclusiveness
“Those days the neighbours called him a lunatic and said that his sickness could not be
cured. Now he does not faint or fall like those days. Now the neighbours do not tease
him. They love him as he too helps them. Now people are aware that mental illness can
be cured and that mentally ill people are a useful set of people in society”. (Sri Lanka
Programme, 2008)
The inclusion of people with mental disorders can perhaps be seen as the ultimate achievement
of the model and the culmination of all that has gone before.
If, when a programme draws to a close, it can be said that people with mental disorders are
now included in development processes; that they are now included in family and community
life; that they are now included in livelihood opportunities; then at an individual level the
model will have succeeded. If their needs are taken into account when resources are allocated,
when policies are written, when strategies are developed; then the possibility of the sustained
inclusion for people with mental disorders becomes real.
73
List of BasicNeeds publications from which excerpts have been taken
74
Mental Health and Development in Sri Lanka: Changing Attitudes
and Practical Approaches to Social Integration, Evaluation Report
Nav Bharat Jagriti Kendra Visit Report, India
Pathirathne’s Life Story, Sri Lanka
Project Management Systems Newsletter 59
Project Management Systems Newsletter 61
Project Management Systems Newsletter 64
Process Document, Focus Group Meeting, India
Process Document: Participatory Review Meeting with
people with a mental Illness, carers and people suffering epilepsy
in Damongo and Larabanga, Ghana
The way I have recovered, BasicNeeds/Actionaid International India
2008 Ghana Programme Impact Self-Assessment Report
India Programme Impact Self-Assessment Report
Kenya Programme Impact Self-Assessment Report
Sri Lanka Programme Impact Self-Assessment Report
Tanzania Programme Impact Self-Assessment Report
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