The Effects of Support-Based Interventions for Adolescents Living with Type One Diabetes:
Abstract
Adolescents living with type 1 diabetes (T1D) are at an increased risk for poor glycemic control
due to developmental factors, mental health disorders associated with chronic disease, and
share evidence from current research surrounding adolescents living with T1D and the effects of
relationship, a SROL referencing 18 articles was conducted. Acceptable study designs included
literature reviews, evidence from qualitative and quantitative studies, clinical expertise, and
research reviews. Keywords were used to search scholarly databases including Cochrane
Academic Search Complete, and MEDLINE. This evidence-based review contributes to the
nurses may facilitate support-based interventions. Attendance at peer-based support groups and
skills-based interventions to acquire new knowledge and gain effective coping skills proves to
have a positive impact on diabetes self-management. Current research indicates that health care
for adolescents living with T1D must be holistic and individualized to meet the unique needs
specific to developmental stage. Nurses may advocate for mental health screening and encourage
attendance at peer-based support groups and other educational programs addressing transitions in
diabetic self-management. After review of the literature, there is evidence to show the
quantitative research would help explain the direct effects of skills-based interventions on
diabetes management.
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 3
The Effects of Support-based Interventions for Adolescents Living with Type One Diabetes:
academic demands, extracurricular activities, social pressure, family problems, and increasing
independence (Smith & Storch, 2011). For adolescents living with type one diabetes (T1D),
managing this serious, chronic condition adds to the pressure causing significant stress.
Healthcare providers are left with the task of bridging the gap between parental management of
control, daily blood sugar management, insulin administration, and self-advocacy are
cornerstones in helping adolescents living with T1D thrive in their self-management endeavors.
Effective chronic care management for adolescents and their families includes finding and
maintaining motivation (Christie, Romano, Thompson, Viner, & Hindmarsh, 2008). Research
shows that a supportive network incorporating shared peer experiences and skill-based
review of literature (SROL), the PICOT question guiding the population, intervention, and
outcome of interest is: Does diabetes self-management improve in adolescents diagnosed with
type one diabetes after participating in support-based interventions over a one year period?
Background Review
Adolescents are developing their sense of self, gaining independence, and working
towards widening their focus from prominent childhood tasks (friendships, academics,
extracurricular activities) to include the evolving tasks of adulthood (jobs, intimate relationships,
planning life goals) (Dovey-Pearce, Hurrell, May, Walker, and Doherty, 2005). More than 85%
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 4
of young people living with T1D are not achieving the recommended target glycosylated
hemoglobin A1c (HbA1c) (<7.5%), putting them at risk of developing long-term complications
(Kime, 2013). Equally important, this population is at increased risk of developing mental health
disorders including depression, anxiety, eating disorders, and substance abuse disorders
(Kakleas, Kandyla, Karayianni, & Karavanaki, 2009). Current research indicates that emotional
disorders are associated with poor glycemic control in adolescents, leading to frequent hospital
2009). Adolescents living with chronic disease experience social isolation secondary to increased
absence from school and other social activities (Lewis, Klineberg, Towns, Moore, & Steinbeck,
2016). As a result, adolescents living with T1D need additional support in managing their
chronic disease. Support systems are key in ensuring optimal functioning (Oris, et al., 2016).
control via regular blood glucose checks, insulin administration, dietary monitoring, and a
consistent exercise routine (Céspedes-Knadle & Muñoz, 2011). Diabetes management programs
are intensive and complex, making adherence especially difficult for adolescents as puberty
causes hormonal and metabolic changes that affect insulin sensitivity (Céspedes-Knadle &
Muñoz, 2011). Similarly, psychosocial changes and an increasing need for independence,
increased peer pressure, and a tendency to make poor lifestyle decisions makes a strong case for
nurses to advocate for supportive interventions for adolescents living with T1D (Céspedes-
interventions and effective diabetic management. This evidence-based review will contribute to
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 5
the understanding of the adolescent experience of transition to self-management of T1D and how
Purpose/Aim
The purpose of this SROL is to share evidence from current research surrounding
adolescents living with T1D and the effects of support-based interventions on diabetic self-
Nurses and other healthcare providers may identify strategies to facilitate support-based
Method
In order to conduct an unbiased and comprehensive search for this SROL, a PICOT
question was first developed as follows: Does diabetes self-management improve in adolescents
diagnosed with type one diabetes after participating in support-based interventions over a one
year period?
Keywords used to conduct the search included ‘support groups,’ ‘diabetes,’ ‘chronic
‘teenagers,’ and ‘young adults.’ The Boolean operator ‘or’ was used to combine keywords
‘adolescents,’ ‘teenagers,’ and ‘young adults’ in order to search for either of those descriptors of
age. These keywords were used to search several databases including Cochrane Database of
Search Complete, and MEDLINE. Reference lists from key published articles were hand
Literature was reviewed and refined by searching for common themes. In addition to
Association (ADA) and Diabetes Pro (Professionals Resources Online by the ADA) were
searched using the same keywords for additional information on adolescent-specific self-
management research. Literature search yielded several primary qualitative articles and
Randomized control trials were sought out initially, but limited experimental studies have
been conducted in this topic area. Due to the nature of the PICOT question, acceptable study
designs were broadened to literature reviews of qualitative studies, evidence from qualitative and
other quantitative studies, clinical expertise, and research review (Melynk & Fineout-Overholt,
2015). Initial publication date criteria was set for five years. Articles not published or updated
within the last 5 years were still included due to limited research and the applicability to the
proposed PICOT question. Literature published within ten years was considered acceptable, with
one qualitative study published eleven years ago. Published works in English were exclusively
accepted.
Demographic characteristics for the population included any gender, race, and
educational status. Key words ‘adolescents,’ ‘teenagers,’ and ‘young adults’ were searched as
they all may describe the period of transition from childhood to adulthood. For the purposes of
this literature review, the term ‘adolescents’ is selected to describe the targeted population.
Adolescence was defined by various ages according to authors. In this SROL, adolescence may
be defined as a child aged 11 to 19 years of age based on the average ages presented in the
literature (Dovey-Pearce, et al., 2005). Literature describing young adults as children aged 16 to
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 7
25 is also included in this review (Dovey-Pearce, et al., 2005). Literature addressing T1D was
exclusively included. Any literature addressing type two diabetes and prediabetes was excluded.
of T1D, and the acquisition of new skills to cope with and manage chronic illness. Outcomes of
Using the search strategy outlined above, initial results generated 833 potential sources.
After screening potential sources using inclusion and exclusion criteria, 769 sources were
eliminated. The remaining 65 records were screened, 25 full-text articles were assessed for
eligibility, and as a final product, eight qualitative evidence articles and four quantitative
evidence articles were included. There are 18 cited references to include the above-mentioned
qualitative and quantitative evidence, literature reviews, clinical expertise articles, informational
texts, and research reviews. (See Appendix A for the identification, screening, eligibility, and
inclusion summary).
Research in this SROL included levels II, III, and V. Level II evidence included
quantitative studies (quasi-experimental and proof of concept), level III evidence included
quantitative research studies and literature reviews, and level V evidence include clinical
expertise, and research review. No level I or IV evidence was included. The majority of findings
are rated as high or good quality according to the research and non-research evidence appraisal
tools by John Hopkins Hospital and University (Dearholt & Dang, 2012). Most of the research
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 8
may be considered high or good quality due to professional sponsorship, thorough systematic
search strategy, consistency, clear conclusions, evaluation of strengths and limitations of studies,
and recent publication within the last 5 years (Dearholt & Dang, 2012).
Results
Literature review of level II, III, and V evidence of good or high quality yielded two
support-based interventions. These themes include the (1) participation in peer-based support
groups and (2) skills-based supportive interventions to facilitate successful transition in self-
management, including the acquisition of effective coping skills (See Appendices G and H for
Céspedes-Knadle and Muñoz (2011) identify that peer-based group interventions yield
positive outcomes in achieving effective diabetes management. Support groups that address
patient education, health-promoting behaviors, and medical adherence are associated with
improved glycemic control (Céspedes-Knadle & Muñoz, 2011). Peer-based support groups offer
adolescents the unique opportunity to join with peers who are going through similar life changes,
but who also understand the challenges of managing T1D on a daily basis. Support groups help
adolescents understand that they are not alone (Lewis, et al., 2016). Additionally, parents find
peer-based support groups to helpful in addressing both short and long-term concerns and a way
According to Christie and colleagues, support groups are attractive to adolescents living
with chronic illness as they often have limited opportunity to converse with peers who
management (Christie, et al., 2008). Researchers have conducted qualitative studies on the
content of peer support groups and discussion topics including fears, difficulties, and daily life
have proven to be beneficial (Konradsdottir, & Svavarsdottir, 2011). Few quantitative studies
have associated support group participation with improved HbA1c and an increase in self-care
gaining confidence, social opportunity, convenient service, positive experience, and freedom of
expression (Christie, et al., 2008). Lewis and colleagues found that attendance at support groups
(Lewis, et al., 2016). Barriers to support group attendance include willingness to attend,
scheduling conflicts, school demands, and the belief that good management already exist so
adolescents with chronic conditions from child-centered to adult-focused health care systems.
The process should be responsive to individualized needs and must be participatory, flexible, and
supportive (Kime, 2013). Current research shows that transitional care is inadequate and focused
on service transfer, rather than the holistic needs of the individual (Kime, 2013).
significant life event that creates permanent change on life and diabetic self-management
perspective (Rasmussen, Ward, Jenkins, King, & Dunning, 2011). These life changes including
entering new relationships, the workforce, relocating, and progressing through the educational
system are considered stressful with the potential to negatively affect glycemic control
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 10
(Rasmussen, et al., 2011). In order to offset these external stressors caused by the developmental
knowledge acquisition to be helpful (Sansom-Daly, Wakefield, Peate, & Bryant, 2012). Life
transitions are more manageable when adolescents have control of their diabetes and feel
motivated to set goals and plan for self-management (Rasmussen, et al., 2011).
Learning how to navigate the developmental stage of adolescence causes its own set of
emotional upheaval, but when paired with figuring out how to self-manage a chronic disease,
mental health and the acquisition of effective coping skills must be addressed. Adams (2012)
describes “the desire to fit in and be normal may cause adolescents to become erratic with their
blood glucose monitoring or insulin administration, causing poor, inconsistent blood glucose
levels” (p. 20). Adolescent students experience significant stressors due to the restrictive
demands of diabetes management in addition to major life stressors of adolescence that can
include divorce, family issues, academic struggles, and bullying (Smith & Storch, 2011).
Depression and other mental health disorders are associated with poor glycemic control, which
may lead to a lack of compliance with diet, exercise, and medication management (Kakleas, et
al., 2009). Similarly, apathy and a lack of self-care, which is commonly witnessed alongside
depression and anxiety disorders, leads to poor lifestyle habits that negatively impact effective
Céspedes-Knadle and Muñoz (2011) state that adolescents perceive themselves as more
knowledgeable and autonomous than their parents perceive them to be. Such differences in
perception are linked with poor diabetes outcomes for adolescents and poor emotional
adjustment for parents (Céspedes-Knadle & Muñoz, 2011). With this in mind, self-management
programs designed to address the unique balance between parental control and adolescent
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 11
independence are ideal. Additionally, studies show that independent decision-making about daily
diabetes management is positively correlated with metabolic control and that parental support
that is not needed may hinder the development towards adolescent independence in decision-
making and self-management (Viklund & Wikblad, 2009). One key tool is a diabetes-specific
transition curriculum that outlines the essentials of diabetes self-management to include topics
such as, ‘managing your own health care,’ ‘roommates/ living alone,’ ‘meal planning,’ ‘coping
skills,’ ‘hypoglycemia,’ ‘social risk-taking,’ ‘sick days,’ and ‘changing diabetes care teams”
(Jameson, 2011).
Current research tells us that health care for adolescents living with T1D must be holistic
and individualized to meet the unique needs of their developmental stage. Key issues to address
when creating services for adolescents include staff consistency, civility, age-specific
needs (Dovey-Pearce, et al., 2005). Nurses and other healthcare providers may model healthy
relationships, facilitate the acquisition of new skills, identify barriers and strategize ways to
overcome obstacles in order for the adolescent to become a full participant in their care (Dovey-
Pearce, et al., 2005). Nurses may encourage attendance at peer-based support groups and
It is important for nurses to understand the emotional, social, and cognitive factors that
are going on during transitions to assist adolescents living with T1D in achieving positive health
outcomes through making individualized goals and providing flexible and sensitive treatment
(Rasmussen, et al., 2011). Nurses may advocate for regular assessment of mental health
disorders and referral to psychiatric services as needed (Kakleas, et al., 2009). Moreover, nurses
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 12
can nurture the changing relationships between parents and adolescents during times of transition
by setting realistic goals for diabetic control and encouraging adolescent independence while
in peer-based support groups and to more adequately quantify the impact of peer-based support
further quantitative research would help explain the effects of structured skills-based
interventions on effective diabetes management. Specific directives for new research should
include the direct relationship between support-based interventions and the lowering of HbA1c
levels, incidence of mental health issues, effective coping skills, dietary control, exercise
living with T1D, there is evidence to show the relationship between adolescent support and
development needs. This includes chronic disease management education, skills-based training,
social support networks, and mental health monitoring. Nurses must continue to advocate for the
individualized needs within the adolescent population and work with primary care providers and
References
Adams, J. (2012). Life experience for an adolescent with type 1 diabetes: nursing strategies to
Teens With Type 1 Diabetes. Journal For Specialists In Group Work, 36(4), 278-295.
doi:10.1080/01933922.2011.613898
Christie, D., Romano, G., Thompson, R., Viner, R., & Hindmarsh, P. (2008). Attitudes to
Dearholt, S., Dang, D. (2012). Johns Hopkins Nursing Evidence-based Practice: Models and
Dovey-Pearce, G., Hurrell, R., May, C., Walker, C., & Doherty, Y. (2005). Young adults' (16-
qualitative study. Health & Social Care In The Community, 13(5), 409-419.
Jameson, P. L. (2011). Adolescent transition: Challenges and resources for the diabetes team.
Kakleas, K., Kandyla, B., Karayianni, C., & Karavanaki, K. (2009). Psychosocial problems in
adolescents with type 1 diabetes mellitus. Diabetes & Metabolism, 35(5), 339-350.
doi:10.1016/j.diabet.2009.05.002
Kime, N. (2013). Young people with type 1 diabetes and their transition to adult services. British
Konradsdottir, E., & Svavarsdottir, E. K. (2011). How effective is a short-term educational and
support intervention for families of an adolescent with type 1 diabetes?. Journal For
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 14
Lewis, P., Klineberg, E., Towns, S., Moore, K., & Steinbeck, K. (2016). The Effects of
Introducing Peer Support to Young People with a Chronic Illness. Journal Of Child &
Markowitz, J. T., & Laffel, L. B. (2012). Transitions in care: support group for young adults with
Melnyk, B., & Fineout-Overholt, E. (2015). Evidence-Based Practice in Nursing & Healthcare:
Oris, L., Seiffge-Krenke, I., Moons, P., Goubert, L., Rassart, J., Goossens, E., & Luyckx, K.
(2016). Parental and peer support in adolescents with a chronic condition: a typological
119. doi:10.1007/s10865-015-9680-z
Park, P. H., Wambui, C. K., Atieno, S., Egger, J. R., Misoi, L., Nyabundi, J. S., Pastakia, S.
Rasmussen, B., Ward, G., Jenkins, A., King, S. J., & Dunning, T. (2011). Young adults'
Sansom-Daly, U. M., Wakefield, C. E., Peate, M., & Bryant, R. A. (2012). A Systematic Review
of Psychological Interventions for Adolescents and Young Adults Living With Chronic
Smith, L. B., & Storch, E. A. (2011). Stress, coping, and diabetes support groups. National
Viklund, G., & Wikblad, K. (2009). Teenagers' perceptions of factors affecting decision-making
3262-3270. doi:10.1111/j.1365-2702.2009.02963.x
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 16
Appendix A
Data Extraction Summary
Full-text articles
Full-text articles
assessed for eligibility
excluded, with reasons
Eligibility
(n = 25)
(n = 7)
Studies included in
qualitative synthesis
(n = 8)
Included
Studies included in
quantitative synthesis
(meta-analysis)
(n=2)
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 17
Appendix G
Individual Evidence Summary Tool
Article Author Evidence Sample, Sample Study findings that help Limitations Evidence
Number and Date Type Size, and Setting answer the EBP question Level and
Quality
1 Adams, 2012 Clinical N/A Describes nurse role in None identified. Level V
Expertise supporting adolescent self- B
management of T1D
2 Céspedes- Qualitative Discussion of The Teen Power intervention Data on the effects of Level III
Knadle & implementation of offered specific activities and the curriculum on B
Muñoz, 2011 support group workshops, as well as an HbA1c levels,
curriculum designed opportunity to learn from depression, and
for adolescents their peers. It supported caregiver stress have
living with T1D social networking. not yet been collected
at the time of
publication.
3 Christie, et al., Qualitative 64 parents of Parents agree that peer Only asked parents Level III
2008 children living with support groups would help their preferences, B
T1D interviewed via their child living with T1D which can be quite
phone gain confidence and different from what
knowledge. Groups would children would want.
give children the chance to
feel connected to others.
4 Dovey-Pearce, Qualitative 23 adolescent Adolescents expressed the None identified. Level III
et al., 2005 diabetics aged 16-25 need for support in relation B
diagnosed within six to health, emotional, social,
months interviewed and developmental needs due
via surveys to their developmental stage.
5 Jameson, 2011 Clinical N/A Strategies to assist None identified. Level V
Expertise adolescents in making the B
transition to self-
management.
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 18
6 Kakleas, et al., Literature N/A Mental health disorders are None identified. Level III
2009 Review common in adolescents with A
T1D and show difficulty
coping with their disease.
Poor glycemic control is
common in adolescents as
they become increasingly
independent. They are often
referred to mental health
services, including therapy.
7 Kime, 2013 Research 300 participants in a The transition to Does not specifically Level V
Review three-year multi-site independence in self-care for address support B
research study adolescents affects the ability groups. Suggests the
to achieve the recommended need for more support
target HbA1c. A supportive, during transitional
multidisciplinary approach care and the use of a
will ensure adequate support. community nurse.
8 Konradsdottir, Quasi- 23 families A piloted support group for Small sample size Level II
& experimental completed mailed adolescents gave them a that focused on B
Svavarsdottir, (Quantitative) questionnaire twice chance to give one another differences in coping
2011 in a six month support and reflect of their between mothers and
period shared experiences. fathers, not students.
9 Lewis, et al., Qualitative 14 members of a Students who participated in Small sample size. Level III
2016 hospital-based peer support group program Participation in a B
support program described an increasing sense support group is
completed of independence, self- dependent on student
questionnaires confidence, and resilience. willingness and
The group provided a social parent availability.
connection. Short time
measurement yielded
little change in
evaluation tool
responses.
10 Markowitz & Qualitative 15 young adults Participation in support Small sample size. Level III
Laffel, 2012 aged 18-30 group associated with B
SUPPORT-BASED INTERVENTIONS FOR ADOLESCENT DIABETICS 19
Appendix H
Synthesis and Recommendations Tool
Total Overall
Synthesis of Findings
Category (Level Type) Number of Quality
Evidence that Answers the EBP Question
Sources/Level Rating
Level I
-Experimental study
-Randomized Controlled Trial (RCT) 0 - N/A
-Systematic review of RCTs with or without meta-analysis
Level II HbA1c levels improved after participating in peer-led
-Quasi-experimental studies
-Systematic review of a combination of RCTs and quasi- support group. Adolescents view supportive
2 A/B
experimental studies, or quasi experimental studies only, interventions with peers to be helpful in T1D self-
with or without meta-analysis management.
Level III There is a unique relationship between parents and
-Non-experimental study
-Systematic review of a combination of RCTs, quasi- adolescents during times of transition. Mental health
experimental, and non-experimental studies only, with or disorders are common in adolescents living with T1D.
with-out meta-analysis Adolescents show difficulty coping with disease and
-Qualitative study or systematic review of qualitative studies 10 B
with or without meta-analysis need supportive interventions for mental health.
Participation is support-based interventions encourage
adolescents to be more independence and confident in
their self-management.
Level IV
-Opinion of respected authorities and/or reports of
nationally recognized expert committees/consensus panels 0 - N/A
based on scientific evidence