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For the Osbourne Family
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FAMILY INTRODUCTION
The Osbourne’s are a family of three. Ozzy and Sharon are the parents to a son
named Jack. Jack is a five year old boy who loves to ride his bike. He is a happy child
who really enjoys spending time with his family and friends. The Osbourne’s are
Scientologists and have a strong Irish background. Their family moved from Ireland to
Los Angeles, California three months after Jack was diagnosed.Ozzy had been
traveling back and forth from Ireland to California to work with his band that he started
right before Jack was born. He has a love for music and his family has supported his
passion. It hasn’t been the most financially stable for the family but they have been
comfortable for their little family. With the diagnosis, they decided it was just time to
leave Ireland and move to the big city so they could get all the help possible for little
Jack. Sharon has always stood behind her husband. She enjoys spending time with her
husband and taking care of their son. In her down time, she usually reads a book or
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tries to see how things with the band are going. As Jack has gone through his trials, it
When Jack was 5, he fell off of this bike and broke his leg. He was in a cast for 6
weeks before it was removed. Once it was removed, he refused to use that leg to walk.
Any attempts to make him walk, would result in frustration for anyone involved and him
screaming. Doctors do not seem to have answers for why he is not walking and just told
the family that it will take time to build back his muscles. After a month, he was finally
walking again however, he then started showing a more “waddling gait” while he
walked. After seeing a specialist, they had blood drawn, genetic tests ran, and a muscle
biopsy done. This resulted in finding out that Jack has Duchenne Muscular Dystrophy.
FAMILY STRENGTHS
The Osbourne’s are a strong family unit. They are very open with each other and
have a strong family bond. They try to keep their ties strong with their Irish culture and
their religion of Scientology. They also have a great team of doctors in their city to help
guide them and find the help they need. Even though they are farther away, they still
keep strong family bonds with their extended family for support and guidance.
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INFORMATIONAL SUPPORT
Family Concern/Priority: The family needs financial assistance due to the toll
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Jack’s unexpected condition has had on them. They need to be able to find programs
that can help to give them the financial support for the things that they stand in need of.
Current Resource/Information: The family knows there are financial aid programs
available to families with a child with a disability. The family wants to know what
Outcome: The hoped outcome is to be able to receive the funds that the family will
need to be able to pay for the expenses that they see adding up. The family will need
Suggested Action:
· Resource Type and Name: Federal, Social Security’s Children Insurance Benefits
(1-800-772-1213)
and paying taxes. The children must be disabled to receive these benefits.
· Policy Information:You will need the child’s birth certificate, and the parent’s and
child’s social security numbers. Hours of operation are on weekdays 7AM-7PM and they
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· Applications/Forms:https://www.ssa.gov/forms/ssa-3820.pdf
Rationale: Ozzy and Sharon need some financial help with paying for the doctor visits
and other resources. This program will allow them to gain some financial help to get the
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Family Concern/Priority: The Osbournes want more information on where Jack
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can be treated. They have just recently moved and are not familiar with this area and
the resources at this time. They want reliable doctors who specialize in children.
Current Resource/Information: They are concerned about all the different hospitals
that can treat Jack and which one has the best resources for their son.
Outcome: The family will have a broader knowledge of what the hospital has to offer for
Suggested Action:
· Contact Information: 4650 Sunset Blvd. Los Angeles, CA 90027, (888) 631-2452,
https://www.chla.org/request-appointment
diseases is key in helping them experience a better quality of life and longer survival.
specialized, comprehensive care plan for each child's unique needs. They see the child
together, then discuss each patient in a meeting and develop their recommendations as
a group.
● Neurologists
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● Pulmonologists
● Cardiologists
● Medical geneticists
● Orthopaedic surgeons
● Social workers
● Dietitians
A health care service coordinator from the MDA also is available on-site at the clinic to
help families learn about and access MDA's resources, including support groups and
summer camps.
and “pre-authorizations.” If your family's plan requires this, you will need to make sure
that authorizations or referrals are taken care of before you receive services at
your insurance company. If your insurance company needs a referral and/or prior
with us.
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● This process will be different depending on the type of health insurance coverage
Due to the complex nature of pediatric specialty care, our experts often request that
first-time visits. Our staff will confirm the items you will need to bring to your visit with
you when you schedule your appointment. Examples of things you may be asked to
bring include:
● X-ray films
● Lab results
· ee next page
Pamphlets/Handouts: S
Rationale: Ozzy and Sharon need information about Jack’s condition. The Children’s
Hospital Los Angeles has a neuromuscular department with specialists that can provide
information and support to the Osbourne family. Within this department, they will have
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FORMAL SUPPORT
1st Family Concern/Priority: The family knows that Jack’s situation can be helped with
physical therapy. They hope to be able to find a good physical therapist to be able to
know that physical therapy is normally used to strengthen them. They are aware that
there are several physical therapists in their area, but their hope is to be able to find the
best one.
Outcome: T
he outcome of this is to help Jack to be able to be more mobile on his own.
The family also wants Jack to keep as much muscle mass as possible even though they
Suggested Action:
Therapy
achieving excellence in facilities and technology with the ultimate goal of enhancing the
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health of our community.Rehabilitation Services provides comprehensive care, whole
· Applications/Forms: N/A
https://stfrancis.verity.org/our-services/rehabilitation-services/
hrough the use of a physical therapist, Jack will be able to regain some of
Rationale: T
the strength that he has lost because of his disability. The goal of physical therapy will
be to hopefully help Jack to become more mobile as he goes about his everyday life.
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2nd Family Concern/Priority: The family also wants an occupational therapist to help
Jack feel fulfilled and satisfied with his progress in life. They want someone to help
coach him in his daily activities to achieve the highest level of independence possible.
Current Resource/Information: They know this can be hard for a young child who
doesn’t understand his condition. They want him to feel like he’s progressing and
making accomplishments.
Outcome: J ack will feel like he can still be independent and will also have a sense of
accomplishment with all of his daily activities. He may be young, but the family still
Suggested Action:
Phone: 562-698-6600
support engagement in everyday life activities that support health, well-being, and
that develop the individual's fine motor skills, visual-perceptual readiness, cognitive
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· Policy Information: Hours: M-F 8:00 AM - 5:00 PM. Patient must live in East Los
Angeles, South Central, West Los Angeles, San Gabriel or Pomona region. Reduced
· Applications/Forms:
https://www.achievebeyondusa.com/index.php/component/rsform/form/3-refer-a-child-a
chieve-beyond-pediatric-therapy-autism-services
Rationale: Through Occupational therapy, Jack will be able to work on life skills and
work on gaining his confidence. He will learn to keep his independence as long as
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INFORMAL SUPPORT
something that will help Jack, and the rest of his family to feel more comfort at this time
Outcome: T
he family is hoping to heal themselves spiritually by healing the mind and
not focusing on the body. They believe that Man is far more than a product of his
Suggested Action:
Angeles
· Program information: The church's belief is that we have to heal spiritually. They
have programs for each aspect of the spiritual body and can set up sessions to attend
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· Policy Information: Appointments can be made mon-sun from 9am-10pm. Price
not available.
· Applications/Forms: http://www.scientology-losangeles.org/beginning-services/
Rationale: With the religious beliefs of the family, they require for Jack to heal spiritually
along with healing physically. They need a Scientologist to help guide the spirit into
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2nd Family Concern/Priority: The Osbourne’s want to meet with a counselor to discuss
their own feelings and how to go about speaking with their extended family. They are
concerned how others will react but have always had strong family bonds and want to
Osbourne’s know that the family will help to give them support when needed.
e hope that when the Osborne’s tell their families about Jack’s Duchenne
Outcome: W
Muscular Dystrophy that they will provide whatever support they can for Jack and his
family. The family hopes that their extended families will approach this in an open
system way. They are wanting to see a counselor to help with the emotions and any
Suggested Action:
Phone: 323-232-7653
use proven methods to attend to each child’s unique needs and when indicated, this
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program will provide counseling and wraparound services for the whole family. Through
individual, family and group sessions, this program provide youth and parents with the
while promoting growth and acquisition of new coping and life skills.
· Policy Information: This program covers residents of the following counties: Los
This program helps people who are 8 to 21 years old. This program is free, and their
· Applications/Forms:
https://apch.org/wp-content/uploads/APCH-Membership-Application.pdf
https://apch.org/wp-content/uploads/APCH-Membership-Application.pdf
his program will provide the family with the support they need. This
Rationale: T
counselor will hopefully be a safe place for the whole family to let out their feelings, and
they will be able to communicate with each other and give their opinions of what the
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MATERIAL SUPPORT
1st Family Concern/Priority: Since Sharon dislocated her shoulder, the family is in
need of a way to help lift Jack when Ozzy is away. A mechanical lift would help assist
Sharon to lift Jack by doing the lifting for her. This is going to help as Jack gets bigger,
restriction. She knows there are lifts out there that can help her lift him.
Outcome: T
he outcome for this is to make Jack more mobile. It is also going to help
Sharon as she gets older, because she may lose her strength to be able to lift Jack.
This will make transitions much easier for the whole family.
Suggested Action:
· Program information: The Mac’s Vertical Home Lift PL-50 is designed and
engineered for everyday home use. It is easy to operate, easy to install and virtually
maintenance free. Every safety detail has been carefully designed in the Mac’s Vertical
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Home Lift including a non-slip platform, constant pressure switches, a low platform for
easy access, safety ramp and railing with all rolled edges.
· Applications/Forms: http://macshomelift.com/macs-pl-50/
Rationale: J ack will need a lift to help with transfers. With Sharon’s accident, she is
unable to lift him and Ozzy isn’t always home to life Jack when he needs to be lifted.
The lift will assist Sharon in getting him to and from his wheelchair, bed, and to other
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2nd Family Concern/Priority: J ack is in a need of wheelchair for the hours that he is at
school. The family will need to find someone who will be able to make adjustments to
Current Resource/Information: O
zzy and Sharon have a wheelchair. They just need
to know who is going to be the best resource to adjust the wheelchair as Jack continues
to grow.
Outcome: T
he outcome is going to be that adjustments of the wheelchair happen as
Jack grows older. The family is hoping that they will be able to find someone who is
available when they need them as Jack grows bigger and can no longer fit in his
wheelchair.
Suggested Action:
Phone: 800-572-1717
· Program information: This program is designed for people of all ages who have
muscular dystrophy. This service is free and is there to help those with disorders related
· Policy Information: They are open M-F 8:00AM-5:00PM. This is a free service
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· Applications/Forms: https://www.mda.org/services/equipment-assistance
Rationale: I have included this resource because Jack will need a wheelchair as his
disease becomes more aware. The school is already requesting one and he is
becoming more and more dependent on those around him. This resource will give him
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Please check one and sign below:
I agree to the above stated plan with the following changes (see attached
addendum sheet)
I do not agree to the above stated plan and refuse all services and
supports
signature Date
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Family Life Cycle
Duchenne muscular dystrophy early in life. A child with MD will eventually need a wheelchair
because of weak leg muscles. Parents and caregivers might find that children, teens, and young
adults willingly accept devices and technologies that allow them to get around by themselves.
Other beneficial options include: physical therapy, medicines including deflazacort, and
psychological and nutritional counseling. Braces and splints may support and protect muscles.
Special devices can help a child sit, stand, or lie down. Surgery may also be needed to fix
scoliosis or other related problems. As your son’s muscles weaken, he may have difficulty
moving or turning over at night, and he’ll need help to sleep comfortably. Physical therapists can
recommend certain beds or mattresses to improve comfort and decrease the need for help during
sleep times. Keep in mind that restlessness or early morning headaches may be early signs of
especially as children get older. Look for signs of breathing problems and discuss any concerns
years of age, most people with Duchenne are unable to walk and need to use a power wheelchair
on a regular basis. Immobility and weak abdominal muscles in young men with MD may result
in constipation. A diet high in fluid fiber, fresh fruits, and vegetables can improve digestion.
Weakness in the arms can make activities of daily living more difficult. Most teens, however, are
able to use of their arms and fingers through this phase, so they can generally still write and use a
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computer. You can help your child by encouraging him to play an active role in his own care,
and even leaving the room for a few minutes at each visit so he can speak to his providers on his
own. Stretch your child’s muscles and joints at least 4 to 6 times a week. Contractures (joints
becoming locked in one position) are a common problem at this stage. It is important to try to
minimize tightness in the shoulders, elbows, wrists and fingers. Ask your doctor and physical
therapist about helpful stretches, ways to keep your son standing as long as possible, and about
using orthoses. Heart problems may begin during this phase, even though no there are no
symptoms. Children may have more trouble with headaches, mental lapses, or difficulty
concentrating or trouble staying awake during the day due to breathing difficulties. These may
Launching Children
Adults with Duchenne have more trouble using their hands and maintaining good posture.
Weakness continues during the adult phase. However, many young adults with Duchenne can
maintain some function of their fingers well into the adult stage. It is important to plan for an
adult life that maintains as many elements of independence as possible, within a supportive care
environment. Adults transition from pediatric to adult care during the adult stage. This transition
should be a planned out, multi-year process. They should play an active role in their own care.
Regular heart screening is very important. Many people with Duchenne develop diaphragm
weakness at this stage and have difficulty taking deep breaths. Adults may also have trouble
coughing. Adults typically want to be more independent but feel frustrated because they require
more care and assistance from others, such as parents. Adults with Duchenne may also be
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anxious about their health status. As muscle weakness progresses, people with Duchenne are at
with their heart and lungs. In the last phase of Duchenne, there is usually increased difficulty in
breathing. Life-threatening heart and lung conditions are more likely. Regular heart and lung
monitoring is required, medications are often necessary, and breathing support may be needed.
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