London Marathon –
turning loss into an
Pulse
inspiring achievement
20
To boldly go!
Conquering Everest
for Heart Research UK
28
10 questions with…
Mark Bonnar
Heart of
Scotland
Appeal
Find out how we’re
taking on
Scotland’s biggest
killer
Page 14
In this issue:
04 Our research grant
announcements
hello
to share with you.
All the news and stories from our
In this issue, you’ll find out about some
of the amazing people that have been
range of fantastic corporate partners
involved with Heart Research UK over
the last few months – from our wonderful
office volunteers to our supporters
climbing Everest and running marathons,
and the ground-breaking researchers
continuing our pioneering research into
the prevention, treatment and cure of
heart disease.
Kate
02 03
Leading
£248,436
£148,865
£149,992
£144,148
the way
NET Grant NET Grant Regional Scotland Grant Trustee’s Discretionary Grant
Using wave intensity A new technology for New methods to detect A heart disease registry
We recently awarded more than analysis to benefit implanted electrical heart heart failure ‘before it for Northern Ireland
£392,500 for Novel and Emerging patients with advanced pumps in the treatment of happens’ and develop
Technologies (NET) Grants, which give heart failure heart failure strategies to prevent it
researchers the opportunity to develop
new and innovative technologies to
Dr Sern Lim Prof Omar Escalona Dr Pierpaolo Pellicori Dr Anna Gavin
diagnose, treat and prevent heart Queen Elizabeth Hospital Ulster University Queen Elizabeth University Queen’s University Belfast
disease. We have also awarded another Birmingham 24 months Hospital and University of 24 months
24 months Glasgow
special regional grant of £148,865 for The problem 36 months The problem
Scotland and a Trustees’ Discretionary The problem Heart failure is an important and Accurate information on heart
Left ventricular assist devices growing problem. Left ventricular The problem disease in the population can help
Grant of £149,992 to Ulster University (LVADs) are heart pumps that assist devices (LVADs) are Most people with heart failure are to improve the care of patients
to establish a heart disease database support a weak and failing left side mechanical pumps which support so ill when they first see a doctor through research. However, we
of the heart. However, the right a failing heart, and improve survival that they need to be admitted have less information on heart
for Northern Ireland. side of the heart must work well and quality of life in patients with to hospital. The opportunity to disease in Northern Ireland than
for LVADs to work successfully. advanced heart failure. However, intervene may have been missed about cancer.
To find out more about all of our grants, Current techniques to assess the electric power is supplied by the time symptoms, such as
The project
the right side of the heart are to LVADs via a driveline cable breathlessness and ankle swelling,
click here. inadequate which means it is through the skin which leads to appear. The aim is to establish a list of
difficult for doctors to select a high incidence of infection. all heart disease diagnosed in
patients who would do well with an The project Northern Ireland since 2008 to
The project As the heart fails, patients are accurately measure the burden
LVAD, or diagnose and treat right-
The infection problem has affected by fluid retention, called of heart disease. This will be linked
side heart failure.
prompted the development of congestion. This project will look with the Northern Ireland cancer
The project wireless power transmission at how many people at risk of and stroke registries to support
This project will include 20 patients solutions for LVADs. However, heart failure have congestion, and cross-disciplinary research.
with heart failure who are being the implanted coil of these investigate which simple tests can Dr Gavin’s team has been carrying
assessed for heart transplantation wireless systems causes heating detect congestion and predict out some of the preparatory work
or an LVAD. Dr Lim and his in the tissues, leading to local patient outcomes. and they are awaiting the support
team will investigate whether a skin and tissue damage. (non-financial) of the Public Health
technique called ‘wave intensity Professor Escalona and his They will also see how many new Agency before the project can
analysis’ can be used to assess the team are developing a new cases of heart failure occurred begin.
right side of the heart. wireless system which transmits in the last decade in the West of
pulses of energy which means Scotland, and which risk factors The benefits
The benefits that the tissues can cool and events, such as heart attacks, The registry will help scientists and
Better assessment of the right side down between pulses. precede and predict it. doctors examine trends in disease
of the heart would benefit patients levels, the effects of prevention and
with a range of heart diseases and The benefits The benefits treatments and links between heart
be particularly useful in selecting If successful, this will improve The aim is to measure the disease, stroke and cancer. In the
those suitable for a mechanical clinical outcomes and quality incidence of congestion in patients longer term, the aim is to improve
heart pump, or for diagnosing and of life for heart failure patients. at risk of heart failure and develop patient care and outcomes.
treating right heart failure. Also, it may accelerate a more ways to detect it in the early stages
widespread use of LVADs in the before symptoms develop.
04 treatment of heart failure. 05
Educating
We are pleased to announce that we are
planning the following Masterclasses:
the experts
Cardiovascular Magnetic Resonance
for Coronary Heart Disease
Date: 1970: Married
of tomorrow the love of
7 – 8 November 2019
Location:
his life
Leeds Teaching Hospitals NHS Trust
Course Director:
Our unique Masterclasses give surgeons,
Professor John Greenwood,
doctors, nurses, physiotherapists and other
health professionals the opportunity to gain new
skills, knowledge and hands-on experience from
University of Leeds and Leeds
Teaching Hospitals NHS Trust 1999: Travelled
leading experts in the field so that more heart
patients from across the UK can benefit.
Surgery for Acute Aortic Dissection
Date:
the world
22 November 2019
Location: 2050: Helped
defeat heart
Keele University
Course Director:
disease forever
Miss Deborah Harrington, Liverpool Heart
and Chest Hospital NHS Foundation Trust
Barbara Harpham
breakthrough. We paid for six of
What are you most proud of longer lives – not only through
the first eight successful UK heart
during your time here? research but through their lifestyles.
transplants in the 70’s and it would
Building up a portfolio of what we be great if Heart Research UK I would love Heart Research UK to
spend our money on that you can could finish that work. be known as THE heart charity
truly say benefits patients as soon
You’re not leaving Heart Research What will you miss most?
as possible; moving from research
UK altogether. Can you explain
that was sometimes basic science That no two days are the same.
what your new role will be?
to having grants that translate I’ve met some wonderful people
research into patient benefits. I am going to be the Head of the who have helped me a lot that
Heart Academy, a unique online I will really miss. The number of
Also, the exercise prescription
portal for training and education people who have got in touch
toolkits for congenital heart disease
for all ages, from children in the when they heard I was retiring and
(CHD) patients that we developed
classroom to clinicians in hospitals, the lovely messages have been
have revolutionised the way
to patients who want practical, overwhelming.
children with CHD live their lives. It
down-to-earth advice.
gives them the chance I’ll also miss all the people I’ve
to live a healthier life with the It’s a really exciting project, using worked with, inside and outside of
comfort that they actually have a cutting edge tech like virtual reality, the charity, along with the sheer
prescription to exercise, giving them 360° video and gaming technology interest I have in everything that
the permission to tell other people to make it easy and enjoyable for we do, I really have had a lovely job
5 July 2019 marked Barbara that they can still live active lives anyone to learn new information. and I want to say a huge thank you
and the confidence to be active like to everybody that has been a part
Harpham’s final day as
everyone else. of it over the last 15 years.
Chief Executive of Heart
Research UK, 5,725 days I am proud that we fundraise
aft er she took the reins. ethically. Heart Research UK has
never and will never knock on your
door, stop you in the street or ring
We sat down for a quick you to ask for donations unless we
catch up to find out how have your permission. We like a
Heart Research UK has personal approach, so if we want to
changed, what her contact you we do it ourselves, and
highlights have been and certainly don’t pay anyone to do it.
We treat people how we would like
what the future holds. to be treated ourselves, and we’re
proud to do so.
People also can see where we
How long have you been at What has changed during your most of its money in Yorkshire. spend what they give us, ideally
Heart Research UK? time at the charity? Now, we run large scale national as near as possible to where it was
fundraising campaigns as well as raised.
My first day was 1 November 2003, The size of the charity and the
local fundraising which means What are you hoping the next big
so almost 16 years. breadth of work that it does has
we can help patients, families, breakthrough in heart research
changed massively, the growth
What did you do before Heart communities, hospitals and will be?
has been phenomenal. Also, the
Research UK? universities right across the UK.
direction of the research we fund Heart Research UK was founded
I worked for a large voluntary has changed, shifting to focus The name has also changed. It was to make surgery safer. Now, it’s
organisation raising awareness, on benefiting patients as soon as the National Heart Research Fund one of the safest forms of surgery.
raising money and campaigning at possible. back then, before we changed to Next, we need to use technology to
local, regional and then national Heart Research UK in 2005. help us do things in finer detail, or
Back then, it was a small Leeds-
levels. accomplish things that we haven’t
based charity that funded medical I also think we’re a much more
research across the UK but raised outward facing charity and have thought of yet. A fully functioning A selection of memories from Barbara’s time at Heart Research UK
08 09
Every step, every mile, every bead together to be connected with
of sweat and every penny raised him.”
at the London Marathon matters,
Like her training however, Dina’s
something that Dina Dahan knows
marathon was not free from
myself”
“He collapsed and just never woke
up. It was very traumatic, there was “When I crossed the line I just burst
so much sadness and grief. “The most special into tears. It was such a special
“They found that his heart was moment was when moment, I really felt the presence
of my stepdad. I was filled with love
in decent condition, he had
no blockages. They ruled it as
I saw my family for for him and I really missed him.
SADS (sudden arrhythmic death the first time. We all “I was doing this for him, and so
syndrome).” cried and hugged, others can hopefully avoid the
In the year that Heart Research UK broke 2019 marked a record breaking
year for Heart Research UK. Not
Some cases of sudden cardiac and I really felt my
same trauma.”
the £1 million mark at the London Marathon, only did we raise our millionth
death are recorded as SADS. This
stepdad with me.”
Dina’s mammoth efforts saw
is when someone dies suddenly her raise an astonishing £11,118,
our runner Dina Dahan, who raised over pound from London marathons,
we smashed our fundraising
following a cardiac arrest and no smashing her original target of
£11,000, talks us through what inspired her record for a single race, with
obvious cause can be found.
support on a 17 mile run. It bruised
£3000.
achievements, how she survived her run and our 23 amazing runners raising
over £80,000.
“I remember thinking what on earth
is SADS?” said Dina. “How can we
my foot heavily, and that wiped me Thanks to Dina, and to every
single one of Heart Research UK’s
how she contributed to Heart Research UK’s know so little about something that
out of running.
marathon runners, we were able to
most successful London Marathon ever. is so traumatic and so lethal? “I didn’t properly run for two and
half months before the marathon.
raise over £80,000.
“I didn’t want the next chapter to It was tough. This record-breaking year took us
only be defined by the misery of over the million pound mark from
his loss. I wanted to do something “But I knew I was going to finish. I London marathons, money that
positive. just didn’t know in what form – on will continue to fund our pioneering
one leg, on all fours, I just didn’t medical research.
“A friend of mine told me that when know!”
he was going through personal “Hitting the £1m pound mark just
issues, he healed through running But Dina pushed through, and shows that running can make a
marathons and it planted a seed when April 28th rolled around, she difference, research can make a
in me. was ready. difference,” said Dina.
“I reached out to Heart Research “When I arrived, I was so moved, I “Research in particular is very much
UK, and really felt like they are felt an unbelievable connection to about innovating, about finding
focused on the work that they do, the other runners. solutions. It’s inspiring.
the work that makes a difference.” “The camaraderie, the compassion, “I’m truly grateful that I had
Training began, but it wasn’t the support; I was in awe, in pure a cause to run for. I felt a real
all smooth sailing for Dina, who awe of being a witness to so much connection, my stepdad and I
suffered an injury whilst running goodness. and Heart Research UK working
in February, just two and a half “About half an hour in, I started together to do something really
months before the marathon. crying, I was just so consumed and meaningful.
“I had over-pronation and hyper- moved. “I’ll carry it with me forever.”
flexibility in my left foot. Basically, “The most special moment was If you want to know more about
my hip was dropping when I ran when I saw my family for the first taking on a challenge to raise
and was causing pain to my hip time. We all cried and hugged, and money for Heart Research UK,
and ankle. I really felt my stepdad with me. visit heartresearch.org.uk/
“I persevered, and tried an ankle “I felt that we were all running challenges or call 0113 234 7474.
10 11
Through our charity partnership Those taking part in this six week heart journey that goes beyond the
with Subway®, we fund Healthy programme will go away with skills, life of the project.
Heart Grants across the confidence and a personalised
WALES
UK to inspire and motivate action plan.
communities to live healthier, Cardiff City FC Community
NORTHERN IRELAND
happier and longer lives. Foundation (£10,000)
The Fitzone Foundation (£7,000)
So far this year we have awarded The Bluebird’s Healthy Hearts
six new Heart Research UK and The Health for All project is a multi- project will engage with a hard
Subway® Healthy Heart Grants, component programme of hands to reach group of men who
here is what they are aiming to on cooking, physical activities and traditionally would stay on the
achieve: motivational health education side lines when it comes to weight
aiming to inspire different groups of management programmes.
CENTRAL the community in Mid Ulster. The Inspired by the Cardiff City FC
project will focus on men over 40, brand, local men will become
ecobirmingham (£10,000)
teenage girls and children aged more active and take on healthy
Linking with local GPs and the NHS 8-11. eating advice, motivated by the
Health Check for cardiovascular camaraderie of football.
Children and young people
disease, the Life Cyclers project will
will take part in engaging non- Eighty local Cardiff men are
allow doctors in South Birmingham
traditional physical activity sessions expected to benefit from these 10
to offer a new way of tackling
such as canoeing and cycling, week courses which will include
symptoms of heart disease early on.
alongside healthy cookery classes weigh-ins and measurements,
Instead of relying heavily on and interactive workshops. healthy eating workshops and
medication, this unique social fitness sessions alongside a friendly
Men over 40 will be offered health
prescribing model will see men over yet competitive football league,
checks and supported in cooking
40 benefit from eight week cycling with extra goals gained for healthy
healthily on a budget and keeping
courses, promoting outdoor activity weight loss.
active without the need to step into
and friendship.
a slimming club or gym. YORKSHIRE
Cycling is such a simple yet
Taking a holistic approach, the Rotherham United Community
powerful way to improve heart
project will promote positive mental Sports Trust (£8,600)
health problems. The Life Cyclers
and emotional wellbeing and seek
project offers a fantastic opportunity Obesity amongst children in
Supporting
to decrease social isolation.
to really shape the treatment and year 6 of primary school is higher
prevention of heart disease in an TYNE TEES in Rotherham than average for
impactful and cost-effective way. Yorkshire and the whole population
Darlington Association on
of England. The Millers Little
HTV Disability (DAD) (£9,900)
communities
Hearts programme will aim to
National Centre for Integrative Darlington Hearts Delite aims engage children up to age 11 with
Medicine (NCIM) (£10,000) to support and inspire local health and activity sessions.
people who cannot easily access
Working with a multidisciplinary The programme, which will include
mainstream healthy living services
to live healthier,
team of experts and the support one-to-one and group sessions,
due to disability. Each individual
of the Heart Research UK Healthy will run over six weeks and benefit
is encouraged to set personalised
Heart Checks, Dr Elizabeth 200 children. Education sessions
goals, supported by fun, varied
Thompson is aiming to change the will help children understand the
and specifically tailored accessible
way the NHS responds to patients benefits of a healthy heart and the
C 68 M 100
Image The Heart Research UK team fundraising in Scotland for the Heart of Scotland Appeal.
Heart of Scotland Appeal. hearts and engage with the and we were blown away with just
Dragons flying down the Avon Being able to help raise funds for
Heart Research UK is a privilege. It
is my absolute pleasure to offer my
My superpower would be to
read minds.
about working
raise money for Heart Research race - it was a wonderful day out developments. I am proud to be closely with the Heart Research UK
adi Automotive MD and event Midlands Team. Raising funds for
UK Midlands. and everyone had an amazing time. able to help in any way I can.
organiser Ritchie Webb said: “At my local area is vital, to enable our
On the 22 June, over 150 people
from 14 teams battled it out over
adi, we’re all hugely aware of the
role we can play in helping improve
“Thanks to adi Group, all the teams,
and people who donated, we have closely with You’ve been a supporter of Heart
Research UK for many years now,
local hospitals to offer cutting-edge
treatments here in the Midlands,
a 200m course to take home the
coveted trophy, with the eventual
the lives of people across the
Midlands.
raised over £15,000 to fund Heart
Research UK’s pioneering research the Heart what is your fondest memory?
Research
champions coming from Jaguar into the prevention, treatment and
“The race not only saw everyone UK for 12 years now. My fondest What does research
Land Rover, skippered by Chris cure of heart disease.
have fun and take part in healthy memory is an anniversary lunch mean to you?
Harris.
The event, which was sponsored
competition, but also raised
money for vital heart research and
“The money we’ve raised will go
a long way in helping improve the UK Midlands I held in order to raise funds for the
‘Heart in a Box’ campaign – we For me, research means cure
and longevity.
Team. Raising
by the engineering firm adi Group, community projects. I’d like to thank heart health of people living in the raised £38,000. It was a very
also included a range of activities everyone who took part and helped Midlands.” successful event in aid of such a
and food stalls on the riverbanks for support such a worthy cause.”
funds for my
great cause.
team members, supporters, family
and friends. What was your career?
24 25
We are delighted to
welcome Kate Bratt-Farrar
as the new Chief Executive Heart Research UK
Online Art Auction
of Heart Research UK!
presents
4-13 October 2019
Kate has worked in the charity Foundation. “I’m from Yorkshire and have spent
sector for many years, having the majority of my career working Own a miniature masterpiece
“I’m a massively charity-positive
most recently served as the in Leeds, so it felt like the perfect fit Bid on pieces of original artwork by
person,” Kate said.
Director of the Sue Ryder when a role like this at Leeds-based celebrities, artists and high profile names
Wheatfields Hospice. “I’ve worked in this sector for a long national charity that is taking on
time and passionately believe in heart disease came up. The twist?
Previously, Kate was Chief
the value of charity.
Executive of Leeds Women’s Aid “It’s clearly a charity that does so The artist remains a mystery until the auction closes
and has worked in policy and “I have a list of issues and things many great things and has the
research at Cerebra, Save the that are very close to my heart potential to do so much more, and Bid at heartresearch.org.uk/heartproject
Children and the Department (pardon the pun), and as people in I’m delighted to be a part of it!”
of Health, as well as acting as a my family have been affected by
trustee for numerous charities, heart disease, it was definitely on
most recently with the Morrisons my list.”
or something you club? Would you like to use your skills to raise
money to help us fund pioneering research?
Ethel Hayeems
I’ve been volunteering with Heart
Cath Lewis
I ran a marathon for Heart
Liam O’Shea
I originally came to Heart Research can do at home? Welcome to our Stitch appeal!
Maybe you could host a sewing coffee morning
Research UK since the early 2000s. Research UK in the early 90’s, UK on a placement eight years ago. where everyone makes a donation to attend, or
Coming soon...
and a few years later I started you could make items to sell at your local school
I saw an advert in a newspaper The work is really varied, from
volunteering for Heart Research fair, farmers’ market or craft fair.
asking for volunteers, but it was still research to data inputting. I also get
UK.
called the National Heart Research the chance to go to outside events We know larger projects can take a long time,
Fund back then! I help out with the fundraising and at times ran them myself for the but perhaps you have some scrap fabric or
team, supporting the exciting charity. leftover wool which you could use to make some
I help the research team with the
projects they work on. It’s really smaller items to sell.
medical research grants that we My father had two massive heart
varied and I’ve learnt a lot of office
receive, assisting with processing attacks in 1974, so I wanted to help Our Stitch appeal fundraising pack will be full
skills since I’ve been here.
all of the applications we receive. improve outcomes of all cardiac of ideas and patterns, with more to download
My favourite thing about conditions. online.
My favourite thing about
volunteering here is all the
volunteering here is getting to work Volunteering is great fun and you To register your interest in our new Stitch
wonderful people I work with and
and spend time with all of the can work to your strengths. The fundraising pack, to be launched later this
helping to play a part in raising
staff, who have always been very office is friendly and they make use year, please send an email to Pam at
money for Heart Research UK!
welcoming and friendly. of your knowledge to promote the fundraisingadmin@heartresearch.org.uk
charity.
26 27
#heartresearchuk
10 questions with...
Mark Bonnar
How did you become involved What are your top tips for
with Heart Research UK? a heart healthy lifestyle?
“I’m especially proud I first got involved when I created a Get your cholesterol checked,
to support the Heart piece of artwork for Heart reduce your refined sugars and bad
Research UK’s anonymous heART saturated fats, and increase your
of Scotland Appeal project. Since then, I’ve been greens. And exercise!
to inform and involved with various campaigns
What film or song pulls
and I’m always happy to do what I
educate all age can!
at your heartstrings?
groups and help I’m especially proud to support the I love music - all kinds/ genres
as long as it’s good! So to pick
make a change to Heart of Scotland Appeal to inform
one song is nigh on impossible.
and educate all age groups and
people’s lives. help make a change to people’s Recently I’ve had a song called
Pa’lante by Hurray For The Riff Raff
Coronary heart lives. Coronary heart disease is still
on repeat- it’s a soarer!
the number one cause of death in
disease is still the Scotland when, ironically, it’s often My constant companion in the
number one cause of the most easily preventable. heart department for years has
been Radiohead. Pyramid Song
death in Scotland What is your biggest
would be my pick to take with me
achievement to date – personal
when, ironically, it’s or professional? forever.
often the most easily Being a father. And
Given a chance, who (alive or
dead), would you like to sit down
preventable.” CBeebies bedtime stories!
and have a heart to heart with?
If you were in charge of
Heart Research UK for a Laurel and Hardy.
day, what would you do? Who is your role model and why?
A big thank
Bardsley Caitlin Bardsley – 13 mile night walk
Prudential
you to all of
Night Walk Cafolla Riccardo – Glasgow Men’s 10k
fundraisers
Fry Family
Chris Schofield – Bolton Ironman and friends
Lincoln 10k
David Smitheringale – Rat Race
Parag Gohil
Everest Base
Camp Trek
Rashni Bali Beat it Battle champions
Victoria Park Spring 10k TransUnion
30 31
See who’s helping us take on heart disease
At Heart Research UK, we have a range of fantastic corporate partners who
support us with some incredible fundraising efforts. Here’s a look at what
they’ve been up to, and some inspiration for how you and your business could
help us take on heart disease.
Sky diving BOC Gases
Seven thrill-seekers from Emerald Thank you to BOC Gases who
Publishing are busy fundraising support 12 different charities, one
ahead of their dare-devil October per month, over the course of each
sky dive at Hibaldstow skydiving year. Natalie Barlow organised
A decade of Damart
centre, Lincolnshire, where a great month involving a bingo,
they hope to raise £2800 for raffle, tombola, raffle and pie-face
Heart Research UK. challenge that raised over £1000.
32 33
A massive thank you to
Our thanks to everyone who has left a gift in their Will to
Heart Research UK and to those who have remembered their
of keeping healthy
but other drinks count too. Here are some healthy
choices you could go for:
C 90 M 100 Y 0 B 40
Have a favourite mocktail
recipe? Snap a pic
and share on our
Instagram.
Registered Charity No. 1044821. Registered Office: Suite 12D, Joseph’s Well, Leeds LS3 1AB. Company limited by guarantee No. 3026813. Registered in England