#HPM Tweet Chat 6:8:11

#hpm - Healthcare Social Media Transcript
6/27/12 12:05 PM
#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Jun 08 18:00:00 PDT 2011 Wed Jun 08 19:15:00 PDT 2011 change time period
New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags Learn more about #hpm at The Healthcare Hashtag Project
hollyby
For the next hour I'll be tweeting from the #hospice and #palliative medicine tweetchat. #hpm
Wed Jun 8 18:01:03 PDT 2011
elderpages
15 year old girl who is terminal with cancer has made a bucket list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpm
Wed Jun 8 18:01:09 PDT 2011
jodyms
Hello everyone, I'm Jody Schoger and will be moderating tonight's #HPM chat. I'm a cancer survivor, co-survivor, writer and blogger.
Wed Jun 8 18:01:10 PDT 2011
jfclearywisc
Hi, Joining #hpm from the basement. Major thunderstorms here in Madison, WI. Fingers crossed and praying. #hpm
Wed Jun 8 18:01:25 PDT 2011
jodyms
Who's joining us for tonight's discussion? Please introduce yourself. It's great to be connected with all of you again. #HPM
Wed Jun 8 18:01:54 PDT 2011
ctsinclair
RT @hollyby: For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. "me too!" #hpm
Wed Jun 8 18:01:55 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=06-08-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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equijada
Hi all. Thanks for hosting @jodyms #hpm

Wed Jun 8 18:02:13 PDT 2011
hollyby
@jfclearywisc Stay safe! #hpm

Wed Jun 8 18:02:35 PDT 2011
elderpages
Nice to "see" you all. I'm a hospice volunteer, research scientist, family caregiver and webmaster committed to community devt via Web #hpm
Wed Jun 8 18:02:38 PDT 2011
MedicalMarcom
I showed up an hour early! Now I know better. Joe Hage, #MedDevice founder, mktg comm for med companies. #HPM
Wed Jun 8 18:02:52 PDT 2011
jodyms
@jfclearywisc @equijada @ctsinclair - greetings! #HPM

Wed Jun 8 18:02:57 PDT 2011
authordhallman
#hpm - David here. lost my partner to pancreatic cancer 2 wks after diagnosis.
Wed Jun 8 18:03:05 PDT 2011
aliciabloom
MSW, LSW from @VITASHospice & Palliative Care. #hpm consults, clinical education & program development. #hpm
Wed Jun 8 18:03:28 PDT 2011
equijada
@authordhallman Hi David, welcome. #hpm

Wed Jun 8 18:03:38 PDT 2011
MedicalMarcom
I am looking to meet a HPM professional with experience selling into #HPM orgs + figured y'all would have recos?
Wed Jun 8 18:03:57 PDT 2011
hollyby
Hello, Holly Yang. HPM doc from @SanDiegoHospice. Interests in international #palliative med, pt care, med ed, SoMe, communication #hpm
Wed Jun 8 18:04:11 PDT 2011
Freshwidow
Supa, widow blogger, #HPM advocate and family member. Crazy hair. Thanks for hosting, @jodyms!
Wed Jun 8 18:04:31 PDT 2011
jodyms
Welcome @authorhallman @aliciabloom @medicalmarcom #hpm

Wed Jun 8 18:04:32 PDT 2011
DrSnit
@jodyms Hey cats! Longtime no see Jodycakes!! Muah!! #hpm

Wed Jun 8 18:04:46 PDT 2011
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PracticalWisdom
HI I'm Lisa Trainer/Speaker/Creative Connector. Looking forward to @jodyms and the other leaders in #HPM Field #HPM
Wed Jun 8 18:04:51 PDT 2011
hollyby
As always, all tweets are my own #hpm

Wed Jun 8 18:05:08 PDT 2011
drseisenberg
Hi there! Steven Eisenberg. Medical oncologist. Lyrical Life guy. I co-write original songs with cancer and hospice patients. #hpm
Wed Jun 8 18:05:21 PDT 2011
PinkRibbonBlues
#HPM Gayle here, medical sociologist, focus on breast cancer culture, industry, advocacy, and survivorship. Love @jodyms
Wed Jun 8 18:05:24 PDT 2011
doctatum
RT @doctatum Paul from Mo. Before the floods hit. On phone. Oops. #hpm
Wed Jun 8 18:05:27 PDT 2011
ctsinclair
Intros: Hello, Christian Sinclair here, Palliative MD @KChospice, Editor @Pallimed, fan of @SportingKC and the new @LiveSTRONGPark #hpm
Wed Jun 8 18:05:32 PDT 2011
jodyms
I'll asking #HPM questions tonight on behalf of the cancer survivor community. And I'm sure if I misrepresent them we'll hear otherwise:)
Wed Jun 8 18:05:32 PDT 2011
jfclearywisc
@MedicalMarcom PRobably not tonight given topic is "Abandonment-what patients really feel. Don't mean to abandon you :-) #hpm
Wed Jun 8 18:05:41 PDT 2011
jodyms
@drsnit @hollyby @practicalwisdom Awesome to see you:) #hpm

Wed Jun 8 18:06:00 PDT 2011
uvmer
Hi! Lurking in the shadows and might butt in. (: #HPM

Wed Jun 8 18:06:10 PDT 2011
MatthewsMichele
<--#hospice, #hpm advocate, patient and community empowerment enthusiast! #hpm

Wed Jun 8 18:06:11 PDT 2011
revdoc
RT @ctsinclair: RT @hollyby: For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. "me too!" #hpm
Wed Jun 8 18:06:34 PDT 2011
MedicalMarcom
@jfclearywisc thanks. I'll stick around all the same + meet some new #HPM folks!
Wed Jun 8 18:06:41 PDT 2011
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DrSnit
Me 3 RT @ctsinclair RT @hollyby: For the next hour Ill be tweeting from the #hospice & #palliative medicine tweetchat. "me too" #hpm
Wed Jun 8 18:06:47 PDT 2011
ctsinclair
@hollyby RE: Twwets are my own: Intersting take from @Doctor_V Should We Ditch Social Media Disclaimers? http://hpm.md/lzTW9G #hpm
Wed Jun 8 18:06:47 PDT 2011
PracticalWisdom
Sorry are the floods close? RT @doctatum: RT @doctatum Paul from Mo. Before the floods hit. On phone. Oops. #HPM
Wed Jun 8 18:06:58 PDT 2011
MatthewsMichele
<---oh and #socialmedia junkie! :-) #hpm

Wed Jun 8 18:07:20 PDT 2011
ctsinclair
@uvmer Hi Nancy, I am sure we will lure you in with some good conversation! #hpm
Wed Jun 8 18:07:25 PDT 2011
jodyms
#HPM - Our topic tonight is what patients really fear: abandonment. Abandonment by doctors, friends, and family.
Wed Jun 8 18:07:31 PDT 2011
PracticalWisdom
Thanks excited about tonight. RT @jodyms: @drsnit @hollyby @practicalwisdom Awesome to see you:) #HPM
Wed Jun 8 18:07:42 PDT 2011
revdoc
Pam Harris MD @KCHospice, ordained minister #hpm

Wed Jun 8 18:07:47 PDT 2011
DrSnit
RT @jodyms: I'll asking #HPM questions tonight on behalf of the cancer survivor community. And I'm sure if I misrepresent them we'll hear otherwise:)
Wed Jun 8 18:08:06 PDT 2011
revdoc
@revdoc @KCHospice Tweets are my own #hpm

Wed Jun 8 18:08:14 PDT 2011
RossJeanette
Hi I'm Jeanette Ross HPM doc associate Fellowship director @uthscsa in san Antonio passionate about teaching. Will lurk tonight #hpm
Wed Jun 8 18:08:14 PDT 2011
elderpages
@jodyms I would like to hear more about some of those fears. Can you start with a few? #hpm
Wed Jun 8 18:08:17 PDT 2011
hollyby
@ctsinclair It's part of my employer's SoMe policy, I believe, so... I do it. #hpm
Wed Jun 8 18:08:26 PDT 2011
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ctsinclair
@PinkRibbonBlues Hi Gayle! Welcome to the chat! #hpm

Wed Jun 8 18:08:33 PDT 2011
uvmer
@ctsinclair Most probably... (: Not the silent type. Thanks. #HPM

Wed Jun 8 18:08:40 PDT 2011
jodyms
So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm
Wed Jun 8 18:08:42 PDT 2011
equijada
RT @jodyms: I'll asking #HPM questions tonight on behalf of the cancer survivor community. And I'm sure if I misrepresent them we'll hear otherwise:)
Wed Jun 8 18:09:08 PDT 2011
ctsinclair
Just a tip if you do use cancer in your tweet feel free to hashtag it. Some people might be looking for that, and stumble here. #hpm
Wed Jun 8 18:09:10 PDT 2011
MatthewsMichele
RT @jodyms: So my first T1: how can we work together to help transition patients into healing, supportive care? #hpm
Wed Jun 8 18:09:11 PDT 2011
hollyby
Wed Jun 8 18:09:13 PDT 2011
JohnGirdwood
@ctsinclair I love this #hpm thing so much, almost as much (maybe equally) as watching Tigers or BoSox vs Yankees!
Wed Jun 8 18:09:28 PDT 2011
ctsinclair
RT @hollyby: @ctsinclair Its part of my employers SoMe policy, I believe, so... I do it. "good answer!" #hpm
Wed Jun 8 18:09:31 PDT 2011
jodyms
RT @ctsinclair: Just a tip if you do use cancer in your tweet feel free to hashtag it. Some people might be looking for that, and stumble here. #hpm
Wed Jun 8 18:09:34 PDT 2011
jodyms
@uvmer Nancy, you have a lot to add here. I'm glad you've joined us. #hpm
Wed Jun 8 18:09:59 PDT 2011
andybaldwin
@ctsinclair @kchospice @pallimed @sportingkc @hollyby @livestrongpark #hpm hi everyone! Dr. Baldwin here #AskDrAndy
Wed Jun 8 18:10:00 PDT 2011
Doctor_V
And The Palliatives convene #hpm

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Wed Jun 8 18:10:19 PDT 2011
elderpages
Can you help by clarifying transition from what? Do you mean changing goals of care from curative to comfort? #hpm
Wed Jun 8 18:10:26 PDT 2011
hollyby
@andybaldwin Hi Andy! Great to have you join us! #hpm

Wed Jun 8 18:10:38 PDT 2011
PracticalWisdom
RT @jodyms: RT @ctsinclair: Just a tip if you do use cancer in tweet feel free 2 hashtag. # people might B looking4 & stumble here. #HPM
Wed Jun 8 18:10:44 PDT 2011
DrSnit
Wed Jun 8 18:10:45 PDT 2011
ctsinclair
T1 (Clarification) @jodyms Which 'we" did you have in mind with this question? We the chatters, we the social media-ists, etc? #hpm
Wed Jun 8 18:10:50 PDT 2011
elderpages
RT @Doctor_V: And The Palliatives convene...T: Sounds like a backup band :-) #hpm
Wed Jun 8 18:11:02 PDT 2011
JohnGirdwood
I was called to HR before to clear up my use so... RT @hollyby: @ctsinclair It's part of my employer's SoMe policy, so... I do it #hpm
Wed Jun 8 18:11:06 PDT 2011
aliciabloom
early integration #palliative care brings supportive care throughout the continuum of illness, making it less of an abrupt transition #hpm
Wed Jun 8 18:11:14 PDT 2011
uvmer
@jodyms Thanks Jody. (: #hpm

Wed Jun 8 18:11:16 PDT 2011
PracticalWisdom
Are you going to join us tonight? That would be great RT @Doctor_V: And The Palliatives convene #HPM
Wed Jun 8 18:11:17 PDT 2011
jodyms
@elderpages T1: Transition from curative to comfort and supportive. #hpm

Wed Jun 8 18:11:21 PDT 2011
DrSnit
@jodyms Yes yes yes! so glad you're here @uvmer!! xo #hpm

Wed Jun 8 18:11:26 PDT 2011
ctsinclair
T1: I think healing supportive care should come as part of the package regardless of goals
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#hpm
Wed Jun 8 18:11:38 PDT 2011
equijada
t1 prior to working together, I have to be prepared to go into a place that is sacred, scary. Make sure I'm in a good place #hpm
Wed Jun 8 18:11:50 PDT 2011
drseisenberg
T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #hpm
Wed Jun 8 18:11:59 PDT 2011
DoctorFisher
Hello Palliators #hpm

Wed Jun 8 18:12:02 PDT 2011
ctsinclair
RT @aliciabloom: early integration #palliative care brings supportive care across continuum of illness, making less abrupt transition #hpm
Wed Jun 8 18:12:07 PDT 2011
PracticalWisdom
RT @aliciabloom: early integration #palliative care brings supportive care throughout continuum illness, making it (-) an abrupt trans. #HPM
Wed Jun 8 18:12:17 PDT 2011
revdoc
T1 IMHO we need better training, inservices, curriculum for non-HPM types so that referrals are made by usual MDs, nonthreatening #hpm
Wed Jun 8 18:12:20 PDT 2011
ctsinclair
@aliciabloom Nice concise statement! #hpm

Wed Jun 8 18:12:20 PDT 2011
PracticalWisdom
RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #HPM
Wed Jun 8 18:12:30 PDT 2011
DoctorFisher
RT @ctsinclair: T1: I think healing supportive care should come as part of the package regardless of goals #hpm
Wed Jun 8 18:12:39 PDT 2011
elderpages
Guess I'm in listening mode (questions mode). What would survivors like professionals to do to be more collaborative? #hpm
Wed Jun 8 18:12:53 PDT 2011
aliciabloom
@ctsinclair thanks! i'm getting better at this 140 character thing ;) #hpm
Wed Jun 8 18:12:55 PDT 2011
PracticalWisdom
RT @revdoc: T1 IMHO we need better training, inservices, curriculum for non-HPM types so referrals R made by usual MDs, nonthreatening #HPM
Wed Jun 8 18:13:03 PDT 2011
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Doctor_V
Lurking #hpm
Wed Jun 8 18:13:13 PDT 2011
PracticalWisdom
RT @elderpages: Guess Im in listening mode (questions mode). What would survivors like professionals to do to be more collaborative? #HPM
Wed Jun 8 18:13:17 PDT 2011
thinkalot
RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs just gotta do it. #asco11 #hpm
Wed Jun 8 18:13:29 PDT 2011
jodyms
@ctsinclair T1: Understand that the end of life is a big mystery to most cancer patients. Its the chapter in the book we don't read. #hpm
Wed Jun 8 18:13:43 PDT 2011
ctsinclair
T1: Important to address w/ psychology of the patient and the family, seen wide variety of adjustment to illness (some good, some bad) #hpm
Wed Jun 8 18:13:47 PDT 2011
hollyby
T1: It should not feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure. #hpm
Wed Jun 8 18:13:57 PDT 2011
ihatebreastcanc
@jodyms Katherine with bone-only MBC #hpm

Wed Jun 8 18:14:10 PDT 2011
drseisenberg
Med oncs can become involved with a hospice. Continuity. #hpm

Wed Jun 8 18:14:24 PDT 2011
DrSnit
I'm always intrigued by how afraid and alone people (the patients, the caretakers sometimes even the docs) feel during treatment #hpm
Wed Jun 8 18:14:24 PDT 2011
MatthewsMichele
RT @elderpages: 15 year old girl who is terminal with cancer has made a bucket list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpm
Wed Jun 8 18:14:25 PDT 2011
ctsinclair
@elderpages Yes I would like to here from #cancer survivors as well on this topic. #hpm
Wed Jun 8 18:14:28 PDT 2011
jodyms
@PracticalWisdom @elderpages First we need to make connections between clinical #HPM and survivor communities. Bridge must be constructed.
Wed Jun 8 18:14:41 PDT 2011
equijada
RT @jodyms: @ctsinclair T1: Understand that the end of life is a big mystery to most cancer patients. Its the chapter in the book we don't read. #hpm
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Wed Jun 8 18:14:42 PDT 2011
jodyms
@ihatebreastcanc Thank you for joining us. #hpm

Wed Jun 8 18:14:59 PDT 2011
ctsinclair
T1: the curious challenge is identifying transition points. All stakeholders may have different perceptions of timing. #hpm
Wed Jun 8 18:14:59 PDT 2011
PracticalWisdom
RT @ctsinclair: T1: Imp.2 address w/ psychology of pt & family, seen wide variety of adjustment to illness (some good, some bad) #HPM
Wed Jun 8 18:15:03 PDT 2011
hollyby
RT @ctsinclair: T1: the curious challenge is identifying transition points. All stakeholders may have different perceptions of timing. #hpm
Wed Jun 8 18:15:28 PDT 2011
elderpages
RT @equijada: RT @jodyms: T1: End of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. #hpm
Wed Jun 8 18:15:34 PDT 2011
DrSnit
@uvmer :) so glad you've joined the conversation. Your voice is necessary! xo #hpm
Wed Jun 8 18:15:38 PDT 2011
ctsinclair
@ihatebreastcanc We really appreciate the perspective of patients and families in this chat. Glad you are here. #hpm
Wed Jun 8 18:15:47 PDT 2011
MatthewsMichele
pls. rt @JohnAmussen: I'm a marrow donor. here's 1 reason why. http://t.co/72Kubdy / #alicebucketlist me too! www.marrow.org via @mswz #hpm
Wed Jun 8 18:15:53 PDT 2011
PracticalWisdom
RT @jodyms: @PracticalWisdom @elderpages 1st we need 2 make connect Btween clinical #HPM/survivor commu. Bridge must be constructed. #HPM
Wed Jun 8 18:15:57 PDT 2011
elderpages
TI: I think part of collaboration is starting where "they/we" are. Families and patients not always on same page as each other. #hpm
Wed Jun 8 18:16:20 PDT 2011
authordhallman
#hpm In Ontario, we benefitted from the coordinating agency that links the PC MDs, community nurses, homemakers for the familys benefit
Wed Jun 8 18:16:23 PDT 2011
jfclearywisc
In #cancer & other diseases, do we reduce sense of abandonment with clear definition of goals of care: cure, prolong, palliate #hpm
Wed Jun 8 18:16:39 PDT 2011
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ctsinclair
RT @hollyby: T1: Shouldn't feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure #hpm
Wed Jun 8 18:16:50 PDT 2011
JohnGirdwood
Like your twitter name : ) RT @jodyms: @ihatebreastcanc Thank you for joining us. #hpm
Wed Jun 8 18:17:00 PDT 2011
equijada
@jodyms how do cancer patients wish to transitioner? As a physician, I slowly push boundaries till I get resistance then back off #hpm
Wed Jun 8 18:17:05 PDT 2011
PracticalWisdom
RT @elderpages: TI: Part of collaboration is starting where "they/we" R. Families/patients not always on same page as each other. #HPM
Wed Jun 8 18:17:07 PDT 2011
DrSnit
@elderpages YES! And even when they ARE on the same page, EMOTIONS come up and people feel like a "failure" for having feelings #hpm
Wed Jun 8 18:17:23 PDT 2011
MatthewsMichele
T1: End of life is a big mystery to most cancer patients. Its the chapter in the book we dont read. via @jodyms #hpm
Wed Jun 8 18:17:24 PDT 2011
aliciabloom
stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm

Wed Jun 8 18:17:25 PDT 2011
uvmer
As care giver to my partner w/a brain tumor, an early conversation & an advanced directive were key.Knew then the path I was to follow. #hpm
Wed Jun 8 18:17:34 PDT 2011
jfclearywisc
RT @hollyby: T1: Shouldnt feel like an "either/or" issue. Supportive/palliative care should begin early, regardless of ability to cure #hpm
Wed Jun 8 18:17:36 PDT 2011
Freshwidow
I disagree about transition points. @ctsinclair: As a #cancer widow, I wish we had some orientation to hospice/PM at dx... or earlier! #hpm
Wed Jun 8 18:17:39 PDT 2011
ctsinclair
T1: I think the concept of 'navigator' has been helpful in breast #cancer, wondering if applied more broadly? #hpm
Wed Jun 8 18:17:47 PDT 2011
PracticalWisdom
RT @equijada: @jodyms how do cancer patients wish2 transitioner? As MD, I slowly push boundaries till I get resistance then back off #HPM
Wed Jun 8 18:18:01 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=06-08-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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elderpages
I love the work of Dr. David Casarret: Talk first about hopes and achievable goals. Strategize transition in context of achieving these #hpm
Wed Jun 8 18:18:11 PDT 2011
jodyms
Elaborate - I like that RT @aliciabloom stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm
Wed Jun 8 18:18:12 PDT 2011
MatthewsMichele
@PracticalWisdom @elderpages how do we get them on the same page...is that not where the process should begin? #hpm
Wed Jun 8 18:18:12 PDT 2011
MatthewsMichele
RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm

Wed Jun 8 18:18:18 PDT 2011
ctsinclair
@aliciabloom Got to talk to a nurse today about that. She was very receptive to having good language to describe the role of pall care #hpm
Wed Jun 8 18:18:19 PDT 2011
jfclearywisc
@uvmer So how tough was that early conversation and did it take away hope? #hpm
Wed Jun 8 18:18:30 PDT 2011
Freshwidow
I believe once you get the idea that there is a "transition" point, you are too delicate to ever start with most ppl. #hpm @ctsinclair
Wed Jun 8 18:18:41 PDT 2011
drseisenberg
T1: Compassionate communication must be there from day 1. #hpm

Wed Jun 8 18:18:45 PDT 2011
ctsinclair
@Freshwidow So glad you are here! Tell me more why you disagree about transition points. I think we are probably on the same page. #hpm
Wed Jun 8 18:18:50 PDT 2011
jodyms
@freshwidow I agree completely from what I've seen and experienced. #hpm
Wed Jun 8 18:18:54 PDT 2011
equijada
RT @Freshwidow: I disagree about transition points. @ctsinclair: As a #cancer widow, I wish we had some orientation to hospice/PM at dx... or earlier! #hpm
Wed Jun 8 18:18:54 PDT 2011
revdoc
T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm
Wed Jun 8 18:19:00 PDT 2011
elderpages
RT @MatthewsMichele: how do we get them on the same page...is that not where the process should begin?...T: "Whose" page is first? #hpm
Wed Jun 8 18:19:17 PDT 2011
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Freshwidow
With us, the disease was slow for a long time... it started to change v. quickly, then more quickly. NO time to adjust. #hpm @ctsinclair
Wed Jun 8 18:19:33 PDT 2011
elderpages
RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?... T: As a former midwife, YES!!! #hpm
Wed Jun 8 18:19:35 PDT 2011
DrSnit
RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm
Wed Jun 8 18:19:39 PDT 2011
ctsinclair
@uvmer Was knowing the path helpful, even if you veered off the path? Like knowing when things were not as planned? #hpm
Wed Jun 8 18:19:40 PDT 2011
RossJeanette
T1 healthcare providers should accept that palliative care can improve quality and length of life too. #HPM
Wed Jun 8 18:19:43 PDT 2011
PracticalWisdom
Not sure there is a simple nor easy answer. G8 ?RT @MatthewsMichele: @PracticalWisdom @elderpages how do we get them on the same page. #HPM
Wed Jun 8 18:19:47 PDT 2011
aliciabloom
if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm
Wed Jun 8 18:19:51 PDT 2011
ihatebreastcanc
#cancer the word palliative is misunderstood. Some equate it with giving up or no hope. Need to clearly define for patient and family #hpm
Wed Jun 8 18:19:58 PDT 2011
jodyms
EOL navigators, doulas? Those are interesting thoughts. #hpm

Wed Jun 8 18:20:02 PDT 2011
ctsinclair
@revdoc There have been some doulas for EOL but I think they would avoid calling themselves Death Doulas. #hpm
Wed Jun 8 18:20:07 PDT 2011
EldrcareConsult
Wait!!! Dont start yet!!! I am here now! :) #hpm

Wed Jun 8 18:20:17 PDT 2011
aliciabloom
@ctsinclair language is critically important and a focus of the clinical education i do. #hpm
Wed Jun 8 18:20:22 PDT 2011
hollyby
T1: Providers need to develop communication skills to address goals & what is important to
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the patient at diagnosis and revisit them #hpm

Wed Jun 8 18:20:27 PDT 2011
MatthewsMichele
@elderpages @MatthewsMichele the patient's page...definitely the patient's page. #hpm

Wed Jun 8 18:20:29 PDT 2011
PracticalWisdom
RT @Freshwidow: With us, disease was slow 4 a long timeit started 2 change v. quickly/then quickly. NO time to adjust. #hpm @ctsinclair #HPM
Wed Jun 8 18:20:35 PDT 2011
westr
RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm
Wed Jun 8 18:20:35 PDT 2011
Pallimed
Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc
Wed Jun 8 18:20:36 PDT 2011
MatthewsMichele
RT @aliciabloom: if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm
Wed Jun 8 18:20:40 PDT 2011
ctsinclair
RT @jodyms: EOL navigators, doulas? Those are interesting thoughts. "but then we have the tough EOL/labeling issue" #hpm
Wed Jun 8 18:21:00 PDT 2011
PracticalWisdom
So glad to see you. Always add value and kindness.RT @EldrcareConsult: Wait!!! Dont start yet!!! I am here now! :) #HPM
Wed Jun 8 18:21:12 PDT 2011
jodyms
RT @westr: RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm
Wed Jun 8 18:21:12 PDT 2011
revdoc
RT @ctsinclair: I think they avoid calling themselves Death Doulas. "Are we still that death avoidant? It's birth to different realm" #hpm
Wed Jun 8 18:21:40 PDT 2011
DrSnit
@revdoc The idea of a "death doula" is powerful. But death, loss, & dying are so culturally centered, who would do it best? #hpm
Wed Jun 8 18:21:46 PDT 2011
EldrcareConsult
The little one and I were out washing my truck..... :) #hpm

Wed Jun 8 18:21:47 PDT 2011
JoshGriffin
RT @RossJeanette: T1 healthcare providers should accept that palliative care can improve quality and length of life too. #HPM
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Wed Jun 8 18:21:49 PDT 2011
Freshwidow
I hear this a LOT from my widows... and we often focus it (wrongly I think) on the excessive hope in disease communities #hpm @ctsinclair
Wed Jun 8 18:21:53 PDT 2011
jodyms
T2: You all agree on early discussion. Where/when does that take place? #hpm
Wed Jun 8 18:21:56 PDT 2011
jfclearywisc
I talk to all patients with advanced disease about #hpm. They can choose not to have anticancertherapy. Hospice is important then. #hpm
Wed Jun 8 18:21:57 PDT 2011
PracticalWisdom
Listening to needs 1st start.RT @westr: RT @drseisenberg: T1: Compassionate communication must be there from day 1. #hpm #pm101 #hcsm #HPM
Wed Jun 8 18:22:02 PDT 2011
PinkRibbonBlues
RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent, patients need to know best & worst case scenarios and everything in between. #hpm
Wed Jun 8 18:22:07 PDT 2011
ctsinclair
@Freshwidow The different trajectories of illness is often discussed by palliative teams. Some are gradual, others very erratic #hpm
Wed Jun 8 18:22:15 PDT 2011
elderpages
See link on tipsheet for talking about hospice: Identify hopes first. http://bit.ly/m1wYsJ #hpm
Wed Jun 8 18:22:16 PDT 2011
jodyms
@revdoc @ctsinclair We ARE death avoidant. How do we tell the truth in cultures where the truth is not to be told? #hpm
Wed Jun 8 18:22:37 PDT 2011
Freshwidow
For me, hope for change is in the grassroots already active: disease communities MUST start to talk about "not every makes it." #hpm
Wed Jun 8 18:22:42 PDT 2011
vj_CR
@PracticalWisdom hello Lisa! Im I too late to jump in #hpm ??

Wed Jun 8 18:22:49 PDT 2011
jodyms
RT @jfclearywisc: I talk to all patients with advanced disease about #hpm. They can choose not to have anticancertherapy. Hospice is im ...
Wed Jun 8 18:22:51 PDT 2011
PinkRibbonBlues
RT @Freshwidow @ctsinclair We often focus it (wrongly I think) on the excessive hope in disease communities #hpm
Wed Jun 8 18:22:55 PDT 2011
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equijada
@jodyms would it be helpful if a healthcare provider was identified from day one as the "non-abandoner" (obviously need better term) #hpm
Wed Jun 8 18:23:21 PDT 2011
ihatebreastcanc
#cancer everybody wants to go to heaven but nobody wants to die. Denial is a powerful coping mechanism! #hpm
Wed Jun 8 18:23:21 PDT 2011
buffalogator
RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc
Wed Jun 8 18:23:23 PDT 2011
jodyms
Agree! RT @Freshwidow I hear this a LOT from my widows... and we often focus it (wrongly I think) on excessive hope #hpm @ctsinclair
Wed Jun 8 18:23:32 PDT 2011
MatthewsMichele
@vj_CR @PracticalWisdom my two cents...no way, jump in anytime! ;) #hpm

Wed Jun 8 18:23:36 PDT 2011
hollyby
@jfclearywisc Some patients on hospice continue palliative chemo, don't necessarily have to d/c anticancer therapy. #hpm
Wed Jun 8 18:23:39 PDT 2011
drseisenberg
I saw so many young patients today; new patients. Connection first. #hpm
Wed Jun 8 18:23:46 PDT 2011
ctsinclair
@revdoc Yes we (culture) are 'death avoidant' in terms of our own mortality. Most acknowledge death is inevitable, just not dying yet. #hpm
Wed Jun 8 18:23:47 PDT 2011
Freshwidow
We widows OFTEN see this as a culture change issue across the board b/c of our isolation and perspective btwn 2 worlds #hpm.
Wed Jun 8 18:23:54 PDT 2011
PracticalWisdom
@Jodyms is our leader 2 night sure she/we are glad you R hereRT @vj_CR: @PracticalWisdom hello Lisa! Im I too late to jump in #hpm ?? #HPM
Wed Jun 8 18:23:56 PDT 2011
revdoc
@jodyms @ctsinclair We learn to tell truth in the language of each culture; takes a lot of work and cultural sensitivity #hpm
Wed Jun 8 18:24:09 PDT 2011
ctsinclair
RT @Freshwidow: hope for change is in the grassroots already active: disease communities MUST start to talk about "not every makes it." #hpm
Wed Jun 8 18:24:13 PDT 2011
vj_CR
@MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome!

Wed Jun 8 18:24:17 PDT 2011
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jfclearywisc
RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent: Yes it is informed consent so need it from diagnosis. #hpm
Wed Jun 8 18:24:18 PDT 2011
equijada
@jodyms @Freshwidow I like what @jfclearywisc has been teaching about hope/hubris #hpm
Wed Jun 8 18:24:30 PDT 2011
ctsinclair
RT @drseisenberg: I saw so many young patients today; new patients. Connection first. "Helps establish trust, and non-abandonment" #hpm
Wed Jun 8 18:24:34 PDT 2011
DrSnit
@Freshwidow People often take "hope" or make "meanings" in amazing ways during the illness process. How or should we even shift this? #hpm
Wed Jun 8 18:24:46 PDT 2011
elderpages
RT @PinkRibbonBlues: We often focus it (wrongly I think) on the excessive hope...T: Hope has many faces. http://bit.ly/mUBNWI #hpm
Wed Jun 8 18:24:49 PDT 2011
VillageMemorial
@ctsinclair What about collaborating w/friendly funeral directors? #hpm

Wed Jun 8 18:24:53 PDT 2011
ctsinclair
RT @ihatebreastcanc: #cancer everybody wants to go to heaven but nobody wants to die. Denial is a powerful coping mechanism! #hpm
Wed Jun 8 18:25:06 PDT 2011
aliciabloom
at time of diagnosis with an advanced illness there should be discussion about values, preferences and wishes. balance hope & reality. #hpm
Wed Jun 8 18:25:08 PDT 2011
jodyms
Absolutely @equijada would it be helpful if a healthcare provider was id'd frm day as one "non-abandoner" (obviously need better term) #hpm
Wed Jun 8 18:25:14 PDT 2011
MarksPhone
Sorry had a senior day totally forgot #hpm

Wed Jun 8 18:25:24 PDT 2011
ctsinclair
@ihatebreastcanc Important too, to recognize that denial as coping mechanism is not always 'negative' can be helpful at times. #hpm
Wed Jun 8 18:25:35 PDT 2011
jfclearywisc
@hollyby @jfclearywisc Not suggesting can't have chemo and hospice. Informed consent is reason for early Hospice discussion @diagnosis #hpm
Wed Jun 8 18:25:36 PDT 2011
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EldrcareConsult
@VillageMemorial @ctsinclair I have established some great relationships with funeral directors...they are great resources #hpm
Wed Jun 8 18:25:48 PDT 2011
revdoc
RT @revdoc: @jodyms @ctsinclair lot of work & cultural sensitivity "also not a one time thing, reveal the truth over time as pt/fam tol #hpm
Wed Jun 8 18:25:57 PDT 2011
hollyby
RT @aliciabloom: at time of dx w/ advanced illness there should be discussion abt values, preferences & wishes. balance hope & reality. #hpm
Wed Jun 8 18:26:04 PDT 2011
JohnGirdwood
Great! Every step of the way RT @equijada: @jodyms helpful if healthcare provider identified from day 1: "non-abandoner" #hpm
Wed Jun 8 18:26:24 PDT 2011
VillageMemorial
Does anyone have experience w/home monitoring distance care over internet? #hpm
Wed Jun 8 18:26:27 PDT 2011
ctsinclair
@jodyms RE: Non-abandoner - we need more negatives in there. I am a non-antiabandoning unavoider. ;-) #hpm
Wed Jun 8 18:26:28 PDT 2011
PracticalWisdom
VAlentina is joining us from Argentina RT @vj_CR: @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome! #HPM
Wed Jun 8 18:26:30 PDT 2011
hollyby
True. RT @jfclearywisc: @hollyby Not suggesting cant have chemo & hospice. Informed consent is reason for early Hospice discussion @ dx #hpm
Wed Jun 8 18:26:40 PDT 2011
jfclearywisc
RT @equijada: @jodyms @Freshwidow I like what @jfclearywisc has been teaching about hope/hubris Thanks it is James Tulsky's work!! #hpm
Wed Jun 8 18:26:44 PDT 2011
aliciabloom
#palliative care discussions before LVAD surgery did not take away hope & was found to provide relief (mnt.to/3WDs) #hpm
Wed Jun 8 18:26:51 PDT 2011
Freshwidow
I wonder if shrinks can offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro?
Wed Jun 8 18:26:56 PDT 2011
PracticalWisdom
RT @EldrcareConsult: @VillageMemorial @ctsinclair I have established # great relationships w/ funeral directors they R great resources #HPM
Wed Jun 8 18:27:05 PDT 2011
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jodyms
@ctsinclair EOL facilitor doesn't work, either.....#hpm

Wed Jun 8 18:27:09 PDT 2011
drseisenberg
I had to listen listen listen and then listen. Then gently talk about what we need to do next. #hpm
Wed Jun 8 18:27:14 PDT 2011
ctsinclair
@jfclearywisc Would love health care to really focus on informed consent. So undervalued. World's biggest lie 'I have read the terms' #hpm
Wed Jun 8 18:27:27 PDT 2011
Freshwidow
Agree -- or earlier! RT @hollyby: RT @aliciabloom: at time of dx w/ advanced illness there should be discussion ..... #hpm
Wed Jun 8 18:27:30 PDT 2011
jodyms
RT @aliciabloom: #palliative care discussions before LVAD surgery did not take away hope & was found to provide relief (mnt.to/3WDs) #hpm
Wed Jun 8 18:27:31 PDT 2011
jodyms
RT @PracticalWisdom: VAlentina is joining us from Argentina RT @vj_CR: @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm ...
Wed Jun 8 18:27:43 PDT 2011
jodyms
RT @Freshwidow: I wonder if shrinks can offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro?
Wed Jun 8 18:27:53 PDT 2011
ctsinclair
RT @Freshwidow: Can shrinks offer some insight as to when ppl in shock from catastrophic dx can best receive #HPM intro? cc @DrShock #hpm
Wed Jun 8 18:27:59 PDT 2011
elderpages
@jfclearywisc Do you have link to some of James Tulsky's work? #hpm

Wed Jun 8 18:27:59 PDT 2011
DrSnit
Many fear if they don't have "hope" or a act a certain way during the illness process they WILL be abandoned. Who teaches us to die? #hpm
Wed Jun 8 18:28:13 PDT 2011
uvmer
@jfclearywisc Actually before initial surgery. Never spoke of it again. In the end ability to speak was gone, but knew what I had to do #hpm
Wed Jun 8 18:28:29 PDT 2011
aliciabloom
@Freshwidow i believe #palliative care clinicians can help patients & families cope with catastrophic diagnosis. #hpm
Wed Jun 8 18:28:29 PDT 2011
@aliciabloom Good points. Planning is vital. #hpm

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VillageMemorial PracticalWisdom
Wed Jun 8 18:28:32 PDT 2011
Along w/ your songs!RT @drseisenberg: I had to listen listen listen and then listen. Then gently talk about what we need to do next. #HPM
Wed Jun 8 18:28:34 PDT 2011
jodyms
RT @DrSnit: Many fear if they don't have "hope" or a act a certain way during the illness process they WILL be abandoned. Who teaches us to die? #hpm
Wed Jun 8 18:28:34 PDT 2011
Freshwidow
Yes, one really must use holistic, positive language. Like SISTER/BROTHER... navigator. @jodyms: @ctsinclair #hpm
Wed Jun 8 18:28:37 PDT 2011
MatthewsMichele
RT @aliciabloom: @Freshwidow i believe #palliative care clinicians can help patients & families cope with catastrophic diagnosis. #hpm
Wed Jun 8 18:28:50 PDT 2011
jfclearywisc
RT @ctsinclair: @jfclearywisc Would love health care to really focus on informed consent. Bet u bought ur house w/o reading fineprint #hpm
Wed Jun 8 18:28:51 PDT 2011
HumpbacksRule
#hpm Hi all, Late to the party, but lurking :) Ro here- Research nurse, hospice volunteer.
Wed Jun 8 18:28:53 PDT 2011
JohnGirdwood
Huh? Confused RT @hollyby: @jfclearywisc patients on hospice continue palliative chemo, don't necessarily d/c anticancer therapy. #hpm
Wed Jun 8 18:28:57 PDT 2011
Gregmogel
wow. @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm
Wed Jun 8 18:29:05 PDT 2011
jodyms
At the cancer centers I've seen the #HPM department is off and away....down a hall, on the top floor, set aside. Let's start there.
Wed Jun 8 18:29:12 PDT 2011
elderpages
@aliciabloom has hope to trend on twitter! David Casarret's book Last Acts is all about what people choose to do in final weeks. #hpm
Wed Jun 8 18:29:17 PDT 2011
uvmer
Sorry, my computer needs hospice! In slo-mo tonight. #hpm

Wed Jun 8 18:29:21 PDT 2011
equijada
@DrSnit don't think dying has to be taught...just experienced. #hpm

Wed Jun 8 18:29:24 PDT 2011
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JoshGriffin
RT @ctsinclair: @jodyms RE: Non-abandoner - we need more negatives in there. I am a non-anti-abandoning unavoider. ;-) #hpm
Wed Jun 8 18:29:38 PDT 2011
TreatThePain
RT @painpolicy: 15 year old girl w/ terminal cancer has made a bucket list. One of her wishes: to trend on Twitter. Plz give a RT #alicebucketlist #hpm
Wed Jun 8 18:29:44 PDT 2011
ctsinclair
RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm
Wed Jun 8 18:29:50 PDT 2011
hellen177
RT @uvmer: As care giver to my partner w/a brain tumor, an early conversation & an advanced directive were key.Knew then the path I was to follow. #hpm
Wed Jun 8 18:29:50 PDT 2011
hollyby
@JohnGirdwood Which part? #hpm

Wed Jun 8 18:29:54 PDT 2011
ctsinclair
@DrSnit I see many patients who deny symptoms because they don't want people to think anti-cancer treatments are failing. #hpm
Wed Jun 8 18:30:16 PDT 2011
joshgriffin
RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm
Wed Jun 8 18:30:24 PDT 2011
equijada
@jodyms: At the cancer centers I've seen the #HPM department is off & away....down a hall, on the top floor, set aside..start there. Amen
Wed Jun 8 18:30:26 PDT 2011
vj_CR
@DrSnit mmmm I dont think you can be taught on how to die.... probably its part of the journey.... #hpm
Wed Jun 8 18:30:39 PDT 2011
MatthewsMichele
I agree wholeheartedly! RT @equijada: @DrSnit dont think dying has to be taught...just experienced. #hpm
Wed Jun 8 18:30:56 PDT 2011
aliciabloom
@elderpages absolutely-- lovely stories in the book. i have a signed copy:) worked with dr. casarret when i was at penn. #hpm
Wed Jun 8 18:30:58 PDT 2011
ctsinclair
RT @uvmer: Sorry, my computer needs hospice! In slo-mo tonight. "C'mon computer, you can do it!" #hpm
Wed Jun 8 18:30:58 PDT 2011
DrSnit
@equijada :) That's like saying birth is natural- just go push sweetie. Death and illness are a
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process. We NEED EACH OTHER. #hpm

Wed Jun 8 18:30:58 PDT 2011
PinkRibbonBlues
RT @DrSnit Many fear if they don't have "hope" or a act a certain way during the illness process they WILL be abandoned. #hpm
Wed Jun 8 18:30:59 PDT 2011
Freshwidow
@aliciabloom But we resist when we are marshalling 100% to get thru 1st therapy, research.... etc. We create our disease mindset... #hpm
Wed Jun 8 18:31:04 PDT 2011
PracticalWisdom
Wonder Why? RT @jodyms: all cancer centers Ive seen #HPM depar is off away.down a hall, on the top floor, set aside. Lets start there. #HPM
Wed Jun 8 18:31:15 PDT 2011
MarksPhone
@ctsinclair well said and I've seen that as well but I think it is a way for them to feel hope #hpm
Wed Jun 8 18:31:16 PDT 2011
jodyms
RT @ctsinclair @DrSnit ..many patients who deny symptoms because they don't want people to think anti-cancer treatments are failing. #hpm
Wed Jun 8 18:31:22 PDT 2011
equijada
@DrSnit @equijada true that. #hpm

Wed Jun 8 18:31:33 PDT 2011
revdoc
@equijada @DrSnit But once U have the exper, U can't teach others except passively. We can teach "how to die well" w/ our global exps. #hpm
Wed Jun 8 18:31:36 PDT 2011
ctsinclair
RT @equijada: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm
Wed Jun 8 18:31:51 PDT 2011
ihatebreastcanc
RT @jodyms: RT @ctsinclair @DrSnit ..many patients who deny symptoms because they don't want people to think anti-cancer treatments are failing. #hpm
Wed Jun 8 18:31:56 PDT 2011
PracticalWisdom
Both can be scary/PainfulRT @DrSnit: @equijadaThats like saying birth is natural- just go push sweetie. Death/illness are a process. #HPM
Wed Jun 8 18:32:04 PDT 2011
HumpbacksRule
RT @ctsinclair: RT @equijada: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm
Wed Jun 8 18:32:29 PDT 2011
equijada
@ctsinclair true #hpm

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Wed Jun 8 18:32:32 PDT 2011
ctsinclair
@MarksPhone Agreed, it is a complex phenomenon that has effects on the individual and the team around them #hpm
Wed Jun 8 18:32:36 PDT 2011
drseisenberg
yep RT @jodyms @ctsinclair @DrSnit ..many patients who deny symptoms because they dont want people to think anti-cancer tx are failing. #hpm
Wed Jun 8 18:32:40 PDT 2011
jfclearywisc
RT @ctsinclair: dont think dying has to be taught...just experienced. "disagree, I teach patients/families what others have taught me" #hpm
Wed Jun 8 18:32:42 PDT 2011
vj_CR
@jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot from the ones used in the states #hpm
Wed Jun 8 18:32:58 PDT 2011
VillageMemorial
Anyone else attending this Friday's Statewide #Palliative Care Conference in Portland OR? #hpm
Wed Jun 8 18:32:58 PDT 2011
jodyms
@PracticalWisdom @drsnit Both are SCARY. Control freaks like myself want to know: how does this work?? #hpm
Wed Jun 8 18:33:04 PDT 2011
MarksPhone
@ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. That is difficult #hpm
Wed Jun 8 18:33:14 PDT 2011
elderpages
Wondering how patients are feeling abandoned and what they would like by way of support. #hpm
Wed Jun 8 18:33:46 PDT 2011
ctsinclair
@jodyms Ha! At our hospital the palliative medicine department is on top floor down a...dead end. Never realized till you said that. #hpm
Wed Jun 8 18:33:48 PDT 2011
hollyby
I'm not sure that teaching dying is the right term, maybe guiding people through the process, since each person's path is different. #hpm
Wed Jun 8 18:33:53 PDT 2011
PracticalWisdom
Think need 4 All! RT @jodyms: @PracticalWisdom @drsnit Both are SCARY. Control freaks like myself want to know: how does this work?? #HPM
Wed Jun 8 18:33:57 PDT 2011
ctsinclair
@vj_CR In what way are informed consents different? #hpm

Wed Jun 8 18:34:04 PDT 2011
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MarksPhone
Remember in our live we learn through experiences and reflect on them this is a different learning we may not have time to reflect #hpm
Wed Jun 8 18:34:17 PDT 2011
drseisenberg
RT @MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. Difficult #hpm
Wed Jun 8 18:34:21 PDT 2011
ctsinclair
@equijada And it is not so much telling them this is the way to die well, but here are how other families/patients coped well. #hpm
Wed Jun 8 18:34:36 PDT 2011
jodyms
RT @drseisenberg: RT @MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance to face what is there. Difficult #hpm
Wed Jun 8 18:34:40 PDT 2011
joshgriffin
RT @hollyby: I'm not sure that teaching dying is the right term, maybe guiding people through the process, since each person's path is different. #hpm
Wed Jun 8 18:34:46 PDT 2011
PracticalWisdom
@jodyms @PracticalWisdom @drsnit When people understand many times helps lower anxiety. This certainly is good for Body/Soul/Mind/Famiy #HPM
Wed Jun 8 18:34:49 PDT 2011
uvmer
@ctsinclair Wicked scary!!! I wanted to be the caregiver through the entire process, and they were wonderful support givers. #hpm
Wed Jun 8 18:34:49 PDT 2011
ctsinclair
@equijada The main theme to healthy coping with illness is adaptation. #hpm
Wed Jun 8 18:35:05 PDT 2011
Freshwidow
I strongly disagree - Pt, family, etc, can B learn that death is one real outcome. / @vj_cr don t think u can be taught how 2 die.. #hpm
Wed Jun 8 18:35:06 PDT 2011
elderpages
RT @MarksPhone: Remember in our lives we learn thru experiences and reflect on them. This learning we may not have time to reflect #hpm
Wed Jun 8 18:35:09 PDT 2011
HumpbacksRule
#hpm Dying is a lot of work for pt & caregiver. Talking, sharing & teaching are very important. Helps w the 'control freak' to some degree.
Wed Jun 8 18:35:09 PDT 2011
DrSnit
Even knowing others have been through the process before & talking it through leaves breadcrumbs. This matters! #hpm
Wed Jun 8 18:35:31 PDT 2011
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ctsinclair
RT @MarksPhone: we learn through experiences and reflect on them; this is a different learning we may not have time to reflect #hpm
Wed Jun 8 18:35:34 PDT 2011
jodyms
@ctsinclair @equiljada We can't ever forget the entire family context and the cultural context. #hpm
Wed Jun 8 18:35:34 PDT 2011
aliciabloom
@Freshwidow hear that & yet believe if pt's know what #palliative care is (enhances QoL & can improve survival) they would be receptive #hpm
Wed Jun 8 18:35:44 PDT 2011
jfclearywisc
RT @vj_CR: @jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot "not just the forms, a true discussion!" #hpm
Wed Jun 8 18:35:54 PDT 2011
MarksPhone
What action on reflection does one take when told terminal? That is the step that is critical to learn how to die. #hpm
Wed Jun 8 18:36:05 PDT 2011
PracticalWisdom
Again also helps patient.RT @jodyms: @ctsinclair @equiljada We cant ever forget the entire family context and the cultural context. #HPM
Wed Jun 8 18:36:14 PDT 2011
drseisenberg
RT @HumpbacksRule: #hpm Dying is a lot of work for pt & caregiver. Talking, sharing & teaching are very important. #hpm
Wed Jun 8 18:36:17 PDT 2011
ctsinclair
RT @DesiChicInPA: @ctsinclair we have navi's in neuroscience/brain malignancy, surgical oncology, lung and esophageal, geriatrics. #hpm
Wed Jun 8 18:36:26 PDT 2011
vj_CR
@MarksPhone @ctsinclair sometimes patients accept the reality and their families dont. Then they are the ones to be taught #hpm
Wed Jun 8 18:36:28 PDT 2011
uvmer
Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm
Wed Jun 8 18:36:33 PDT 2011
Freshwidow
NO. Dying is a family and community process. NOT just one experience. @drsnit -- / @equijada: dont think dying has to be taught... #hpm
Wed Jun 8 18:36:45 PDT 2011
vj_CR
RT @hollyby: I'm not sure that teaching dying is the right term, maybe guiding people through the process, since each person's path is different. #hpm
Wed Jun 8 18:36:45 PDT 2011
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ctsinclair
@vj_CR So true #hpm

Wed Jun 8 18:36:50 PDT 2011
jfclearywisc
RT @hollyby: I'm not sure that teaching dying is the right term, "Doctor" = teacher (was that my Latin class?) #hpm
Wed Jun 8 18:36:57 PDT 2011
PracticalWisdom
RT @vj_CR: @MarksPhone @ctsinclair sometimes patients accept the reality and their families dont. Then they are the ones to be taught #HPM
Wed Jun 8 18:37:04 PDT 2011
revdoc
We can demystify the mechanics of the dying process so that pts/fams are then free to concentrate on meaning/deal w/emotional cmpts #hpm
Wed Jun 8 18:37:04 PDT 2011
MarksPhone
@vj_CR Great point how to balance family and pateint because that is journey they are on #hpm
Wed Jun 8 18:37:11 PDT 2011
elderpages
RT @MarksPhone: What action on reflection does one take when told terminal? That is the step that is critical to learn how to die. #hpm
Wed Jun 8 18:37:20 PDT 2011
PracticalWisdom
RT @MarksPhone: @vj_CR Great point how to balance family and pateint because that is journey they are on #HPM
Wed Jun 8 18:37:33 PDT 2011
ctsinclair
@uvmer Was that how it was said 'talking to someone about end of life care?' Being a palliative doc, always curious how HPM introduced #hpm
Wed Jun 8 18:37:41 PDT 2011
equijada
RT @uvmer: Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm
Wed Jun 8 18:37:46 PDT 2011
jodyms
Dying is a group experience, agree @ Freshwidow NO. Dying is a family and community process. NOT just one experience #hpm
Wed Jun 8 18:37:48 PDT 2011
drseisenberg
What can med oncs do to support #cancer patients if treatments not working? #hpm
Wed Jun 8 18:37:53 PDT 2011
ctsinclair
RT @revdoc: We can demystify the mechanics of the dying process so pts/fams are free to concentrate on meaning/deal w/emotional cmpts #hpm
Wed Jun 8 18:38:02 PDT 2011
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revdoc
Type slower--you guys are making me dizzy tonight! #hpm

Wed Jun 8 18:38:05 PDT 2011
PracticalWisdom
@Freshwidow: What is one lesson you would like for us to hear from you tonight. This is a caring group and we are open to learning. #HPM
Wed Jun 8 18:38:19 PDT 2011
equijada
@uvmer how was it introduced? #hpm

Wed Jun 8 18:38:21 PDT 2011
Freshwidow
Absitively! RT @drsnit: Even knowing others have been through the process before & talking it through leaves breadcrumbs. This matters! #hpm
Wed Jun 8 18:38:26 PDT 2011
jfclearywisc
Has anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Comes up over & over #hpm
Wed Jun 8 18:38:34 PDT 2011
elderpages
RT @revdoc: We can demystify the mechanics of dying...T: Our webpage on "Last Few Days" is one of most visited! http://bit.ly/mfenFJ #hpm
Wed Jun 8 18:38:35 PDT 2011
HumpbacksRule
#hpm I think every1 is different on when/where/how they are ready to discuss the process. Gotta start where the pt is.
Wed Jun 8 18:38:38 PDT 2011
jodyms
@revdoc If you're dizzy - imagine me....I am crazed #hpm

Wed Jun 8 18:38:43 PDT 2011
VillageMemorial
Dr. Erik Fromme always puts on a great talk at every #Palliative Care Conference. Looking forward to Friday's event in Portland. #pdx #hpm
Wed Jun 8 18:38:51 PDT 2011
revdoc
@drseisenberg Either construct a palliative care plan for your pts (and know what you're doing) or consult HPM EARLY #hpm
Wed Jun 8 18:39:00 PDT 2011
jodyms
YES @PracticalWisdom @Freshwidow: What is one lesson you would like for us to hear from you .. we are open to learning. #HPM
Wed Jun 8 18:39:26 PDT 2011
equijada
@jfclearywisc interesting, I was just thinking that and how I used hope 10 years ago compared to now #hpm
Wed Jun 8 18:39:36 PDT 2011
ctsinclair
RT @MarksPhone: What action on reflection does one take when told terminal? "I have seen as a time of immense growth" #hpm
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Wed Jun 8 18:39:40 PDT 2011
Freshwidow
But you are treating this as a RATIONAL factual problem. It's NOT. RT @aliciabloom: if pts know what #palliative is they'd B receptive #hpm
Wed Jun 8 18:39:40 PDT 2011
vj_CR
@ctsinclair after I read the first ICF in english I was surprised to see how down to the facts it was #hpm
Wed Jun 8 18:39:45 PDT 2011
elderpages
RT @MarksPhone: @vj_CR Great point how to balance family and pateint because that is journey they are on #hpm
Wed Jun 8 18:39:50 PDT 2011
drseisenberg
RT @HumpbacksRule: #hpm I think every1 is different on when/where/how they are ready 2 discuss process. Gotta start where the pt is. #hpm
Wed Jun 8 18:39:55 PDT 2011
JoshGriffin
RT @jodyms: Dying is a group experience, agree @ Freshwidow NO. Dying is a family and community process. NOT just one experience #hpm
Wed Jun 8 18:39:57 PDT 2011
vj_CR
RT @MarksPhone: Remember in our live we learn through experiences and reflect on them this is a different learning we may not have time to reflect #hpm
Wed Jun 8 18:39:57 PDT 2011
jodyms
RT @drseisenberg: What can med oncs do to support #cancer patients if treatments not working? #hpm
Wed Jun 8 18:40:05 PDT 2011
ctsinclair
RT @revdoc: Type slower--you guys are making me dizzy tonight! "that's because this chat is a rockin! Having a great time!" #hpm
Wed Jun 8 18:40:18 PDT 2011
MarksPhone
@HumpbacksRule I totally agree where is the patient? w/o having studied it there is a tipping point in understanding which happens #hpm
Wed Jun 8 18:40:33 PDT 2011
equijada
@VillageMemorial I heart Erik. Please send him my regards. #hpm

Wed Jun 8 18:40:43 PDT 2011
aliciabloom
we educate patients & families about dying process to support acceptance & guide the experience. never forget every process is unique. #hpm
Wed Jun 8 18:40:53 PDT 2011
DrSnit
@HumpbacksRule You and @Freshwidow are SO SO SO on tonight with your insight!!!! #hpm
Wed Jun 8 18:40:53 PDT 2011
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PracticalWisdom
@Freshwidow Would you like for us to learn one lesson? I"m sure we can slow down to listen. #HPM
Wed Jun 8 18:41:09 PDT 2011
jfclearywisc
RT @drseisenberg: What can med oncs do to support #cancer patients if treatments not working? "Define goal of therapy early!!" #hpm
Wed Jun 8 18:41:10 PDT 2011
ctsinclair
RT @jfclearywisc: Anyone analysed #hpm tweetchats to examine prevelance of the word "hope" Comes up over & over "I have transcripts!" #hpm
Wed Jun 8 18:41:14 PDT 2011
authordhallman
#hpm A lesson - coordinate well the various care services so family can focus on patient.
Wed Jun 8 18:41:15 PDT 2011
DoctorFisher
Just ordered "The Art of Dying" by my friend @mollrob looking forward to reading it #hpm
Wed Jun 8 18:41:19 PDT 2011
joshgriffin
RT @ctsinclair: RT @revdoc: Type slower--you guys are making me dizzy tonight! "that's because this chat is a rockin! Having a great time!" #hpm
Wed Jun 8 18:41:22 PDT 2011
revdoc
@drseisenberg Have a sx mgmt assessment and plan for every pt every visit--as important as what CTX does pt need #hpm
Wed Jun 8 18:41:26 PDT 2011
jodyms
@drseisenberg My thought - patients/familys are afraid that their PCP & med onc will abandon them. Period. #hpm Very real.
Wed Jun 8 18:41:32 PDT 2011
ctsinclair
RT @DrSnit: @HumpbacksRule You and @Freshwidow are SO SO SO on tonight with your insight!!!! "Seconded!" #hpm
Wed Jun 8 18:41:36 PDT 2011
elderpages
RT @authordhallman: #hpm A lesson - coordinate well the various care services so family can focus on patient. #hpm
Wed Jun 8 18:41:40 PDT 2011
equijada
@DrSnit @HumpbacksRule @Freshwidow I learn so much from you. #hpm

Wed Jun 8 18:41:52 PDT 2011
HumpbacksRule
Thanks! >> @DrSnit @Freshwidow You and @Freshwidow are SO SO SO on tonight with your insight!!!! #hpm
Wed Jun 8 18:41:56 PDT 2011
@MarksPhone balance when you are not sick is hard enough...... imagine when you are
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vj_CR PracticalWisdom
#hpm
Wed Jun 8 18:41:57 PDT 2011
Thank you for this lesson.RT @authordhallman: #hpm A lesson - coordinate well the various care services so family can focus on patient. #HPM
Wed Jun 8 18:41:58 PDT 2011
hellen177
RT @uvmer: Offered the opportunity to meet with someone about end of life care at MGH...way too early in our fight. Still were clinging to hope #hpm
Wed Jun 8 18:41:58 PDT 2011
MarksPhone
@ctsinclair That is a great point how can we quantify it so we can understand it better #hpm
Wed Jun 8 18:42:10 PDT 2011
vj_CR
RT @revdoc: Type slower--you guys are making me dizzy tonight! #hpm | hehe me too!!!!
Wed Jun 8 18:42:24 PDT 2011
LJaneTn
@jodyms #HPM fear is often the place where patients start.

Wed Jun 8 18:42:26 PDT 2011
drseisenberg
RT @vj_CR: @MarksPhone balance when you are not sick is hard enough...... imagine when you are #hpm
Wed Jun 8 18:42:38 PDT 2011
PracticalWisdom
It's one of the reasons I respect all of you. RT @equijada: @DrSnit @HumpbacksRule @Freshwidow I learn so much from you. #HPM
Wed Jun 8 18:42:40 PDT 2011
DrSnit
@jodyms agreed! @drseisenberg Fear of abandonment and guilt is far bigger than fear of pain #hpm
Wed Jun 8 18:42:43 PDT 2011
jodyms
We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc ..prevelance of the word "hope" Comes up over & over
Wed Jun 8 18:42:44 PDT 2011
drseisenberg
RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. #hpm
Wed Jun 8 18:42:51 PDT 2011
uvmer
@ctsinclair To us,knew prognosis was grim but there are always miracles out there.Once end of life care came up,hour glass was running #hpm
Wed Jun 8 18:42:58 PDT 2011
ctsinclair
RT @revdoc: @drseisenberg Have a sx mgmt assessment and plan for every pt every visit-as important as what CTX does pt need "Yup!" #hpm
Wed Jun 8 18:42:59 PDT 2011
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VillageMemorial
We like to remember Kubler-Ross' DABDA doesn't always happen in order. #hpm

Wed Jun 8 18:43:10 PDT 2011
equijada
I think we need to have a journal club on hope/hubris. #hpm

Wed Jun 8 18:43:24 PDT 2011
ctsinclair
@revdoc @drseisenberg But important to realize the oncologist may have enough to do with just focusing on the anti-cancer treatment #hpm
Wed Jun 8 18:43:28 PDT 2011
PracticalWisdom
Profound~such an important Factor! RT @vj_CR: @MarksPhone balance when you are not sick is hard enough...... imagine when you are #HPM
Wed Jun 8 18:43:30 PDT 2011
aliciabloom
sometimes we have to help patients & families reframe their hope. there are many kinds of healing. #hpm
Wed Jun 8 18:43:33 PDT 2011
DrSnit
RT @LJaneTn: @jodyms #HPM fear is often the place where patients start.
Wed Jun 8 18:43:42 PDT 2011
hollyby
RT @jodyms: We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc ..prevelance of the word "hope" Comes up over & over #hpm
Wed Jun 8 18:43:48 PDT 2011
elderpages
RT @equijada: I think we need to have a journal club on hope/hubris. #hpm

Wed Jun 8 18:43:50 PDT 2011
PracticalWisdom
G8 Idea RT @equijada: I think we need to have a journal club on hope/hubris. #HPM

Wed Jun 8 18:43:52 PDT 2011
jodyms
@drseisenberg @LJaneTn That is true and sounds good but it boils down to things like this: who helps and when? #hpm
Wed Jun 8 18:44:18 PDT 2011
jodyms
EXCELLENT RT @PracticalWisdom G8 Idea RT @equijada: I think we need to have a journal club on hope/hubris. #HPM
Wed Jun 8 18:44:39 PDT 2011
ihatebreastcanc
@drseisenberg #cancer Be honest, don't give false hope. Know patient's grasp of his/her disease. Don't wail til very late for eol talk #hpm
Wed Jun 8 18:44:40 PDT 2011
hollyby
RT @aliciabloom: sometimes we have to help patients & families reframe their hope. there are many kinds of healing. '...and miracles' #hpm
Wed Jun 8 18:44:41 PDT 2011
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elderpages
RT @DrSnit: RT @LJaneTn: @jodyms #HPM fear is often the place where patients start....T: What helps move to acceptance/transcendence? #hpm
Wed Jun 8 18:44:45 PDT 2011
Pallimed
Articles on miracles and spirituality/religion in health care from Pallimed http://hpm.md/k98Z6D cc@uvmer #hpm
Wed Jun 8 18:44:45 PDT 2011
jfclearywisc
@uvmer @ctsinclair Miracles can come in many shapes and forms! "What do you mean by a miracle" is a teachable questions to residents #hpm
Wed Jun 8 18:44:45 PDT 2011
JohnGirdwood
http://ow.ly/1tC6qX RT @ctsinclair: RT @jfclearywisc: Anyone analysed #hpm tweetchats to examine prevelance of the word "hope"
Wed Jun 8 18:44:48 PDT 2011
PracticalWisdom
RT @aliciabloom: sometimes we have to help patients & families reframe their hope. there are many kinds of healing. #HPM
Wed Jun 8 18:44:52 PDT 2011
DrSnit
@VillageMemorial I like to remember that though I adore her, Kubler-Ross's DABDA doesn't happen for everyone and is culturally bound. #hpm
Wed Jun 8 18:45:02 PDT 2011
Satchwill
"@revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpm">excellent idea!
Wed Jun 8 18:45:08 PDT 2011
aliciabloom
@hollyby so true! #hpm

Wed Jun 8 18:45:23 PDT 2011
revdoc
@ctsinclair @drseisenberg Then involve a dedicated HPM consultant in process before the active tx "fails" #hpm
Wed Jun 8 18:45:27 PDT 2011
uvmer
@equijada At end of an office visit....kinda "oh, by the way, would you like to participate in an end of life discussion w/ some docs...#hpm
Wed Jun 8 18:45:39 PDT 2011
VillageMemorial
Anyone in the group attending funeral of Dr. #Kevorkian this Friday? #hpm
Wed Jun 8 18:45:41 PDT 2011
Intlphysicians
RT @fischmd: symptom science website: ECOG Symptom Outcomes and Practice Patterns (SOAPP) study, ecogsoapp.com, http://ow.ly/5dlKQ , #hpm
Wed Jun 8 18:46:16 PDT 2011
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drseisenberg
RT @revdoc: @ctsinclair @drseisenberg Then involve a dedicated HPM consultant in process before the active tx "fails" #hpm
Wed Jun 8 18:46:16 PDT 2011
LJaneTn
@jodyms #HPM existential fear dominates- strikes at the heart of hope

Wed Jun 8 18:46:18 PDT 2011
jfclearywisc
#alicebucketlist hit 1.43% of tweets for last 24 hours at 1730 CDT #hpm
Wed Jun 8 18:46:22 PDT 2011
aliciabloom
we also need to be clear about what a "successful" treatment is-- patients often assume success = cure, which may not be the case. #hpm
Wed Jun 8 18:46:23 PDT 2011
uvmer
@equijada Absolutely scared the shit out of us. Neither one of us could speak, and finally I said no thank you. #hpm
Wed Jun 8 18:46:31 PDT 2011
GroundSwellAus
sorry I'm chiming in late I just wanted to happy birthday pallimed #hpm
Wed Jun 8 18:46:31 PDT 2011
elderpages
Dr. Casarret suggests talking first about deliverables of hospice (nurse visits, aide visits, SW). Once buy-in, then mention hospice. #hpm
Wed Jun 8 18:46:43 PDT 2011
equijada
RT @uvmer: @equijada At end of an office visit....kinda "oh, by the way, would you like to participate in an end of life discussion w/ some docs...#hpm
Wed Jun 8 18:46:46 PDT 2011
drseisenberg
RT @LJaneTn: @jodyms #HPM existential fear dominates- strikes at the heart of hope #hpm
Wed Jun 8 18:46:49 PDT 2011
HumpbacksRule
#hpm @LJaneTn @jodyms Absolutely & sometimes fear looks like something else. Have to listen to pt>> fear is often the place where patients..
Wed Jun 8 18:46:53 PDT 2011
MarksPhone
Long ago in oncology pharma adriamycin nationally recognized oncologist said as did Jimmie Holland every cancer patient reacts diff #hpm
Wed Jun 8 18:46:55 PDT 2011
jodyms
The things I'm learning: I've never heard of a #HPM consultant.

Wed Jun 8 18:47:08 PDT 2011
equijada
@uvmer yes, I would not accept that either. #hpm

Wed Jun 8 18:47:09 PDT 2011
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ihatebreastcanc
RT @ctsinclair: RT @revdoc: We can demystify the mechanics of the dying process so pts/fams are free to concentrate on meaning/deal w/emotional cmpts #hpm
Wed Jun 8 18:47:14 PDT 2011
elderpages
RT @aliciabloom: we need to define "successful" treatment is-- patients often assume success = cure, which may not be the case. #hpm
Wed Jun 8 18:47:16 PDT 2011
PracticalWisdom
Wise RT @aliciabloom: we also need 2 B clear what a "successful" treatment is patients often assume success = cure may not be the case. #HPM
Wed Jun 8 18:47:17 PDT 2011
JohnGirdwood
Good thought, i'm nearby RT @VillageMemorial: Anyone in the group attending funeral of Dr. #Kevorkian this Friday? #hpm
Wed Jun 8 18:47:33 PDT 2011
VillageMemorial
@DrSnit Can you talk about the cultural differences of DABDA? #hpm
Wed Jun 8 18:47:34 PDT 2011
hollyby
Yahoo! RT @GroundSwellAus: sorry Im chiming in late I just wanted to happy birthday pallimed #hpm
Wed Jun 8 18:47:35 PDT 2011
Freshwidow
Absolutely. RT @drseisenberg: involve a dedicated HPM consultant in process before the active tx "fails" #hpm
Wed Jun 8 18:47:37 PDT 2011
Pallimed
RT @GroundSwellAus: sorry I'm chiming in late I just wanted to happy birthday pallimed #hpm "Hey thanks! 6 years of blogging!"
Wed Jun 8 18:47:38 PDT 2011
ihatebreastcanc
RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness they WILL be abandoned. Who teaches us to die? #hpm
Wed Jun 8 18:47:50 PDT 2011
Gregmogel
RT @LJaneTn: @jodyms #HPM fear is often the place where patients start.
Wed Jun 8 18:47:55 PDT 2011
BCSisterhood
@jodyms Loved one diequickly vs prolonged illness-shock of 1st way mind blowing & 2nd u have time to prepare. Lost husbands 2 each way. #hpm
Wed Jun 8 18:48:09 PDT 2011
drseisenberg
RT @MarksPhone: Long ago nationally recognized oncologist said as did Jimmie Holland every cancer patient reacts diff #hpm
Wed Jun 8 18:48:10 PDT 2011
uvmer
@equijada It was tough. #hpm

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Wed Jun 8 18:48:16 PDT 2011
DrSnit
@jodyms I get DM's all the time from patients in need of hospice and have NO IDEA where to go or how to deal with it. #hpm
Wed Jun 8 18:48:16 PDT 2011
ctsinclair
RT @jodyms: The things Im learning: Ive never heard of a #HPM consultant. 'Really!? I'm one! Seeing more patients ask for us." #hpm
Wed Jun 8 18:48:23 PDT 2011
revdoc
@Pallimed Happy birthday! #hpm

Wed Jun 8 18:48:26 PDT 2011
PracticalWisdom
Like the thought of analyzing Tweetchat afterward. Learned a great deal of ways I could improve/listen better as moderator after chat #HPM
Wed Jun 8 18:48:34 PDT 2011
vj_CR
@Freshwidow sorry.... I forgot the #hpm .... I get your point..... just think teach is no the word....
Wed Jun 8 18:48:46 PDT 2011
equijada
@Gregmogel @LJaneTn @jodyms Fear. I personally have a lot of it. I'm learning and growing. #hpm
Wed Jun 8 18:48:50 PDT 2011
DrSnit
@VillageMemorial We are in a chat right now. Using the #hpm hastag. Will talk later. Thanks.
Wed Jun 8 18:48:52 PDT 2011
GroundSwellAus
@Pallimed 6 years! wow! #hpm

Wed Jun 8 18:48:56 PDT 2011
HumpbacksRule
Such a good point. @DrSnit @VillageMemorial I like to remember that though I adore her, Kubler-Ross's DABDA doesn't...#hpm
Wed Jun 8 18:49:02 PDT 2011
PinkRibbonBlues
RT @elderpages @aliciabloom we need to define "successful" treatment- patients often assume success = cure, which may not be the case. #hpm
Wed Jun 8 18:49:03 PDT 2011
JohnGirdwood
Volunteers too!!! RT @elderpages: Dr. Casarret suggests talking first about deliverables of hospice (nurse visits, aide visits, SW). #hpm
Wed Jun 8 18:49:15 PDT 2011
aliciabloom
effective conversations re: #hospice don't start w/ word. can't drop the "h-bomb" right away. establish goals & determine needs 1st. #hpm
Wed Jun 8 18:49:18 PDT 2011
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PracticalWisdom
They trust U.RT @DrSnit: @jodyms I get DMs all the time from pt's in need of hospice have NO IDEA where to go or how to deal with it. #HPM
Wed Jun 8 18:49:18 PDT 2011
jodyms
My thought is if more survivors understand this - when we're well - the mystery is easier to accept when it does happen #hpm
Wed Jun 8 18:49:32 PDT 2011
ctsinclair
RT @DrSnit: I get DMs all the time from patients in need of #hospice & have NO IDEA where to go or how to deal with it. "wow!" really?" #hpm
Wed Jun 8 18:49:40 PDT 2011
uvmer
@BCSisterhood Strongly disagree! Can not prepare for the loss of someone you have spent your whole adult life with, and watch them die. #hpm
Wed Jun 8 18:49:55 PDT 2011
elderpages
RT @vj_CR: @Freshwidow I get your point..... just think teach is no the word.... T: Exploring? Sharing? #hpm
Wed Jun 8 18:50:06 PDT 2011
ctsinclair
@DrSnit There are a ton of us in social media who can help you with your hospice referral challenge. I would love to tackle this. #hpm
Wed Jun 8 18:50:15 PDT 2011
jfclearywisc
@ctsinclair @jodyms COnsultant=Attending in many commonwealth countries #hpm

Wed Jun 8 18:50:31 PDT 2011
hollyby
@jodyms Ppl need to know we focus on whole person & symptom control, & may even help people complete symptom-causing curative therapy. #hpm
Wed Jun 8 18:50:37 PDT 2011
vj_CR
@PracticalWisdom so true! #hpm and I think its part of the tweetchat point, trying to learn from it
Wed Jun 8 18:50:39 PDT 2011
DrSnit
@ctsinclair YES PLEASE #HPM

Wed Jun 8 18:50:43 PDT 2011
revdoc
@aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm
Wed Jun 8 18:50:47 PDT 2011
drseisenberg
Every single one reacted sooooo differently today #hpm

Wed Jun 8 18:51:00 PDT 2011
jodyms
Critical issue: T4: How do we share the #hpm mission to those in need of hospice? Don't
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we all have a responsibility?

Wed Jun 8 18:51:04 PDT 2011
elderpages
RT @aliciabloom: effective conversations re: #hospice cant drop the "h-bomb" first. establish goals & determine needs 1st...T: YES! #hpm
Wed Jun 8 18:51:13 PDT 2011
ctsinclair
@vj_CR so you don't have to forget the #hpm use http://Tweetchat.com/room/hpm #hpm
Wed Jun 8 18:51:13 PDT 2011
jodyms
RT @ctsinclair: @DrSnit There are a ton of us in social media who can help you with your hospice referral challenge. I would love to tackle this. #hpm
Wed Jun 8 18:51:18 PDT 2011
MarksPhone
if you look at #hcsmvac they are using a grass roots SM effort to increase flu vac rates in MO can we model that idea about hospice? #hpm
Wed Jun 8 18:51:28 PDT 2011
GroundSwellAus
is there no "peak" org in the US that has a listing of all hospice? #hpm
Wed Jun 8 18:51:28 PDT 2011
jfclearywisc
!!!@aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm
Wed Jun 8 18:51:35 PDT 2011
equijada
@DrSnit @ctsinclair let me know as well. #hpm

Wed Jun 8 18:51:38 PDT 2011
HumpbacksRule
RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm
Wed Jun 8 18:51:46 PDT 2011
ctsinclair
RT @drseisenberg: Every single one reacted sooooo differently today "That can be emotionally draining." #hpm
Wed Jun 8 18:51:53 PDT 2011
mollrob
RT @DoctorFisher Just ordered "The Art of Dying" by my friend @mollrob looking forward to reading it #hpm // Thanks Doc!
Wed Jun 8 18:51:59 PDT 2011
PracticalWisdom
Continuous Learning.RT @vj_CR: @PracticalWisdom so true! #hpm and I think its part of the tweetchat point, trying to learn from it #HPM
Wed Jun 8 18:52:05 PDT 2011
aliciabloom
MT @ctsinclair: @DrSnit There are a ton of us in SoMe who can help w/ hospice referral challenge. I would love 2 tackle this. "me too!" #hpm
Wed Jun 8 18:52:13 PDT 2011
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ctsinclair
@MarksPhone Will need to look into #hcsmvac #hpm

Wed Jun 8 18:52:15 PDT 2011
jodyms
Great points. I want to write about this @elderpages @aliciabloom: effective conversations re: #hospice..est. goal...t..T: YES! #hpm
Wed Jun 8 18:52:23 PDT 2011
VillageMemorial
Any thoughts as to how male caregivers feel about being called 'doulas'? Have heard word 'whisperer' being thrown around. #hpm
Wed Jun 8 18:52:26 PDT 2011
authordhallman
#hpm re T4: that's why I decided to publish "August Farewell", to promote PC education/options
Wed Jun 8 18:52:39 PDT 2011
vj_CR
RT @MarksPhone: if you look at #hcsmvac they are using a grass roots SM effort to increase flu vac rates in MO can we model that idea about hospice? #hpm
Wed Jun 8 18:52:52 PDT 2011
equijada
@drseisenberg: Every single one reacted sooooo differently today #hpm Many different pages. Part of the difficulty of transition. .
Wed Jun 8 18:52:54 PDT 2011
BCSisterhood
@jodyms Yes, we all have a responsibility & as baby boomers age, we need to reach out & do what we can to help one another. #hpm
Wed Jun 8 18:52:57 PDT 2011
Pallimed
Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit
Wed Jun 8 18:53:02 PDT 2011
jodyms
Ditto - we are all in this together:) @equijada @DrSnit @ctsinclair let me know as well. #hpm
Wed Jun 8 18:53:08 PDT 2011
jfclearywisc
@GroundSwellAus Palliative Coalition. NHPCO, AAHPM, HPNA, CAPC and others. Given state power, no huge Federal peak body (jfclearyaus) #hpm
Wed Jun 8 18:53:28 PDT 2011
GroundSwellAus
@Pallimed @DrSnit cheers #hpm

Wed Jun 8 18:53:33 PDT 2011
jodyms
RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnit
Wed Jun 8 18:53:59 PDT 2011
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joegormally
RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm

Wed Jun 8 18:54:03 PDT 2011
VillageMemorial
Wed Jun 8 18:54:12 PDT 2011
vj_CR
RT @ctsinclair: @vj_CR so you don't have to forget the #hpm use http://bit.ly/b1nePp #hpm || TY :)
Wed Jun 8 18:54:15 PDT 2011
hollyby
@Pallimed @GroundSwellAus @DrSnit http://www.palliativedoctors.org/ #hpm

Wed Jun 8 18:54:18 PDT 2011
DrSnit
Wed Jun 8 18:54:20 PDT 2011
doctatum
Pulled away by patient issue. Looks like i missed great #hpm chat. Transcript coming?
Wed Jun 8 18:54:35 PDT 2011
PracticalWisdom
RT @vj_CR:RT @MarksPhone: if U look #hcsmvac they R using grass roots SM effort 2 increase flu vac rates MO can we model idea hospice? #HPM
Wed Jun 8 18:54:41 PDT 2011
ctsinclair
@vj_CR Also makes it easy to favorite, and reply and retweet! Love it! #hpm
Wed Jun 8 18:54:48 PDT 2011
jodyms
What a lightning talk...so much to say about bridging needs of patients with understanding #hpm
Wed Jun 8 18:54:52 PDT 2011
joshgriffin
RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with incurable dz, tho, so there is no big "give up" later #hpm
Wed Jun 8 18:54:53 PDT 2011
equijada
@uvmer Sucks. Sorry to hear it rolled that way. #hpm

Wed Jun 8 18:55:00 PDT 2011
elderpages
Anyone know about Concerns Without Borders? They are doing grassroots palliative care in India. Website not real helpful :-( #hpm
Wed Jun 8 18:55:01 PDT 2011
MarksPhone
This topic as a communication strategy needs to be considered by segment Terminal patient vs. not vs. family vs. way before death #hpm
Wed Jun 8 18:55:06 PDT 2011
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GroundSwellAus
@elderpages yes well! #hpm

Wed Jun 8 18:55:26 PDT 2011
joegormally
I'm sorry I missed this chat now.. it looked like a great discussion #hpm
Wed Jun 8 18:55:38 PDT 2011
PracticalWisdom
@vj_CR @MarksPhone @doctatum is a Mo MD. #HPM

Wed Jun 8 18:55:49 PDT 2011
jodyms
Spot on RT MarksPhone This topic as a communication strategy needs to be considered by .... way before death #hpm
Wed Jun 8 18:55:49 PDT 2011
dspacl
Sorry to be getting here late, mates #hpm

Wed Jun 8 18:55:55 PDT 2011
GroundSwellAus
@elderpages what do you want to know? #hpm

Wed Jun 8 18:56:04 PDT 2011
vj_CR
@ctsinclair thanks! makes it easier :) #hpm

Wed Jun 8 18:56:05 PDT 2011
DrSnit
@hollyby thank you @Pallimed both ! #hpm

Wed Jun 8 18:56:10 PDT 2011
PracticalWisdom
RT @jodyms: Spot on RT MarksPhone This topic as a communication strategy needs to be considered by .... way before death #HPM
Wed Jun 8 18:56:16 PDT 2011
jodyms
We probably need to start wrapping up....loose thoughts, deep thoughts, take away from tonight's #hpm discussion?
Wed Jun 8 18:56:20 PDT 2011
InpatientMed
RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdoc
Wed Jun 8 18:56:31 PDT 2011
JoshGriffin
RT @hollyby: @Pallimed @GroundSwellAus @DrSnit http://www.palliativedoctors.org/ #hpm

Wed Jun 8 18:56:32 PDT 2011
daitpcg
RT @aliciabloom: effective conversations re: #hospice don't start w/ word. can't drop the "hbomb" right away. establish goals & determine needs 1st. #hpm
Wed Jun 8 18:56:34 PDT 2011
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MarksPhone
Canadian oncologist told me that we've lost the understanding of death when we moved off the farm. it is not longer part of life 2day #hpm
Wed Jun 8 18:56:41 PDT 2011
ctsinclair
RT @doctatum: Pulled away by patient issue. Looks like i missed great #hpm chat. Transcript coming? "Yes" #hpm
Wed Jun 8 18:56:44 PDT 2011
jfclearywisc
@jodyms Well done!! #hpm

Wed Jun 8 18:56:51 PDT 2011
HumpbacksRule
Yes! >@MarksPhone This topic as a communication strategy needs to be considered by segment Terminal patient vs. not vs. family vs. .... #hpm
Wed Jun 8 18:56:54 PDT 2011
elderpages
RT @GroundSwellAus: @elderpages what do you want to know? T: Unable to find detailed description of activities. URL would be great! #hpm
Wed Jun 8 18:56:56 PDT 2011
ctsinclair
RT @dspacl: Sorry to be getting here late, mates 'no problem, brother!' #hpm
Wed Jun 8 18:56:56 PDT 2011
DrSnit
@jodyms WOW! Thank you so so so much for the amazing topics tonight! I've missed you so much!! xo #hpm
Wed Jun 8 18:56:59 PDT 2011
dspacl
I have an idea to describe what we do in terms of the latest lexicon of #HCR #HPM
Wed Jun 8 18:57:08 PDT 2011
hollyby
@jodyms Thanks so much Jody! Wonderful chat. Thanks to everyone for joining in with all your thoughts! #hpm
Wed Jun 8 18:57:52 PDT 2011
jodyms
Wonderful message via @hollyby and others in #HPM: survivors, this is wholistic care...kind and gentle, delivered by incredible people.
Wed Jun 8 18:57:52 PDT 2011
dspacl
Goal Oriented = Patient Centered = GO PC #hpm

Wed Jun 8 18:57:53 PDT 2011
PracticalWisdom
Confetti Tweetchat Seems 2 me. Agree @Drsnit?RT @dspacl: I have an idea to describe what we do in terms of the latest lexicon of #HCR #HPM
Wed Jun 8 18:57:53 PDT 2011
ctsinclair
@aliciabloom Never heard the term 'H-bomb' I am stealing that one. With credit to you of course. #hpm
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Wed Jun 8 18:57:53 PDT 2011
MarksPhone
That is the issue we are so far removed from death that when we face it it's in our grill We no longer grow up with farm animals dying #hpm
Wed Jun 8 18:57:53 PDT 2011
GroundSwellAus
@elderpages http://concernwithoutborders.org/initiatives.htm #hpm

Wed Jun 8 18:58:02 PDT 2011
JohnGirdwood
@hollyby hospice patient on chemotherapy? Not where I'm at. Maybe I read it wrong... But at my hospice, no curative on primary dx #hpm
Wed Jun 8 18:58:02 PDT 2011
jodyms
RT @MarksPhone: Canadian oncologist told me that we've lost the understanding of death when we moved off the farm. it is not longer part of life 2day #hpm
Wed Jun 8 18:58:05 PDT 2011
elderpages
Did we get to actionable items concerning abandonement (and not abandoning?) #hpm
Wed Jun 8 18:58:14 PDT 2011
HumpbacksRule
@jodyms #hpm Thank you so much! I always learn from this chat and tonight was wonderful. Great job!
Wed Jun 8 18:58:21 PDT 2011
ctsinclair
RT @MarksPhone: Canadian oncologist told me that weve lost the understanding of death when we moved off the farm. 'have heard also' #hpm
Wed Jun 8 18:58:28 PDT 2011
apjonas
Pat Jonas, Family Doc, OH, lurking. I mention death to about 20% of my pts daily: allow them to hear the word from MD for conditioning #hpm
Wed Jun 8 18:58:29 PDT 2011
jodyms
@DrSnit Thank you my friend. I wish I could have kept up with all your incredible #hpm thoughts & comments.
Wed Jun 8 18:58:30 PDT 2011
MarksPhone
@JohnGirdwood it can be palliative? #hpm

Wed Jun 8 18:58:41 PDT 2011
PinkRibbonBlues
RT Our culture avoids it. @MarksPhone we've lost the understanding of death when we moved off the farm. no longer part of life 2day #hpm
Wed Jun 8 18:58:41 PDT 2011
GroundSwellAus
@elderpages have been to IPM in Kerala a coupld of times too! #hpm

Wed Jun 8 18:58:45 PDT 2011
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ctsinclair
RT @elderpages: Did we get to actionable items concerning abandonement (and not abandoning?) 'no, explore next time?' #hpm
Wed Jun 8 18:58:52 PDT 2011
aliciabloom
@ctsinclair gets people laughing when i'm lecturing. feel free to use it anytime! #hpm
Wed Jun 8 18:58:54 PDT 2011
dspacl
Let me try that again! Goal Oriented + Patient Centered = GO PC #hpm

Wed Jun 8 18:58:56 PDT 2011
equijada
@jodyms thanks for hosting. thanks! #hpm

Wed Jun 8 18:58:59 PDT 2011
VillageMemorial
Hope to see those of you heading to the Statewide #Palliative Care Conf. at the Oregon Convention Center this Fri. #hpm
Wed Jun 8 18:59:03 PDT 2011
vj_CR
We should all do our best so that death is a tranquile journey surrounded by pple who care abt you #hpm
Wed Jun 8 18:59:07 PDT 2011
drseisenberg
HPM = Humanity Providing Moments #hpm

Wed Jun 8 18:59:15 PDT 2011
jodyms
We didn't & must @elderpages Did we get to actionable items concerning abandonement (and not abandoning?) #hpm
Wed Jun 8 18:59:15 PDT 2011
jfclearywisc
RT @apjonas: Pat Jonas, Family Doc, OH, lurking. I mention death to about 20% of pts daily: allow them to hear the word "conditioning" #HPM
Wed Jun 8 18:59:20 PDT 2011
equijada
@DrSnit @jodyms Snit - you rock my socks off *confetti* #hpm

Wed Jun 8 18:59:22 PDT 2011
elderpages
RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC#hpm #hpm
Wed Jun 8 18:59:24 PDT 2011
PracticalWisdom
@jodyms I think a great way to measure the success of a TweetChat is to see how many folks continue to stay engaged/learn/Listen A! 2 U #HPM
Wed Jun 8 18:59:26 PDT 2011
ctsinclair
RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC "Nice!" #hpm
Wed Jun 8 18:59:33 PDT 2011
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elderpages
RT @drseisenberg: HPM = Humanity Providing Moments #hpm

Wed Jun 8 18:59:37 PDT 2011
PracticalWisdom
Lovely thought RT @vj_CR: We should all do our best so that death is a tranquile journey surrounded by pple who care abt you #HPM
Wed Jun 8 18:59:45 PDT 2011
uvmer
@equijada Thanks.Not sure of best way to handle it.The way I found out about palliative care/hospice, in the end, worked best for us/me #hpm
Wed Jun 8 18:59:55 PDT 2011
drseisenberg
RT @equijada: @DrSnit @jodyms Snit - you rock my socks off *confetti* #hpm
Wed Jun 8 18:59:58 PDT 2011
VillageMemorial
Great discussion everyone, thanks! #hpm

Wed Jun 8 19:00:00 PDT 2011
BCSisterhood
@jodyms @Freshwidow For the single spouse left behind it ultimately is a solo experience. Intensity of family & friends love drops off #hpm
Wed Jun 8 19:00:00 PDT 2011
apjonas
I never expect onc to be involved in care of pt when no more chemo to offer. They're uneasy w/death in Dayton #hpm
Wed Jun 8 19:00:00 PDT 2011
ctsinclair
RT @drseisenberg: HPM = Humanity Providing Moments "Love it! Can we trademark it? ;-)" #hpm
Wed Jun 8 19:00:04 PDT 2011
hollyby
@JohnGirdwood @MarksPhone Patients can get palliative chemo and radiation on hospice. #hpm
Wed Jun 8 19:00:09 PDT 2011
DrSnit
@equijada :) x to the o!!! *confetti* #hpm

Wed Jun 8 19:00:11 PDT 2011
hcsmvac
@PracticalWisdom @vj_CR @MarksPhone My ears are burning! I hope that lessons learned w/ #hcsmvac can translate 2 other health projects! #hpm
Wed Jun 8 19:00:13 PDT 2011
vj_CR
thanks to all for letting me be part of this chat :) #hpm

Wed Jun 8 19:00:15 PDT 2011
jodyms
All of you have been terrific. While our time is "officially" up the lurkers and loiterers can now appear! Good night. #hpm
Wed Jun 8 19:00:19 PDT 2011
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jfclearywisc
@jodyms @elderpages Stay the distance #HPM

Wed Jun 8 19:00:22 PDT 2011
aliciabloom
we abandoned abandonment today. there's always next week, right? #hpm

Wed Jun 8 19:00:25 PDT 2011
apjonas
RT @PracticalWisdom: RT @vj_CR: We should all do our best so that death is a tranquile journey surrounded by pple who care abt you #hpm
Wed Jun 8 19:00:35 PDT 2011
hollyby
RT @ctsinclair: RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC "Nice!" #hpm
Wed Jun 8 19:00:36 PDT 2011
Freshwidow
@jodyms Thank you for hosting an awesome chat. Sorry if I got folks off topic. Big topic & big perspective shift! #hpm
Wed Jun 8 19:00:37 PDT 2011
PracticalWisdom
Wow, this is a great way to help folks understand Palliative MedicineRT @elderpages: RT @drseisenberg: HPM = Humanity Providing Moments #HPM
Wed Jun 8 19:00:41 PDT 2011
jodyms
RT @PracticalWisdom: Lovely thought RT @vj_CR: We should all do our best so that death is a tranquile journey surrounded by pple who care abt you #HPM
Wed Jun 8 19:00:43 PDT 2011
dspacl
RT @elderpages: RT @drseisenberg: HPM = Humanity Providing Moments #hpm

Wed Jun 8 19:00:45 PDT 2011
vj_CR
RT @hcsmvac: @PracticalWisdom @vj_CR @MarksPhone My ears are burning! I hope that lessons learned w/ #hcsmvac can translate 2 other health projects! #hpm
Wed Jun 8 19:00:45 PDT 2011
jodyms

Wed Jun 8 19:00:47 PDT 2011
DrSnit
@vj_CR thank you for being here!!! #hpm

Wed Jun 8 19:00:54 PDT 2011
doctatum
RT @ctsinclair: RT @MarksPhone: Canadian oncologist told me that weve lost the understanding of death when we moved off the farm. 'have heard also' #hpm
Wed Jun 8 19:01:00 PDT 2011
elderpages
@jodyms Thanks for hosting. It's a bit like herding cats. You did great! #hpm
Wed Jun 8 19:01:04 PDT 2011
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HumpbacksRule
RT @drseisenberg: HPM = Humanity Providing Moments #hpm

Wed Jun 8 19:01:09 PDT 2011
jodyms
Thanks to all of you for sharing your thoughts and wisdom:) #hpm
Wed Jun 8 19:01:30 PDT 2011
drseisenberg
Yea RT @elderpages: @jodyms Thanks for hosting. Its a bit like herding cats. You did great! #hpm
Wed Jun 8 19:01:35 PDT 2011
ctsinclair
RT @elderpages: Casarret suggests talking 1st abt deliverables of hospice (RN visits, aide visits, SW), then mention #hospice. #hpm
Wed Jun 8 19:01:40 PDT 2011
hollyby
Don't forget to 'follow' all the lovely people in this chat to keep the convo going all week long! #hpm
Wed Jun 8 19:01:44 PDT 2011
doctatum
RT @ctsinclair: RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC "Nice!" #hpm
Wed Jun 8 19:01:50 PDT 2011
jodyms
@Freshwidow It was awesome. I think everyone enjoyed the different #hpm perspectives. We all bring something valuable.
Wed Jun 8 19:01:59 PDT 2011
PracticalWisdom
@apjonas Pat, I've missed you. I"m so glad you came tonight. You are another person who gives value and kindness. #HPM
Wed Jun 8 19:02:02 PDT 2011
ctsinclair
RT @DrSnit: @vj_CR thank you for being here!!! "agreed!" #hpm

Wed Jun 8 19:02:19 PDT 2011
aliciabloom
@ctsinclair @elderpages yes, because #hospice isn't about what we can't do or don't do, but all the care we provide. #hpm
Wed Jun 8 19:02:24 PDT 2011
jodyms
@elderpages thanks so much! Cats or wild boars! I wasn't sure which....I stopped herding. Just listened:) #hpm
Wed Jun 8 19:02:32 PDT 2011
revdoc
@drseisenberg @elderpages @jodyms Thanks for hosting! #hpm

Wed Jun 8 19:02:35 PDT 2011
vj_CR
@mpalko @PracticalWisdom definitively! I think if your life is like that your death will
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probably be too! #hpm

Wed Jun 8 19:02:38 PDT 2011
elderpages
@ctsinclair ACtually Casarret is 1st hopes, 2nd deliverables 3rd the "H-word". :-) #hpm
Wed Jun 8 19:02:41 PDT 2011
MarksPhone
as always you are only as good at the small group you are learning from. Our single experiences become group and are refected up #hpm
Wed Jun 8 19:02:46 PDT 2011
PracticalWisdom
RT @doctatum: RT @ctsinclair: RT @MarksPhone: Canadian oncologist weve lost understanding of death when we moved off the farm. #HPM
Wed Jun 8 19:02:52 PDT 2011
uvmer
@jodyms Is the hour over already??? I am still reading! Everyone was amazing. #hpm
Wed Jun 8 19:02:54 PDT 2011
drseisenberg
Jody, Jody, who can we turn to? You rocked the mic so cool and so true... #hpm
Wed Jun 8 19:03:03 PDT 2011
PracticalWisdom
RT @MarksPhone:you are only as good at the small group you are learning from. Our single experiences become group and are refected up #HPM
Wed Jun 8 19:03:14 PDT 2011
ctsinclair
@Jodyms Fantastic first time host for #hpm. Do we have any future first time hosts in the audience tonight? http://hpm.md/kwpda6 #hpm
Wed Jun 8 19:03:20 PDT 2011
vj_CR
@ctsinclair @DrSnit @PracticalWisdom hope to see you guys around next week #hpm
Wed Jun 8 19:03:24 PDT 2011
mpalko
@vj_CR agreed. Why wait until the end? #hpm

Wed Jun 8 19:03:29 PDT 2011
MarksPhone
These chats w/people seeking to solve problems are so close to small group learning and communities of practice it amazes me #hpm
Wed Jun 8 19:03:50 PDT 2011
ctsinclair
For all the new people who joined us tonight (and there were a lot) we cordially invite you back next week 9p ET every Wed night #hpm
Wed Jun 8 19:03:55 PDT 2011
aliciabloom
thanks to @jodyms for hosting our amazing & engaging chat! #hpm
Wed Jun 8 19:03:55 PDT 2011
dockj

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Wed Jun 8 19:04:01 PDT 2011
PracticalWisdom
love to hear the song IRL or YouTube RT @drseisenberg: Jody, Jody, who can we turn to? You rocked the mic so cool and so true... #HPM
Wed Jun 8 19:04:10 PDT 2011
drpippa
Hate missing tweet chat. Urgent care was pretty fun tonight though - great team! Off to read the transcript. #hpm
Wed Jun 8 19:04:20 PDT 2011
jodyms
@ctsinclair It was awesome:) I hope others will step up in and and host - the bigger the conversation, the better http://hpm.md/kwpda6 #hpm
Wed Jun 8 19:04:21 PDT 2011
vj_CR
@jodyms thanks for moderating #hpm

Wed Jun 8 19:04:21 PDT 2011
ctsinclair
We are closing in on our 1st anniversary for #hpm Tweetchat in mid July. Thanks all for participating! #hpm
Wed Jun 8 19:04:33 PDT 2011
PracticalWisdom
RT @ctsinclair: For all new people who joined tonight (and there were a lot) we cordially invite U back next week 9p ET every Wed night #HPM
Wed Jun 8 19:04:34 PDT 2011
dockj
@jodyms sorry I missed the debut! #hpm duty calls

Wed Jun 8 19:04:36 PDT 2011
hollyby
RT @ctsinclair: We are closing in on our 1st anniversary for #hpm Tweetchat in mid July. Thanks all for participating! #hpm
Wed Jun 8 19:04:53 PDT 2011
jodyms
@uvmer Everyone was amazing! We're even past time - this is great conversation #hpm
Wed Jun 8 19:05:06 PDT 2011
JohnGirdwood
Not where i'm at. Either/or yet same org. RT @hollyby: @MarksPhone Patients can get palliative chemo and radiation on hospice. #hpm
Wed Jun 8 19:05:29 PDT 2011
PracticalWisdom
Jody was this your first TweetChat? RT @dockj: @jodyms sorry I missed the debut! #hpm duty calls #HPM
Wed Jun 8 19:05:36 PDT 2011
Pallimed
#HPM Tweetchat June 8, 2011 Transcript http://hpm.md/ksmSaG

Wed Jun 8 19:05:36 PDT 2011
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drseisenberg
Done RT @PracticalWisdom: love 2 hear the song @drseisenberg: Jody, Jody, who can we turn 2? You rocked the mic so cool and so true... #hpm
Wed Jun 8 19:05:51 PDT 2011
JohnGirdwood
Yes ma'am! RT @hollyby: Don't forget to 'follow' all the lovely people in this chat to keep the convo going all week long! #hpm
Wed Jun 8 19:06:09 PDT 2011
GroundSwellAus
RT @ctsinclair: We are closing in on our 1st anniversary for #hpm Tweetchat in mid July. Thanks all for participating! #hpm
Wed Jun 8 19:06:10 PDT 2011
jodyms
@dockj Thanks for stopping by. We talked about....everything:) #hpm

Wed Jun 8 19:06:10 PDT 2011
GroundSwellAus
RT @Pallimed: #HPM Tweetchat June 8, 2011 Transcript http://hpm.md/ksmSaG #hpm

Wed Jun 8 19:06:16 PDT 2011
BCSisterhood
@jodyms @uvmer I joined late & my Internet at the hotel isn't cooperating. Is anyone else having trouble? #hpm
Wed Jun 8 19:06:21 PDT 2011
drseisenberg
Peace y'all... #hpm

Wed Jun 8 19:07:05 PDT 2011
GroundSwellAus
nice to be here... even if for the last bit! #hpm

Wed Jun 8 19:07:12 PDT 2011
ctsinclair
@BCSisterhood It was pretty fast tonight but I didnt have any problems #hpm
Wed Jun 8 19:07:40 PDT 2011
ctsinclair
G'night all! #hpm

Wed Jun 8 19:08:42 PDT 2011
Freshwidow
Goodnight everyone and thank you for letting me be here! RT @ctsinclair: G'night all! #hpm
Wed Jun 8 19:09:25 PDT 2011
Pallimed
@GroundSwellAus No problem....saw the post. It was a great one. Going to feature it on Palliative Care Grand Rounds tonight. #hpm
Wed Jun 8 19:09:40 PDT 2011
uvmer
@BCSisterhood I was having trouble too....right here at home. Got real sloooooooww. #hpm
Wed Jun 8 19:10:32 PDT 2011
GroundSwellAus
@Pallimed slightly embarrassed... wow grand rounds! I want to work at your hospital! ;)
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#hpm
Wed Jun 8 19:10:52 PDT 2011
IamAlcibiades
Missed the boat for #HPM but I'll toss out my unsolicited opinion on T1. All cancer diagnoses should come with a palliative care consult.
Wed Jun 8 19:13:56 PDT 2011
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#HPM Tweet Chat 6:8:11

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#HPM Tweet Chat 6:8:11

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#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

Hi all. Thanks for hosting @jodyms #hpm

@jfclearywisc Stay safe! #hpm

@jfclearywisc @equijada @ctsinclair - greetings! #HPM

@authordhallman Hi David, welcome. #hpm

Welcome @authorhallman @aliciabloom @medicalmarcom #hpm

@jodyms Hey cats! Longtime no see Jodycakes!! Muah!! #hpm

#hpm - Healthcare Social Media Transcript

As always, all tweets are my own #hpm

@drsnit @hollyby @practicalwisdom Awesome to see you:) #hpm

Hi! Lurking in the shadows and might butt in. (: #HPM

<--#hospice, #hpm advocate, patient and community empowerment enthusiast! #hpm

#hpm - Healthcare Social Media Transcript

<---oh and #socialmedia junkie! :-) #hpm

Pam Harris MD @KCHospice, ordained minister #hpm

@revdoc @KCHospice Tweets are my own #hpm

#hpm - Healthcare Social Media Transcript

@PinkRibbonBlues Hi Gayle! Welcome to the chat! #hpm

@ctsinclair Most probably... (: Not the silent type. Thanks. #HPM

And The Palliatives convene #hpm

#hpm - Healthcare Social Media Transcript

Wed Jun 8 18:10:19 PDT 2011

@andybaldwin Hi Andy! Great to have you join us! #hpm

@jodyms Thanks Jody. (: #hpm

@elderpages T1: Transition from curative to comfort and supportive. #hpm

@jodyms Yes yes yes! so glad you're here @uvmer!! xo #hpm

#hpm - Healthcare Social Media Transcript

Hello Palliators #hpm

@aliciabloom Nice concise statement! #hpm

#hpm - Healthcare Social Media Transcript

@jodyms Katherine with bone-only MBC #hpm

Med oncs can become involved with a hospice. Continuity. #hpm

#hpm - Healthcare Social Media Transcript

Wed Jun 8 18:14:42 PDT 2011

@ihatebreastcanc Thank you for joining us. #hpm

#hpm - Healthcare Social Media Transcript

stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm

#hpm - Healthcare Social Media Transcript

RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpm

T1: Compassionate communication must be there from day 1. #hpm

#hpm - Healthcare Social Media Transcript

EOL navigators, doulas? Those are interesting thoughts. #hpm

Wait!!! Dont start yet!!! I am here now! :) #hpm

#hpm - Healthcare Social Media Transcript

the patient at diagnosis and revisit them #hpm

@elderpages @MatthewsMichele the patient's page...definitely the patient's page. #hpm

The little one and I were out washing my truck..... :) #hpm

#hpm - Healthcare Social Media Transcript

Wed Jun 8 18:21:49 PDT 2011

@PracticalWisdom hello Lisa! Im I too late to jump in #hpm ??

#hpm - Healthcare Social Media Transcript

@vj_CR @PracticalWisdom my two cents...no way, jump in anytime! ;) #hpm

@MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome!

#hpm - Healthcare Social Media Transcript

@ctsinclair What about collaborating w/friendly funeral directors? #hpm

Sorry had a senior day totally forgot #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@ctsinclair EOL facilitor doesn't work, either.....#hpm

@jfclearywisc Do you have link to some of James Tulsky's work? #hpm

@aliciabloom Good points. Planning is vital. #hpm