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The role of prevention

and innovation in
sustainable healthcare
systems
A point of view of the european psoriasis
and psoriatic arthritis patients

www.europso.eu
@europso
@CMRancel
#EPRD15

Texto

Europso: 26 years working for psoriasis


patients
www.europso.eu
@europso
#EPRD15

Psoriasis is an auto-immune related, chronic,


inflammatory skin condition which currently has

no cure

LebwohlM,BachelezH,BarkerJ,etal.Patientperspectivesinthemanagementofpsoriasis:ResultsfromthepopulationbasedMultinationalAssessmentofPsoriasisandPsoriaticArthritisSurvey.Journalofthe
AmericanAcademyofDermatology.2014,http://www.jaad.org/article/S01909622(14)009773/abstractMED/PSD/APR/201409/08

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soriasis: more than skin

LebwohlM,BachelezH,BarkerJ,etal.Patientperspectivesinthemanagementofpsoriasis:ResultsfromthepopulationbasedMultinationalAssessmentofPsoriasisandPsoriaticArthritisSurvey.JournaloftheAmerican
AcademyofDermatology.2014,http://www.jaad.org/article/S01909622(14)009773/abstractMED/PSD/APR/201409/08

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Psoriasis WHO
Resolution

WHA67.9
Agenda
item 13.5
24 May 2014
also
that
psoriasis
is
a
chronic,
noncommunicable,
painful,

Recognizing

disfiguring, and disabling disease for which there is no cure


in addition to the pain, itching and bleeding caused by
psoriasis, many affected individuals around the world experience social and work-related stigma
and discrimination
Recognizing further that

elevated risk for a number of co-morbid conditions,


namely,
cardiovascular diseases, diabetes, obesity, Crohn
disease,
heart
attack,
ulcerative
colitis,
metabolic
syndrome, stroke and liver disease
Underscoring that those with psoriasis are at an

also develop psoriatic arthritis, which


causes pain, stiffness and swelling at the joints and can lead to permanent disfigurement and
disability
Underscoring also that

up to 42%

of those with psoriasis

incorrect or delayed
diagnosis, inadequate treatment options and insufficient access
to care
Underscoring that too many people in the world suffer needlessly from psoriasis due to

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Psoriasis Data Care

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Juan Lpez

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Psoriasis Data Treatment

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Juan Lpez

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Psoriasis/Psoriatic arthritis costs


Psoriasis costs US up to $135 billion a year

directcosts,medicalexpensesasdoctorsappointmentsandtreatments
indirectcosts,whichmeasurehowpsoriasisaffectsworkproductivity
intangiblecosts,analyzingtheimpactofpsoriasisonqualityoflife
medicalexpensesrelatedtopsoriasiscomorbidities
7 ene. 2015 - JAMA Dermatology. Dr. April Armstrong, University of Colorado Denver,
Member of the National Psoriasis Foundation Medical Board, co-authored the study

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Psoriasis innovation
New treatments
Unmet needs
Clinical trials
Better access
Faculty of Life Sciences & Medicine Kings College London

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Psoriasis: to treat or to
manage?
Prevention:
holistic approach
of disease
control
Information
Networking

UlrichMrowietz,KirstenSteinzandSaschaGerdesPsoriasisCenter,DepartmentofDermatology,UniversityMedical
CenterSchleswigHolstein,CampusKiel,Germany
Correspondence:UlrichMrowietz,MD,PsoriasisCenter,DepartmentofDermatology,UniversityMedicalCenter

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Patients organizations
role

ADVOCACY

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Patients organizations
role

LEARNING

Accin Psoriasis, Europso Member

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Patients organizations
role

LOBBY

France Psoriasis, Europso Member

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Patients organizations
role
INVESTMENT IN FUTURE:
II Psoriasis Youth
Round Table Europso,
Spain 2015

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ACCESS. HEALTH. LIFE


19 MILLION psoriasis
patients in Europe
European Patients Rights
PATIENT= RESOURCH

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The role of prevention and


innovation in sustainable
healthcare systems
Thank you for listening psoriasis
patients voice