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ntroduction
W 4333
nlqe
noL adL
uependenL
CrowLh and deveopmenL ln
heaLhy and slck condlLlon
,2ily
W 1he fam||y |s the constant |n a ch||d's ||fe
W arents are experts |n the|r ch||d's care and
know more about the|r ch||d then we can
ever |earn through assessments or charts
W 1he fam||y |s a|so the ch||d's ma|n source of
support prov|d|ng stab|||ty |n what can be an
otherw|se traumat|c per|od |n a ch||d's ||fe
W 1he presence of the fam||y dur|ng hea|th
re|ated procedures can s|gn|f|cant|y reduce
both the ch||d's and parent's anx|ety
ursing
W -urses must work w|th the fam||y to
deve|op the best p|an of care for a ch||d
W Decreased anx|ety from the pat|ent and
fam||y decreases the stress on
hea|thcare workers pos|t|ve|y affect|ng
the|r ab|||ty to prov|de treatment
W In essence the nurse must attend to
both the needs of the fam||y and ch||d |n
order to max|m|ze a ch||d's outcomes
W ed|atr|c care has adopted the ph||osophy of
a fam||ycentered care approach |n order to
max|m|ze the we|| be|ng of ped|atr|c
pat|ents
W 1he ph||osophy |s founded on the
co||aborat|on of the fam||y nurses and
hosp|ta| staff to p|an prov|de and eva|uate
care
W 1he ph||osophy |s grounded on severa|
pr|nc|p|es that revo|ve around the centra|
|dea that the fam||y |s the constant |n a
ch||d's ||fe
,2ily-centered c,re
W lomllyceoteteJ cote ls o moJel of beoltb cote Jellvety tbot
empboslzes ptovlJloq lofotmotloo qlvloq poteots coottol ovet
Jeclsloo mokloq ooJ tespectloq ooJ soppottloq poteots (kloq
kloq oseoboom Cofflo 1999)
W lomllyceoteteJ cote ls o moJel of beoltb cote lo wblcb fomllles
ooJ meJlcol ptofessloools wotk collobototlvely to Jetetmloe tbe
cooteot ooJ ptocess of cbllJteos beoltb cote setvlces
(letootoeoo lllott 1996 Mocoob 1blesseo McleoJ
nlotoo 2000 wooJslJe koseoboom kloq kloq 2001)
W lomllyceoteteJ cote ls oo opptoocb to beoltbcote tbot sbopes
beoltb cote pollcles ptoqtoms foclllty Jeslqo ooJ JoytoJoy
lotetoctloos omooq potleots fomllles pbyslcloos ooJ otbet
beoltb cote ptofessloools
W amlycenLered care emerged as an
lmporLanL concepL ln heaLh care aL a
Llme of lncreaslng awareness of Lhe
lmporLance of meeLlng Lhe psychosocla
and deveopmenLa needs of chldren and
of Lhe roe of famlles ln promoLlng Lhe
heaLh and webelng of Lhelr Chldren
W amlycenLered care has ong been a
characLerlsLlc of an effecLlve medlca
home Mch of Lhe eary work focsed on
hosplLas
ore concept in
W 8especL
W lnformaLlon
W arLlclpaLlon
W CoaboraLlon
(lnsLlLLe for amlyCenLered Care
(2009))
!rinciples of col,-or,tive
W 8especLlng each chld and hls or her famly
W Ponorlng racla eLhnlc cLra and socloeconomlc
dlverslLy and lLs effecL on Lhe famly's experlence and
percepLlon of care
W 8ecognlzlng and bldlng on Lhe sLrengLhs of each chld
and famly even ln dlfflcL and chaenglng slLaLlons
W SpporLlng and facllLaLlng cholce for Lhe chld and
famly aboL approaches Lo care and spporL
W Lnsrlng fexlbllLy ln organlzaLlona polcles
procedres and provlder pracLlces so servlces can be
Lalored Lo Lhe needs belefs and cLra vaes of
each chld and famly
W Sharlng honesL and nblased lnformaLlon wlLh
famlles on an ongolng basls and ln ways Lhey
flnd sef and afflrmlng
W rovldlng and/or ensrlng forma and lnforma
spporL (eg famlyLofamly spporL) for Lhe
chld and parenL(s) drlng pregnancy chldblrLh
lnfancy chldhood adoescence and yong
adLhood
W CoaboraLlng wlLh famlles aL a eves of heaLh
care ln Lhe care of Lhe lndlvlda chld and ln
professlona edcaLlon polcy maklng and pro
gram deveopmenL
W Lmpowerlng each chld and famly
o2ponent of
W @he mosL lmporLanL Lask of Lhe nrse ln fcc ls Lo
provlde spporL Lo Lhe famly
W @here are Lwo key componenLs of spporL Lhese
are enablng and empowermenL
ooblloq tefets to ptovlJloq oppottooltles fot tbe
fomlly to Jlsploy tbelt cotteot skllls wblle leotoloq ooJ
ocpoltloq oew skllls
mpowetmeot tefets to tbe oblllty of tbe beoltbcote
teom to ollow fomllles to ocpolte o seose of coottol
ovet tbelt fomllys llves
!,tient ,nd ,2ily
Outco2es
W amly presence drlng heaLh care
procedres decreases anxleLy for Lhe chld
and Lhe parenLs
W 8ecovered fasLer and dlscharged earler
W Crled ess ess resLess and reqlred ess
medlcaLlon
W LmoLlona dlsLress coplng drlng
procedres and ad[sLmenL drlng
hosplLalzaLlon were conLroed
W arenLLoparenL spporL can
lncreased parenLs' confldence
and probemsovlng capaclLy
W amlyLofamly spporL can
have beneflcla effecLs on Lhe
menLa heaLh sLaLs
T8 O LY-T#
# O# !T#8
W sLronger alance wlLh Lhe famly ln
promoLlng each chld's heaLh and
deveopmenL
W lmproved clnlca declslon maklng on Lhe basls
of beLLer lnformaLlon and coaboraLlve
processes
W lmproved sccess when Lhe pan of care ls
deveoped coaboraLlvey wlLh famlles
W CreaLer ndersLandlng of Lhe famly's sLrengLhs
and care glvlng capaclLles
W More efflclenL and effecLlve se of
professlona Llme and heaLh care
resorces (eg more care managed aL
home decrease ln nnecessary
hosplLalzaLlons and emergency
deparLmenL vlslLs more effecLlve se of
prevenLlve care)
W lmproved commnlcaLlon among
members of Lhe heaLh care Leam
W CreaLer chld and famly saLlsfacLlon wlLh
Lhelr heaLh care
,2ily centered c,re pr,ctice
& intervention in child he,lth
W Lnsre LhaL Lhe core concepLs of famly cenLered
care are lncorporaLed lnLo a aspecLs of nrslng
pracLlce
W 8especL for parenLs' nlqe lnslghL lnLo and
ndersLandlng of Lhelr chld's behavlor and
needs
W ueclslons on a paLlenL's pan of care shod be
made ony afLer sch consLaLlon wlLh chld and
famly has been made
W Worklng wlLh famlles ln declslon maklng and
lnformaLlon sharlng ln a pracLlce seLLlngs
W arenLs shod be offered Lhe opLlon Lo be
presenL wlLh Lhelr chld drlng medlca
procedres and offered spporL before
drlng and afLer Lhe procedre
W romoLe Lhe acLlve parLlclpaLlon of a chldren
ln Lhe managemenL and dlrecLlon of Lhelr own
heaLh care
W Share lnformaLlon wlLh chldren and famlles
ln ways LhaL are sef and afflrmlng
W Lnsre LhaL Lhere are sysLems ln pace LhaL
facllLaLe chldren and famlles' access Lo
consmer heaLh lnformaLlon and spporL
W Lncorage and facllLaLe famlyLofamly spporL
and neLworklng parLlcary wlLh famlles of
slmlar cLra and lnglsLlc backgronds or
famlles who have chldren wlLh Lhe same Lype
of medlca condlLlon
W PeaLh care lnsLlLLlons shod deslgn Lhelr
facllLles Lo promoLe Lhe phlosophy of famly
cenLered care
W edlaLrlclans shod advocaLe for opporLnlLles
for chldren and famlles Lo parLlclpaLe ln deslgn
pannlng for renovaLlon or consLrcLlon of
hosplLas clnlcs and offlcebased pracLlces
:783
333334W%3W
W In the ped|atr|c sett|ng nurses have the
add|t|ona| respons|b|||ty of estab||sh|ng a
re|at|onsh|p w|th the fam||y Ch||dren are
spec|a| pat|ents and requ|re a un|que de||very
of care that |nc|udes treat|ng the fam||y as a
who|e
W 1he fam||ycentered care ph||osophy can
enhance pat|ent and fam||y sat|sfact|on bu||d
on the|r strengths pat|ent and fam||y outcome
|ncrease the nurse and hea|thcare staff's
sat|sfact|on and decrease hea|thcare costs
W CC ls a process LhaL ls lnLegra Lo provldlng
qalLy care lL acknowedges Lhe essenLla roe
of Lhe paLlenL and famly as we as Lhe
lmporLance of a parLnershlp beLween Lhe
paLlenL famly and heaLh care provlders
W CC aows paLlenLs and famlles Lo be
lnvoved ln medlca declslon maklng and lL
aows famly member presence drlng
procedres and ressclLaLlons when
approprlaLe
W ComponenLs for lmpemenLlng
CC lncde
eveloploq o pbllosopby of lcc
olooq wltb pollcles ooJ ptoceJotes
tbot locotpotote potleot ooJ fomlly
lopot
Jocotloq stoff ooJ
ltovlJloq o ftleoJly eovltoomeot
fot tbe potleot ooJ bls ot bet
fomlly