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MAKALAH ANALISA “STEEL MAGNOLIAS 1989”

TUGAS MATA KULIAH KEPERAWATAN KELUARGA

Oleh:

Kelompok 4/ Kelas E

Rohibul Fahmi 162310101273

Friska Ayu Purwantiwi 162310101274


Ari Wijaya 162310101276
Nabillah Linda K. P 162310101280
Fathkiyatur R. 162310101291

PROGRAM STUDI SARJANA KEPERAWATAN

FAKULTAS KEPERAWATAN

UNIVERSITAS JEMBER

2018
A. KEHADIRAN KELUARGA

1. Gambaran Singkat Tentang Film

Di dalam film tersebut menceritakan tentang Shelby Eatenton adalah seorang


perawat disalah satu rumah sakit di tempat tinggalnya. Shelby merupakan putri
pertama dari pasangan Drum Eatenton dan M’Lynn Eatenton. Shelby dan
keluarganya tinggal di Amerika bersama kedua adiknya. Adik Shelby bernama
Jonathan Eatenton dan Tommy Eatenton. Shelby Eatenton di diagnosis Diabetes tipe
1 pada usia muda. Sejak usia muda Shelby sering mengalami kejang jika kadar gula
darah di dalam tubuhnya menurun. Shelby memiliki kekasih sekaligus calon
suaminya yang bernama Jackson Latcheris. Jackson ingin menikah dengan Shelby
dan menerima segala kekurangannya. Jackson menginginkan jika dia dan Shelby
menikah, mereka akan memilih mengadopsi seorang anak di dalam keluarga
kecilnya, karena mengingat akan penyakit yang dialami Shelby (Diabetes tipe 1).
Suatu hari ketika keluaga Eatenton mepersiapkan pernikahan putrinya, yaitu Shelby
dan Jackson. Keluarga Eatenton beserta kerabat dekat datang da mebantu
mempersiapkan acara pernikahan. Semua keluarga dan kerabat mendukung Shelby
menikah dengan Jackso karena jackso merupakan lelaki yang baik untuk shelby.
Dalam mempersiapkan acara pernikahan Shelby semua keluarga terlihat antusias dan
bahagia.

Suatu ketika ketika Selby berada di salon untuk mempersiapkan acara


pernikahannya, Shelby mengalami kejang akibat kekurangan kadar gula darang di
dalam tubuhnya atau Hipoglikemia. Ibu dan kerabat keluarganya dengan cepat dan
tanggal dalam menangani masalah kesehatan Shelby tersebut. Setelah resmi menjadi
istri Jackson, ibu Shelby tidak ingin Shelby hamil, karena dapat mengganggu
kesehatannya namun setelah beberapa lama menikah Shelby memberitahu ibunya
bahwa ia hamil. M’lLynn tidak senang akan kabar yang Shelby dari putrinya. Namun
Shelby tetap kuat akan pendiriannya bahwa dia ingin memiliki anak meskipun hanya
dalam waktu 30 menit. Akhirnya Shelby melahirkan anak laki – laki yang bernama
Jackson Latcheris JR. Suatu ketika saat Shelby dan putranya bermain, Shelby
mengalami hipoglikemi dan menyababkan dirinya tak sadarkan diri. Kemudian saat
Jackson pulang melihat anaknya menagis dan istrinya tak sadarkan diri, Jackson
langsung membawa Shelby kerumah sakit. Shelby mengalami koma, setelah
keluarganya berusaha dengan optimal, keluarga shelby pun menyerah dan
memutuskan untuk melakukan Euthanasia kepada putrinya Shelby.

Pemeran-pemeran dalam film

No. Nama Peran


1. Drum Eatenton Ayah
2. M’Lyun Eatenton Ibu
3. Shelby Eatenton Anak
4. Jonathan Eatenton Anak
5. Tommy Eatenton Anak
6. Jackson Latcheris Menantu (suami Shelby)
7. Jackson Latcheris JR Anak dari Shelby dan Jackson
2. Ecomap

Religius Fasilitas kesehatan

M D

J S JO T

JR

Lingkungan Sosial
Keterangan :

= laki laki

= perempuan

= menikah

= tinggal serumah

= Interaksi Kuat

= Interaksi sedang

= Interaksi lemah
= Meninggal
Analisis Ecomap

Di dalam film ini menceritakan Shelby adalah seorang wanita yang terdiagnosis
penyakit diabetes tipe 1 di usia mudanya. Shelby putri dari pasangan Drum Eatenton
dan M’Lynn Etenten yang bernama Shelby Aetenton. Shelby memiliki 2 adik laki –
laki yang bernama Jonathan Eatenton dan Tommy Eatenton. Shelby memiliki kekasih
yang bernama Jackson Latcheris dan akhirnya menikah. Pernikahan Shelby dan
Jackson dilaksanakan di rumah Shelby, pernikahan yang meriah dan disambut dengan
antusias oleh keluarga serta kerabat dekat keluarga Shelby. Setelah menikah Shelby
dan Jackson memiliki seorang anak laki laki yang bernama Jackson Latcheris JR.
Saat sakit shelby terlihat mendapatkan pengobatan pada suatu Rumah sakit sehingga
hubungan interaksi keluarga tersebut dengan fasilitas kesehatan sangat kuat.
Demikian pula interaksi dengan religius keluarga tersebut mempunyai ikatan yang
sangat kuat, terbukti saat Shelby dan Jackson menikah pada sebuah gereja, dan juga
saat upacara pemakaman Shelby. Keluarga tersebut juga mempunyai interaksi yang
sangat kuat pada lingkungan sekitar.
B. PENILAIAN KELUARGA DAN PRIORITAS KEBUTUHAN
1. Kondisi fisik dan psikososial
a. Kondisi fisik
Shelby merupakan seorang yang sedang mederita diabetes. Pada awal
pernikahan kondisinya terlihat baik-baik saja, namun pada saat shelby
hamil, terlihat pada lengan tangannya pembuluh darahnya membesar dan
terlihat bengkak pada lengan tangannya juga terlihat ada memar dan itu
terjadi pada saat shelby melakukan cuci darah. Shelby akan melakukan
transplatasi ginjal dikarenakan ginjal Shelby sudah tidak berfungsi dengan
baik dan Shelby mengatakan bahwa ibunya akan mendonorkan salah satu
ginjalnya untuk Shelby. Pada saat Shelby berada di rumah dan mengurus
anaknya, tiba-tiba Shelby tak sadarkan diri dan Jackson membawa Shelby
ke rumah sakit. Shelby yang berada di rumah sakit mengalami koma dan
terpasang alat bantu pernafasan. Dalam akhir ceritanya dokter meminta
persetujuan keluarga agar melepas semua alat bantu untuk Shelby
dikarenakan semua alat yang terpasang untu Shelby tidak memberikan
respon untuk Shelby dan akhirnya Shelby dinyatakan meninggal di rumah
sakit.
b. Kondisi psikososial dari Shelby yaitu ia sangat cemas pada saat di diagnosa
menderita diabetes, ia tidak menerima keadaannya yang menderita
diabetes. Shelby sangat marah pada dirinya sendiri, pada saat shelby
menikah dengan Jackson, Shelby sangat mengkhawatirkan dan cemas pada
dirinya yang menurut dokter ia tidak bisa hamil di karenakan ia menderita
diabetes. Namun, setelah pernikahannya ternyata Shelby hamil dan hal itu
membuat keluarganya terutama ibunya tidak percaya dan ibunya sangat
cemas ketika Shelby mengatakan bahwa dirinya sedang hamil.
2. Faktor Lingkungan, Faktor Sosiokultural (Nilai keyakinan dan Spiritual)
a. Faktor Lingkungan
Dalam film tersebut lingkungan yang ditempati adalah lingkungan rumah,
salon kecantikan, tempat beribadah (Gereja) dan supermarket.
b. Faktor Sosiokultural
Dalam film ini mengikuti budaya barat dengan bahasa yang digunakan
sehari-hari adalah bahasa inggris. Dalam film memperlihatkan pada saat
pernikahan Shelby dan Jackson dilakukan di suatu tempat beribadah yaitu
di sebuah Gereja.
3. Status gizi dan obat-obatan :
a. Status gizi : Shelby terlihat baik-baik saja. Namun dalam film terlihat
bahwa Shelby suka meminum jus, makanan yang manis dan minuman
bersoda.
b. obat obatan yang digunakan : dalam film diperlihatkan bahwa Shelby
menggunakan alat ventilator dan alat bantu pernafasan.
4. Penggunaan sumber perawatan kesehatan atau pengobatan alternatif
a Sumber Perawatan Kesehatan : dalm film diperlihatkan bahwa Shelby
melakukan pemeriksaan kepada dokter dan di diagnosa menderita
diabetes. Pada akhir film diperlihatkan Shelby sedang melakukan
perawatan di rumah sakit. Dokter dan tenaga kesehatan di rumah sakit
tersebut sangat memperhatikan keadaan Shelby. Namun pada saat di
rumah sakit Shelby terpasang alat bantu pernafasan dan tubuh Shelby
tidak dapat merespon. Pada akhirnya dokter dan keluarga memutuskan
untuk melepas semua alat bantu untuk Shelby dan Shelby dinyatakan
meninggal.
b Pengobatan Alternatif : dalam film Shelby mengatakan bahwa dirinya
sedang melakukan cuci darah dan akan melakukan transplatasi ginjal.
5. Diagnosa medis : Diabetes
6. Bagaimana kondisi klien mempengaruhi keluarga dan reaksi mereka
Keluarga Shelby sangat cemas pada saat Shelby dinyatakan menderita
diabetes, keluarga sangat khawatir pada saat dokter menyatakan bahwa
Shelby tidak bisa hamil dikarenakan kondisinya yang sedang menderita
diabetes.
7. Persepsi keluarga tentang kesehatan
Dalam flim ini diperlihatkan gaya hidup keluarga Shelby sangat baik,
namun dalam film terlihat bahwa keluarga Shelby senang memakan makanan
yang manis dan juga senang konsumsi minuman bersoda.
8. Kekuatan keluarga
Kekuatan keluarga Shelby yaitu sangat kuat, keluarga Shelby selalu
mendukung Shelby dan selalu memberikan motivasi kepada Shelby agar
Shelby selalu kuat menghadapi semua masalah dalam hidupnya terutama
pada saat Shelby di diagnosa menderita diabetes.
C. Analisa Data
Data Diagonosa Rencana Tindakan Jurnal
Maladaftif Keperawatan Keperawatan Keperawatan / Rujukan
Terapi
Keperawatan

Tidak adanya Pelemahan Intervensi Terapi Keluarga


dukungan dari koping keperawatan
1. Menentukan pola
ibu (M’lynn) keluarga Tn. D yang disarankan
komunikasi dalam
kepada anaknya dalam untuk
keluarga
(Shalby) yang menghadapi menyelesaikan
ingin penyakit masalah : 2. Mengidentifikasi
mempunyai diabetes bagaimana keluarga
Terapi
anak dari ia mellitus tipe 1 menyelesaikan
Keluarga
sendiri Nn. S b.d masalah
dikarenakan perilaku 1. Tentukan
3. Memfasilitasi
M’lynn sangat pola komunikasi
protektif dari diskusi keluarga
khawatir jika dalam keluarga
individu
akan 4. Membantu
pendukung 2. Identifikasi
mengganggu anggota keluarga
yang tidak bagaimana
kesehatannya mengklarifikasi apa
sesuai dengan keluarga
mereka butuhkan
kebutuhan menyelesaikan
dan
otonomi klien masalah
d.d Tidak harapan satu sama
3. Fasilitasi
adanya lain
diskusi keluarga
dukungan dari 5. Gunakan strategi
ibu (M’lynn) 4. Bantu terminasi dan
kepada anaknya anggota evaluasi
(Shalby) yang keluarga
ingin mengklarifikasi
mempunyai apa yang
anak dari ia mereka
sendiri butuhkan dan
dikarenakan harapan satu
M’lynn sangat sama lain
khawatir jika
5. Gunakan
akan
strategi
mengganggu
terminasi dan
kesehatannya
evaluasi

Disaat Risiko Pengurangan 1. Menggunakan


pernikahan gangguan kecemasan pendekatan yang
shabby,M’lynn perlekatan tenang dsan
1. Gunakan
mengingingkan pada keluarga meyakinkan
pendekatan
Shabby untuk Tn. D terhadap 2. Berada disisi
yang tenang
sesekali pelepasan Nn. S klien untuk
dsan
yang akan meningkatkan rasa
berkunjung meyakinkan
menikah dengan aman dan
kerumah
Tn. J b.d 2. Berada disisi mengurangi
orangtuanya
perpisahan klien untuk ketakutan
ketika Shabby
orang tua meningkatkan
tinggal bersama 3. Mendorong
dengan anak rasa aman dan
suaminya keluarga untuk
mengurangi
mendampingi klien
ketakutan
dengan cara yang
3. Dorong
tepat
keluarga untuk
mendampingi 4. Membantu klien
klien dengan untuk
cara yang tepat mengidentifikasi
4. Bantu klien situasi yang
untuk memicu kecemasan
mengidentifikasi
5.
situasi yang
Mempertimbangkan
memicu
kemampuan klien
kecemasan
dalam mengambil
5.
keputusan
Pertimbangkan
kemampuan
klien dalam
mengambil
keputusan

E. jurnal terapi keluarga

Judul Film : steel magnolias (1989)

Masalah Keluarga : film ini bercerita tentang keluarga dengan diabetes tipe 1. Klien
adalah seorang wanita yang baru menikah yang tidak disetujui oleh ibunya unuk memiliki
anak karena memiliki penyakit diabetes tipe 1

Terapi Keluarga : terapi keluarga dalam jurnal tersebut yaitu melakukan edukasi tentang
dukungan keluarga terhadapap klien dengan diabetes tipe 1 mengenai kepatuhan pengobatan
dan kontrol pengobatan diabetes

Indikasi Terapi Keluarga : untuk keluarga dengan pasien diabetes dengan tipe 1

Kontra Indikasi Terapi Keluarga : tidak ada kontra indikasi

Persiapan Terapi Keluarga : perawat mengumpulkan seluruh anggota keluarga untuk


menyampaikan edukasi terhadap keluarga yang memiliki anggota keluarga dengan penyakit
diabetes.

Prosedur Terapi Keluarga :

1. Pra Interaksi : lakukan pengkajian data dan catat kesehatan dari klien,
identifikasi identitas klien, lakukan pendekatan pada anggota keluarga klien agar
mudah saat melakukan pengkajian dan juga memberikan edukasi terhadap anggota
keluarga
2. Orientasi : melakukan salam dan senyum kepada klien dan anggota
keluarga klien. Memperkenalkan nama perawat kepada klien dan juga anggota
keluarga. Melakukan identifikasi identitas klien dan juga anggota keluarga klien.
Menjelaskan maksud dan tujuan tindakan yang akan dilakukan perawat kepada klien
dan anggota keluarga klien. Kontrak waktu, tempat, dan kesediaan keluarga untuk
menerima tindakan dari perawat.
3. Kerja : perawat memberikan intervensi dengan mengedukasikan
mengenai bagaimana meningkatkan hubungan orang tua dan remaja serta dampak dan
resiko keterlibatan keluarga dalam mengasuh remaja dengan penyakit diabetes tipe 1,
perawat memberikan intervensi kepada keluarga dan remaja dengan mengontrol
metabolik, dan kepatuhan terhadap pengobatan serta efek utama jika memberikan
dukungan orang tua kepada remaja untuk patuh pada pengobatan dan kepatuhan untuk
mengontrol metaboliknya yang buruk. Orang tua dan remaja berpartisipasi dengan
mendiskusikan pemberian pendidikan dan strategi untuk pemecahan masalah agar
kepatuhan pengobatan dan kontrol metabolik bisa terkontrol dan mengurangi efek
buruk jangka panjang penderita diabetes tipe 1.
4. Terminasi : melakukan evaluasi subjective. Melakukan evaluasi objective.
Berikan pesan yang positif. Mengingatkan klien untuk selalu melakukan latihan terapi
agar terbiasa dan juga mendapatkan kemajuan dengan terapinya.
5. Evaluasi Terapi Keluarga : bagaimana keadaan fisik klien. Sikap klien setelah pasien
menerapkan terapi dukungannya tersebut. Menanyakan bagaimana perasaan pasien
setelah menerapkan terapi dukungan keluarga mengenai kepatuhan pengobatan dan
kontrol diabetes.
E. CRITICAL APRAISAL

Penulis Jurnal Wysocky, PhD


Michael A. Harris, PhD
Lisa M. Buckloh, PhD
Deborah Mertlich, MSW
Amanda Sobel Lochrie, PhD
Alexandra Taylor, MA
Michelle Sadler, BSN, CDE
Nelly Mauras, MD
Neil H. Putih, MD,CDE

Judul Jurnal Effects of Behavioral Family Systems Therapy for


Diabetes on Adolescents Family Relationships,
Treatment Adherence, and Metabolic Control
Nama Jurnal, Edisi dan Behavioral Family Therapy in Diabetes,2006
Tahun

Tujuan Penelitian Penelitian ini bertujuan untuk memberikan bukti bahwa


pengembangan dan validasi perilaku dan psikologis
serta intervensi yang dapat meningkatkan komunikasi
keluarga,, pemecahan ,masalah, dan bagaimana resolusi
konflik yang dapat meningkatkan manajemen diabetes
dikalangan remaja dan keluarga

Metode Penelitian Penelitian ini menggunakan sampel dari dua tempat yaitu
pusat pediatric di Southeastern dan Midwestern Amerika
Serikat. Yang diambil sebagai sampel remaja dengan
usia antara 11 dan 16 tahun yang tinggal bersama
keluarga. Dengan kriteriua mereka mengalami masalah
dengan manajemen diabetes. Sebelum prosedur
dilakukan mereka mengisi dan mendatangani informed
consent. Surat tersebut diberikan kepada 577 keluarga
namun yang hanya masuk kedalam kriteria sebanyak 104
sampel yang layak untuk mendapatkan treatmen tersebut.
Dari 104 keluarga yang memenuhi merupakan 61
keluarga dari Southeastern dan 43 keluarga dari
Widwestern. Kemudian saat terapi sampel di pisahkan
menjadi 3 grup dengan pemilihan secara random. 3 grup
tersebut yakni Standart Care (SC), Educational Support
(ES) dan Behavioral Family Systems Therapy for
Diabetes (BFST-D). Penelitian tersebut berlangsung
selama 18 bulan terhitung sejak awal pendaftaran.

Hasil dan Pembahasan Hasil dari penelitian tersebut menunjukkan bahwa uji
coba terkontrol yang membandingkan antara SC untuk
diabetes, 12 sesi multifamily ES dan juga 12 sesi BFST-
D menunjukkan bahwa BFST-D menghasilkan manfaat
yang signifikan terhadap remaja dan keluarga dalam hal
manajemen diabetes. Hasil ini terlihat ketika
menggunakan skor PARQ secara signifikan terlihat
terjadi peningkatan lebih besar terhadap hubungan orang
tua dengan remaja atau orang tua dengan klien. Dan
menggunakan skor DRC terlihat menghasilkan
penurunan konflik keluarga terkait diabetes saat hasil
tersebut dibandingkan dengan SC atau ES

Implikasi Keperawatan Sebagai perawat kita diharapkan dapat memberikan


edukasi dan juga selalu mengingatkan keluarga untuk
selalu memberi dukungan terhadap klien yang
mengalami diabetes dukungan tersebut seperti
mengontrol kepatuhan pengobatan, mendukung
psikologi klien dll . Dengan terapi ini perawat dapat
mengetahui seberapa kuat hubungan antara keluarga
dengan klien dalam melakukan terapi manajemen
diabetes Sehingga terapi dapat di lakukan secara optimal
dan juga keluarga dapat menerapkannya.
6. DAFTAR PUSTAKA

,2006. Effects of Behavioral Family Systems Therapy for Diabetes on Adolescents


Family Relationships, Treatment Adherence, and Metabolic Control. Behavioral Family
Therapy in Diabetes
Effects of Behavioral Family Systems Therapy for Diabetes
on Adolescents’ Family Relationships, Treatment Adherence,
and Metabolic Control
Tim Wysocki,1 PHD, Michael A. Harris,2 PHD, Lisa M. Buckloh,1 PHD, Deborah Mertlich,2
MSW, Amanda Sobel Lochrie,1 PHD, Alexandra Taylor,1 MA, Michelle Sadler,2 BSN, CDE,
Nelly Mauras,1 MD, and Neil H. White,2 MD, CDE

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1
Nemours Children’ s Clinic, and 2Washington University, St. Louis School of Medicine

Background Behavioral family systems therapy (BFST) for adolescents with diabetes has
improved family relationships and communication, but effects on adherence and metabolic con-
trol were weak. We evaluated a revised intervention, BFST for diabetes (BFST-D). Methods
One hundred and four families were randomized to standard care (SC) or to 12 sessions of either
an educational support group (ES) or a BFST-D over 6 months. Family relationships, adherence,
glycosylated hemoglobin (HbA1c), and health care utilization were measured at baseline and after
treatment. Results BFST-D significantly improved family conflict and adherence compared
to SC and ES, especially among those with baseline HbA1c ≥9.0%. BFST-D and ES significantly
improved HbA1c compared to SC among those with baseline HbA1c ≥9.0%. Conclusions
The revised intervention (BFST-D) improved family conflict and treatment adherence signifi-
cantly, while both ES and BFST-D reduced HbA1c significantly, particularly among adolescents
with poor metabolic control. Clinical translation of BFST-D requires further study.

Key words adolescence; diabetes; family therapy.

Family conflict, parent–adolescent communication, and communication, and systemic barriers to problem solv-
problem-solving skills have been associated with diabe- ing (Robin & Foster, 1989). The effectiveness of BFST
tes outcomes among adolescents in cross-sectional has been verified in several studies (Barkley, Guevremont,
(Anderson, Miller, Auslander, & Santiago, 1981; Anastopoulos, & Fletcher, 1992; Foster, Prinz, & O’Leary,
Bobrow, AvRuskin & Siller, 1985; Miller-Johnson et al., 1983; Robin, Seigel, Kopeke, Moye, & Tice, 1994). In a
1994; Wysocki, 1993) and prospective (Gustafsson, previous randomized controlled trial with families of
Cederblad, Ludvigsson & Lundin, 1987; Hauser et al., adolescents with type 1 diabetes (Wysocki et al., 2000),
1990; Koski, Ahlas & Kumento, 1976) studies. Thus, 10 sessions of BFST over a 3-month interval yielded last-
the development and validation of behavioral and psy- ing improvements in parent–adolescent relationships
chological interventions that improve family communi- and family communication skills as measured by parent
cation, problem solving, and conflict resolution is and adolescent report (Wysocki et al., 2000) or by direct
warranted and could enhance diabetes management observation of structured family interactions (Wysocki
among adolescents and their families. et al., 1999). These benefits persisted for 12 months
Behavioral family systems therapy (BFST) is a flexi- (Wysocki et al., 2001), and BFST was rated as more
ble, multicomponent, family-focused intervention that acceptable, applicable, and effective than was an educa-
targets family communication and problem solving, tional support group (ES) (Wysocki et al., 1997). But,
extreme beliefs of parents and adolescents that impede BFST did not impact glycemic control or treatment

All correspondence concerning this article should be addressed to Tim Wysocki, PhD, Center for Pediatric Psychology
Research, Nemours Children’s Clinic, 807 Children’s Way, Jacksonville, Florida 32207. E-mail: twysocki@nemours.org.

Journal of Pediatric Psychology 31(9) pp. 928–938, 2006


doi:10.1093/jpepsy/jsj098
Advance Access publication January 9, 2006
Journal of Pediatric Psychology vol. 31 no. 9 © The Author 2006. Published by Oxford University Press on behalf of the Society of Pediatric Psychology.
All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org
Behavioral Family Therapy in Diabetes 929

adherence (Wysocki et al., 2000, 2001). This second ran- 18 months; and intent for the adolescent to remain living
domized trial, as reported here, sought to determine in the same home for 18 months. Exclusion criteria
whether a revised intervention with diabetes-specific were: adolescent diagnosis of another systemic chronic
behavioral components, BFST for Diabetes (BFST-D), disease except well-controlled asthma or Hashimoto’s
would have more robust effects on treatment adherence thyroiditis; enrollment in self-contained special educa-
and diabetic control. Concurrently, various researchers tion; psychiatric admission of the adolescent within the
reported the effectiveness of other intervention strategies prior 6 months; caregiver who was illiterate or not fluent
with this clinical population (see Hampson et al., 2001 in English; residence of adolescent in foster care, group
for a review). Drawing on this recent work, the BFST home, or correctional facility; no telephone service;

Downloaded from https://academic.oup.com/jpepsy/article-abstract/31/9/928/994333 by guest on 18 November 2018


intervention was adapted by incorporating diabetes-specific current diagnosis of psychosis, major depression, or
elements of many of these approaches into BFST-D. substance abuse disorder in an adult caregiver; or open
The following hypotheses were evaluated for this case with a child protection agency regarding child
article: abuse or neglect.
Figure 1 provides a summary of participants’
Hypothesis 1: Relative to SC and ES, families in progress through the various stages of the trial in the
BFST-D will exhibit significantly more improve- format recommended by the Consolidated Standards for
ment in parent–adolescent relationships (PARQ Reporting Clinical Trials (CONSORT) (Begg et al.,
scores) and diabetes-related conflict (DRC scores) 1996). An introductory letter was mailed to 577 fami-
after 6 months of treatment. lies, and telephone follow-up was achieved with 438
Hypothesis 2: Relative to SC and ES, adolescents in (76%) of them. Of these, 48 (11%) were determined to
BFST-D will show significantly more improvement be ineligible by interview, while many others declined
in medical adherence (DSMP scores) after 6 months participation before their eligibility could be ascertained.
of treatment. A sample of 104 eligible families entered the study, 61 at
Hypothesis 3: Relative to SC and ES, adolescents in the Southeastern site and 43 at the Midwestern site, for a
BFST-D will achieve significantly greater reduction recruitment rate of 27% of families who had not been
in HbA1c, indicating better metabolic control, after found to be ineligible. Demographic characteristics of
6 months of treatment. the sample are summarized in Table I and analyzed in
Hypothesis 4: Relative to SC and ES, adolescents in the Results section.
BFST-D will have significantly fewer hospitalizations
and emergency room visits during the 6 months of
study intervention. Charts Assessed for Eligibility
(n=577)

Methods Telephone or Direct Contact Made


(n=436)
Participants and Settings
Recruitment occurred at two pediatric centers in the Determined Ineligible
(n=48)
Southeastern and Midwestern United States. Recruit-
ment objectives were to enroll a clinically appropriate Randomized
sample of adolescents and their families who were expe- (n=104)

riencing significant problems with diabetes manage-


ment. Parents and adolescents signed institutionally
SC ES BFST-D
approved informed consent and assent forms, respec- (n=32) (n=36) (n=36)

tively, before any research procedures occurred.


Inclusion criteria were: adolescent age between 11
Lost to Follow-up Lost to Follow-up Lost to Follow-up
and 16 years inclusive; type 1 diabetes or insulin-treated (n=3) (n=1) (n=8)
type 2 diabetes for at least 2 years; HbA1c ≥ 8.0% (which
has been defined as the threshold for clinical action by
the American Diabetes Association, 2005); agreement to Complete Data
(n=29)
Complete Data
(n=35)
Complete Data
(n=28)
participate from all adult caregivers living with the ado-
lescent; willingness to accept randomization; intent to Figure 1. Flow diagram of participants’ progress through the study per
continue diabetes care at the enrolling center for the CONSORT criteria.
930 Wysocki et al.

Table I. Demographic Characteristics of the Three Groups at Baseline exercise plan. Adolescents and families were referred to
Variable SC ES BFST-D qualified psychologists or psychiatrists not associated with
Youth age (years) 14.2 ± 1.9 14.4 ± 1.9 13.9 ± 1.9
the research team for services as needed.
Diabetes duration (years) 5.9 ± 4.0 5.5 ± 3.2 5.1 ± 3.0
Educational Support (ES)
HbA1c (%) 9.5 ± 1.5 9.7 ±1.6 9.6 ± 1.6
In addition to the SC medical regimen, ES families attended
Hollingshead SES index 40.3 ± 14.2 40.1 ± 11.6 40.4 ± 13.7
Gender
12 multifamily meetings within 6 months for diabetes edu-
Male 16 (50%) 20 (56%) 21 (58%) cation and social support. ES was designed to emulate a
Female 16 (50%) 16 (44%) 15 (42%) common mental health service for families of chronically ill

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Race/ethnicity teens and to serve as an alternative therapy comparison and
Caucasian 17 (53%) 27 (75%) 22 (61%) a control for the differential professional attention received
African-American 11 (34%) 9 (25%) 12 (33%) by the SC and BFST-D groups. Experienced diabetes nurses
Hispanic 2 (6%) 0 1 (3%) served as facilitators at each site and received extensive
Other 2 (6%) 0 1 (3%) training before conducting ES sessions. Groups of three to
Family composition five families completed a 12-session series together,
Intact 13 (41%) 15 (42%) 16 (43%)
attended by the parents and adolescents with diabetes. Ses-
Blended 4 (13%) 5 (14%) 7 (19%)
sion content followed the chapters of an American Diabetes
Single parent 11 (34%) 12 (33%) 11 (32%)
Association curriculum for teens (Johnson, 2000). The
Other 4 (13%) 4 (11%) 2 (5%)
Insulin modality
same materials and session outlines were used at both sites,
Injections 25 (78%) 27 (75%) 27 (75%) and the facilitators spoke weekly by telephone to ensure
Insulin pump 7 (22%) 9 (25%) 9 (25%) cross-site consistency. Family communication and conflict
For continuous variables, the values are mean ± 1 SD. For categorical variables, resolution skills were excluded from session content
the values are the number and percent of participants in each category. because these were specifically targeted by BFST-D. Ses-
sions included a 45-min lecture by a health professional on
Experimental Design 1 of the 12 topics, followed by 45 min of family interaction
A three-group, randomized treatment design was used about that topic led by the facilitator.
with four repeated measures at baseline, after treatment
(6-months), and follow-up at 6 and 12 months after Behavioral Family Systems Therapy for Diabetes
treatment. This article reports only the baseline and (BFST-D)
immediate posttreatment results as the sample continues In addition to the SC medical regimen, families in this
in follow-up at this time. Following the baseline evalua- group received 12 BFST-D sessions over 6 months. Sessions
tion, as described below, families were randomized were conducted by one of three psychologists at the south-
(stratified by baseline HbA1c) to standard care (SC), ES, eastern site or a licensed clinical social worker at the Mid-
or BFST-D for the next 6 months. The three experimen- western site and were attended by the youth with diabetes
tal conditions are described below. and their caregivers who were participants. Therapists were
trained and certified as proficient in BFST-D by two experi-
Standard Care (SC) enced, licensed psychologists (the first two authors) before
Diabetes care for all study participants reflected the prevail- enrollment of families. Methods described later in the arti-
ing clinical practices at each site during the study. Treating cle assured treatment integrity throughout the study.
physicians selected an HbA1c target for each adolescent BFST-D consisted of four components: problem-
that was as close to the upper limit of normal (6.5%) as was solving training, communication training, and cognitive
considered safe and feasible. HbA1c was measured before restructuring and functional-structural family therapy.
each clinic visit and reviewed during the visit. Daily insulin Problem-solving training provided families with a struc-
replacement was achieved via multiple subcutaneous injec- tured problem-solving approach with discrete steps con-
tions or insulin pump. Adolescents were asked to perform sisting of: problem definition, generation of solutions,
self-monitoring of blood glucose (SMBG) three or more group decision making, planning, implementation and
times daily. Quarterly clinic visits were scheduled with a monitoring of the selected solution, and renegotiation or
pediatric endocrinologist or other qualified clinician. A refinement of ineffective solutions. Communication skills
certified diabetes educator (CDE) provided basic and training included instructions, feedback, modeling, and
advanced diabetes education to families. Adolescents were rehearsal targeting common parent–adolescent commu-
offered a meal plan based on carbohydrate counting or an nication errors. Cognitive restructuring methods tar-
exchange system and encouraged to follow a personalized geted family members’ irrational beliefs, attitudes, and
Behavioral Family Therapy in Diabetes 931

attributions about one another’s behavior that could insulin schedule; daily blood glucose checks on
impede effective parent–adolescent communication. Func- the child’s schedule; monitoring and regulating
tional and structural family therapy interventions targeted carbohydrate intake; and managing one simulated
anomalous family systemic characteristics (e.g., weak hypoglycemic event (parents were notified by the
parental coalitions and cross-generational coalitions) that therapist to indicate onset of “hypoglycemia”).
could impede effective problem solving and communica- 5. Therapists could extend the intervention to other
tion. Families received the intervention components that social networks affecting the youths’ diabetes care
were appropriate to their needs as determined by baseline by involving peers, siblings, teachers, or others
assessments and ongoing observations in therapy. Sessions and conducting sessions in other locations if nec-

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consisted of family problem solving and conflict resolution essary (Henggeler, Schoenwald, & Pickrel, 1995).
discussions. Therapists participated actively, frequently
providing instructions, feedback, modeling, and rehearsal. Participation Incentives
Behavioral homework was assigned at each session and Participants were paid to promote adherence to the study
reviewed at the next session. Each session included deliv- tasks. Each family was paid $100 ($50 for parents and
ery of some didactic information and emphasized teaching $50 for youth) for completing the scheduled evaluations.
the family to acquire and apply the targeted skills at home. Each ES and BFST-D family received another $100, dis-
The revised BFST-D intervention utilized in this study tributed in the same way, if they attended all 12 sched-
included these diabetes-specific adaptations: uled intervention sessions for their respective groups.
These incentives resulted in >90% retention of the study
1. All families targeted for treatment two or more sample in our previous work (Wysocki et al., 2001).
diabetes-related problems that were identified as
barriers to diabetes management or control. Measurement Methods and Schedule
These behaviors were identified during the first Measures were collected at a baseline evaluation preceding
two BFST-D sessions. randomization. Some measures were collected at baseline
2. Explicit training in behavioral contracting was only for evaluation as moderators of treatment outcome,
provided (Carney, Schechter, & Davis, 1983; and those are not described in detail here since they were
Epstein et al., 1981; Schafer, Glasgow & McCaul, not included in the analyses for this article. These measures
1982; Wysocki, Green & Huxtable, 1989). These included the Brief Symptom Inventory (DeRogatis, 1977),
studies have confirmed that behavioral contract- Millon Adolescent Clinical Inventory (Millon, Millon, &
ing improves adolescents’ adherence to specific Davis, 1997) and the Family Assessment Device (Kabacoff,
targeted aspects of the diabetes regimen. Behav- Miller, Bishop, Epstein, & Keitner, 1990). Analyses perti-
ioral contracts were evaluated and refined as nent to these measures will be the topic of a future report.
needed in subsequent sessions. The General Information Form yielded demo-
3. All families received advanced education in using graphic and medical information and the data that were
SMBG data to modify insulin, diet, or exercise to needed to calculate the Hollingshead index of social sta-
improve diabetic control. The CDE and therapist tus (1975, unpublished manuscript).
conducted BFST-D sessions 6 and 7 jointly. The The following measures were collected at baseline
CDE provided education and training in using clin- and at the end of treatment (6 months):
ical algorithms for these purposes. The therapist
helped families use their improved communication The Parent–Adolescent Relationship Questionnaire
and problem-solving skills to facilitate this. Treat- (PARQ)
ments with similar components have improved dia- PARQ assesses the primary constructs of the behavioral
betic control (Anderson, Wolf, Burkhart, Cornell, family systems model (Robin, Koepke & Moye, 1990). It
& Bacon, 1989; Delamater et al., 1990). yields norm-referenced standard scores for three factor
4. Parents simulated living with diabetes for 1 week analytically derived scales: overt conflict/skill deficits,
between sessions 7 and 8. Satin, La Greca, Zigo, & extreme beliefs, and family structure. There are separate
Skyler (1989) showed that this intervention pro- forms for adolescents (314 true–false items) and parents
duced broad cognitive and affective benefits, and it (280 items). Internal consistency ranged from .73 to .89
is compatible with the BFST incorporation of cog- for this sample. The proportions of study participants
nitive restructuring methods. This included multi- whose scores were at or above a clinical cut-off of T = 65
ple daily injections of sterile saline on the child’s on “overt conflict/skill deficits” were 2.8% for adolescents,
932 Wysocki et al.

2.0% for mothers, and 7.1% for fathers. For “extreme second therapist rated videotapes of each BFST-D
beliefs,” the corresponding proportions of scores above session for treatment fidelity. The ratings were discussed
the clinical cut-off were 9.2, 2.0, and 4.3%, respectively. in weekly phone conferences and deviations were
Finally, for “family structure,” clinically significant resolved. The vast majority of ratings affirmed the integ-
scores were obtained for 4.7, 3.8, and 1.7% of adoles- rity of the BFST-D intervention. Virtually all issues that
cents, mothers, and fathers, respectively. were raised reflected legitimate differences in clinical
judgment rather than violations of the written protocol.
The Diabetes Responsibility and Conflict Scale (DRC)
DRC assesses parent–child division of diabetes responsi- Data Management and Statistical Analysis Plans

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bilities and family conflict about 15 diabetes-related
Research assistants checked all measures for appropriate
tasks (Rubin, Young-Hyman, & Peyrot, 1989). Internal
completion before families left the evaluation session and
consistency ranged from .86 to .92 for this sample.
corrected any administration errors. Data were then
The Diabetes Self-Management Profile (DSMP) entered into a computer data file on a local area network
DSMP is a structured interview for the assessment of diabe- at one of the centers. Data were checked for normality of
tes treatment adherence that was adapted from methods distributions and for outliers or data entry errors before
developed by Hanson, Henggeler, & Burghen (1987). The analyses. Statistical analyses began by comparing the
revised interview incorporates introductory comments groups at baseline on demographic and outcome vari-
designed to normalize the difficulty of regimen adherence. ables. Since baseline HbA1c was correlated significantly
Questions were re-worded to enhance the ability to capture with many of the outcome measures obtained at baseline,
flexible diabetes self-management as it is currently prac- the general analysis plan for each outcome measure was
ticed (e.g., insulin pump therapy). The revised interview to treat experimental groups (SC, ES, and BFST-D) and
(Harris et al., 2000) consisted of 24 adherence questions baseline HbA1c (above or below the median value of
regarding 5 regimen domains (insulin, blood glucose test- 9.0%) as between-subjects factors in repeated measures
ing, diet, exercise, and management of hypoglycemia). analyses of variance. The number of adolescents in each
Internal consistency based on the present sample was .79 group with HbA1c <9.0% and ≥ 9.0%, respectively, was
with 6-month test–retest reliability of .58. Scoring reliability SC: 16 and 16; ES: 17 and 19; and BFST-D: 18 and 18. For
across independent raters was .95. Total scores did not dif- analyses of treatment effects on HbA1c, the dependent
fer between parents and adolescents interviewed separately, variable was change in HbA1c from baseline to 6 months.
and the correlation between parent and adolescent scores To reduce the number of statistical comparisons, PARQ,
was r = .45 (p < .001). Baseline DSMP total scores corre- DRC, and DSMP scores from adolescents and parents
lated significantly with HbA1c levels with r = .29 (p < .01). were combined to form family composite scores for these
measures that were then submitted to statistical analyses.
Glycosylated Hemoglobin (HbA1c) In all of these cases, family members’ scores were signifi-
HbA1c was measured quarterly at routine clinic visits with cantly correlated, with r-value ranging from .37 to .63.
the DCA-2000 system (Bayer Diagnostics, Tarrytown, NY,
USA). Assays completed at the two sites had been stan-
dardized against a reference laboratory, and the results Results
confirmed its accuracy and consistency. The equivalence Sampling and Randomization
of DCA-2000 and reference laboratory measurements was Table I summarizes baseline demographic characteris-
also confirmed in a recent study (Diabetes Research in tics of the three groups. There were no statistically sig-
Children Network Study Group, 2005). nificant between-group differences at baseline on patient
age, duration of diabetes, socioeconomic status, or of the
Assurance of Procedural Consistency and Integrity distributions of gender, race/ethnicity, family composi-
Several methods ensured cross-site consistency of study tion, or parental marital status. The sample included the
procedures. A detailed operations manual described following proportion of families in each Hollingshead
each study procedure. A previously prepared BFST manual socioeconomic stratum: lower: 4.8%; lower middle:
was revised to reflect the BFST-D changes. The ES inter- 21.2%; middle: 38.5%; upper middle: 24.0%; and upper:
vention was also guided by a manual (Johnson, 2000). 11.5%. The groups also did not differ significantly at
Clinicians implementing the BFST-D and ES interven- baseline with respect to HbA1c or scores on the PARQ,
tions spoke weekly by phone to plan intervention delivery. DRC, or DSMP. Members of racial and ethnic minorities
Additional efforts assured the integrity of BFST-D. A comprised 37% of the sample. Among the 104 families
Behavioral Family Therapy in Diabetes 933

who were randomized, 92 (29 SC, 35 ES, and 28 BFST-D) groups, and this effect was limited to those with baseline
completed the baseline and 6-month evaluations HbA1c above 9.0%. Hypothesis 1 was therefore con-
reported in this article. The 12 dropouts did not differ firmed with respect to differential treatment effects on
significantly at baseline from those who completed the DRC scores, although this effect occurred only for those
study in terms of any outcome measure analyzed for this in the poorest diabetic control at baseline, and the effect
paper. Compared to those who completed the study, is best described as attenuation by BFST-D of worsening
dropouts had significantly lower SES (mean Hollings- conflict that occurred among the comparison groups.
head index = 41.5 versus 30.7) and were significantly
less likely to be living with both biological parents (45 Hypothesis 2 (Treatment Adherence)

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versus 25%). There were no statistically significant dif- Mean treatment adherence (DSMP) scores obtained for
ferences across sites or therapists on any of the outcome each group at baseline and 6 months, respectively, were
measures at baseline or 6-month follow-up. SC: 53.0 and 51.4; ES: 55.2 and 54.6; and BFST-D: 54.7
and 57.4. The main effect for groups and the group × time
Hypothesis 1 (Family Relationships and Conflict) interaction effect failed to achieve statistical significance.
Table II summarizes that change in PARQ family compos- However, there was a significant group × time × baseline
ite T scores from baseline to 6 months did not differ signif- HbA1c interaction effect [F(2,89) = 3.63; p <.03]. Figure 2
icantly among treatment groups for the overt conflict/skill illustrates change in DSMP total scores from baseline to
deficits, extreme beliefs or family structure subscales. Nei- 6 months as a function of treatment group and baseline
ther the main effect for group nor the group × time inter- HbA1c. Post-hoc analyses showed that BFST-D yielded
action effect was statistically significant. Hypothesis 1 was significantly greater improvement (or less decline) in
therefore not confirmed relative to effects on the PARQ. treatment adherence relative to both of the other treat-
Mean DRC family composite scores for each group ment groups and within both baseline HbA1c ranges.
at baseline and 6 months, respectively, were SC: 25.9 and Hypothesis 2 was therefore confirmed with respect to
29.4; ES: 29.4 and 32.1; and BFST-D: 27.5 and 26.9. The superiority of BFST-D over the other treatment groups
increase in DRC scores in the SC and ES groups and in terms of effects on treatment adherence.
slight decrease for the BFST-D group yielded a significant
Hypothesis 3 (Glycemic Control)
group × time interaction effect [F(2,89) = 4.31; p <.02].
Further, a significant group × time–baseline HbA1c Mean HbA1c levels at baseline and 6 months, respec-
interaction [F(2,87) = 3.27; p <.04] indicated that this tively, were SC: 9.5 and 9.2%; ES: 9.7 and 8.9%, and
treatment effect varied in magnitude as a function of BFST-D: 9.6 and 8.8%. Neither the main effect for groups
baseline HbA1c level. Figure 1 portrays this interaction nor the group × time interaction effect were significant. But,
graphically by presenting change in family composite
DRC scores from baseline to 6 months for youths with
6-Month Change in DRC Family Composite Score

Baseline HbA1c Levels


HbA1c above and below the median baseline level (9.0%)
<9.0% >9.0%
for each group. BFST-D yielded significantly greater 7
reduction in DRC scores than either of the other two
5

3
Table II. Mean (SD) family Composite Scores on the PARQ Subscales SC
1
for Each Treatment Group at Baseline and 6 Months ES
-1 BFST-D
PARQ scores at baseline
-3
Overt conflict/ Extreme Family
Skill deficits beliefs structure -5

Treatment groups -7
(Lower scores = less family conflict)
SC 50.7 (5.9) 50.4 (7.3) 49.7 (6.6)
ES 50.8 (6.4) 49.7 (8.1) 49.2 (7.6)
Figure 2. Mean change in diabetes-related conflict (DRC) scores from
BFST-D 50.8 (7.3) 51.7 (7.0) 51.3 (7.3) baseline to 6 months for the standard care (SC), educational support
PARQ scores at 6 months group (ES), and behavioral family systems therapy for diabetes (BFST-D)
SC 49.9 (6.3) 48.7 (8.8) 48.2 (7.6) groups reported separately for youths with glycosylated hemoglobin
ES 49.6 (6.1) 48.8 (7.5) 48.0 (8.3) (HbA1c) <9.0% and ≥ 9.0%. Lower scores indicate reduced diabetes-
related family conflict. The group × time interaction effect (p < .02) and
BFST-D 50.0 (6.7) 48.7 (8.4) 51.9 (7.2)
group × time–baseline HbA1c interaction effect (p < .04) were
There were no statistically significant between-group differences at baseline or statistically significant. Post-hoc analyses showed that effects of BFST-D
6 months and the group × time interaction effect was not statistically significant. were significantly greater among those with HbA1c > 9.0%.
934 Wysocki et al.

Baseline HbA1c Levels Baseline HbA1c Levels


6-Month Change in DSMP Total Score + 1SEM

6-Month Change in HbA1c (%) + 1 SEM


<9.0% >9.0% <9.0% >9.0%
5 1
4
0.5
3
2 0
1 SC
SC
-0.5 ES
0 ES
BFST-D
-1 BFST-D -1
-2
-3 -1.5

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-4
-2
-5
(Lower scores = improved metabolic control)
(Higher scores = better adherence)

Figure 4. Mean change in HbA1c from baseline to 6 months for the


Figure 3. Mean change in the diabetes self-management profile
standard care (SC), educational support group (ES), and behavioral
(DSMP) scores from baseline to 6 months for the standard care (SC),
family systems therapy for diabetes (BFST-D) groups reported
educational support group (ES), and behavioral family systems
separately for youths with HbA1c <9.0% and >9.0%. Lower scores
therapy for diabetes (BFST-D) groups reported separately for youths
indicate improved metabolic control. The group × time–baseline
with glycosylated hemoglobin (HbA1c) <9.0% and ≥ 9.0%. Higher
HbA1c interaction effect was statistically significant (p < .05). Post-
scores indicate improved diabetes self-management behaviors. The
hoc analyses showed that both BFST-D and ES yielded more
group × time–baseline HbA1c interaction effect was statistically
improvement in HbA1c compared to SC and that this was limited to
significant (p < .03). Post-hoc analyses showed that BFST-D yielded
youths with baseline HbA1c ≥ 9.0%.
more improvement in DSMP scores than the ES and SC groups in
both baseline HbA1c ranges.
mellitus alone to augmentation of SC by 6 months of
family participation in either a 12-session multifamily
as illustrated in Fig. 4, the group × time × baseline HbA1c ES or to 12 sessions of BFST-D. The BFST-D treatment
interaction effect were statistically significant [F(2,89) = had been revised in response to a previous trial in an
3.17; p <.05]. Although HbA1c tended to decline somewhat effort to enhance the effects of the intervention on treat-
for all three treatment groups, post-hoc comparisons ment adherence, glycemic control, and health care utili-
showed that, among those with baseline HbA1c above 9.0%, zation (Wysocki et al., 1997, 1999, 2000, 2001).
improvement in HbA1c was significantly greater for both Effectiveness of this revised BFST-D intervention rela-
the BFST-D (–1.3%) and the ES groups (–1.1%) than for the tive to the SC and ES conditions was evaluated by com-
SC group (–0.4%). Figure 3 portrays the interactive effects paring change in four sets of outcome measures over
of the treatments on change in HbA1c as a function of base- 6 months of treatment. Overall, the results yielded sup-
line HbA1c. The difference between the ES and BFST-D port for the hypothesized effectiveness of BFST-D and
groups did not achieve statistical significance. Hypothesis 3 suggested that the refinements made to the previously
was therefore partially confirmed in that BFST-D was supe- tested intervention did enhance the intervention’s
rior to the SC group, but not the ES group, in terms of impact on certain diabetes outcomes. This adds to a
improving metabolic control during the study. The benefits growing literature describing other empirically validated
of both ES and BFST-D were most evident for those with interventions for this population (Anderson et al., 1989;
poor metabolic control at baseline (Fig. 4). Delamater et al., 1990; Ellis et al., 2005; Ellis, Naar-
King, Frey, Rowland & Greger, 2003; Grey, Boland,
Hypothesis 4 (Health Care Utilization) Davidson, Li, & Tamborlane, 2000; Hampson et al.,
Participants had 10 hospitalizations and 12 emergency 2001; Laffel et al., 2003) by showing that BFST-D
room visits during the 6-month study. Hospital admissions yielded significant benefits to adolescents and their fam-
for each group were SC: 4; ES: 3; and BFST-D: 3. Emer- ilies in terms of several diabetes-specific outcomes.
gency room visits for each group was SC: 4; ES: 5; and Hypothesis 1 predicted that BFST-D would yield
BFST-D: 3. Inferential statistical analysis was inappropriate significantly greater improvement in parent–adolescent
due to the very low frequencies of these events and because relationships (PARQ scores) and diabetes-related family
13 of the 22 episodes were not related directly to diabetes. conflict (DRC scores) compared to SC or ES. Hypothesis 1
was partially confirmed since significant group × time
and group × time × baseline HbA1c interactions were
Discussion obtained. Diabetes-related family conflict was decreased
This article reports the immediate posttreatment results slightly during treatment for the BFST-D group, whereas
of a randomized controlled trial comparing SC for diabetes it increased for the SC and ES groups during the same
Behavioral Family Therapy in Diabetes 935

period. This difference, as illustrated in Fig. 2, was attrib- family conflict about diabetes and for improving treatment
utable primarily to fairly substantial treatment effects for adherence and metabolic control. The observation that
youths with the poorest baseline HbA1c levels and is these effects were more evident for families of those
best described as prevention of worsening of diabetes- youths entering the study with poor metabolic control is
related family conflict that occurred in the SC and ES encouraging, because these are the youths who often
groups. The absence of corresponding effects on more endure prolonged maladjustment to diabetes and a
general parent–adolescent relationships (i.e., PARQ downward spiral of poor metabolic control, psychiatric
scores) may reflect the emphasis within BFST-D on tar- disorders, acceleration of long-term complications, and
geting diabetes-specific problems rather than focusing excess health care costs (Bryden et al., 2001; Wysocki,

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on more general aspects of family relationships. Also, in Hough, Ward & Green, 1992).
distinction to the present trial, the enrollment criteria Mechanisms that may account for the stronger
for the previous BFST trial required that families BFST-D treatment effects on HbA1c and diabetes-related
exceeded specific cut-off scores indicating moderate or family conflict (DRC scores) among families of adoles-
greater family conflict. Consequently, PARQ scores for cents with poor metabolic control at baseline remain to
the present sample were comparatively lower, possibly be identified. Possibly, specification of treatment targets
diminishing the capacity to detect treatment effects on with such adolescents and their families may be more
this measure. Alternatively, study participation may obvious than for those whose diabetes-management dif-
have sensitized some participants to problems in family ficulties are somewhat less salient. When families
communication or conflict resolution that were not exhibit glaring problems with diabetes management,
readily apparent to them at baseline. Each of these inter- modest behavior change may yield more pronounced
pretations is quite speculative at this time. benefits that might be less evident for families with
Hypothesis 2 consisted of the prediction that BFST-D slightly more competence. Stated another way, adoles-
would yield more improvement in diabetes self- cents in very poor metabolic control before treatment
management behaviors (DSMP scores) compared with may simply have had more room for improvement in
either SC or ES. The results clearly confirmed Hypothesis 2 both self-management behaviors and glycemic control.
by revealing a statistically significant main effect for Whether these or other explanations prove accurate, it is
treatment group favoring BFST over SC and ES and by a encouraging that adolescents with poor metabolic con-
significant group × time interaction effect, as shown in trol enjoyed clinically meaningful treatment gains
Fig. 3. DSMP scores were significantly more favorable through BFST-D.
for the BFST-D group than the SC or ES groups within Certain limitations of the study should be noted.
both baseline HbA1c ranges. The feasibility of delivery of BFST-D in most clinical set-
Hypothesis 3 addressed the comparative effects of SC, tings, especially given the constraints imposed by the
ES and BFST-D on change in HbA1c levels during treat- health care economy, is questionable. The study was
ment. As illustrated in Fig. 4, both ES and BFST-D yielded conducted under optimal circumstances that are
substantial reductions in HbA1c among those with base- unlikely to exist in typical clinical settings. Participants
line levels above 9.0%. The magnitude of these changes is were paid for completing study evaluations, intervention
considered to be quite significant clinically because these sessions were provided without charge, and substantial
reductions amount to an approximate 0.7 standard devia- flexibility in appointment times was offered to make
tion difference relative to baseline for the ES group and a engagement in therapy as convenient as possible. These
0.8 standard deviation difference for the BFST-D group. features are unlikely to be feasible in most pediatric set-
Hypothesis 4 was not submitted to statistical analy- tings. Future research on BFST-D should focus on opti-
sis because the frequencies of hospitalizations and emer- mizing its cost effectiveness through such mechanisms
gency room visits were so low. The recorded 10 as reducing the number of sessions, evaluating delivery
hospitalizations and 12 emergency room visits were dis- to multiple families concurrently rather than to individ-
tributed evenly across groups, and most of these events ual families, or supplementation of BFST-D sessions via
were not diabetes related. Further follow-up of the sam- internet or interactive telecommunication methods.
ple for an additional year may clarify whether these Other important limitations relate to sampling and
measures of health care utilization differ among the retention. The sample size was relatively small for a trial
treatment groups over a longer interval. of this type, and 88% of the sample completed both eval-
Overall, the study results suggest substantial prom- uations. As a consequence, the cell sizes for certain of the
ise for the revised BFST-D intervention for reducing interaction effects reported in this article were sometimes
936 Wysocki et al.

small, increasing the likelihood that spurious effects Anderson, B. J., Wolf, F. M., Burkhart, M. T., Cornell, R. G.,
would prove to be statistically significant. However, the & Bacon, G. E. (1989). Effects of a peer group inter-
benefits of BFST-D to those with poor metabolic control vention on metabolic control of adolescents with
were confirmed across three different outcome measures IDDM: Randomized outpatient study. Diabetes Care,
including questionnaires (DRC), structured interviews 12, 184–188.
(DSMP), and biochemical assays (HbA1c). The consis- Barkley, R., Guevremont, D., Anastopoulos, A., &
tency of these findings across different outcome mea- Fletcher, K. (1992). A comparison of three family ther-
sures and methods bolsters confidence that these were apy programs for treating family conflict in adolescents
not spurious results. with attention-deficit hyperactivity disorder. Journal of

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Also, the selective benefits from BFST-D accruing to Consulting and Clinical Psychology, 60, 450–462.
those with poor baseline metabolic control were identi- Begg, C., Cho, M., Eastwood, S., Horton, R., Moher, D.,
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would be stronger had these observed relationships been SORT statement. Journal of the American Medical
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Finally, the present article evaluated a complex Bobrow, E. S., AvRuskin, T. W., & Siller, J. (1985).
intervention with multiple components. Consequently, Mother–daughter interaction and adherence to dia-
“dismantling studies” to identify the critical elements of betes regimens. Diabetes Care, 8, 146–151.
BFST-D may prove difficult. Bryden, K. S., Peveler, R. C., Stein, A., Neil, A., Mayou,
The present article addresses only the immediate R. A., & Dunger, D. B. (2001). Clinical and psycho-
treatment effects of BFST-D on the various outcomes. logical course of diabetes from adolescence to
Although the previous trial (Wysocki et al., 1997, 1999, young adulthood: a longitudinal cohort study. Dia-
2000, 2001) demonstrated lasting treatment effects on betes Care, 24, 1536–1540.
measures of parent–-adolescent relationships, diabetes- Carney, R. M., Schechter, K., & Davis, T. (1983).
related family conflict, and treatment satisfaction, the Improving adherence to blood glucose monitoring
durability of the treatment effects reported here remains in insulin-dependent diabetic children. Behavior
to be confirmed. Follow-up of the present sample for an Therapy, 14, 247–254.
additional 12 months after treatment will be the topic of Delamater, A. M., Davis, S., Bubb, J., Smith, J., Schmidt, L.,
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study of self management training with newly diag-
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This study was supported by NIH grant 1-RO1-DK43802 tration and Scoring Manual. Baltimore, MD: Clinical
to the first author and NIH grants P60-DK20579 and Psychometrics Research.
RR00036 which support the Diabetes Research and Train- Diabetes Research in Children Network Study Group.
ing Center and General Clinical Research Center at the (2005). Performance of the DCA2000 for measure-
Washington University School of Medicine. ment of HbA1c levels in children with T1DM in a
DirecNet outpatient clinical trial. Pediatric Diabetes,
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August 1, 2005; accepted December 11, 2005 Ellis, D. A., Frey, M., Naar-King, S., Templin, T.,
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